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EAT => Food Allergies => Topic started by: EloysH on July 24, 2011, 11:06:31 am
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Anyone who has had experience with above tests or similiar for identifying and treating allergies and intolerances, please discuss :)
A website about NAET:
http://www.naet.com/subscribers/what.html
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Hi Eloise. I am currently getting treatment from a NAET practitioner. I have had about 11 or 12 treatments and self treated about 20 things or so. I have another thread on the food allergies journaling my experience.
It's good to share and support each other. Hugsss
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Wow, that's intriguing! Going to check out your other thread. Closest practitioner to us is 2h away though, which is a lot for a toddler when we have to go 15-20 times :-\
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Cool, We should swap notes.
Well I might share a little of our story and where we are at:
Kai has been on reflux meds since 3 weeks old for pretty severe reflux and I breastfed him for 12 months on a strict ED without wheat, dairy,soy, low salicyalte, low amines, low glutamates, preservative and additive free. It was ovious early on that he had major food issues and gut issues. I followed the Royal Prince Alfred Hospital (RPAH) Elimination diet and managed his and our diet wirth a paediatric allergist and supporting dietican linked in the the Allergy unit at the RPAH. All his gut issues actually went away on the diet and jsut the relfux remained.
I completed some food challenges when he was around 5-9 months old I found out that he was salicylate sensitive and preservative and addtive sensitive, but ok for amines. I never tested dairy until 12 months and he didn't do very well on 1 tablespoon of buffalo yoghurt per day at that age. It took us about 4 weeks to figure out that his crying of 2 + hours a night was not due to props, teeth, sickness, but infact the dairy. He is ok for butter though. I wasn;t satisifed with the medical approach to food intolerances which was basically to keep introducing small amounts in order to build up his toelrance over time. I felt I could do something to support his body and give it what was missing???? so I found a good naturopath and looked into many many alternative therapies and tried a few- acupuncture, kineasiology, osteopathy, NAET and wholistic chiropractic.
I have completed a whole course of NAET for myself and for Kai at around 10 months old. Unfortunately it hasn't cured him. It may have improved his tolerance levels but he certainly cannot tolerate much dairy, limited salicylates, limited preservatives and little bits of wheat only. The practioner said that if he wasn't "cured' even though he shows as "clear" then we should pursue leaky gut however his gut is actually in very good health from a pooing perspective and he is not windy at all. I am thinking of getting him retested soon as the poor old practicioner thinks we are doing ok I guess.
My naturopath's take on it (who is my most trusted health advisor right now) was that the NAET only strengthens the immune system however cannot compensate for the daily load of toxins entering the body through the environment and foods - and for Kai, he seems to have issues detoxifying - that is one theory behind food intolerances. We suspect he hasn't developed all the enzymes he needs for metabolising foods yet too. Thus he is on supplements to assist his immune system and help detoxification.
So I have been pursuing kineasiology and chiro treatments for him again. The kineasology has turned up that he is not producing certain chemicals requried for adequate detoxification and thus I have tweaked his supplements a little to try and compensate for this, basincally switched his B6 to a pure liquid form and upped his glycine. I wish I could get a copy of the diagram showing detoxifcation pathways in the body and the chemicals that are produced and converted along the way (biochemisty seems so interesting now). Vitamin b6 seems to be a pre-cursor to so many of these!
Anyway, that's where we are at with managing food intolerances.......
anyone want to share experiences with, NAET, igG testing, kineasiology?
We never did IgG testing because it cost $400 and my naturopath said that it only follows one of the food intolerance pathways so you may get false negatives. I am not sure how accurate the positive results are though? My dietician and doctor of course said they are totally unvalidated :P
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Big hugs to you and salute for the challenge of handling the intolerances and seeking treatments. Just a quick question now: what do you mean by a whole course with NAET? And did your practitioner retest with combinations and retest what was treated when symptoms show again?
I don't have much time to type now. My symptoms went away pretty much about 6 weeks ago but then they came back upon new allergens. I just got tested with combinations and they seem to be the culprit for now. That's why I ask.
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<<<<waves to all>>>>
As most of you know, my DS had IgG testing done maybe 3-4 months ago. Found he was highly intolerant of cow's milk (whey portion especially) and almonds and moderately so to peanuts. We had suspected all since when we took his bottle away at 20 months or so he stopped drinking milk and shortly thereafter started sleeping better, pooping somewhat better, etc. But he was still having regular yogurt and pizza, etc. When we got the results back and cut out all cow's milk products completely he started sleeping MUCH better, poops cut down to 2 times a day most days (instead of 3-5 enormous ones), was less congested, less moody and eating better. We had also suspected peanuts and almonds after he'd have explosive diapers after either.
He used to get hives/rashes from coconut and from squash/pumpkin as well - and BAD NWs and diaper rash from the latter as well. But those did not show up on his tests. Perhaps they are a different sort of reaction and/or it had been too long since he had ingested those products (he hadn't had them in 4-6 months at least). He was also IgE tested but nothing positive there.
