Author Topic: could there be a problem with oats or barley???  (Read 3761 times)

0 Members and 1 Guest are viewing this topic.

Offline jesie

  • Resident BW Chatterbox!
  • *****
  • Showing Appreciation 18
  • Gender: Female
  • Posts: 827
  • Location: England
could there be a problem with oats or barley???
« on: January 22, 2011, 13:32:49 pm »
DS is currently on a Dairy, egg and wheat free diet.

He has had for months now gluten free oats for breakfast.

I thought all was fine.

He generally poos about 4/5 times a day. 2/3 am 1 pm 1 after tea.
I put all the poos down to his diet which consists of lots of fruit and veg.

Now, here's the twist. Started him on rice krispies on Thursday morning for a change.
He has now gone down to 1 poo a day!

So is he now clogged up from the rice krispies (which contain barley) or was it the oats making him poo?

What would/could barley do to him? He's never had it before?

Today he is grumpy and very cuddly. And is still yet to poo. He's had some calpol but still grumpy. But he is also red checked so his mood and behaviour could be down to teeth.

Was thinking of trying him back on the oats to see what happens tomorrow.

It's just so difficult at this age! 

My two angels will always live on in my heart June11, March12, sweet dreams xxx
[/url]

Offline *Liz*

  • Resident BW Chatterbox!
  • *****
  • Showing Appreciation 394
  • Gender: Female
  • Posts: 16629
  • Living beyond
  • Location: England
Re: could there be a problem with oats or barley???
« Reply #1 on: January 22, 2011, 14:34:04 pm »
Probably the barley - that is a gluten containing food.

Uncontaminated oats do not contain gluten, although the protein is similar. Contamination occurs during the milling process as they mill oats in the same building as they mill the flour.

Although the rice itself can be very constipating so it may actually be that really.

I would doubt the oats if it has been months though.

Offline jesie

  • Resident BW Chatterbox!
  • *****
  • Showing Appreciation 18
  • Gender: Female
  • Posts: 827
  • Location: England
Re: could there be a problem with oats or barley???
« Reply #2 on: January 22, 2011, 15:29:28 pm »
Grrr I never knew barley contained gluten!

My two angels will always live on in my heart June11, March12, sweet dreams xxx
[/url]

Offline *Liz*

  • Resident BW Chatterbox!
  • *****
  • Showing Appreciation 394
  • Gender: Female
  • Posts: 16629
  • Living beyond
  • Location: England
Re: could there be a problem with oats or barley???
« Reply #3 on: January 22, 2011, 15:38:33 pm »
Gluten foods are
Barley
Bulgar wheat
couscous
Durum wheat
Einkorn
Emmer
Kamut
Pearl barley
Rye
Semolina
Slept
Triticale
Wheat (obviously!)

There is something called barley malt extract that some people are able to tolerate, and others can't. It is used as a flavouring.

Offline jesie

  • Resident BW Chatterbox!
  • *****
  • Showing Appreciation 18
  • Gender: Female
  • Posts: 827
  • Location: England
Re: could there be a problem with oats or barley???
« Reply #4 on: January 22, 2011, 15:50:01 pm »
Thanks for that!

Dietitian said we had to test gluten. So I'm thinking we tested and failed?

My two angels will always live on in my heart June11, March12, sweet dreams xxx
[/url]

Offline *Liz*

  • Resident BW Chatterbox!
  • *****
  • Showing Appreciation 394
  • Gender: Female
  • Posts: 16629
  • Living beyond
  • Location: England
Re: could there be a problem with oats or barley???
« Reply #5 on: January 22, 2011, 17:38:22 pm »
It is hard to say really as constipation is not a conclusive symptom. It is not that common in coeliac's for example, but obviously could mean a babies tummy isn't ready yet iyswim?

I think I would get your LO back to baseline and stable for a few weeks and then try again with something a bit more conclusive.

What did your dietician suggest for the gluten trial?

Is your LO allergic or intolerant of wheat? Did you have scratch tests?

Offline jesie

  • Resident BW Chatterbox!
  • *****
  • Showing Appreciation 18
  • Gender: Female
  • Posts: 827
  • Location: England
Re: could there be a problem with oats or barley???
« Reply #6 on: January 22, 2011, 18:18:34 pm »
No tests, they won't do tests, just going by his reactions which is why its so hard to actually know.

It only effects his insides, mood and behaviour.  So i'm guessing intolerant, as dairy effects everything including skin and breathing etc.

She never said what to test him on. Just something shop bought and highly processed. 

My two angels will always live on in my heart June11, March12, sweet dreams xxx
[/url]

Offline jesie

  • Resident BW Chatterbox!
  • *****
  • Showing Appreciation 18
  • Gender: Female
  • Posts: 827
  • Location: England
Re: could there be a problem with oats or barley???
« Reply #7 on: February 08, 2011, 21:03:36 pm »
Hiya ladies, just wanted to repeat my thanks for the help and advice but also update you.

