BabyWhispererForums.com
EAT => Food Allergies => Topic started by: my3girlsjde on December 03, 2011, 06:14:01 am
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We've had one allergy test done with E. She'd had antihistimines for a good week right up until and didn't know this could affect her results. Even my doctor at the time was a bit surprised she tested negative to milk. There was a slight response, but nothing warranting the classification of allergy. Eggs were negative as well. We *know* she's got serious reactions to milk. Whether it's allergy or intolerance we've got no idea for sure. It's been suggested with her response that she could be both. Either way, it's there. Along with other things.
A lot of them we don't know. There's a 'mystery' ingredient that we just can't figure out. I want more testing but don't know what to ask for. I was told where she's had eczema-ish skin that she'll likely give a lot of false positives. But that's since gone and she's now reacting with a horrific bleeding diaper rash to something and I've had it dealing with this.
We know for sure: Milk (hives, wheezing, eczema, formerly blood in stool but now explosive diarrhea leaving bleeding blisters), Soy (same but a tad worse). Possibilities: eggs, tropical fruit, bananas
What have you all tested for? What kinds of tests did you have done? What can I ask for?
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Sweetie I am not sure if it could be this as we're we got that far with allergies. Luckily Z is more intolerant than allergic but what about wheat or nuts ...you may already have these excluded though!
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Have you tried an antifungal on the diaper rash, the reason I say that is it fungal infections can also cause a bleeding rash & fungal infections can be made worse by food issues too.
With Ds1 we had the IgE RAST rather than the skin test. Here they do groupings first (food/dust/pet/grasses & pollens) & then they take it further. We know that Ds1 had a response to the food (dairy/egg/seafood/peanut) but we didn't get more specific as he isn't big on eggs & doesn't eat seafood & peanuts & he only eats processed milk products, so I make sure he doesn't eat too many eggs or much dairy & I'm pretty sure dairy is the main issue (from response when younger) but he seems to be growing out of it. I agree with the PP if you haven't already ruled out wheat/nuts & citrus are worth looking at too (I have issues with citrus, but only the orange ones... I'm ok with lemons, lime & yellow grapefruit) . Also I know of someone who reacted to potato, so it is worth looking at some of the "safe" foods.
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We had all Dylan's allergy testing done when he was about 16mo, and we're doing a repeat in the new year. We had a scratch test done first (dairy, egg white, egg yolk, peanuts, tree nuts, dust mites (because they're a common cause of ezcema); we were going to do mustard but they didn't have a sample for the test). Dylan reacted to everything, though only mildly to the egg yolk and dust mites, and THAT'S when the allergist told us that children with eczema can give false positives because of the sensitivity of their skin. >:(
We were going for blood tests anyway because of the mustard, and the allergist suggested testing everything from the skin tests to confirm. It was FAR easier on Dylan than the scratch test. It took a couple weeks to get the results, but I liked that the results were quantified (so results above 0.35 were considered a clinically significant allergy) rather than someone looking at swelling and deciding if it was, kwim? And as it turns out, Dylan did have an allergy to everything he was positive for on the skin test (except the dust mites), plus the mustard.
For both tests we were told no benadryl for at least 48h before both tests. We're redoing the blood tests in the new year to see if anything has decreased in severity and *possibly* do an in-office food challenge if warranted. I'm not getting my hopes up though :( Incidental exposure to dairy (which was his least significant allergy at 0.8 ) at daycare still results in hives on contact :-\
If you have any questions just let me know! (((hugs)))
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Just remembered too that there is an allergy screening you can ask for that tests for just over 300 different allergens. Because it's a blood test it's still only one needle prick vs. a zillion scratches. We didn't do it for Dylan because cutting the other stuff out seemed to clear his skin and we haven't had any unexplained reactions, but we were going to if needed. The only problem was that it wasn't covered by OHIP so we would have had to pay a few hundred out of pocket - but a small price to pay IMHO if it helped get us answers. I can get the name of the test on Monday if you want.
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The antihistamines say on it that you must not take them for two weeks before the test or you WILL test negative. The fact that there was still a response WITH antihistamines is definitely a sign for an allergy.