Our practitioner says that if something is negative but you are still seeing a reaction to cut it out for 3-6 months before trying again - it could be another sort of reaction other than IgE or IgG. She strongly believes the positive results as she has seen amazing results with her patients and her own son! I myself am going to see her at the end of August and get tested as well. And a friend of mine had her two sons go. One was found to have strong intolerances to milk, wheat and egg. And since removing those from his diet his congestion is 99% better! He used to have constant ear infections (then got tubes), then asthma, then needed adenoids removed, etc but was still congested before the dietary changes.
Have to run but will try to post more later and will definitely be reading along!
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Hi ladies,
Eloise what a journey!!!Phew! I’m glad things have improved for you and that you now know most of Kay’s triggers/intolerances.
Wow, that's intriguing! Going to check out your other thread. Closest practitioner to us is 2h away though, which is a lot for a toddler when we have to go 15-20 times :-\
Vikki, that is the main reason we are trying to treat the whole family together. The closest practitioner is approximately 1 hour away from us, so we are trying to make the most of the journey. 2 hours would be pretty hectic with a toddler!
Karen, I’m also amazed by Matthew’s improvements! :) I hope you can re-introduce some of the culprit foods very soon!
DH and I are currently going through the NAET treatment. I have serious allergies to all kind of pharmaceutical drugs and conventional allergists and immunologists can’t treat or even fully understand my condition.
My DS has been through a whole course of NAET treatment for his eczema and eyes’ discharges (both of which conventional doctors failed to treat). We managed to sort out the eyes’ discharges. The eczema has improved a lot but it hasn’t gone away. I instinctively knew there was some other stuff to be looked at. Unfortunately we don’t have a Naturopath. I could search harder for one but we don’t have the money right now because we have been spending a fortune with our treatments! I have avoided dairy in the past to try and heal M’s eczema (before treating M with NAET) to no avail. I wonder …
1) if I should try and avoid dairy again, now that his immune system is stronger after the treatment?
2) I also thought about asking the NAET practitioner to use Kinesiology to ask questions about what may be causing the eczema and then I could avoid those substances/foods for a while until he outgrows it?
3) I wonder if you, lovely ladies, mind helping me coming up with a list of foods and substances more likely to cause eczema. After I have a list I will book my DS a last appointment with our NAET practitioner to try and get an answer about what to avoid until he outgrows his intolerances.
Eloise, you seem to have a lot of experience with NAET, Kinesiology and others approaches, which I’m not very familiar with such as IgG. What do you think about my ideas above? What does your Kinesiologist do ATM? Does she/he ask questions about Kay’s conditions? Is that how you found out about the under production of chemicals for detoxification? I also have problem with detoxification. My liver was very weak before I started NAET and now I can eat red meat and drink red wine without feeling sick. I think this is one of the main reasons for my allergies. My body find it hard to detox pharmaceutical drugs through my liver.
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Ok. Back to give background. I had about 9 months of repeated tonsillitis, with fever which got up to 40C in the last two months of that period, sinusitis, overall back pain and muscle pain. Had referrals to internist and then to an Ear Nose Throat specialist and had CT scan as ENT was determined to remove my tonsils! Turned out that my IgD was double of normal range and my tonsils and sinus were all clear even 4 days after the ENT checked them and told me that I needed surgery. His recommendation was to seek acupuncture to improve my immunity as they all believed that it was bad luck to have repeated infections of the same kind.
Kilkoz, Chris, on here suggested me to go off bread as it was causing her problems and they went away just by eliminating wheat products. I tried and didn't get infections for 6 weeks and I ate bread again for 5 days and infections came back. So I concluded that the bread did cause something but were there other things as I wasn't feeling particularly healthy even without the infections?
I heard from a friend 6 months prior to the discovery that her lifelong eczema was completely cured through NAET and if my mysterious illness didn't go away itself, it's perhaps worth trying.
I told the internist about the bread elimination and she tested me on IgD but she couldn't tell what caused the hyperactivity and closed my case and wished me luck.
I started going to NAET and it's all sumarised in my other thread. At this point, I can eat bread without problem. I am not allergic to honey as tested by NAET but I'm reacting badly to the honey we eat daily! so I will have to treat it. I was having infection symptoms the whole of last week and now I have the muscle pain, back pain and stomach bloating as I type.
Hugs to you all who are suffering from allergies!
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Posted the same time as Koe.
I was having infection symptoms the whole of last week and now I have the muscle pain, back pain and stomach bloating as I type.
So sorry to hear you are feeling poorly again :( It is so frustrating :(
((((hugs))))
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Thanks, Grant. If you gut feeling is dairy, I think it's worth eliminating for 2 weeks and then reintroducing it and see if it makes any difference. Hugs to you, too
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I wish I could get a copy of the diagram showing detoxifcation pathways in the body and the chemicals that are produced and converted along the way (biochemisty seems so interesting now).
I dropped my Dietetics degree 10 years ago before moving to England and Biochemistry was indeed my favourite subject! You can find a lot of info like this in biochemistry books. It is mind blowing! :)
If you gut feeling is dairy, I think it's worth eliminating for 2 weeks and then reintroducing it and see if it makes any difference.
I don't really have a gut feeling for dairy tbh. M seems to do well with dairy, although I limit his dairy intake as IMO dairy is not very good for you. I normally give him rice milk and/or coconut milk to drink but I allow him to have cheese, butter etc...
