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EAT => Food Allergies => Topic started by: scarlettsmom on December 06, 2008, 19:28:55 pm

Title: My Total Elimination Diet Journal
Post by: scarlettsmom on December 06, 2008, 19:28:55 pm
Hi, I hope no one minds if I do this.  I want to document what I'm doing w/my diet while figuring out Gwynnie's allergies, and thought this might be a good place.  I hope it might help anyone else who has to go through this, and I could always use extra support!   ;D

So - a little background.  My DD2 is at the least MPI (she is EBF).  She had all the classic symptoms - blood in stool, eczema, painful stomach cramps, congestion, etc.  At first the doctors just thought it was common infant fussiness, but I knew something else was going on.  I wasn't eating any obvious dairy to begin with, but was eating hidden dairy (my LC actually said a baby w/MPI can tolerate the hidden dairy just fine  :o ).  Anyway - my angel baby was having strange episodes that coincided with her diapers having black specks in them.  I decided to cut out hidden dairy as well, things got better but still the dr's didn't think it was MPI.  I ended up having some fig newtons because I didn't realize they had whey in them - DD was right back to square one within a day or so.  I KNEW it was MPI.  So I decided to cut EVERYTHING out.  I was allergic to all foods until I was 2 - the only thing I could tolerate was a soy formula.  I couldn't have anything else so with that type of history I decided to start with what I hoped were a couple of safe foods and move on.  Here's how it went/is going (all the food is organic):

5 weeks old:  Started my complete elimination diet.  Decided to keep chicken, beef (because I'm severely anemic) avocado's, oatmeal (to help keep my milk supply up).  These seemed to have no ill effect on her.

8 weeks old:  Introduced pears - watched progress for 5 days.  Yay!  We have a winner, no obvious issues!

9 weeks old:  Introduced honey (I'll admit not the best choice, but I needed something sweet for my oatmeal and I had a sore throat  :P ).  DD became VERY cranky, got a cold.  Didn't know if it was coincidental or not, but cut out the honey.

10 weeks old:  Introduced brown rice.  Cold symptoms worsened, diapers didn't look good.  Could all be coincidental, but ended up cutting out rice.

11 weeks old:  Introduced apples.  Woo hoo - another winner! 

13 weeks old:  Introduced apple juice - I know, it's apples in different form, but I'm SO incredibly nervous about everything I put in my mouth decided to just do it that way.

14 weeks old:  Introduced blueberries.  This coincided with DDs vaccine (she is on a delayed schedule) which she had a terrible reaction to - got some hives, vomiting all night, fever, etc. (turns out it is grown in a soy culture and that could have been it).  Cold symptoms on top of everything again, and I just can't take any chances, so discontinued blueberries.

Today (16w5d):  Introduced chickpeas.  I've had olive oil a few times and it doesn't seem to be an issue - so made some bland homemade hummus (well DH did).  Mashed chickpeas w/olive oil and sea salt.  Had my first taste today.  We'll keep fingers crossed!  DD is getting over another cold (this is #4!  thanks to big sis who is in preschool!) so I will monitor everything carefully and hope I can add it.

Next stop I think is going to be bananas.  Fruits seem to be going pretty well. 

After 6 months I may introduce wheat to see what happens.  For now staying far far away from wheat, eggs, soy, milk, nuts, fish.

So - there you have it.  My whole diet to date is:  steak, chicken, avocado, oatmeal, pears, apples, apple juice, olive oil, sea salt and maybe chickpeas. 

If anyone is going through anything similar please feel free to join in.  If anyone has any suggestions for my next food I'm all ears.  Anything caloric or with good fats (or both) on the low end of the allergen spectrum would be great.

Also any tips on keeping up my milk supply would be appreciated.  I work from home, so am able to pump sometimes.  To date I am eating lots of oatmeal, drinking gallons of water a day, and pumping once or twice a day after a nursing session to keep supply up.  I am TERRIFIED of not having enough - I've lost a lot of weight, and try to eat lots during the day, but we are going to be entering solids territory soon and I'm so scared I won't have enough for DD.  Melanie was SO generous to offer up her Neocate, that makes me feel better to have that on hand (my ped says to use Nutramigen if needed, but my gut says not to).

Interestingly enough DD1 doesn't have many allergies - none we knew anyway of until last week.  She was on amoxicillin for her first ear infection and had a severe reaction to the penicillin.  Hives from head to toe, wheezing, - had to stay overnight at the hospital, get an epenephrin shot and now has an epi-pen.  Very scary. 

Thanks if you made it this far.  I'll be posting any new additions to my diet and any issues that crop up if anyone is interested!

Title: Re: My Total Elimination Diet Journal
Post by: LucyA on December 06, 2008, 20:41:31 pm
Just want to send some {{{hugs}}} I am in awe of you sticking to this diet for such a long time. Good luck xx
Title: Re: My Total Elimination Diet Journal
Post by: Mashi on December 06, 2008, 20:49:55 pm
I just wanted to pop in with my support as well!  It's tough sticking this out and so many would give up, but good for you!!

One thing does pop into mind -- there is a book called The Specific Carbohydrate Diet, by Elaine Gotschall.  It is a VERY reduced, strict diet that was developed by a biochemist (I am pretty sure she is not a medical doctor) on planning out a diet for IBS, Crohns, and Celiac.  Her theory is that by eliminating EVERYTHING and slowly introducing it again will give the bowel time to heal and little by little get used to these new foods.     While I know that you are not looking to necessarily eliminate all of the things in this book, or for the same reasons,  but you may find some interesting information and things about an order to add foods, or something.  Not sure, but it popped into my mind and so thought I would share!

Good luck and I will be checking here to see how it's all going!
Title: Re: My Total Elimination Diet Journal
Post by: Eden&Connor'sMom on December 08, 2008, 00:37:43 am
If you haven't already, you really should see a nutritionist. With such a limited diet, you could become deficient in a particular area.  If nothing else, to help you determine an alternate source of calcium. I did an elimination diet for 6 months, but it wasn't nearly this strict. I just followed the guidelines posted on this forum to cut out all trace milk and soy. One plus is that I know how to cook for my little boy who may still be intolerant when he's eating table food.  Best of luck.
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on December 08, 2008, 17:15:36 pm
Thanks for the hugs/support!   :-*

Mashimaro - thanks for the book recommendation, I will check it out. 

E&C's mom - you're right, I should see a nurtionist.  I'm very concerned that I will be deficient in some area, especially since I have virtually no calcium.  TBH I'm just afraid of the hassle I'll get for such a restricted diet.  It's similar to what Dr Sears recommends, but most of the medical community will think it's too much, where I really don't see an alternate.  Although my ped is on board, as long as I'm making a concerted effort to introduce new foods.  I will ask around for a nutrionist/LC that is familiar with these types of issues though - thanks for the suggestion!

So - I introduced the garbanzo beans (chickpeas) the other day.  It may have been coincedence but GWynnie was SO much more congested the next day.   :(  I didn't have any yesterday and the congestion seems to be clearing up a little (she still is on the last leg of her cold).  This is where it gets so hard for me.  Do I try again?  Diapers looked good though.  I think I will try a little bit again and if the congestion gets unbearable again I'll discontinue.  I really hope it works out though since it's a great source of protein, carbs and fiber, plus has folate, b6, vit c and zinc.  Well, we'll see! 

Slight vent - am making Christmas cookies w/DD1 today. - Ginger bread men, sugar cookies cut into Christmas trees, Santas, stars, etc.  She keeps asking me to taste what she makes, and of course I have to tell her I can't  :( .  This is where this whole thing just sucks.  Ok, pout over!  I just have to stomp my feet sometimes.   :P

Stay tuned.....



Title: Re: My Total Elimination Diet Journal
Post by: Mydreamcametrue on December 09, 2008, 03:03:16 am
Hello:

Have you tried fortified Rice Milk?  It is fortified with as much calcium and Vitamin D as whole milk is.  Sorry just read your post again and you mentioned he reacted to rice.  Have you tried oranges?  Orange Juice has just as much calcium as milk does also. 