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Wow, I wish I had spent more time on this board before :-[
Katet - I do use an antifungal on her bum as well as a hydrocortizone cream and then the regular bum cream. And it works great. I usually see a great response within 2 diaper changes. But she keeps getting this every night from whatever she's reacting to in her poo. So what gains we're getting every day, we're losing when she has her evening poo :( And the pharmacist told me not to use they hydrocortizone cream for more than 4 or 5 days. Hence my massive frustration with this. At least I can use the antifungal every day and I swap back and forth between the Nystatin and Canestan (yeast infection cream for adults) every time a tube is done, so every few months or so. Thanks for reinforcing what I'm doing though.
Great advice everyone :-* My guess is that there's multiple issues going on here. I'll get the chart after and find the numbers from her dairy and egg test she had at 13 months. The needle prick was very hard to see her go through but I'd happily do that rather than the scratch test. I'll mention to the clinic when I go that she still wheezes from time to time and I KNOW it's from a food. She's also not had any antihistimines in over a month so I'll try to hold off from giving her any to keep her system clear.
Definitely something that many people don't understand unless they've gone through it. I just want to feed this child and not have it be a guessing game or stupid trial and error anymore.
Thanks again ladies :-* I really don't know where my family would be with some of the stuff we've dealt with if it weren't for this site.
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K, don't have much time as kids are off the crazy. Looking at the RAST results and all they gave was a generic "less than 0.35 KU/L". So my interpretation is there could have been even a smidgit of a response with a daily dose of antihistamine. So she likely would have tested positive.
Going to get the hours to the walk in clinic here and start pushing for multiple allergy tests and try to get this child sorted out.
Thanks again. Will update as often as I have into.
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If she's getting the rash with the use of antifungals then I'd be thinking wheat may be an issue.
I'm guessing you use a barrier cream (Amolin, Bepanthen worked well here) every time you change, but thought I'd mention it too.
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DS used to have multiple mushy huge diapers a day when he was on dairy. And even with nystatin creams or other prescription creams he'd often get a rash. Once we took the dairy away completely (around 17-18 months) that improved rapidly. But yes, wheat can be an issue with BMs like that too. But his is an IgG intolerance to dairy, not an actual IgE allergy.
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Thanks everyone :-*
The rash is sort of clearing, but we've got to be quick when she has a bm. Still not a consistent firm poo :( I'll take the wheat out for a trial, but tbh she doesn't eat that much of it and not on a daily basis. She's not had the explosive diarrhea since going off eggs, but still not great. Not sure how long eggs take to get out of her body. I know dairy is 10 days so maybe I'll look back in another 7 days and see where she's at. Also wondering about the mixed fruit applesauce and some of the fruits that are in it. She's always done fine with regular apples so she's now just getting plain applesauce. Might mix in some oatmeal this morning as it tends to firm things up for her.
Keep the tips coming! We'll sort this one way or another.
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What foods does your dd eat?
I know whe my son was youger he reacted to stoned fruits, citrus fruits, berries, beef, chicken, pork, oats, wheat, sweet potato and white potato asparagus, peas, corn, egg and dairy. James also tested positive to nuts and peanuts so we never gave these to him. James is now 7 and can eat a much more varied diet. Dairy and egg are still out he is highly allergic to these. Fruits are tolerated in small amounts along with chicken. James has now past his peanut challenge and we are now waitinng for a date for his mixed nut challenge. Peas still cause a reaction to.
Kelly x
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TBH, there's NO food that I don't know beyond a reasonable doubt she can eat without this reaction >:(
We're off to the walk in clinic this morning. Got all the girls up so I could drive dh in to work and have the van.
Fingers crossed I get a decent Dr and that the wait isn't ridiculously long.
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TBH, there's NO food that I don't know beyond a reasonable doubt she can eat without this reaction
Could it be that her system is on overload and she is reacting to things she otherwise wouldn't? That if you knew what were the main triggers and could remove them, then the other foods wouldn't bother her? I hope that makes sense!
Hope you get a good Doctor! We did do allergy testing, scratch and blood, but the scratch test showed nothing and the blood test was similar to yours (0.34 I think) which our allergist considered insignificant. So he is going off the fact that she has reactions and someday we are to schedule an in office food challenge, just haven't bothered! (oh, they also only would test for things she has reacted to, so just milk and eggs so far.)