I have heard that dairy could be a cause for eczema. Perhaps it would be better to get him tested through Kinesiology before I cut anything???? That's why I was asking for help with a list of culprits.
You mentioned that your friend got cured for eczema with NAET. What was her allergen/trigger?
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My friend is on long vacation now so I can't reach her. I remember that she had eczema and hay fever and was sneezing every morning.
According to the living pain free book, commonly seen allergens for eczema are:
Basic ten (egg mix, calcium mix, vitamin C mix, B complex, Sugar mix, Iron mix, Vit A mix, Mineral mix, Salt mix and Grain mix), proteins, milk products, Vit C products, wheat products, sugar products, fish and shell fish, nuts, prescription drugs, vitamin supplements, herbs, trace minerals, fruits, corn, starches, chromium, parasites, city water, vegetable and animal fats, chewing gums, candy, chocolate, food additives, cosmetics, body lotions, detergents, fabric softeners, fabrics, carpets, pets lactic acid, sweat, heat, humidity.
From my personal experience, I started having eczema only late May. It was much better after I got treated for dust mix and dust mite combination but the eczema shifted location on my body and it was bad. I then treated grass mix myself and the itch was gone completely. That was on 30 jun but the skin still feels rough at some parts. So for me, the allergens that caused it are not on that list.
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M was already tested for most of them???? He was not tested for chewing gum and candy as he doesn't have them and not for pets lactic acid. I will try to make a long list before I book the appointment.I was thinking dairy, SLS and not sure what else????
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Sorry on my phone and posted before finishing by mistake... Although I can still put those which he already tested strong on my list as the appointment will be more about asking what to avoid instead of looking for allergens he already tested strong for. Thanks Koe :)
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Since soy is also a protein and it's on the list what about cutting soy? Soy causes big reactions here, maybe even more so then milk.
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Thanks Sherry :) do your los also have eczema? If so what do you think triggers it? We don't use soy in our house. Of course there is the hidden soy everywhere including in cattle feed. But those are hard to avoid. Luckily DS doesn't eat meat :P
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Just a quick question now: what do you mean by a whole course with NAET? And did your practitioner retest with combinations and retest what was treated when symptoms show again?
The practioner cleared basically all foods she could think of including many known combinations. Kais were finished around Feb this year with no hard evidence either way as to whether NAET had helped or not. Kai was on a very restricted diet already, and I was slowly liberalising his diet based on the protocols set by the Allergy unit of the RPAH (its done very slowly). I was not aware that his NW'ing was linked ot the foods at the time either.
I guess now that we do have evidence that he is still reacting to many of the things he was desensitised to, then its time to go back. And thanks for the idea :)... I had given up on NAET really, but maybe, there is just some tweaking to be done. Our practioner is only 5 mins away and lovely too :)
What do you think about my ideas above? What does your Kinesiologist do ATM? Does she/he ask questions about Kay’s conditions? Is that how you found out about the under production of chemicals for detoxification?
I have zero experience with eczema. I think that if it were me I would like to try some kineasiology to try to narrow it down as I *think* that eczema can be caused be so many foods and environmental factors. I guess the IgG test might be quite a good diea too if not too expensive.
For Kai, to determine the issues with detoxtification, the chiropactic kineasiologist has a suitcase full of vials containing all the chemicals involved in detoxification in the human body and gives then to Kai to hold one by one asking the body if it is deficient in this particular chemical. If so, she looks up the vitamin/mineral required to produce/clear out this chemical and then prescribes that to Kai to take. B6 is required for so many of the processes. She does the same for hormonal reactions. She also specifically treats his stomach for reflux and does cranial adjustments - she is a chiropractor. She has used neuroemotional technique a few times also.
I think with NAET though, its all or nothing. That's why I am probably going to go back, we have spent alot of $$ already what;s a few more?
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Thanks Eloise, :) Basically your chiro uses kinesiology the same way the NAET practitioners. I was just wondering if your Chiro tested in a different way, iykwim?!
I also think it’s a good idea to go back ;) I will def take my DS back too. My practitioner also mentioned that she would like to test antihistamines and another few other vials on M.M’s treatment ended 6 weeks ago. I think I will book it for next week. I wanted to make sure I gave his body time to clear the eczema.
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I'm really new to all this allergy stuff.
What is the difference between IgE and IgG ? What is the difference between both of the tests (what's involved)?
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Eloise, what is your personal experience with NAET then? Did you fully recovered from them? Can you test kai yourself? It says in the book that once we know how to self test, we can test everything before we eat to avoid nasty reactions. It implies that it's possible to come across new allergens.
I hope someone can shed some light on the tests. Sherry Lynn, what do you mean by egg isn't on the list?
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I posted that in the wrong place, sorry :)
I forgot to answer the eczema question though. Neither have had in in quite sometime. Actually, once I stopped bathing them daily it went away :)
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Eloise, what is your personal experience with NAET then? Did you fully recovered from them? Can you test kai yourself? It says in the book that once we know how to self test, we can test everything before we eat to avoid nasty reactions. It implies that it's possible to come across new allergens.