So - there you have it.  My whole diet to date is:  steak, chicken, avocado, oatmeal, pears, apples, apple juice, olive oil, sea salt and maybe chickpeas.

Are you serious?  How do you survive.  I really do applaude you though for doing this to still be able to breastfeed.  I never had the will power to do it.

Have you tired fenugreek capsules to help your breastmilk supply? 

On a side note - My DS1 has a very bad allergy to amoxillion also, not fun.

I want to write more, but gotta run really fast.

Be back... Wendy
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on December 09, 2008, 14:44:00 pm
Hi Wendy.  Yeah, I was realllly hoping the rice would work out because there are so many options with rice (rice milk, rice flour, etc).  I don't know if it was coincendence or not - I am thinking of trying it again in another month or so so I can expand my options.

Haven't tried fenugreek capsules yet - will check it out thanks.

So DD has started spitting up again and seems to not be feeling great (again).  So I don't if it's a reaction or ANOTHER freaking cold.  I also wonder if SOME type of reaction is going to happen regardless every time I introduce something as her digestive system gets used to it?  Since there is such a limited amount that she is exposed to, maybe I am ditching the new foods too quickly?  I'll have to think about it.  Any thoughts on that would be appreciated, because at this point I'm close to taking out the chickpeas too.  :-\
Title: Re: My Total Elimination Diet Journal
Post by: Mashi on December 09, 2008, 14:53:04 pm
I was wondering that as well - if you were ditching the new foods too quickly. By the sounds of it she's reacting to such a variety of things (ie/ almost everything it seems) that could there be something else wrong? Delayed gastric emptying for instance?  I know that it's not just vomiting but congestion and tummy cramps but maybe this is more than a variety food allergies/intolerances?  What has your doctor said about it? Or are your doctors like mine - very unhelpful?

I really hope it's NOT something more serious, but it just seems like such a massive spectrum of food intolerances that it makes me wonder if it's something else?
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on December 09, 2008, 16:47:08 pm
My dr's are pretty useless  to be honest.  Our ped is great, but I had to basically diagnose her and prove my case before they agreed that it's at least MPI.  I have wondered about something else as well - my ped has said because it's so random (the spitting up especially) that she doesn't think it's something tummy related, but I have my suspicions.  I so hope it's not - but pretty much any new food doesn't seem to sit well.   :'(

I've been referred to a wonderful ped allergest.  I think I'm going to start there and ask what they think and then move forward.  Interesting about the delayed gastric emptying.  I've never heard of that - but I'm going to check it out.  Thanks mashimaro...

Title: Re: My Total Elimination Diet Journal
Post by: clh on December 09, 2008, 17:01:25 pm
No allergy advice,  but plenty of {{hugs}} & kudos for you doing this.  :-*

I've learned from the bf boards that blessed thistle in conjunction with fenugreek can be helpful for milk supply.  Otherwise, you're doing all the things I would suggest in that regard.
Title: Re: My Total Elimination Diet Journal
Post by: Mydreamcametrue on December 09, 2008, 22:35:16 pm
Hey there. 

Have you thought about going to a Ped. GI doctor?  Also here are 2 websites that might be helpful for you.

www.parent-2-parent.com
www.kidswithfoodallergies.org

The bottom site, you have to pay a $25.00 yearly fee, but it is so worth it.
They have a recipe base that you can click which of the 8 major allergens you are avoiding and get lots of recipes.

So let's recap..... 

- She is 3 months old and stricktly breastfeed
- Is she a very  fussy baby?
- How are her poops?
- Does she have any rash's?
- How about gas?
- Does she/ has she ever projectile vomitted?
- Is she on any reflux meds?
- How is her day and night sleep?

Sorry if repeating anything, but hopefully we can help you.

Hugs, Wendy
Title: Re: My Total Elimination Diet Journal
Post by: shivi on December 10, 2008, 06:57:14 am
Are you still taking your prenatal vitamins or at least a calcium supplement???

You need these for sure.....

big hugs to you and what you are doing for your LO....}}}{{{
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on December 10, 2008, 15:38:28 pm
Are you still taking your prenatal vitamins or at least a calcium supplement???

No.  :-[  I was told that taking a multi-vitamin of any kind was like introducing several new foods all at once and could cause her issues.  But you're right, I need to at the very least take a calcium supplement.  I'm so embarrassed I haven't even thought of that.  I'm just so overwhelmed.  Thank you for the suggestion. 

Wendy - thanks for the post - I'll get back to you later to answer your questions, on my way to meeting.

Wanted to say that the beans caused MAJOR gas for DD.  So, I am going to consider this a safe food in that she's clearly not allergic (her cold is passing, no excema, diapers looking good) but just make her really gassy and uncomfortable.  I'm going to keep them in the rotation for now, just in small quantities.  Of course I thought last night - DUH, brilliant to introduce beans to a child who may have digestive issues along w/allergies/intolerances, lol - ah well, learning as I go

...will post more later..

Thanks to all who are offering support/advice and lending an ear....

Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on December 11, 2008, 18:04:42 pm
..so went for Gwynnie's 4 month well baby check up today - she's lost a little weight since our last visit.  Went from 90% height/weight to 90%height 50% weight.(she was 10lbs 1oz when she was born!)  We have been referred to a GI specialist.  The ped thinks that outside of the MPI the other reactions are not allergy related, but could indicate digestive issues since she can't seem to tolerate anything new I put in my diet.  I'm interested in speaking with them as it really doesn't seem right that everything impacts her. 

She had been eating and sleeping SO great recently, and then after I added the new food she doesn't want to eat, and her sleeping has really gone down hill.  Sooooo....we will see.  She's still incredibly happy though when she is awake.  Our ped said that we are very fortunate that she has the temperment she has because this could really be way more hellish if she wasn't so easy going.  That's a silver lining! 

...more later...
Title: Re: My Total Elimination Diet Journal
Post by: shivi on December 11, 2008, 23:00:00 pm
more hugs Tari...keep us up to date as best you can.....
Title: Re: My Total Elimination Diet Journal
Post by: Mydreamcametrue on December 12, 2008, 04:24:49 am
I hope you get in fast.  More than likely, they will want to do a scope on her so they can see what is going on.

So I have a question for you:  How are YOU feeling?  With such a limited diet, do you feel healthy and okay? 

I'm just worried that this could take over and you may develop fears of eating anything because she may react to it.  (If you know what I mean).

I think breastfeeding is great and you are very amazing what you are doing, but there are times when babies react to everything and have to be put on special formula's (Neocate/Elecare).  In the end, a mother cannot limit her diet but so much.  You must eat a well balanced meal to provide breastmilk with all the nutrition she needs.

I am not discouraging you nursing her at all, but in the end if she is reacting to everything you are eating, are  you okay with trying a special formula?

Hugs to you and I am sorry she has lost some weight, but 50% is still good.

Wendy
Title: Re: My Total Elimination Diet Journal
Post by: shivi on December 12, 2008, 07:15:31 am
yes, two SDs betwen weight and height is still fine, as in height on 90th and weight on 50th....it's when the gap goes to three or more they begin to worry. As a baby my DS was on 97th for length, off the centiles for head circ and around 50-75th for weight all the time (maybe around the chubby 8-10th month his weight crept up a little more, but no higher than 75th) and since he started to crawl, then run (I think he walked for two days LOL) he's back to his original statistics....

do let us know how YOU are doing...and as Wendy says, there are other options.

more big hugs

Siobhain x
Title: Re: My Total Elimination Diet Journal
Post by: hippychickaquarius on December 13, 2008, 02:06:42 am
Hey!  I've been lurking on these boards for a while, but when I saw this post, I just had to register.  I have a 12 week old who started showing signs of a MPI around 4-5weeks.  After eliminating dairy for 2 weeks, then soy, then wheat and eggs, we still found blood in his stool.  So, I started the Dr. Sear's elimination diet a month ago, and I'm failing miserably at figuring things out.  I'm starting to think rice (one of the safest foods) is actually a problem. 