We saw the pead today, he said that he deffenatly thinks there is still a problem with gluten due to the reaction to the rice krispies. He said he thinks its more an intolerance than celiacs as the reaction happened quickly.

He is prescribing us flour etc :)

Thanks again ladies :)

My two angels will always live on in my heart June11, March12, sweet dreams xxx
[/url]

Offline *Liz*

  • Resident BW Chatterbox!
  • *****
  • Showing Appreciation 394
  • Gender: Female
  • Posts: 16629
  • Living beyond
  • Location: England
Re: could there be a problem with oats or barley???
« Reply #8 on: February 08, 2011, 21:07:40 pm »
That is interesting thanks  :-*

I have realised DD is reacting to gluten through my diet - it gives her bottom end wind and long NWings as she can't settle. And constipation.

Also interesting that he was happy to prescribe flour etc without a formal coeliac diagnosis. I didn't realise they did that.

Is he doing blood tests or anything??

Offline jesie

  • Resident BW Chatterbox!
  • *****
  • Showing Appreciation 18
  • Gender: Female
  • Posts: 827
  • Location: England
Re: could there be a problem with oats or barley???
« Reply #9 on: February 08, 2011, 21:22:31 pm »
No, we've had no tests for anything, just my word! Which annoys me really cos I want the testing to know the severity of each problem.  It's all just guess work on my behalf. But then I guess its good they are listening to me, but still.

Having said that. It has taken 3 failed trials and 3 lots of intensive questionings and all my records of observations (i record everything) to get where we are today.

My pead isn't too keen on testing as where G hasn't had the problem foods for such a long time he wouldn't get a true result.


My two angels will always live on in my heart June11, March12, sweet dreams xxx
[/url]

Offline Buntybear

  • Food Allergies
  • Moderator
  • Resident BW Chatterbox!
  • *****
  • Showing Appreciation 130
  • Posts: 9686
  • Just the wheat allergy to go now!
  • Location: UK
Re: could there be a problem with oats or barley???
« Reply #10 on: February 08, 2011, 21:32:13 pm »
Whereabouts are you Hun? It is strange they won't do scratch tests when you think he has a milk allergy. The tests have made a world of difference to us. They can't test for gluten though.

Offline jesie

  • Resident BW Chatterbox!
  • *****
  • Showing Appreciation 18
  • Gender: Female
  • Posts: 827
  • Location: England
Re: could there be a problem with oats or barley???
« Reply #11 on: February 08, 2011, 21:43:15 pm »
I'm south west England.

Don't think they tested for dairy cos his reactions are so clear, so at the mo we know it is severe. But i will push for one next time they say to test him, but it won't be for another year as we've just been given prescriptions for his milk until Jan 2012


My two angels will always live on in my heart June11, March12, sweet dreams xxx
[/url]

Offline *Liz*

  • Resident BW Chatterbox!
  • *****
  • Showing Appreciation 394
  • Gender: Female
  • Posts: 16629
  • Living beyond
  • Location: England
Re: could there be a problem with oats or barley???
« Reply #12 on: February 08, 2011, 21:47:57 pm »
It is true that you can't do tests for coeliac disease unless they have been exposed to gluten for a certain period of time before the blood test. The other test for coeliac's is done via an endoscope looking for duodenal atrophy - but again that reverses on a gluten free diet anyway so I doubt there would be any point.

So that leaves us with following symptoms and signs in our LOs - which is a big responsibility for a Mama isn't it?

Offline jesie

  • Resident BW Chatterbox!
  • *****
  • Showing Appreciation 18
  • Gender: Female
  • Posts: 827
  • Location: England
Re: could there be a problem with oats or barley???
« Reply #13 on: February 08, 2011, 21:53:36 pm »
It is lots of pressure and understandable as to why so many go undetected. It's fair enough if there are no tests, I guess they are trying, I know they aren't going to just magic one up, but a greater support network is deffenatly needed, along with advice on how to spot problems etc. Some people are able to identify that this isn't normal, others can't.
And I have had a fight to get where I am today.

My two angels will always live on in my heart June11, March12, sweet dreams xxx
[/url]

Offline Jimbob

  • Resident BW Chatterbox!
  • *****
  • Showing Appreciation 59
  • Gender: Female
  • Posts: 2703
  • Location: UK
Re: could there be a problem with oats or barley???
« Reply #14 on: February 08, 2011, 22:20:35 pm »
Our GP was happy to prescribe gluten free products due to reactions James was having. James tested IGE positive to wheat ad was not thought to be coeliac.



James has atopic eczema, multiple food allergies, asthma and late talker