Well I just did the NAET for overall well being.. I had such a hard year on my ED BF'ing Kai. I suffer pretty bad hormonal skin acne and also mild wind after eating some foods. (who knows which foods though). My skin is mildly better, so I really have no hard evidence as to whether it has helped. How can I test Kai myself? If its through the arm thing, I really don't have a feel for it, I think I am cheating all the time!
Shery i am reptty vague on IgE and IgG but as I understand it, IgE antibodies are present in elevated levels in the body if a type 1 allergic reaction to the foods are present. You can be specifically tested for egg, peanut or dairy allergy with this test. IgG however is anthoer antibidy that it thought to be elevated in food intolerant people. As I understand there are many pathways for food intolerance and this is juist one of them, some people might not have raised antibodies but infact but a frayed nervous system or else lack of enzymes for digestion.
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Eloise, so they didnt find any allergies in you? I wonder if it's worth finding another practitioner for you and Kai. How did you treat and did you read any of Devi Nambudripad's books? Did the practitioner teach you how to self test? Sorry to have so many questions. I am still now at the end of the treatment and so wonder when should it be considered complete? She still found more allergens after 30 or so treatments. How do u fake it hehe?
I also wonder if the problems are no longer allergies, then perhaps Chinese herbal medicine and/or acupuncture might help. My acupuncture doc has treated very young patients.
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I am still now at the end of the treatment and so wonder when should it be considered complete? She still found more allergens after 30 or so treatments.
I also wondered about that Koe? When is it time to stop???? It is a bit confusing at times???? I read on the NAET website that” if you don't see improvements after 15 sessions perhaps NAET is not for you?”
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Whoops I meant "not" at the end of treatment. Grants, that would be what I meant when I mentioned to you that Dr Devi herself always treats the first 15 elements, ie, 15 sessions.
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So how many sessions have you had Koe? Do you see improvements ? I think the fact that you don't need antibiotics to recover from your episodes is a great improvement! :)
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I finished the first 15 elements after 8 sessions as I only got treated on the ones I was allergic to and I was really feeling better and better per week. Until after the 8th session, I started doing self treatments quite aggressively, about 6 in two weeks and I felt weak and tired and then other new reactions appeared.
I have had 12 sessions and treated about 38 things, that was a rough count, so I self treated 26 things in the last two months! Wow... No wonder I am so exhausted!
The fact that I don't have infections 3 times a month with high fever and bedridden and no antibiotics nor acupuncture is indeed a big improvement. Thanks for putting me in the right perspectives xx
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I was treated for the first 15 elements, probably reacted to half of them. We also went into a few other things like hormones and food chemicals and combinations. Did not touch environmental allergins. I feel that I suffer less cramping and bloating after eating.. that's about all I can fathom. I was not in any major ill health before starting though. I had been dairy/wheat/preservative/moderate salicylate/ free for 12 months in order to breastfeed, and I felt I was in much better health and felt "pure" on that diet. I feared my body would go in overload once I went back onto a "normal" diet. So that's why I got the NAET done.
I spoke to Kai's NAET practioner today. She sid she has taken him as far as she can go. She is happy to retest him, even though everything was "clear" when we stopped treatment. She said she was worried that his reflux medication might be having an effect on his body balance and thus maybe why he is still reacting to foods. I told her that he will be on this medication for some more months now.. since he failed his wean. It's a pity that NAET can't cure reflux. So not sure what to make of it.
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Hugs, Eloise! She might be right and perhaps Kai is reacting to the medication also. It Might help to keep a food journal from now on to see if you can see a pattern. Perhaps his diet is more varied than when he was receiving therapy, it might be a good idea to bring along foods that he eats to test. I was tested no problem with honey with their test kit but I am allergic to the honey I have at home.
I had iBS long time ago also and discovered about acid forming foods vs alkalis forming food. Not sure if you have investigated through that path yet. If not, maybe worth taking a look at. Xx
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Hi ladies,
Some of you might know that M has lots of sleep issues. I have thought many times that it could be food intolerances but I’m not sure to what ???? He has been cleared through NAET but taking into consideration Eloise’s experience NAET might not be enough. I have never had food intolerances/allergies when I was little and I don’t think DH had it either. M was not a reflux baby and I didn’t have any problems breastfeeding and he was also fine with formula. He also was OK while weaning from 6 to 9 months. The sleeping problems only started around 9 months. I mean, he was never a good sleeper. I had to teach him how to nap for longer than 30 mins with BW techniques and he was doing fine between 6 and 9 months.
I have tried a dairy free diet in the past for 6 weeks to try and clear his eczema but his sleeping pattern didn’t change when he was off dairy. One of the weeks he was off dairy we had visitors from overseas and he STTN for the whole week but we were super, mega busy sightseeing etc… after they left NWs started again so the STTN was due to being tired and not because of the dairy free.
I’m booking a NAET appointment for him next Friday. It will be mainly to try and find out what he should avoid to help clear his eczema( I know for a fact that the eczema gets worse in the warm weather) and I also want to use Kinesiology to ask questions about his sleep. I will ask the practitioner to test him for Serotonin and Melatonin to see if there is any imbalance there.
Any thought about the food intolerances and sleep issues?