How is your supply?  I'm worried about mine.  I need to try adding oatmeal, but I'm so afraid to.  DS just seems to react to everything, and I just have a feeling gluten will cause a reaction.

Have you lost weight?  In the past month I've lost the last 14 pounds of pregnancy weight plus another 2 pounds.  I know this isn't healthy, but I don't know what to do!

How do you find a nutritionist?  Is a nutritionist knowledgeable enough about allergies and bfing?

DS absolutely refuses a bottle, and I really don't want to try formula anyway.  I thought bfing was supposed to help prevent allergies!  >:( We have an appointment with an allergist on Tuesday, although I'm not counting on much help.  DS is just too young. 

I'm not dedicated enough to post my food journal, but I'd love to keep reading updates on yours!
-Melinda
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on December 14, 2008, 16:27:03 pm
Hi Melinda - welcome!  Feel free to use this post as a sounding board for yourself as well.  (((hugs))) I'm sorry you and your LO are going through this too.  It's frustrating isn't it.  Very interesting about rice - we appeared to have a reaction too!  But now I'm not sure if it's GI related or allergy related or what. 

Yes - I've lost a lot of weight - I'm about 30lbs below my prepregnancy weight - I'm eating lots trying to keep my supply up and to not lose more than a lb or two a week, but that can be challenging.  Just keep in mind it can take a few weeks for the milk protein to get out of your system and then a couple weeks to get out of his.  I think we saw a big change around 3-4 weeks after going so strict.  If you are introducing new foods I would really go w/the oatmeal or avocados if you can.  I think they have both been helping my supply - and especially w/getting easy, fast high calories in w/good fats (through the avocado).  But I completely understand about being scared to introduce anything, you just never know what the reaction will be.

Wendy and Shivi - thanks for asking how I'm doing.  Wendy - you hit the nail on the head regarding developing a fear of food.  It's gotten a little better - but I've had anxiety dreams where I've had a "bad" food and I'm just panicked and freaked out and trying to vomit to get it out.   :-X  And even in every day routines (like making cookies w/DD1) - I have a moment of panic asking myself "did I like that icing off my finger? did I mix the silverware?"  It is a little worrisome.  Like Melinda I would prefer to not go to formula - however I will be trying a little of the Neocate because I have to know that there is SOME type of back up for DD if my supply diminishes and my frozen stash is gone.  Especially when it's time to start solids - I don't if my supply will keep up - I so so so hope so, but I don't think I can bank on it.

Shivi - what's SD?

We got a GI appointment for Feb. 12.  That is perfect to me - Gwyneth will be 6 months old at that time and either doing much better or very much needing the appointment.  I so hope they don't have to do a scope - that really makes me sad - she's such a sweet little thing, I don't want her to have to go through any unneccesary prodecures.  But it may give us some answers, so we'll deal with it when we get there.  Also - I have been referred to one of the best ped allergists in the area and will be calling him this week to see if when it would be beneficial to come in. 

Last night DH bought a bottle of organic red wine and persuaded me to have a glass.  It was pretty great!  I didn't have to feed Gwynnie until 4 am (from 7) so it was most likely out of my system - but I'm interested in seeing how it goes.  So far today she's been great.  Would love to add wine to my diet!   ;D

Well, we are just trying to stay very positive and upbeat and move forward as best as we can.  For the most part things are going very well - it's when I look ahead that I get very anxious.  We'll just have to take it one step at a time!  We have a weight check soon, I'll let you know how it goes.

 :-*
Tari

Title: Re: My Total Elimination Diet Journal
Post by: Mydreamcametrue on December 14, 2008, 19:47:48 pm
Hi there.  If you she does okay with the red wine, check the ingredients and you may be able to add some of the stuff in the wine in your diet, such as grapes.

my frozen stash is gone - Is your frozen stash at all from when you were eating foods she reaccted to?

I would still try to introduce foods into your diet.  I think it is a great thing you are doing.  Just remember tough you have to stay healthy and strong for her.

Hugs to you...  Hang in there and just keep trying. Wendy
Title: Re: My Total Elimination Diet Journal
Post by: shivi on December 14, 2008, 21:20:36 pm
sd is standard deviation...so on the charts you have 50th (norm of norms), then going downwards, 25th, 10th and 5th and upwards 75th, 90th and 95/97th.

so if weight is on 50th and height is on 90th then you have them 2 sds apart, which is ok. Its when the weight tapers to 25th and height stays at 90th lets say that there may be an issue.

I have had issues with Oscar's head circ (never fit on the 97th centile till 2 yr check up LOL) since birth....so there are kids who are literally "off the charts" at either end and perfectly ok.

more hugs and glad you got to drink the wine.

Siobhain x
Title: Re: My Total Elimination Diet Journal
Post by: MLK on December 19, 2008, 12:15:12 pm
Wow I've eliminated some foods from my diet but I can't believe you've been on such a restricted one for so long! And losing so much weight, it can't be good for you. I think you need to add some fat to your diet, as well as B vitamins.  Some things to try:

chicken liver -  if you have chicken this should be OK, it's got lots of B-vitamins and vitamin A
lamb
potatoes - usually OK, some don't do well with vegies from the nightshade family
quinoa  - high in iron & protein, supposed to be good for milk supply, need to soak overnight and rinse WELL before cooking
Arrowroot - to bulk up your diet a bit
Sweet potatoes/pumpkins/squash/yams
Root vegetables eg carrots, parsnips, beetroot
coconut milk or oil - for added fat and calories. The fatty acids in it are good for fighting infections too
flax seeds - for omega 3 oils. Ground up is nice on top of porridge

You can get extra calcium from boiling up chicken bones to make a broth. But you'd still need to take a supplement, pref with added vitamin D.

You might also want to take a probiotic supplement, you can get dairy free ones.

Hope this helps
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on December 19, 2008, 16:37:55 pm
Quinoa - what a great idea!  I love it, had no idea that it may also be good for milk supply.  Thanks Lan for those suggestions, very helpful.  I'm also going to check out the coconut milk/oil. 

Wendy - no my stash isn't from far back to include the "trigger" foods.  I had to dump tons of milk, it was torture to do! 

Ahh - that makes sense Shivi (regarding the SD) thanks for explaining.  DD1 was off the charts for height every now and then.  Looking back at her records though she and DD2 actually weighed the exact same at 4 months - DD1 was like off the charts height and %50 weight. 

So - Gwyneth has actually been eating great this week.  I think I have a bit of luck on my side because I had an oversupply issue when she was first born and if I have her eat a little more during the day I see a noticeable difference the next day.  So that makes me feel better.  She also apparently is going to love wine just like her mama, lol.  No reactions at all.  I have however decided only a glass for special occasions as I felt a noticeable difference in my supply and don't want to do anything to impact it more.  Darn, and I was so looking forward to a lunchtime cocktail!  ;) 

Title: Re: My Total Elimination Diet Journal
Post by: lisah_12 on December 20, 2008, 21:17:44 pm
Hi everyone.  I've never done this before, but I started an elimination diet monday.  I eat only Turkey, Chicken, rice, potatoes, and lettuce.  My 1 month old daughter has colic and Dr. suspects food allergies and reccommended this diet.  2 days after starting the diet, she was MUCH happier, and actually slept during the day for a few naps.  Its worth it to eat such limited foods to have her happy!  So now I'm at the point where I'm trying to introduce new foods, I had carrots yesterday, but I also had a cup of herbal tea before bed and she's been fussy all day. Now I'm afraid to eat both of those foods.  I know that we're only supposed to introduce one food at a time, so I probably messed up there!  We won't add any new foods now for another 3 days.  I was psyched to find you girls!  I think that if I'm going to stick with this, I'll need lots of support! 
Title: Re: My Total Elimination Diet Journal
Post by: MLK on December 21, 2008, 10:25:10 am
Lisah_12, it could have been the herbal tea, they often have lots of flavourings added.  I drink a plain rooibos tea which my baby tolerates just fine. I've recently introduced a 70% dairy free dark chocolate into my diet and he is fine with it! Bliss!