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When we went through this with James when he was younger we went right back to basics and basically weaned him again. We were able to do this as the Consultant Paediatrician had prescribed neocate so James was still getting all the nutrients he needed. James did also develop a severe food aversion which his paediatrician said was due to the amount of reactions he'd had and was afraid of food. The food aversion took a long time to overcome.
Hope the visit to the walk in clinic went well.
Kelly x
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Thanks. The clinic went rather well for a first time experience.
E does have a bit of a wheeze today which was actually kind of nice because I was able to give it as an example. Though at times she's sounded like a purring kitten so it was considerably mild today.
The result: pediatrician and pediatric allergist referral!!!! Unfortunately we're looking at a 2 month wait >:(
The Dr feels there's a chance that's she's overloaded, but also because this has started in the past month that a new allergy could be present. And she's thinking wheat :'( Things are considerably better since going off the eggs but the wheat is what I really feared. What the heck do I feed this kid now? She's already in the same boat with feeding aversions and incredibly picky. It took 6 months to get her to eat the damn egg that caused her to react. She loves, loves, loves bread.
So will be looking through the wheat/gluten free stuff and maybe bread from rice flour? I've heard of people doing that in their bread machines so I'll give it a try.
So need some basic ideas. She loves all the garbage food. Hot dogs, chicken fingers and bread anything. Homemade french fries go over really well. I'm fully ok with doing the work in preparing her food at home BUT what do I feed a kid that's reacting to dairy, soy, most likely eggs, tropical fruit, possibly wheat etc.
I've also taken oranges out until her bum is completely cleared. If she doesn't have another burning poo today she should be completely healed by tomorrow. The Dr could see where it was and how well it was healing so she said to keep up with my regimen.
She stood on the scale there playing with the girls and it did seem that her weight was down. I'm not panicking but I'll be monitoring at home on the same scale in case she does start to lose again. She IS STTN most nights and still on Nutramigen so I think I'll make sure she's getting everything with that and eliminate some foods like you did.
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Stupid phone ::)
Will continue to eliminate to figure this out. And will start doing some research to get some food ideas. Thankfully she likes baked breads, cookies, cakes etc. Should be able to work with that. Pretty sure meats are fine with the exception of fish and shellfish. You can't pay me enough money to try those until she's at least 3. Especially since I have a shellfish intolerance as does her paternal grandfather.
Thanks again everyone :-*
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Are you near a superstore? They have a fab selection of GF stuff (which is mostly dairy & egg free...we don't avoid soy so not sure on that one). We are currently avoiding gluten, dairy, eggs, nuts, pineapple, oranges, strawberries & kiwi.
Spencer used to be a big breadaholic and she doesn't miss the stuff. No GF bread was a good replacement, so she just gets rice cakes & crackers. Oh, and Betty Crocker has an awesome GF cake mix (not sure why hers turns out better than mine, it seems to contain the same ingredients!) Hot dogs - Schnieders and Maple Leaf I think are 2 that make "natural" weiners and sandwich meat, but again not sure on soy for those.
Honestly Vicki, it does become second nature to cook & shop for such a wide allergy set...I really don't even have to think about it anymore. When we first started with GF it was ovewhelming, took me a month to work myself up to it!
Glad to hear the Dr. went well...can you get on a cancellation list for the ped and ped allergist??
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I am so glad the appointment went well annd you got the referals you need. I wish you did not have to wait so long though.
When my ds was going through this it was easier to go back to basics as he would gag on food and be sick if it was not pureed, this was also an issue for a lonng time.
Will your dd eat homemade soups? The reason I ask is its quite easy to make nice soups with just a few ingredients. Would your dd eat chicken breast cut into strips instead of chicken fingers? I will see what otherr ideas I can come up with.
A great place to get recipes is www.kidswithfoodallergies.org There is also a lot of great info on there and lots of vvery knoweldgeable people regarding food allergies.
Kelly x
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I do chicken breast cut in chunks and "breaded" in a mix of rice, sorghum and millet flours plus dry mustard and paprika...baked in melted butter or coconut oil in the oven. It's so yummy that I don't just make it for Spencer!
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Thanks for the tips all! Not sure on soups really. Will have to give that a try. I've got some coconut milk to make her some pudding and some ice cream. That's typical for us, though I'll use corn starch instead of flour to make the pudding.