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We all had our NAET appointments yesterday (Friday). I wasn’t planning to get DS treated, as I booked for him next week, but while DH was having his’ rest period’ for his treatment I asked the practitioner to test DS for Melatonin, just for fun. He was indeed very weak for it in all levels! So she treated him then and there as he was in a good mood! :) Next week I have a long list of things to test on DS for the eczema( Koe’s suggestions plus SLS and histamine) and she will also do the questioning about what to avoid for his eczema. I have a list for the eczema and a list for sleep issues. So I want to check Serotonin and Dopamine as well next week as it is part of my’ sleep issues’ list.
As for me…. I’m still detoxing from the drugs I have the first reaction in 2007. That’s why I’m feeling soooooo terrible all the time :( she said it can take up to 3 months for my body to detox it all. So yesterday she treated me for’ Iron mix’, it has been on my list of allergies/imbalances but she hasn’t treated it yet as my priority is to treat my drugs allergies. Let’s see how it goes.
When is your next appointment with NAET Koe and Eloise?
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I had mine last thurs and then a huge allergic saga from fri. Just wondering how
Eloise is?
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So she treated him then and there as he was in a good mood! Smiley
Yay! Sounds promising. Have you had any other appointments yet? I would think that if someone has eczema, that foods should be looked at very closely as you are.
I didn't take Kai back to the NAET lady. She has moved practices far away, and she is reluctant to keep treating him whilst he is on the meds.
I am getting as similar treatment done with the chiro anyway, she has the full wad of suitacases used for NAET and does do NAET, but she is not trained by an official NAET school. Anyway, the chiro treated Kai for chemical created in detoxing in the body, (basically cleared the blockage) he is not making enough of it.... and prescribed a different B6 vitamin - pure liquid to take for 2 weeks to help his body produce more if it. One theory behind food intolerance as that the bdoy doesn't have all the enzymes needed to detoxify foods properly namely natural food chemicals, and thus the liver goes into over time as toxins build up. So she wants to work on the detox cycle for a while. I have to admit, his sleep has been even better since we switched to this supplement ( 2 weeks ago). We are nearly finished taking it and I am planning to go back in two days for follow up so see where he is at - well what his body says. We will continue the B6 till he is 2 years old anyway, as it one of his key supplements, B6 is required for so many parts of the detoxification process, I want him to have all the help he can get in that area.
Another thing is that I have a new wholistic paediatrician for Kai and we are booked in for next week. I am pretty sure he will suggest to do the IGG blood test and I am pretty sure we will spend the money to do it.
I had mine last thurs and then a huge allergic saga from fri.
What happened love?
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Hehe u read mine now and I just caught up here. Try asking the chiro also. She must know kinesiology to e able to help you! I hope you get to the roots of the problem soon!
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Eloise I will post my other thread about M’s sleep here as I don’t want to confuse the discussion on this one. I posted his progress about the Melatonin treatment today on the last page here
http://babywhispererforums.com/index.php?topic=211545.225
In short- he is sleeping better :) , *touch wood*
Eloyse Have you had any other appointments yet? I would think that if someone has eczema, that foods should be looked at very closely as you are.
As for the eczema he had an appointment last Friday and we tested loads of things Ie: food colourings, milk protein, acid lactic and many other things. He was weak on the food colouring blue but it was just a booster not a full treatment. He was found to be weak on ‘cinnamic acic’ which occurs in most foods that he likes and it’s linked to eczema and Psoriasis. So she treated him on that last Friday. We still need to test humidity, histamines and other things but we will do it as we go along as he gets very impatient if we test too many things in one go.
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**touch wood*** then!!
We had a horrific night last night. I decided to try avocado on him again, as i have suspected that he can't toelrate it and it gives him a rash, it is a very high salicylate and he currently eats moderate to highs. Anyway he had some for breakfast, and by afternoon had a horrible rash around his cheeks. Then last ngiht he woke 4 times, each time cuddled back to sleep his tummy seems very hard and cramping and he had a bit of reflux :-\ So I am quite sure it was the avocado, nothing else was new in the diet for about a week now. I just wanted a confirmation for my mind, that really he can't tolerate very highs - and we got it.
Anyway, from a NAET perspective he has never ben cleared for avocado but has been cleared for salicyaltes about 3 times. So I am wondering if one needs to do many foods on an individual basis, If so, his treatment would be far form over as the practicioner seems to think! He still reacts strongly to dairy, what could be going on there - do you think it might be just a combinaion that needs to be done..... ghe has had a few dariy combination done already plus all the individula parts of milk done individually like lactose, caesin, milk mix, goat milk etc. I think I will try to follow this up witrh the wholistic chiro who also knows NAET.
I had the chiro appt yesterday and kineasiology confirmed that he still needs to be on b6. Well we already know that. She also did some NET and sorted out his SA - we went away for the weekend and has been clinging since. I have to say he has been happy to fall alseep on his own since.
just a question on the self test. How can one self test for a surrogate - eg. Kai?
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Eloise, I am so sorry that he had such a strong reaction still. As you have read my thread, I talked to my practitioner, she strongly recommends me to start treating the food I eat. It was over the phone so she didn't explain in details as to why it's necessary. The book does say for people who are very allergic and sensitive, they will need to treat the food they eat in a day over a period to get them all treated.