It's scary adding in foods sometimes, but I couldn't live on such a limited diet. So far I've added back wheat and eggs and he is OK. At first I thought the wheat was a no go, then I realised it was a teething gel that was causing him to projectile vomit. So life is much easier now.
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on December 22, 2008, 00:48:05 am
Hi Lisah!  Welcome!  I'm so glad to hear that your LO had such great results from your diet changes.  Just know that it can take a few weeks to completely clear out if it's M(S)PI (out of both your systems).  It can be very challenging, but I found after the first 2 weeks (I got some headaches too, I guess as my body was detoxing...) it was much much easier.  Are you eating organic?  If not make sure you check the ingredients on the chicken - sometimes preservatives have milk/soy in them.  Good luck introducing more foods!

Lan - WHAT chocolate are you eating????  Is it Ghiradelli's?  Let us know!  That is something I would looooove to introduce someday....ooooooh, I can't even imagine.  Yum! 

Wendy - DD tolerated the wine very well, so took your advise and went the grapes route.  Had some raisins - was really craving them, so we'll see how it goes.  If it's ok then I will continue with some healthier choices.  We'll see!  Keeping fingers crossed.

Title: Re: My Total Elimination Diet Journal
Post by: MLK on December 22, 2008, 09:12:25 am
Tari, I live in Australia and there a few brands that do a dairy free 70% cocoa chocolate. I'm not sure what you have where you  are, but I know Lindt does one here. Sometimes you can find it in the baking section! Unfortunately some babies react to even dairy free chocolate so I'm lucky.
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on December 22, 2008, 13:53:38 pm
Oooh, I love Lindt.  Will have to check out in a few weeks.  You're so lucky your bub tolerates it, that's awesome! 

Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on December 31, 2008, 14:44:51 pm
Just a quick update:  we tried an oz of Neocate last night mixed in w/5ozs of EBM.  As of this morning she seems to have done fine with it, but I don't know how long it would take to see a reaction?  If everything looks good today we are going to try 2ozs w/4ozs EBM tonight.  Keeping my fingers crossed....
Title: Re: My Total Elimination Diet Journal
Post by: Spectra on December 31, 2008, 21:38:27 pm
Good luck Tari, hope it all goes well!
Title: Re: My Total Elimination Diet Journal
Post by: LucyA on January 01, 2009, 18:03:56 pm
Good luck Tari, that sounds promising.
Did you get through Christmas ok with your restricted diet? All the extra temptation must have made it even harder than usual! You're doing such a great job!!
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on January 01, 2009, 18:25:23 pm
Thanks Mel!  And thanks again for sending the Neocate - you're an angel!  :-* :-*

Hi Lucy - Christmas was fine - it's so strange now, I just don't look at food the same.  It's merely fuel to keep me going and keep my supply up.  I did drool over some of the desserts - but otherwise I just had my steak and avocado (and a glass of wine!  woohoo) and enjoyed my family.  Thank you for asking about us and thanks for the encouragement - I appreciate it!  :-*  Also - a bonus was not gaining the obligatory 3-4 lbs I usually do around the holidays, lol.  Hope you and your beautiful family had a great holiday!

So - we tried another bottle last night - mixed 2ozs Neocate w/4ozs EBM.  So far things are looking good!  Oh please please please continue - it would take such a huge burden off of my shoulders to know that I have a reliable backup if my supply doesn't keep up.  We plan on doing 3/3 tonight and if that goes well we will probably let DH do a DF w/the formula most nights to give me a break (I'll pump around that time though) and keep her system used to it.  She's eating well, and it looks like she has gained weight in the last few weeks - she's got the chub back on her legs, woohoo.  We go for her official weight check on 1/11, and I think it will be fine - she may stay in the 50% for weight, but I'm pretty confident she isn't losing...

Will update how the Neocate is going in the next day or so!

Title: Re: My Total Elimination Diet Journal
Post by: shivi on January 02, 2009, 12:32:42 pm
Great news Tari and so glad you made it through the festivities ok.
Title: Re: My Total Elimination Diet Journal
Post by: Mashi on January 03, 2009, 10:02:44 am
Hi Tari
Just popping in to read how things have been going for you. I'm glad to hear that you are trying the Neocate - I know it's really hard to give up on the BFing, I gave in after only a few weeks and it took me about 3 months to "get over it" and that was before I knew that DS has MSPI.  You are such a dedicated amazing woman to be trying this, I am in total awe of that. 

But, at the same time, you need to keep yourself healthy and full of good nutrition as well, and that's just as important for your DD.  Here's hoping that you can keep your supply up until you finally find the culprit and then can resume a close-to-normal diet to keep BFing your DD.  HUGS!
Title: Re: My Total Elimination Diet Journal
Post by: bovi on January 03, 2009, 23:17:59 pm
Hello Ladies, May I join in? My 3month old son has reflux and eczema. I have so far eliminated dairy, eggs, nuts, fish, chocolate, tomato, apple, coffee, hot spices, (beef and pork but those I had not eaten for ages)all citrus fruits, banana.

Now, I have found this thread and I see that I am not enough consequent in following what I eat and I also sometimes thought that a little bit of this or that can not hurt. what a fool!
 I need to reread all these messages, loads of knowledge! Until I figure out how to start the total elimination diet I will add to my no go list wheat and really look into everything I eat!!

will come back for advice tomorrow. greetings and hugs from Luxembourg!
Title: Re: My Total Elimination Diet Journal
Post by: em_here on January 03, 2009, 23:54:00 pm
Wow! I have just read all this thread! You are an amazingly strong woman, I suffer with food phobia so restrict a lot of foods but wow your list is so so much smaller than mine! I admire your dedication and the fact you are striving so hard to make sure your babe is ok! You rock big time!!glad you can use the nepcate too, my mspi daughter thrived on it, she wasn't the best eater bottle feeding wise as didn't like the taste but her symptoms of bad tummy blood in stool etc vanished! Anyhow enough of my rambling! Well done and I will be following along x x
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on January 04, 2009, 00:39:49 am
Thanks Shivi.  On another note - wow, you are close to your little bub arriving - wishing you a smooth and easy birth...

Hey Mashimaro - thanks for the encouraging words - it really is so bittersweet.  At times I think I'm just making things worse continuing BF'ing, and I would be devastated to stop so have to make sure it's not me being selfish, and on the other hand I just want the best for my DD and would feel terrible if I couldn't give her the same BF'ing relationship I had w/my older daughter.  The mommy guilt is intense!  (((hugs))) to you for feeling such angst after stopping BF'ing - you did what was best for you and your bub and that's all that matters...

Hi Bovi - welcome!  Please come here often - I started this for many reasons - to be accountable to myself, able to print off and bring to the doc for a little bit of detail, to get some support from this awesome community, and to help anyone going through the same thing.  I feel like such a freak sometimes when people don't understand why I can't go out to lunch or dinner, or I panic because I can't remember if I licked my fingers after giving my older daughter some ice cream.  There is power in support!  Are there any other symptoms your son is exhibiting? 

Hi Emma Lou - thank you so much for the sweet words!  I'm so glad to hear that your DD did well on Neocate.  Must have been such a big relief.  I can relate to the food phobia - have had issues w/food myself before this and Wendy really made me think about what the reprocussions could be from such a restricted diet.  The good news is that my mindset appears to be changing for the better in terms of food = fuel/energy which was always hard for me to wrap my brain around (was always a reward/deprivation type thing..)

Questions to the mamas whose babes use (d) Neocate.  Will their poo change at all?  I had a very mucousy diaper this morning and just wanted to cry.   :(  To be honest though - she has mucousy stool every other week, so might have nothing to do with it - I'm just paranoid of every new thing.  :P  It could be that her system is just getting used to it, could be unrelated, could be my imagination.  Any feedback would be appreciated.

