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EAT => Food Allergies => Topic started by: pipplater on May 24, 2011, 20:33:33 pm

Title: ~What do you wish you'd known?!~ Newly diagnosed milk intolerance
Post by: pipplater on May 24, 2011, 20:33:33 pm: My lo is 6.5 months, is exclusively breastfed and has been finally diagnosed with milk intolerance. I have been diary free for a few months and things have improved and as of tomorrow she is being prescribed Neocate.

So my question is "what do you wish you'd known at the beginning?"

I'm thinking foods you're surprised have milk, those that you're surprised don't, weaning ideas, experiences of neonate....

Thanks x
Title: Re: ~What do you wish you'd known?!~ Newly diagnosed milk intolerance
Post by: MasynSpencerElliotte on May 24, 2011, 20:53:22 pm: I wish the first time around with Masyn that in the hospital someone had told me that LO's can be intolerant to milk, and that caffiene can affect them. Yikes, she was in such pain and here I was tossing back milk, cheese, coffee....whoops! Glad the second time around I was smart enough to cut back on dairy ahead of time just in case.

As for foods with hidden dairy...hot dogs, sandwich meat, french fries (McDonald's are dairy free now). Then there are the other names for dairy, which you need to be well versed in to read labels. Also, that ingredients in things change all the time, so you have to remember to read them every time you buy something.

Thank goodness soy was okay for us, that one is even harder as it seems to be in everything!!!
Title: Re: ~What do you wish you'd known?!~ Newly diagnosed milk intolerance
Post by: pipplater on May 24, 2011, 21:24:08 pm: Thanks for your reply. I think we are fine with soya too as I have replaced with soya while breastfeeding and this seems fine for her.

I'm in the uk and the labelling her seems pretty good, I've just found an iPhone app where you can scan foods from one of the biggest supermarkets and they'll warn you of milk ingredients which may also help.
Title: Re: ~What do you wish you'd known?!~ Newly diagnosed milk intolerance
Post by: Buntybear on May 24, 2011, 21:44:30 pm: Agree that when we went into hospital at 3 weeks old with profuse vomiting after taking formula that we were told LOs could be intolerant to milk! I only owe our early diagnosis to Google and a tenacious husband!

Bourbon biscuits often don't have milk - salt and vineger crisps do!

If you find any good foods in the UK please add to our list!

http://babywhispererforums.com/index.php?topic=173345.0
Title: Re: ~What do you wish you'd known?!~ Newly diagnosed milk intolerance
Post by: MasynSpencerElliotte on May 24, 2011, 22:10:37 pm: Quote from: Buntybear on May 24, 2011, 21:44:30 pm
salt and vineger crisps do!

Those are okay here, but not dill pickle! I still read the bag every time though.
Title: Re: ~What do you wish you'd known?!~ Newly diagnosed milk intolerance
Post by: my3girlsjde on May 24, 2011, 23:31:20 pm: I wish I had known that skim milk powder is a flavour carrier and used in everything :(

The ED was worth it though. We had issues right up to a year and now she's on HAF, but we did it and I got my bf'ing relationship that I wanted.
Title: Re: ~What do you wish you'd known?!~ Newly diagnosed milk intolerance
Post by: pipplater on May 26, 2011, 22:25:52 pm: Thank you for all your replies. We started on the Neocate today. I was dreading it due to reading stuff about how disgusting it is and how difficult it is to get them used to it... I gave it to her today and she guzzled 6oz straight away!