I started doing it last night and I woke up without back pain. I had this weird back pain all the time and in particular the last two weeks except one day. So I know this isn't a back pain from movement, it's from food.
I am interested to know how you can test and treat as a surrogate, too. This will be a question for your NAET or chiro. I suspect DS has some minor form of allergies, his nose bleeds terribly when it's windy.
I will have to go...
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Hi Eloise, I will be quick as I'm on my phone. I think there is loads of combinations that can still be tested TBH. I'm still finding out new things with my DS. For example this week we found out that dry sand makes his eczema much worse but he is Ok with wet sand???? Nursery were the ones who pointed it out to me as his arms looked awful on Tuesday when he played with dry sand but looked fine yesterday when he played with wet sand.
As for the surrogate question I think you will have to ask your DH to push your arm down while you hold the allergen against your DS. I can't see any other way ? I will ask my practitioner about it tomorrow and will let you know. HTH x
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Koe- I'm glad to hear that the back pain subsided ! :)
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Hi ladies, I have loads to update but just don't have the time to type it all. House is a mess because of the DIY and we have to have it cleaned by this afternoon as my mother is arriving for a 2 week visit.
Anyway, I just want to let Eloise know that my practitioner said the same thing about self- test as surrogate. So you need 2 people. You hold DS and DH do the testing or vice versa. HTH :-*
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Just got back from wholistic paed, who uses the IgG test as a diagnostic tool. He has suggested that we do the test, he said that it can yield both false positives and false negatives, but over all it can give more information than not to identify food intolerances. He also said that Kais exposures to casein and wheat have probably been enough to valid for the test. He said you need to be very experienced in interpreting the results its more about the patterns that come up not just singling out offending foods.
I am thinking to go for it, as even though we have a handle on his major problem areas, I still don't know the full extent of his additive preservative problems and also the full extent of the gluten issue Also I tend to doubt myself at times so I am for tests really :P
Another thing, we are also getting scratch tests for environmental allergies for him as well as a stool ananysis for good/bad bactieria balance. He saiod he is almost hoping that he has low e.coli, then we can do something about that, and it would probably help his reflux. He thinks Kai needs to stay away from caesin and gluten until at least 2 years old and not try another meds wean until then!
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He sounds like a good doctor. If you don't have to expose Kai to anything else a
I would say just go for it! Like you said it's better to be sure then guessing his intolerances all the time. When are you doing the test?
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Sounds like he knows what he's doing. I just reread a bit of the NAET handbook. There is a section about patients who have anaphylaxis. As it's high risk to be exposed to the allergen, dr Devi recommends to do blood work for Tryptase, IgG, IgM and IgE. I just wonder if it's worth bringing up about testing the other things to get a very clear picture.
I am not saying that Kai has such extreme reaction but I mean that the other tests also give information about sensitivities and intolerances.
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He does sound like a good doctor! I wouldn't worry about having to expose him to more foods for the test. My DS came up quite high for almonds and moderately for peanuts (in addition to his high dairy reaction), and he'd had extremely little of almonds or peanuts his whole life and none near the time of the test.
Interesting that he said he can do something for low good e-coli. How would he treat that? My DS came up very low in good e-coli, as well as very low in lactobacillus and high in some icky bacteria (but not in anything dangerous/pathological). He's been on Culturelle since for the lactobacillus but not anything for the e-coli?
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thanks for the info and feedback gals! So just to recap, do you think the igG test acutally validated your knowledge that you already had? That's pretty cool that he sounds like a good Dr to you guys, as I said before there are only a couple in this city that are both paeds and specialising in food intolerance and matters of gut health so he was a good find I think :)
Dh is not so sure he wants to proceed with the igG test given the cost and the lack of consistency with results. I told him I would chat to anyone who has had the tests done to see if the results were valid for them. I also have a friend waiting results for her little boy who has similar sensitivities as Kai, and she is seeing the same Dr. Will know how they went in a few weeks time. It is just so much money to spend, but I have already committed the $$$ in my mind ;)
as for the e.coli, I didn't catch the treatment for it, he might have said a supplement he definantly said that it would take a few months to balance out and "possibly" link back to the alleviating reflux and food sensitivites. Sorry, I will ask again but that's not for 6 weeks !! Maybe your naturopath might know of a treatment for low e.coli??
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Yes, I've sent our ND a message this morning about the e-coli issue and will let you know what she says!
TBH, I'm really glad we had the IgG (and IgE) tests done. While he still reacts to a few things that didn't show on those tests, those reactions are much more minor and the tests helped confirm some reactions we had suspected (like dairy) and pointed out others we weren't even aware of (like the almonds). And it shows candida too, which is nice.
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This is the message i just got back from the ND. Perhaps you can email/call your new doctor to ask them how it would be treated? I'm DYING to know!
"I am not aware of any supplement that will give good ecoli. I have asked
this ? of the Genova stool testing lab and they verify there isn't anything.
I'd be interested to hear what she is using. ( maybe PRE biotics? Which
feed the good bacteria? ) that's all I can think of."
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hmmmm I will do my best ot follow up if I can via email :).... otherwise I can try to follow up with my friend first she is due to see him in a week or so and has had the same test done, they will be analysing results...
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Thank you so much - I'm anxious to hear since low good e-coli was one of our issues!