All told though - I'm feeling very positive about introducing the Neocate.  Gwyneth is so darn happy, it's heartwarming.  I just want it to seamlessly continue.

...more to come....
Title: Re: My Total Elimination Diet Journal
Post by: shivi on January 04, 2009, 08:12:27 am
thanks Tari....and great to hear how happy little Gwyneth is!
Sorry...have no exp with Neocate so can't help with that one!
Title: Re: My Total Elimination Diet Journal
Post by: em_here on January 04, 2009, 10:25:28 am
Has she has a cold? That can make for mucousy poo. With neocate we had soft dark green to black stools. Dd has always had a tendancy towards mucous stools x
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on January 04, 2009, 13:43:10 pm
That's good to hear about the poos - G had a khacki green one the other day.  Regarding the cold - possibly - this little bub has had at least 5 colds in her little short life!  DH, DD and I all had caught a doozy the last week, and (knock on wood!) Gwyneth didn't seem to get it - a couple of sneezes for a few days and a bit of a runny nose.  So maybe it's the last of it working itself out.  I see mucous in her poo and it's hard not to go back to the early MPI days followed by the blood, pain,etc etc...


Thanks!
Title: Re: My Total Elimination Diet Journal
Post by: em_here on January 04, 2009, 14:08:39 pm
Completely understand, I would go into a massive panic too!! Just keep an eye on it, it may be that it really is just a cold which is a good thing, the snot runs down back of throat and is swallowed a lot by babies! Then it is passed and of course you see it in the nappy. Big hugs and how are you feeling on this diet? X x
Title: Re: My Total Elimination Diet Journal
Post by: Spectra on January 04, 2009, 16:53:04 pm
I know when I first switched my son to Neocate his poos were super runny for the first couple of days before it was more normal.  I know it can take a few days for the body to get use to it.  I'm glad everything is going well for you!

And you are welcome for the formula!  I'm really glad it is working.  And thank you for the cute outfits again!  I absolutely love those type of clothes, soooo cute!
Title: Re: My Total Elimination Diet Journal
Post by: LucyA on January 04, 2009, 19:07:28 pm
Hi Tari, never used Neocate, but I would say if Gwyneth is still happy, I would try not to worry too much about the odd mucousy nappy. Easier said than done though!!

Bovi, welcome, and good luck. By the way, we're neighbours! I'm in the Netherlands, although I'm Australian, not a local. :)
Title: Re: My Total Elimination Diet Journal
Post by: bovi on January 05, 2009, 12:36:00 pm
Hi everyone, I am facing the 45 minute naps (4-5 a day)so took me a while to get back here.

LucyA, we are neighbors in all ways, I am a Hungarian living in Luxembourg :)

scarlett'smom, To answer your question on the symptomps I thought to put on paper (screen:)) our story so far.

reflux:
DS always had very strong hiccups and explosive poos. Everyone said it was okay I should not worry. Then when he was around 10 w he started to be fussy when eating (EBF), you know how it is sooo frustrating that instead of having a very calm relaxing time when feeding lo screams, cries..So here is what I did:
1- getting rid of his dummy, some say it can confuse the baby (major fight with DH about the dummy :( )
2. - I thought I did not have enough milk so I started pumping-- result: overproduction and DS getting even more fussy when feeding

then we had two days when he started to spit up, but not too much and not always, then it got worse, more frequent more quantity, then I ran to the ped. He said DS had a reflux, by that time I was suspecting that.WE got I ml Gaviscon after each feeding.

In a week time he refused eating the whole day, I ran to the emergency around 16 pm, they said it was colic and we got SAB simplex. Again in 6 six days he refused eating and cried like a soprano opera singer, again to the doctor, he said it was not the colic, but a big reflux. We got Motilim 3x a day plus kept Gaviscon.

We had one non eating days since that and I took him to the emergency. they said I should not take him there just give him paracetamol and wait until he calms down and then feed him.

 ekzema:

He always had those buttons on the face, everyone said it is a normal reaction to the milk and will be gone, well it didn't plus we got some yellow substance behind the ears. Ped said to hydrate his skin. I did but obviously not enough. Then came the big eating time of christmas. His face became red and yellow dried layer on the top, very ungly. I noticed on the head and a little on the arm leg. We went to the dermatologist and got the typical treatment. I a worried about the hydrocortison.
It is getting better but he scratching his had and that is terrible to watch

I also had eczema before so I just know from experience how bad that is. I got rid of it five years ago with a very restricted diet. Mid- december it came back on two fingers, but I had so many other things to take care of that I just did not do anything about it. Well I should have known better, we are the source of the well being of our little babies so we have to take care of ourselves too! Maybe if I had started to have a restricted diet already mid-December  my lo would have not developed eczema. Seems to me that we might be sensitive to the same food.

Other symptoms: he has mucousy stool for about 10 days. Doctor saw once and said it could be a small virus infection of the bowels, but nothing to worry about. Do you know what else it can mean? It is not normal isnt it? ???

Lo is waking, gotta go, now he only slept 30 minutes. Surely OT, we are getting to the vicious circle of short napping, jesus!

I ll come back later. I started to take notes from your messages not to forget important stuff. E.g. I did NOT think of taking calcium supplement! 

hugs
Title: Re: My Total Elimination Diet Journal
Post by: bovi on January 05, 2009, 16:34:05 pm
so I am back, DS taking his 5th 45 minute nap.
What is MPI?
DS's stool changed mid December from winnie-the-pooh yellow seedy to orange-brownish mucous.I ve tried to find info on this phenomena with google without luck so far.  Please tell me what you know about this. We are going to the ped tomorrow and I d like to be prepared for him being not much interested :(

he is young but seems not to be interested in babies. He did not say a word to DS! not even a little hello, >:(
 he treats him as an object. but he is said to be the specialist in gastro child diseases in Luxembourg

Here is what I do eat at the moment:

potato, rice, chicken,turkey, oginion, pear juice, organic peach jam without any sugar or other stuff, I also use green spices like persil, basilic, olive oil, margarine made of olive oil.

I dont really have the means to go to the bio/organic shop, in fact I am afraid of driving with DS crying on the back seat, I m afraid of causing an accident. but what I can I do buy organic. As a dessert I eat the pear sauce made by HIPP for 4 month olds :)

With this list do you think I am still running the risk of lowering milk supply? if yes what should I add next?

do you think I can drink chamomile tea? ???
 It is so cold here and had no time today to go to the pharmacy, but tomorrow I ll definitely buy the calcium supplement.

hugs
Title: Re: My Total Elimination Diet Journal
Post by: Spectra on January 05, 2009, 16:54:42 pm
MPI or MSPI is Milk/Soy Protein Intolerance.  It won't show up on an allergy test, but little one's can have an intolerance to the protein in dairy products (formula), and if so usually soy as well but not always.  My son is MSPI.  He gets super congested, runny nose, eczema all over, tired, but there are many other symptoms.  It's always good to ask these questions with a doctor and hopefully he'll get it.  Here is a link on it:  http://babywhispererforums.com/index.php?topic=66236.0  also from Wikipedia which is on milk allergy, but talks a lot on MSPI or MPI as well: http://en.wikipedia.org/wiki/Milk_allergy
Title: Re: My Total Elimination Diet Journal
Post by: Spectra on January 05, 2009, 17:07:11 pm
Oh I just read your post before.  Many doctors use the term colic and that usually leads to MSPI.  Eczema as you described was like my sons, especially on the face.  Red with yellow crusty layer, flaky, gross.  Always itching.  It wasn't until I tried him on rice milk that he totally cleared up, eczema, cradle cap, fussiness, etc.  Many mom's report mucous in the bowel movements too, though that never happened with me.  It can also cause tummy upset, thus resulting in colicky behaviour.  You should check the food you eat, even that olive oil margarine probably has hidden dairy/soy in it, so does bread and the like.  There is a list on here under the sticky thread on Recipes that gives the full list as they use so many names for dairy and soy.
Title: Re: My Total Elimination Diet Journal
Post by: Spectra on January 05, 2009, 17:10:08 pm
Oh here is the list:: http://babywhispererforums.com/index.php?topic=135427.0
Title: Re: My Total Elimination Diet Journal
Post by: Spectra on January 05, 2009, 17:12:28 pm
Oh and here is another, second post down, it's a little more easy to read I find: http://babywhispererforums.com/index.php?topic=66236.0
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on January 05, 2009, 18:31:55 pm
Hi Bovi - ((hugs)) to you.  Melanie (Spectra) gave you some really great info to check out.  Regarding the chamomille tea - you should probably be able to.  I actually had some last week as I realized we give DD gripe water and that has chamomille in it.  You should try it, I bet it will be fine.  About your other foods - not a lot of fat in there - any chance of introducing avocado?  Or coconut milk (that was recommended on this thread, I haven't tried it yet, but plan too).  Or something with a little more fat to get calories into you?  Also - try to make sure you are drinking lots and lots of water. 

