Author Topic: Milk/Soy Protein Intolerance - MSPI - READ HERE!!!  (Read 181130 times)

0 Members and 2 Guests are viewing this topic.

Offline GraceKellysmom

  • Resident BW Chatterbox!
  • *****
  • Showing Appreciation 104
  • Gender: Female
  • Posts: 2783
  • Location: Oregon, USA
Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #270 on: October 13, 2006, 15:35:20 pm »
Well then, I guess you're saying it's my fault?  ;) :-* I'll edit my other post. Hey if anyone finds fault in that list or some ingredients have changed, please pm me so I can change it!

Here is what my good allergic friend says:
 
"Regular Oreos are dairy-free, EVEN THOUGH some of them say "Kosher-D" which usually indicates either dairy or x-contam. Years ago their manufacturing process changed, but they didn't want to bother having the product recertified (pay for rabbinical supervision) so the "D" remains (only in SOME regions-- Oreos are manufactured in at least 2 different places. Only one has the D.) But they're definitely dairy-free.

Now, why anyone would WANT to eat those disgusting cardboard pieces of crap with caulk in the middle remains another mystery"

I'm sorry, but I had to add in her last line. I know that Oreos aren't that great for me, but I do occasionally eat them because they are yummy! (like at the zoo this week) I bake most of my cookies and sweet breads now so I know exactly what's in them and because we are avoiding most hydrogenated oils and high fructose corn syrup.
Stacy, Mama to
Grace Kelly 01/03, Maximilian Alexander 07/04, Faith Noelle 03/07, Henry Patrick 12/08
and my angel babies

Offline First Time Mom

  • Resident BW Chatterbox!
  • *****
  • Showing Appreciation 91
  • Gender: Female
  • Posts: 4043
  • Milena and Graydon
  • Location: Toronto (Canada)
Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #271 on: October 13, 2006, 17:04:14 pm »
Ami, can you take her to get checked? Don't know how they check in the US but here they take a stool sample and look for microscopic (if not visable) blood. That will determine if milk protein allergy (not a test for lactose intol). I can't remember if I mentioned to you but on the allergy thread pull up the MSPI list from mousesmom, it lists all the "hidden" or unfamiliar names as well as the obvious milk related products. BTW, the under the skin test that allergists will classically perform will not necessarily test positively for milk protein allergy, so don't bother with that type of checking.

Oh, gotta go, my mini monkey is suddenly restless!
<img src="http://lilypie.com/pic/2009/11/12/ijf3.jpg" width="64" height="80" border="0" alt="Lilypie - Personal picture" /><img src="http://lb1f.lilypie.com/RVjWm5.png" width="400" height="80" border="0" alt="Lilypie First Birthday tickers" />[url=http://lilypie.com/]<img src="http://lilypie.com/pic/2009/11/12/ijf3.jpg" width="64" height="80" border="0" alt="Lilypie - Personal picture" /><img src="http://lb1

Offline artistcoggin

  • New & Learning The Ropes!
  • *
  • Showing Appreciation 0
  • Gender: Female
  • Posts: 9
  • Location: California
Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #272 on: October 13, 2006, 19:13:31 pm »
"SOY SUCKS!!"  I love it!  Maybe that could be a fundraiser for the site?  I'd buy a couple!   :D

Offline artistcoggin

  • New & Learning The Ropes!
  • *
  • Showing Appreciation 0
  • Gender: Female
  • Posts: 9
  • Location: California
Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #273 on: October 13, 2006, 19:21:17 pm »
Thanks for all the marg alternative ideas.  At this point, I'm supposed to stay away from aLL dairy & soy, even the fats, oil & lecithin.   I've been doing this for almost 2 months.  The carrot cake was a bad idea, I know, but it was a moment of weakness and a "brain fart" I think- ;).  Anyway, I also read that there is a Kosher margarine (Mother's brand, I think) that is both dairy and soy free, but I've yet to find it.  I live in Central California, and actually my local Raley's is REALLY good about ordering new items for their Health Food section, so I've put in a request, and I'm waiting...