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Just coming across this thread now... one of the ND's we saw suggested the IgG and we still aren't sure if we are going to do it.. (cost factor of course ::) ) It would be to try and determine Ds2's sensitivities, but to do so - they would do the IgG for both Dh and I. The hope would be in finding anything we are sensitive to, and then I can take those things away from my diet, as Ds2 is still exclusively BF.
The IgG for the 2 of us would be $500... the stool test, another $300.. :-\ It's getting pretty expensive, but I just don't know what else to do.
We are following the GAPS diet with very promising results, but things still aren't perfect and I know Ds2's little gut still needs a lot more healing.
I know for sure casein and all grains are out.
Still not sure about these tests, but I feel like I'm not exploring all my options until I've done them, kwim?
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Maybe give the diet some time too hun, it took us 6-8 weeks for Kai to stabilise on the RPAH diet when Ihe was EBF. I would go for the stool test first, it is more scientific. I'll cetainly let you know if the IGG test is helpful for us, we will analyse the results in about 4 weeks though.
Karen, I have sent an email but he hasn't replied, and I know he goes on holidays soon for a few weeks. I also asked my friend who is seeing this Dr and got the same stool tests for her son, but she doesn't know anything about that as they don't have results yet. She sees him on September 20 th next and said she would ask for us. I am thinking that you if you can find a Dr that specialises in Biomedical then they might be able to help with further interpreting the results of the stool sample test for good bacteria/bad bacteria balance?
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Hi Eloise,
DS had an appointment yesterday with our NAET practitioner and I was asking loads of questions about my situation. As you know I have been discharged and I’m self-treating different painkillers under her supervision. I self-treated Paracetamol on Tuesdays and she checked it yesterday and I’m strong again for it. So the self-treatment worked! :D
Anyway, I learned something very interesting yesterday and I want to share it with you as you were questioning about what happens if Kai comes up positive on his IgG test for things that he was already treated by NAET. I asked her: ”Why do I need to self-treat all these painkillers even though I’m cured from my allergies to meds, as I have been detoxed from the meds that started all the reactions in 2007?” She said that even though I have been treated I still need to be a bit conscious as my body still hold antibodies for those drugs for another 2 years. She said if I had a blood test done today I would still show antibodies for all the drugs I have reacted to, hence the need to self-treat Paracetamol , Ibuprofen etc… She thinks I might not react to the drugs I have been treated but just as a safety measure I still should balance my gatepoints ( it only take 3 minutes each time I balance my gatepoints) before and after taking any meds I have already treated.
I found that explanation really interesting as I didn’t know I would still have antibodies for another 2 years! :o So perhaps it would be very useful if you could learn to balance Kai gatepoints as he still holds antibodies for everything he reacted to. Plus balancing gatepoints is very good for general health anyway ;) What do you reckon?
Hope all is well :-*
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Hey Grants, that's very interesting! My practitioner is still on vacation :(.. It doesn't hurt to balance the gates and it shouldn't be hard to do for Kai. Now I wonder if I shouldt do that before eating... Hmmm
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Thanks so much Grants.... will get back later :)
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Koe, I would think it’s a good idea for you to balance your gatepoints before and after eating. If you think about it it’s the same principle for me. I balance before and after taking meds that I have already been treated for. I think it is really worth it if it will avoid a reaction. Although your case it’s a bit more complicated as you might have a few allergens in each meal. It is def worth a try though. I use a stimulator so it only take a few minutes to do it.
Hope your back is better :-*
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I found that explanation really interesting as I didn’t know I would still have antibodies for another 2 years! Shocked So perhaps it would be very useful if you could learn to balance Kai gatepoints as he still holds antibodies for everything he reacted to. Plus balancing gatepoints is very good for general health anyway Wink What do you reckon?
Yep I think this sounds promising :) So I didn't get any time to learn how to self treat at the last appointment with the chiro-kineasiologist. She promised we will do it next time and I have booked a longer appoinment - last one was only 15 mins. She did found out yet another problem with Kais detoxification chains - a can't remember which chemical he's not making but he needs b12 to get it going. Sigh. Another freaking supplement. She doesn't provide that particular supplement either so I have to go find the liquid form.
As you can tell I am weary. :-\
We got the IgG test done and he cried alot. Now the long wait for results. We also are sending the stool smaple off tomorrow so another 3 weeks wait for those results too. An on Tuesday we get scratch tests for allergies. I will be really ed if anything shows up as we have been working on the premise of food intolerances only since day dot.
I am not in the best mood today, sorry :-\
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((((Hugs Eloise)))) it must be really hard to have to deal with all these allergies in someone so young. I hope you are feeling a bit more positive today. Please keep us posted on the tests' results plus the self-treatment. I'm self-treating Ibuprofen today. I will find out if it worked on Friday. xxx
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So many hugs from me too Eloise (and everyone). Have you found the liquid B12? I can get a rec from my ND if you need...
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Adding hugs, Eloise. You will get there!
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Adding more ((hugs)) Eloise.
We decided to try the IgG for both DH and myself. Whether it helps with Ds2 or not, we are both still very curious of the results. We will be getting the tests from the ND later this week.