About the mucousy stools.  My DD has these ALL the time.   It was tied closely w/the MPI in the beginning so it always makes me a little nervous, however she also gets them when she has a little cold (which she seems to have every other week).  She had a really mucousy diaper the other day and my heart sank thinking it was the beginning of a reaction to the Neocate - however, all poops since have been fine and her nose has also cleared up, so I think it's as Emma Lou said - all the snot was going into her stomach and coming out in her diaper!  I had being giving her saline drops but not suctioning it out because she hates it and I only do it when really bad - so she must have been swallowing everything.  I'm such a poop watching addict now, lol!

That's a drag about your ped - a little hello to your little man would be nice - but hopefully he can help you out.  Oh, and I agree w/Melanie - be very careful about everything you eat (like the olive oil margarine) it most likely has trace (hidden) dairy or soy.  We used an olive spray in the early days and found out it has soy in it - didn't even dawn on me.   ::)

Hang in there and with your food I hope you are eating  pretty much every couple of hours?  I found I really have to do that even if I'm not very hungry just to get the calories in....

More ((((hugs)))) for you, I SOOOO understand how frustrating this can be.   :-*  Please let us know how the ped appointment go.

On another note - I'm calling the Neocate a success!  Woohoo!!  This is day 7 and DD seems great - aside from the one mucousy poop she's doing great.  What a relief.  So do you think that means that she would be ok if I added corn to my diet since it's corn based?  Also, I noticed it has soy as an ingredient - is that non applicable though since it's broken down to such a small level?

Title: Re: My Total Elimination Diet Journal
Post by: shivi on January 05, 2009, 19:18:15 pm
Tari,

Like I said before I'm not much help with allergies/intolerances...but when it comes to snotty noses, I'm your woman. If you can, try to get your hands on this:

http://www.nosefrida.com/

it is the best piece of baby equipment ever!!!
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on January 05, 2009, 19:39:01 pm
Lol Shivi - I own TWO of those!!   ;D LOVE THEM!  Seriously want to have mine bronzed one day, I buy them for every baby shower I go to now.   I totally agree - best piece of baby equipment ever! 
Title: Re: My Total Elimination Diet Journal
Post by: bovi on January 05, 2009, 20:25:21 pm
Thanks for the advice. Tomorrow I ll buy some avocados. What a day it will be, full of adventures: going to the ped, to do some shopping and to the pharmacy :) !

scarlett'smom, I was wondering if there was any specific reason why you have not yet tried potatoes. that would bring new food into your diet that you can make in so many different ways. I think it is really non-allergenic.

I am not adding anything to mine, except the avocado try, for two weeks to clear up traces. In fact I am not 100% sure about the reflux diet. Somewhere it was advised that mommy should eat as she had reflux and that will help baby. That is not very common thinking, but that is what I decided to do. That is why I am not eating tomatoes for example. What is your opinion about this?

will keep you posted on what the ped has to say.

((hugs))
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on January 05, 2009, 20:37:25 pm
Bovi - actually I think there is a thread of sense to the reflux diet advice you've gotten - I was advised early on not to eat acidic and citrus foods as we were looking for the cause - I think at some point we grasp at straws and if there is a possibilty it can help we go with it.  I can see the logic between tomatoes and reflux, although probably small, can't hurt at least until baby is a little older?  Not sure of the medical community answer though ;)

Regarding the potatoes - I actually was eating them at first but took them out after seeing that they can actually be a pretty severe allergenic food....from Wendy (mydreamcametrue) and her son, to other research I've done.  I really would like to add them back in and may in the near future (plus Lays potato chips are just potatoes and oil, no preservatives and would love to get back to munching on those!  lol). 

Have fun on your big day out! 
Title: Re: My Total Elimination Diet Journal
Post by: Spectra on January 05, 2009, 20:40:51 pm
Tari here on the Neocate website is a brief description: http://www.neocate.com/aaa_neocate/13799-amino-acid-based-infant-formulas.html  "The amino acid-based formula, as Neocate, is an alternative hypoallergenic formula in which the proteins are broken down into their simplest and purest form, making it easier for the body to process and digest. This complete protein processing makes Neocate different from other infant formulas, being Neocate very well tolerated, easy to be absorbed and digested. "
Title: Re: My Total Elimination Diet Journal
Post by: Spectra on January 05, 2009, 20:41:40 pm
And this "Additionally, an amino acid-based formula as Neocate is hypoallergenic: single amino acids are least likely to cause an allergic response.
On opposite, whole proteins, that are in basic formulas, or bigger pieces of proteins, as they are in hydrolized formulas, are more allergenic and can inappropriately react with some components of the immune system, letting a food allergic reaction to occur."
Title: Re: My Total Elimination Diet Journal
Post by: Spectra on January 05, 2009, 20:42:39 pm
Oh, and I'm really glad it's a success for you! 
Title: Re: My Total Elimination Diet Journal
Post by: bovi on January 06, 2009, 16:00:42 pm
Spectra, thank you for the links and info! very useful!

 :)

Our visit to the ped today:

vaccinations-DS took them fine, screamed once only, what a brave man!

eczema-it got really bad by this morning despite the hydrocortison, we have to use again a cream with antibiotics in it :( because it seems to be infected

reflux: he said  to stop motilium, as DS is not spitting up regularly. We stay with the gaviscon for now

elimination diet: ped sais it is unnecessary. He thinks it is enough if we treat the symptoms. What a backward thinking from the medieval ages! I am sure that both thing has a reason. With the reflux I understood that it can be a maturation phase, but now that he has this bad eczema I am sure that it is food related. and I ll do my best to find it and cure DS, not just treating syndroms!

mucous stool: ped said it was fine as long as he is putting on weight. Well I dont agree, it does not look and does not smell okay. I am gonna keep to my diet and then we ll see!

how are you all doing with your diets? I am missing bread. I think I will look for alternative bread recipe and bake my own. I wont try  the traditional wheat but the durum (not sure what this is in EN) one without yeast with baking powder.

((hugs))
 

Title: Re: My Total Elimination Diet Journal
Post by: shivi on January 06, 2009, 19:35:21 pm
Lol Shivi - I own TWO of those!!   ;D LOVE THEM!  Seriously want to have mine bronzed one day, I buy them for every baby shower I go to now.   I totally agree - best piece of baby equipment ever! 

couldn't agree more, also have two, one for DS (but he's just weaned himself from his LOL as he can blow his own nose now) and one for LO on the way!
Also buy them for all my pg friends!
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on January 11, 2009, 00:56:22 am
Thanks Melanie!  :-* 

Bovi - doing well here w/my diet.  It's just gotten so commonplace now.  Am planning on introducing something new soon though, just hate the first couple bites as I wait to see if there's a reaction.  About the bread - there is also rice flour I believe and I think you are eating rice?  That would be a really safe for you.  Are you introducing anything new?  Did you try the avocados?  I forgot - how old is your LO again?  Hope you are doing well!

