thanks for the reply ....
when i saw the speech doc she came to my house and tried to watch me give her a bottle ....
All she did was see dd screaming , fighting , hitting the bottle away etc. She did see her take maybe 2oz tops ( force fed slighty ). Her conclusion was no problems with swallowing !
We are on the waiting list to see the occupational therapist but have been told there is upto a 2 year waiting list
DD has had no tests done by anybody the most that has been done was a quick listern to her heart
as if thats going to solve all problems.
The trouble is as I manage to dream feed her just enough to maintain her weight nobody sees the full problem. My peads exact words were " she looks fine so I expect she is fine ". What aload of total
. My health visitor told me that if I hadnt been dream feeding and adding rice etc dd would of lost alot of weight. Maybe this would of made the pead take notice but Im not prepared to have her starve etc. The 1 time i left her to feed when she wanted she took 4oz in 24hrs and had to be tube fed which was the only thing the pead did..... not that it solved the problem.
i took the tube out after 2 days as she kept gagging onit when fed solids ( worse than normal ) and it was taking over an hour each time ( 6 hours a day sat holding a syringe ) Also i didnt want her to lose what sucking etc she had.
His view seems to be long as shes fed it doesnt matter how , things are ok. He has no interest in WHY she wont feed.
I used to add baby rice to her bottles when she was on normal formula to try and boost the calories and she took this a little better.
Whats the thickner called do you know in the uk?
As for weaning off the bottle its hard as she NEVER drinks unless asleep or VERY SLEEPY. So the only way for me to dream feed is to use a bottle. I do give her sippy cups etc to play with and hope that one day she might just drink but no joy ( think we have every cup on the market as you never know the new cup might just do it )
As my pead has just about washed his hands of us Im going to be requesting a 2nd opinion ( any opinion as he hasnt given us 1 ) Hoping that at least she might get some sort of tests done.
Its gone on far too long now , shes suffering , my 2 year old is suffering and Im wornout and fedup of all the stress.