I know we can get B12 from the pharmacy, you just have to ask for it behind the counter. I couldn't imagine giving my little guy a B12 needle though.. ouch :-\ but if he needs it, it's probably the best way to get it in his system.
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Thanks for the hugs girls :)
I got the B12 today as a spray - will just spray it onto a spoon but need to find out from my ND on safety and dosing for a 17 month old before I give it to him.
We also did the allergy scratch tests. All came back negative, however 4 foods showed a swelling that was not significant. I thought the spots looked pretty big to me though. They were wheat, cod fish, brazil nut, walnut. It will be 4 weeks or so until I get the official conversation with my Dr about it though. I have always suspected wheat is a real problem for him, we have cleared so many combinations with the vials. I suspect as you said we would need to do it all over again with the actual foods. I will not pay to do that however, I will only proceed if I can self treat him.
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Once you have learned to self treat you will be fine. Self treatment really works. I was super weak and sensitive to paracetamol. I used to get awful reactions from it. I self treated it, my practitioner tested me for it the week after the self-treatment and I was strong! So I can say for first hand experience that it works ;)
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Big hugs, Eloise! Self treating is really easy. Do you remember after a treatment, you got your pressure points massaged? That's how you treat. Did she balance your gate points for Kai or did she balance them on him directly? If it's done on you, then u could just do it. I can perhaps scan the couple of pages of the book to email you.
Or can your chiropractor go through it with you?
Thanks for prompting me on salicylates and I am treated now. :*
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who wanted examples of sals foods? Some high sals foods are broccoli, watermelon, mango. Some very highs are all spices, all herbs, sesame seeds.
Yes the both practicioners - NAET and chiro balance gate points on me, the use me as a surrogate arm with Kai touching a part of my body, and he holds the substance. They haven't done massage for Kai on particular acupressure points but they have done so for me at the end of the treatment. am going again next wednesday so will learn it then!
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It is me. Thanks Eloise :) What exactly is Salicylates? Is it a food phenomone?
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Hi Hun,
I hope I answered before. It is a phenol.
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karen:
Finally i have some info for you on what can be done about low e.coli in the gut.
This is a direct quote from my friend, luckily her son has low e/coli too from the results of his BIOMED stool sample for good bacteria/bad bacteria balance
"Hi Eloys
I asked him about about the undergrowth of ecoli and he said that he would prescribe penecillin and follow it up with a targeted probiotic but only if he wasnt' having success DS's other treatments first. He said he would treat the Clostridium overgrowth with targeted probiotics first. He has also prescribed prescribed zinc and he will alter the dose depending on blood test results. He has also prescribeddigestive enzymes. He is testing his urine and blood to work out his copper/zinc balance and also testing vitamin B12/folate/vitamin D/Iron."
This info is coming from a Dr from MINDD org DR. I have included the website for these Dr's for you.
http://mindd.org/serendipity/archives.php/41-Frontpage.html
I have my appt on 4th Oct
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So a few results back from the lab.
1. Firstly, my paed rang me about Kais allergy scratch tests. He answered that yes, the small swellings he had for wheat, cod fish, brazil nut and walnut are mild allergies :o I am still digesting this. I don't really know what it means for Kai except of course that he shouldn't eat these foods.
2. I got the IgG test back for the 210 foods. I did not discuss with the Dr yet. It has not bee interpreted yet. However, I have looked at the results and Kai got reactions ranging from 0-20 for about 20 foods, hoever these are classified as a negative result. I think one needs over 24 to be considered borderline, and over 50 to be counted properly. It seems the test may have been a waste of time, the lab informs me that if Kai has been on immune boosting supplements- which he has that the numbers would be suppressed. Now why wouldn't my Dr have made me aware of this when considering on spending the $$ for the test? >:( I have no idea if he really has a igG response to the 20 foods or if they are really neglible responses and basically that his food intolerance does not invovle the igG pathway. A long wait till 4th Oct Dr appt to find out.
The three main foods that come up were cashews and egg white - he eats these everyday. Then oats and peas. He has had about 10 oat grains in his life, so I find that wierd. I feel that the test is one bug fat red herring. A few foods came up that he has never eaten like clam. But I will give the benefit of the doubt until Oct 4th.
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Oh Eloise, I'm so sorry to hear about the results :( and I'm angry at the doctor on your behalf for not telling you the important detail about the supplements. This really suck!! I also think it's really odd that he reacted to foods that he has never had ??? Very suspicious ? (((((((Hugs Hun)))))))
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Eloise, hugs from me too. Did I ever send you Matthew's IgG report? It's attached here in case not.
BTW, thanks again for the info on the e-coli treatment. When I sent that along to my holistic practitioner, she said that she would never prescribe penicillin/abx unless there was confirmed bacterial overgrowth of a virulent kind (in the case you sent, that applies as the child had clostridium). I am asking her if we need a more targeted probiotic in addition to or instead of the one we are using (Culturelle) and if digestive enzymes would be of any help to us.
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How frustrating Eloise!! Waiting here with you! Was he breastfed? Perhaps y ou ate clams when you were nursing? Shouldn't ask anymore questions until you have a good chat with the dr.
On another note, did u find out how to self treat Kai yet? So you can start with things he eats daily. Hugsss