Those chicken strips sound yummy. Are flour alternatives overly expensive? Is ground cornmeal typically a problem for these lo's?
I do live near a superstore so I'll be checking there also for gluten free. She ate tons of veggie straws on our drive and had diarrhea every day and I wonder now if the wheat in those was to partly blame.
I know when I get the test results it'll be a big puzzle magically coming clear. Especially since she still reacted when I cut dairy, soy, nuts and eggs out of my diet when bf'ing.
Will be checking out the website tonight and getting a plan together.
Thank again :) :-*
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Are flour alternatives overly expensive?
Compared to regular flour, yes they are...but besides the chicken "nuggets" I only use it for Spencer, so it isn't too bad. Her store bought nuggets (Ian's brand) are done with cornmeal, and she is fine with that.
Spencer is all into soups lately! You might be surprised with that.
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So cornmeal is an option then? Sorry a little gluten-illiterate.
If I can use cornmeal (unless of course there's an issue with corn), then we really have some options. Can your flour substitute be used for thickeners like cornstarch and flour are?
Will try to come up with a plan and try to start tomorrow. I likely won't have a flour substitute until the weekend but I can hopefully make do until then.
Are oats ok?
There was no diarrhea tonight from E :D. Torn on if it's wheat or eggs or both but after no diarrhea, I'm happy either way.
How long does it take for wheat/gluten to get out of the body? How long for eggs?
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So cornmeal is an option then?
Yup, so long as it doesn't turn out to be an issue.
Things with gluten in them offhand are: wheat, rye, barley, spelt and oats (afaik oats themselves do not have gluten it is in cross contam - you can buy gluten free oats) There are more than that, check the link Kelly gave you, they have lots of info on what names gluten can hide under...for example Rice Krispies have malt barley which has gluten!
The flours I use don't make great thickeners, not like cornstarch or flour, I have used them in sauce (like for scalloped potatoes) and had it turn out okay, but not the same! Baking is hard when GF and egg free. I gave up on breads, but I do make pizza dough and biscuits. Still experimenting with cookies!
Hmmm, gluten is one that takes longer, something like 6-8 weeks, no idea on egg. I would plan to eliminate both for that long then bring back one at a time. Yay for no diarrhea!!!
Oh, and one other thing is that alot of beauty products contain gluten, so if you are going the whole nine yards you may want to check those too. Esp. if she gets skin reactions.
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I started feeling better only days off gluten myself, but yes it does take up to 2 months to fully get out of the system. Brown rice flour is gluten free and a good thickener and good for dredging chicken in, etc! Yay on no diarrhea and hope it continues to improve!
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So 28 hrs since last diarrhea. Also 28 hrs since last bm. She had a waffle yesterday morning and the mix doesn't seem to have egg in it. Must check the ingredients again when I get the chance.
I'm attempting to make some rice flour. From what I've read, with the cooking instruments I have, it'll be less like flour and more like cornmeal but at this point I'll give anything a try. She's eating tons of fruit and meat today so we'll see how she makes out. It's kind of exciting and scary thinking that the wheat may have been doing this. I'm going to try to cut mine down as well as the girls to make things simpler and who knows, perhaps I'll finally be able to lose some weight!
So glad I have some hands to hold through this :-*
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I'm attempting to make some rice flour.
You are adventurous...I just buy mine! So glad that the diahhrea is still gone...hopefully the lack of BM's at all is just things firming up? Spencer does that.
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I'm really hoping they're firming up. I'm getting so so sick of trying to get diarrhea stains out of her clothes.
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I'm really hoping they're firming up. I'm getting so so sick of trying to get diarrhea stains out of her clothes.
That is why I love the fact that we are in cloth...she has never, ever had a blowout in them! Lots of normal poo vibes!
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Well she pooped. And it wasn't diarrhea!!!! ;D ;D ;D. Could possibly be a fluke, but there's no way it's the placebo effect so we'll keep our fingers crossed this is finally working for her. She's had maybe 5 non diarrhea poops in the past 6 weeks so this is so exciting ;D. I'm so ecstatic I almost feel like posting it on facebook lol. Almost.
So definitely thinking I'm on the right track here. I didn't eat any wheat today and I feel rather lean for my overweightness. Could be on to something here for the whole family.
