Hi,
Well the day after I posted I had a routine outpatients appointment with the local hospital and one of the peadiatricans, I asked my mother in law to accompany me so I could talk to the doctor alone before he looked at my DS and make his diagnosis and be confident HE WAS listening to what I was saying this time! :evil: I had a list of questions ready.
My Ds had to be weighed the nurse put him on the scales and that morning he had just point blank refussed any feed I asked my mother in law to try for me to see if he would take from her as he could most certainly feel my anxiety...HE DIDN'T, (I knew he wouldn't but about a ZILLION people have said ohhh he's probably just feeding off you being worried, it'll sort itself out) anyway he was empty as empty could be and he was dehydrated, the nurse said she was quite new to this and looked absolutely horrified I ASKED HER WHAT WAS WRONG AND SHE SAID OH NOTHING IT'S JUST YOUR SON HAS LOST OVER 1Ib and a half in a week, you could have knocked me over with a feather, i quickly baffled to her everything that had happened she went to see the doc and came out saying he'll see you in a minute I do hope he gets better soon.
Anyway I've been battling on telling everyone I know there is something wrong, look at his colour he's dehydrated etc, etc and everyone's just been saying he's ok, IS THIS YOUR FIRST CHILD ?, anyway the doctor was a bit confussed at first I didn't take my DS in and was anxious himself (For a change) to see him, I said yes in a minute I need to talk with you first!, I couldn't work out why he wanted to see him so quickly at first then he spoke and it hit me, he said unfortunately we are going to have to keep your son in hospital again (for the nineth time) untill at least Friday and feed him by tube he's too weak that's why he's not feeding and we are going to ultra sound him (this was before he even looked at him, of course he was right! however I knew that, that's why I was loosing it, I thought I was going to loose MY BABY!)
Anyway cut a very long story short, nothing came out on the ultra sound I am furious that now I am feeding my DS by tube when at least a month a go if they'd listened to me saying he was intollerant of the milk and it was hurting him, my son would have had the strength to continue sucking the new milk that would obviously have helped him as now after just one week of feeding him 6 ounces every 4 hours 6 times a day by tube, he is over 13lb put on 2lb, his colour is back and I am sooo relieved that I feel he is on the mend, and feeding is enjoyable because at the end i know HE'S eaten. and he is not in pain, Yesterday at one sitting he took 4 ounces by bottle and then the rest by tube, I offer the bottle before hand just incase he wants it himself. I have had a couple of people stop me in the chemist as we can now venture out of the house and say oh what's wrong with him ?, and the nurse said in the hospital be warned some people may be funny if they know it's a feeding tube and ask questions, I said do you know what, I DON'T care as long as my darling DS is here happy and I can feed him it doesn't matter how he gets it, they tried to say oh he won't need the tube for long and I am petrified they take it away and he gets that low again but I wont let them untill I am satisfied he's strong enough and wants to feed by the bottle, he and I have been soooo traumatised by it all... :cry: honestly if you've been through this you'll understand but he must have been in sooo much pain he screamed in fright whenever the bottle came near him, now he smiles holds his arms up for the bottle and giggles at the tube when I change over, what a relief! THANK YOU all for your replies and the support and being such lovely people, we'll ket you know how we get on XX Oh and the diagnosis was just MSPI causing reflux, colicky wind, tummy ache, constipation and runny stools which could have been sorted when he was 6 weeks old now 16 weeks. Anyway for all our sakes, please be rest assured I haven't lost it, I love my DS and husband and know however hard it's been or is going to be the things in life that are worth it take a lot of hard work and are worth fighting for XXX