On a differnet note - CONGRATULATIONS to Shivi and her new beautiful baby girl!  ;D ;D I read your birth story - you are amazing.  Enjoy your new sweet baby.   :-*
Title: Re: My Total Elimination Diet Journal
Post by: shivi on January 11, 2009, 20:55:34 pm
hi Tari!

thanks!!!
Title: Re: My Total Elimination Diet Journal
Post by: bovi on January 12, 2009, 13:19:20 pm
Tari,Hi! Thanks we are fine more or less.

Rice flour, I have not tried it. I ll check it out, one cooks with rice flour just the same as with  wheat flour? We had a chaotic w/e and I had some tomatoes in a sauce, it was not a planned introduction, just happened to eat it, dont ask me why, I might just be dump. Anyway today DS is spitting up more than he is eating, and it is just all my fault  :( . anyway now I know  to keep away from tomatoes for a long time!!
finally his eczema seems to clear up. thank God! It was very bad for almost a fortnight. seems that tomatoes are bad for the reflux but has no effect on his skin. that goes against my theory that the two thing have the same root. However that is not so important, it still proves to be food related. With my restricted diet DS is fine and I will only add new things slowly.

I bought some avocados but forgot about them. I ll check in the fridge if they are still okay I ll figure out how to eat them. It is not something that is known in Hungarian kitchen so I am not familiar with it.

How is Gwyneth doing? She has no symptoms now? hope you re doing fine!

(hugs)

My DS is 3,5 month.

 
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on January 12, 2009, 14:23:06 pm
((hugs)) Bovi, sorry your little guy is spitting up alot, I hope it stops soon.  That's great news about his excema though!  W/the avocados you want them soft, and you just cut them in half (there is a big pit in the middle) and scoop out the meat w/a spoon.  You can slice them, or mash them/chop them up.  Sliced avocado with a little bit of olive oil drizzled over them and a touch of sea salt is soooo yummy.  I didn't know you've never tried them - it might be an acquired taste, just a head's up :)  They have SO much great fat and calories, protein and fiber, I think it's one of natures most perfect foods (in fact that is probably going to be Gwyneth's first food, was Scarlett's second!).

Gwyneth is doing really great, thank you for asking.  Doesn't have any symptoms with the exception of the occasional spit up.  Diapers are looking pretty good most of the time, still get a mucousy poo every few days, her skin is baby smooth clear and she's just happy as can be (knock on wood).  Yesterday she ate better than she has in weeks, took really great daytime feeds, it was great.  She is still getting a mixed bottle of Neocate and EBM every night and appears to be tolerating it just fine.  We're hoping it just keeps getting better!

Title: Re: My Total Elimination Diet Journal
Post by: shivi on January 14, 2009, 19:00:23 pm
great to hear about the progress girls.....and you've just got me in the mood for avocados! One of O's faves as a LO was avocado and banana mixed together.....wow, that takes me back about 2 yrs or so!!! LOL!

Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on January 16, 2009, 17:30:41 pm
DD1 loved the same mixture!  Now won't touch avocado  ::) Love your new avatar!!

Just wanted to update everyone.  We had Gwynnie's weight check today, she's doing great!  Holding steady at 50% weight, and dropped a little in length to 75%.  Ped is very happy with her results - she gained just about a full pound in the last month  ;D  Also said that if I wanted to try a teeny bit of solids to go ahead if I'm comfortable, if not to wait another month and revisit.  DH really wants to try some solids now because this is about the time we started Scarlett - but I'm hesitant.  We'll see.  I might mash up an itsy bitsy piece of avocado and mix it w/some breast milk and see what happens.

Title: Re: My Total Elimination Diet Journal
Post by: shivi on January 16, 2009, 19:59:35 pm
great to hear about Gwyneth's progres Tari! Oscar will not touch avocado now unless its in a spread on his sandwich....but still loves bananas....acutally, he will not tocuh anything green apart from apples (but he doesn't eat the skin so it doesn't really count as green in his op) and cucumbers!!! I am hoping it's a phase!

good luck with the solids!
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on February 16, 2009, 02:21:50 am
Hi - just wanted to share some updates :)

1 - I added bananas a couple of weeks ago, I was craving one and went for it.  She has tolerated it very well.  She poops more when I eat them, but no spit up, no muscousy diapers.

2 - Had our GI appointment on Thursday.  I am very encouraged.  Really really liked the dr and we have a plan in place.  Basically she thinks that it's not MPI but an actual milk allergy, but not sure about the other foods that she didn't tolerate.  She is pretty certain that Gwyneth's entire gut (lower and upper GI) are/were inflammed irritated and that's why she vomits AND has the mucousy stools when not tolerating something.  She referred us to an allergist who does a type of sophisticated testing on babies even as young as Gwynnie.  Our appointment is March 5.  In the interim we were given the green light to start w/solids, but for me not to add anything new to my diet.  That will be worked out w/the allergist.  She didn't sugar coat what could happen (ie invasive testing down the line) but wants to take a conservative route since she's doing better now and leave the major testing as a last resort. 

3- Went to the ped for Gwyneth's 6 month check up and she has gained close to 2 lbs in the last month  :o  ;D  Both my ped and the GI dr said this was an excellent sign that her intestines are healing and she is tolerating things much better.  Very very encouraging!  She is now almost 17lbs!  and 26 3/4 inches.  75% for both height and weight.  Woooohoooo!!

4- We started solids yesterday!  Gave Gwynnie a couple of tiny bites of mashed avocado mixed with breast milk.  She loved it.  No rashes, no vomitting, no mucousy stools.  Had a weird-ish night, but I think I(hope?) it's becaue her second tooth is right at the gum about to pop through.  Had some more today and so far so good.  I am hoping hoping hoping that she can tolerate it.  Would be great.  Also - GI dr said that's probably why she is not sleeping through the night yet (she still gets up 2x in a 12 hr night) and if she starts taking some solids that'll "stick to her" we should see an improvement.  That would be such the icing on the cake!!  ;D

Anyway - that's what's happening.  Baby steps, but I feel so very good about it all and I love that we have a plan in place!  Please send vibes that she continues to tolerate the avocados!

How is everyone else doing??

xo
Title: Re: My Total Elimination Diet Journal
Post by: Spectra on February 16, 2009, 12:13:46 pm
Oh wow, sounds awesome!  I'm so glad she gained weight and is doing better!  I'm glad your doctor is one the same page as you now, so great.  I'm doing pretty good here, Hudson is now on cow's milk since January.  He has some slight eczema, but nothing like it use to be, and he seems happy so we are continuing with it.  Unfortunately he eats so much and we don't get the milk free from the government like we use to lol.  It's all good.
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on February 16, 2009, 15:02:17 pm
That's so great Mel!!  Did he have an all out allergy or was he MPI?
Also - congrats - just noticed you are the new forum mod - that's awesome :)
Title: Re: My Total Elimination Diet Journal
Post by: Spectra on February 16, 2009, 15:17:04 pm
He was just mspi, but he's doing so much better now.  Eats yogurt, and cheese too!  It never came up on either allergy test, which I'm glad for.

Thanks!  Wendy, the previous mod mentioned about me being a mod as she's so busy with her life right now and I gladly accepted.
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on February 16, 2009, 16:34:34 pm
Wow - he's graduated to cheese too, how cool! - must be SUCH a relief.