Btw if anyone is interested, I do have a recipe for Soy/Dairy free marg, I just haven't had the time to try it.  I'm part of a yahoo group called FASTERS and someone posted it there, and they all say it's pretty good.

1 cup soy-free shortening (Spectrum has a brand that (at this time) is 100% palm oil)
1/2 teaspoon salt
1/2 teaspoon safe artificial butter flavor (add an extra 1/8 teaspoon for a stronger taste) (Read ingredients carefully and find a brand that is suitable for you/your child. Some contain real butter--so make sure you know what the ingredient names mean!)
3 drops yellow food coloring (optional)
1/8 teaspoon xanthan gum
Melt shortening in the microwave until it is just liquefied. This will take about one minute.
Pour the melted shortening into the blender, and add all ingredients. Whirl ingredients in the blender for a while, thoroughly blending together. The mixture will take on a frothy appearance.
Pour liquefied margarine into a margarine tub or other small container, and place it in the fridge. It will take a while for it to harden.

Offline Stargrl

  • New, But Posting Steadily!
  • **
  • Showing Appreciation 3
  • Gender: Female
  • Posts: 68
  • Location: Sacramento, CA
Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #274 on: October 13, 2006, 21:59:22 pm »
wow, staying away from soybean oil & lecithin is super hard! bummer. Let me know how the homemade stuff turns out!

Stacy, tell your friend that desperate times call for desperate measures  :P  Someone else was giving me grief for eating a fruit roll-up and I said HEY! there's not a lot of treats I can buy at the store, leave me alone! My DH has also been less than overjoyed at my garlic breath now that I eat hummus with everything. However, all it took was me giving him the spiel of all the things he can enjoy that I cannot, all for the health of his son (I mean, our child  ;D ) and he was quick to hush.

that said, you're absolutely right, I need to start *baking* more so I have MSP free stash on hand that I can take out with me.  I got the MSPI guidebook, thanks so much for that link! The recipes are awesome, and I liked her tip about bringing her own hamburger buns/bread when she went out and doing the quick switcheroo. I reallly, reallllly like that idea because I hate going to moderately decent restaurants and feeling like all I can eat is a grilled chicken breast with a baked potato on the side, being able to eat sandwiches/burgers would open up my options.


Offline GraceKellysmom

  • Resident BW Chatterbox!
  • *****
  • Showing Appreciation 104
  • Gender: Female
  • Posts: 2783
  • Location: Oregon, USA
Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #275 on: October 14, 2006, 02:17:37 am »
A lot of times I will bake a double batch of cookies and toss at least half in the freezer. I double my bread recipes too and freeze the second loaf.

I'm going to remember the bun trick for next spring. Like I told you in PM, I'll definately be going dairy-free again when this baby is born.
Stacy, Mama to
Grace Kelly 01/03, Maximilian Alexander 07/04, Faith Noelle 03/07, Henry Patrick 12/08
and my angel babies

Offline artistcoggin

  • New & Learning The Ropes!
  • *
  • Showing Appreciation 0
  • Gender: Female
  • Posts: 9
  • Location: California
Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #276 on: October 14, 2006, 08:08:03 am »
Well, I haven't gotten around to making the dairy/soy free margarine yet, but I made some Vegan brownies today-OMG!!  SO YUMMY!!  I haven't had chocolate in 3 months, so it really hit the spot!  My husband is veru much used to his regular diet and he couldn't tell they were dairy/soy free.  They're really gooey!  Let me know if you want the recipe and I'll post it. 

Offline artistcoggin

  • New & Learning The Ropes!
  • *
  • Showing Appreciation 0
  • Gender: Female
  • Posts: 9
  • Location: California
Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #277 on: November 05, 2006, 07:35:56 am »
Yay!  It's finally back up!!

Offline GraceKellysmom

  • Resident BW Chatterbox!
  • *****
  • Showing Appreciation 104
  • Gender: Female
  • Posts: 2783
  • Location: Oregon, USA
Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #278 on: November 06, 2006, 03:30:53 am »
Yes, if the vegan brownie recipe is milk/soy free, will you post it in the other thread in this forum, MSPI recipes? It sounds yummy. I am headed back to dairy free land already, not tolerating it well with pregnancy. :P
Stacy, Mama to
Grace Kelly 01/03, Maximilian Alexander 07/04, Faith Noelle 03/07, Henry Patrick 12/08
and my angel babies

Offline artistcoggin

  • New & Learning The Ropes!
  • *
  • Showing Appreciation 0
  • Gender: Female
  • Posts: 9
  • Location: California
Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #279 on: November 07, 2006, 04:55:11 am »
Ok, I think I posted it properly.  Here's the link:
MSPI Vegan Brownieshttps://babywhispererforums.com/index.php?topic=76114.new#new

The ONLY problem with this recipe is that it left me with a SEVERE craving for a glass of cold milk!  Lol!


Offline hayleysmum

  • BW Aficionado
  • ***
  • Showing Appreciation 7
  • Gender: Female
  • Posts: 150
  • Location: United Kingdom
Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #280 on: November 13, 2006, 19:46:18 pm »
Hi ladies,

I haven't posted on this thread in ages since we've been doing really well on solids for the past several months.  Last week we went into hospital for dd's milk challenge just to rule out that she didn't have any immediate reaction to dairy.  She passed it without any issues and the dietician recommended that we slowly begin introducing dairy into her diet to see if any intestinal reaction then presented.  We were advised to introduce half a pot of Petit Filous per day and told that any reaction should present within 48-72 hours.

We had no reaction for 5 days and then DD vomited at dinner last night.  As a precaution, I eliminated dairy today.  She had no appetite at all today, including her afternoon bottle, and she didn't touch her dinner.  She refused her bedtime bottle as well, then took an ounce and promptly vomited all over the both of us tonight.  My gut is telling me that it's actually a stomach bug rather than a reaction to dairy as her poop has remained fairly consistent since we started challenging her.

Just curious if anyone else who's done a challenge can share their thoughts.  Our dietician works part-time and I figured I'd get a quicker response here than I would try to get ahold of her  ;D ;D
Mum to Hayley 29 Nov 05 and Philippa 14 Jan 08

Offline GraceKellysmom

  • Resident BW Chatterbox!
  • *****
  • Showing Appreciation 104
  • Gender: Female
  • Posts: 2783
  • Location: Oregon, USA
Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #281 on: November 13, 2006, 21:13:56 pm »
I agree, it sounds like a stomach bug. Try to keep fluids in her and slowly intro gentle foods (no dairy) until she is herself again. I would try the dairy again a week or two after her tummy is feeling better. Intestinal/stomach 'bugs' can really cause havok, and you want her gut to heal before trying milk again.

Most intolerances will present themselves within 72 hrs, but I have heard of them being as slow as a week. My sister's baby did great for 5 days on milk and then broke out in hives and a rash that didn't go away until the milk was cut back out again.
Stacy, Mama to
Grace Kelly 01/03, Maximilian Alexander 07/04, Faith Noelle 03/07, Henry Patrick 12/08
and my angel babies

Offline First Time Mom

  • Resident BW Chatterbox!
  • *****
  • Showing Appreciation 91
  • Gender: Female
  • Posts: 4043
  • Milena and Graydon
  • Location: Toronto (Canada)
Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #282 on: November 14, 2006, 04:38:57 am »
Hayleysmum, we're doing the milk challenge in the morning on the day of dd's first birthday. I'm a bit confused though. The infant allergist we go to had an appointment booked for us in February but I'm impatient and didn't want to wait so they fit us in earlier. We had 2 forms to go get blood work, 1 pre-challenge and 1 post challenge. We got the first blood work done 2 weeks ago but then I called the allergist as I was confused on what to do for the challenge. He gave me huge crap on the phone and told me not to dare give her milk products prior to her first birthday, he then told me to bring her in for the challenge which is a 4 hour appointment :o. He's going to give her milk by teaspoon every half hour and watch for reactions. I tried to explain to him that her reactions (which started when she was 3 weeks old) was lots of blood in her stool and severe crying/screaming (I was eating lots of cheese back then and bfing). I'm concerned because I don't expect her to have any visable reaction immediately following the milk, if there is going to be a reaction I would think it would be the blood again in her stool but that wouldn't show up within the 4 hours. What did your challenge consist of? Did you also have to do blood work?