I'm hoping Gwynnie is not allergic, just MPI.  They thought allergy instead because of the rash that accompanied her symptoms, but I think I recall your DS having bad excema too, so maybe she will test negative for the allergy too.  We;ll see!
Title: Re: My Total Elimination Diet Journal
Post by: Spectra on February 16, 2009, 16:49:36 pm
Yeah my son had eczema, still has a small amount on his leg, but not all over his body.  So, yeah, MPI can definitely result in eczema.  Let us know how the appt with the allergist goes, I'm really curious as to what he/she has to say.
Title: Re: My Total Elimination Diet Journal
Post by: shivi on February 16, 2009, 17:23:59 pm
great news Tari! And congrats to you Melanie!
Title: Re: My Total Elimination Diet Journal
Post by: Spectra on February 16, 2009, 17:48:13 pm
Thanks shivi!  Congrats to you too!  :)
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on February 18, 2009, 15:37:30 pm
Thanks Shivi - and congrats on your new mod position too.  With a newborn no less!   :D

Quick update - we are still going strong w/the avocado!  ;D  I was a little nervous as she had a bit of gas and seemed fussy for a couple of days at bedtime, but she just popped tooth #2 yesterday and is back to normal.  Very excited!  Once we make it a week w/no issues I'll do a cartwheel  ;D
Title: Re: My Total Elimination Diet Journal
Post by: Spectra on February 18, 2009, 16:44:22 pm
Hehe, that's awesome!
Title: Re: My Total Elimination Diet Journal
Post by: shivi on February 18, 2009, 16:55:36 pm
Hehe, that's awesome!
;D ;D ;D
Title: Re: My Total Elimination Diet Journal
Post by: LucyA on February 18, 2009, 19:50:42 pm
Great to read these updates Tari. I was thinking of you the other day and meant to come and check on you, but forgot...
Anyway, sounds like you're making good progress. And well done Gwyneth on the weight gain! Wow!!
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on February 25, 2009, 02:41:02 am
Thanks ladies.

Quick update.  Gwyneth had a couple of specks of bright red blood in her stool on Thursday.   :'( :'(  I was so shocked, and devasted.  It really baffles me, we haven't seen blood in her diaper for months, my poor bub.  That was day 6, almost a full week since starting the avocado.  I spoke to the GI and we have stopped the avocado for the last 5 days.  She also suggested taking it out of my diet.  I did it for one day and lost a couple of pounds and my supply took a huge dip.  So I have cut back on them, but I can't cut them out, I'll not be able to keep up my supply - so far so good.

We did give her some pears today (and she just LOVED them - it's so sad, she's just dying for solids, she moves her mouth like she's eating when we eat and tries to grab our food).  Anyway - we have the allergist appointment on 3/5.  I was very very down for a couple of days, I just feel like she is truly the sweetest, happiest baby and it just sucks that she has to go through this.  It's just so confusing.  I SO don't want her to have to any invasive testing, but it may have to be done.  We'll see.

More to come...thanks for listening.
Title: Re: My Total Elimination Diet Journal
Post by: Spectra on February 25, 2009, 02:49:10 am
Sorry to hear about the Avocado, though I'm glad she loves the pear!  Hopefully you'll get more answers at your allergist appointment.  Poor girl, I hope she doesn't have to go through invasive testing.  This must be trying for you, very strong mom! :)  **HUGS**
Title: Re: My Total Elimination Diet Journal
Post by: LucyA on February 25, 2009, 18:56:13 pm
:( {{{hugs}}}
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on February 28, 2009, 18:28:12 pm
Thanks ladies.   :-*  Feeling much better, took her a couple of days to return to normal, but she's doing great.  We are still doing the pears (today is day 5) and so far so good, although she had a couple of mucousy stools.  So we'll see......I feel optimistic!   :D
Title: Re: My Total Elimination Diet Journal
Post by: Spectra on February 28, 2009, 18:35:10 pm
Yay!  That's awesome to have some good news!
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on March 11, 2009, 12:29:38 pm
Got our allergy test results in!  So happy to have a clue as to what's going on - and G is thriving and happy!!   ;D

Check it out:

babywhispererforums.com/index.php?topic=145891.0
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on March 27, 2009, 02:49:23 am
Just wanted to update that Wheat is a pass!  wooohooo!!  I have been on wheat for almost 2 weeks and she has done great with it!  Here is what is crazy though - I don't think I'm tolerating it well.   ::)  I started getting headaches and nausea and didn't know what was going on - but it's corresponded directly w/the wheat.  And I so love it - I've just been having organic shredded wheat and it's been great - but physically I feel off.  So I'm cutting it back out of my diet - but keeping it in G's.  I'm starting eggs in the next couple of days, we'll see how it goes - but for now - so happy about Wheat.  wooohooo! 

I might be able to make her a 1st b-day cake after all!!

:)
Title: Re: My Total Elimination Diet Journal
Post by: MLK on March 27, 2009, 03:28:14 am
Tari-  have you tried sourdough? The souring process breaks down some of the proteins and makes the wheat easier to digest. I can buy dairy and soy free organic sourdough wholewheat bread - sounds awful but it's actually quite nice!
Title: Re: My Total Elimination Diet Journal
Post by: shivi on March 27, 2009, 07:02:32 am
great news...but pooh on the wheat intolerance you're developing!!!

LOVE LOVE LOVE the new avatar!!!
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on March 27, 2009, 11:53:57 am
Hi Shiv!  Thanks!  ;D

....and I LOVE LOVE LOVE your new avatar....there is nothing like a beautiful sleeping baby huh? 
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on March 27, 2009, 11:56:07 am
Hi Lan.  No I haven't tried sourdough yet - and the dairy/soy free souordough wholewheat sounds AWESOME to me actually.  I'll have to check it out, thank you!  I need to trial yeat first though - since Gwyneth has a pretty significant corn allergy I believe most yeast is derived from corn?  but can sometimes not be a problem. 

THanks for the tip! 
Title: Re: My Total Elimination Diet Journal
Post by: MLK on March 27, 2009, 12:03:04 pm
Well the sourdough is a wild yeast culture - so no bakers' yeast. I believe there are all sorts of different strains of sourdough cultures too - sometimes even passed down through generations! So this one is Ok for both of us and we're sticking to it!
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on March 27, 2009, 14:18:07 pm
That's awesome information, thank you!!  I will absolutely check it out!  oooooh, oven warmed sourdough bread w/some olive oil drizzled over it...yuuuummmmmm :)  I think I'll try to make my own..
Title: Re: My Total Elimination Diet Journal
Post by: Spectra on March 27, 2009, 17:44:59 pm
That is great news Tari!!  Glad to hear things are going well for your dd.  :)
Title: Re: My Total Elimination Diet Journal
Post by: LucyA on June 28, 2009, 18:50:22 pm
Just wondering how you guys are getting on now?
Title: Re: My Total Elimination Diet Journal
Post by: scarlettsmom on June 29, 2009, 21:52:38 pm
Hi Lucy, thanks for asking about us!  :-*  We are doing really really well.  Have added about 12 foods to our diets (along w/a calcium suppliment), have had several foods fail, but that's ok - they weren't severe, and I'm confident she'll outgrow them!  The worst is corn - it is just everywhere.  Hasn't had GI issues in months, it's wonderful!  Went for an allergist appointment and he's really pleased - will go and redo patch testing in 5-6 months for the biggies (corn, milk, soy and oats) and then discuss our plan for reintroducing them.  We're still going strong w/the nursing - she's my little boobie baby for sure.

And on a purely selfish note - we got chocolate back!  wooohooo :)  I'm so excited - I've experimented and have been able to make this great little chocolate bread/cake thingy that I'll really choccy up for her b-day.  Yay - she'll have a cake after all!

Hope you and yours are doing well, thanks again for checking  in..
Title: Re: My Total Elimination Diet Journal
Post by: Spectra on June 30, 2009, 01:47:06 am
Glad to hear things are going well for you!  Yay for chocolate!
Title: Re: My Total Elimination Diet Journal
Post by: LucyA on June 30, 2009, 05:33:52 am
That's great, I'm so pleased! And fantastic that chocolate is one of your few safe foods!! ;D
Title: Re: My Total Elimination Diet Journal
Post by: shivi on June 30, 2009, 07:39:14 am
Hey Tari

Great update!

Hugs to you and yours and yay for cake and choccie!

Sx