So, confession time...
I've been dilligent following the no milk product diet for almost 11 months and am still bfing dd 4-5x a day. Last week we went on an all inclusive vacation in Cuba and I had a breakdown. On the last day there, following the buffet for lunch, I, without any control whatsoever, gobbled up 4 cookies and 2 pieces of cake which contained loads of both probably butter and milk. I was in utter heaven and clearly pig-like, wouldn't be surprised if people were staring at me as I drooled and barely chewed the junk before swallowing it. I was like a recovering cocaine addict sitting in front of a table of drugs, all bugged eyed over the desert and nervous that dh was going to catch me. Following the 2.5 minutes of gorging I was filled with utter guilt as I had plunked dd in a high chair next to me and she watched, naive to my crime. I even lied to dh, told him I was going back to the buffet to get a bottle of water, but I knew in the back of my mind what actions were going to take place once I got there. It's been 2 days and no reaction in dd's poo but, from what I know, it takes a while to build up the intestine irritation to the point of bleeding. I won't be doing that again! Thanks for letting me confess and getting that off my chest!   
<img src="http://lilypie.com/pic/2009/11/12/ijf3.jpg" width="64" height="80" border="0" alt="Lilypie - Personal picture" /><img src="http://lb1f.lilypie.com/RVjWm5.png" width="400" height="80" border="0" alt="Lilypie First Birthday tickers" />[url=http://lilypie.com/]<img src="http://lilypie.com/pic/2009/11/12/ijf3.jpg" width="64" height="80" border="0" alt="Lilypie - Personal picture" /><img src="http://lb1

Offline hayleysmum

  • BW Aficionado
  • ***
  • Showing Appreciation 7
  • Gender: Female
  • Posts: 150
  • Location: United Kingdom
Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #283 on: November 14, 2006, 09:42:51 am »
Hi First Time Mom,

We didn't do any blood work but yes - our challenge was exactly the same.  Swabbed milk on the inside of her lips - wait 30 minutes.  Gave her a teaspoon of milk - wait 30 minutes. Then 30 ml, 100ml and 200ml and wait 1 hour post challenge.

I asked the staff doctor (the gastro specialist never showed his face...) why we were doing such a challenge when her reaction was not allergic and she really couldn't give me an answer. 
Then, the dietician arrived after we'd done the 30ml test and asked me what we were doing!  :-\ she said that the challenge was completely pointless for MFPI children and she couldn't understand why it had been booked for us... ARGH!!!!!!!!!!!!!!!  We didn't bother doing the 200 ml but still ended up being there close to 4 hours.

Her advice was to slowly introduce dairy - starting with half a pot of yoghurt per day - and watch for any changes within 72 hours (consistency of stool, vomitting, crankiness, etc/).  She did say that the blood in stool typically only presents in young babies and that we wouldn't be likely to see any at this age (DD is 11 months).  If there were no visible reactions, she recommended increasing the amount every 5-6 days.

If I were you, I wouldn't spend 4 hours in an allergist's office - especially as the kids are strapped to various monitors during the test and confined to a hospital bed.  Most 11 month olds don't quite get what it means to sit still!

Mum to Hayley 29 Nov 05 and Philippa 14 Jan 08

Offline hayleysmum

  • BW Aficionado
  • ***
  • Showing Appreciation 7
  • Gender: Female
  • Posts: 150
  • Location: United Kingdom
Re: Milk/Soy Protein Intolerance (MSPI)
« Reply #284 on: November 14, 2006, 09:52:35 am »
oops - hit post before I was done...

thanks GraceKellysmom - she's still got no appetite today so I'm positive it's a bug (talk about horrible timing!).  It's pretty easy to stay dairy free at the moment - she's not interested in any food  ;D but we'll take your advice and wait a week or so once this bug has cleared before we trial it again.
Mum to Hayley 29 Nov 05 and Philippa 14 Jan 08