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So happy her poop was not diarrhea ;D ;D
Cooking will get easier over time. The hardest thing I found when James was gluten free aswell as dairy and egg free was baking cakes and bread. I just about gave up on bread as none of the recipes I tried came out well. James cann now tolerate gluten but wil not eat bread to this day. I think the gluten free bread put him off for life.
Kelly x
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OK, poo was a bit soft this morning but she had tons of applesauce for breakfast and it definitely wasn't diarrhea. AND her bum is completely healed. Hopefully this will help her in the freak out department when she needs to be changed.
The rice flour worked and was actually pretty easy. I'm very thankful for the food processor my mum got me when I told her I wanted to make baby food. That thing can do anything! Hopefully I can attempt baking later. She LOVES anything that looks like a cookie. I've even given her crackers and she calls them cookies so hopefully I can make a really nutritious one for her.
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Just got a call and we have an appointment to see a pediatrician!
In three months ::) ::) ::)
But at least we're being taken seriously and we'll go for allergy testing from there. The clinic called with all of E's info and reactions and that was the earliest they could see her. Kind of bitter sweet that she's not more serious and can't get in faster. The Dr shortage is much more serious here than it was before we moved. But at least we'll have an assigned pediatrician and oh, I'll have to take the big girls in and make him address any concerns I have with them at the same time ;)
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Yay!! Did you get on a cancellation list just in case? We were supposed to wait for months too but got in to see the allergist within weeks because of cancellation. Keeping fingers crossed xx
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Oh never thought of a cancellation list! Thanks :-* Will call tomorrow first thing as dh will be away come the end of Feb and he'd really like to be there.
Another firm bm ;D. Who knew having kids would make me so ecstatic for proper poops??? ::)
I've also been making homemade sorbet for the girls and it's so nice for E to have her 'ice cream'. And it cost less than $2.00 to make a litre of it ;D. Gotta love that.
We're still having some changing issues and I'm not sure if it is from the nasty diaper rash she's been dealing with for so long or just developmental. I know really it could be either so hoping developmental and she's not got an aversion from all of this. But only time will tell.
Now off to put a reminder in my phone to call ped's office to see if they have a cancellation list.
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Yay for steps forward! How do you make your sorbet?
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4 containers of mott's fruit puree, 1 cup water with 1/2 cup sugar boiled to a syrup and then cooled (what you would do for a hummingbird), and 1 tbsp lemon juice. Chill everything and toss in the ice cream maker. I also made her some ice cream with coconut milk and cocoa.
Breakfast is the big challenge but she does seem fine with oatmeal and fruit so I'm thinking not necessarily the gluten if that's possible and just the wheat?
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Oats are usually contaminated with wheat and are therefore not gluten free. you can buy oats (and instant oatmeal) that are specifically wheat free. If her wheat allergy is not too severe she might be able to tolerate the contamination. Ds1 has a wheat allergy but can tolerate small amounts. In fact, he actually tests negative on scratch test but will get hives during a food challenge. There was a time where he would have up to nine foul, mucousy poos a day and I think it was from the oatmeal he was having. Pm me if you want more info :)
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Will do and thanks! That's why I'm wondering if it's not overly severe or not specifically gluten and just wheat if that's possible.
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Oh Vicki, that fruit sorbet sounds fantastic! Do you just use the little cups of Motts unsweetened applesauce? Or is there a different kind? I could make this tonight! Could you give me your ice cream recipe too? In fortunate enough to be able to buy some that's safe for Dylan, but it's 5.99 for 500mL and I'm sure homemade would be so much healthier :)
So happy for good poops too! Hopefully E will get over the diaper changes when she realizes it's not hurting anymore. Could you try pull ups so that you could just change wet ones standing up? We went through an anti-diaper phase for awhile and that saved my sanity ;)
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Oh my Vikki - that's outrageously priced! I looked at some too and just really couldn't afford it since the big girls are really struggling with E having her special food and not them. So I get to make cheaper and healthier stuff anyhow.
I've got a couple of recipes for you and will pm them. I've used them this week and it's just nice to have some cheap options.
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I haven't read all the responses but DS is allergic to milk and CORN. Corn is an ingredient in MANY products. Any of the "-ose" ingredients are corn-based (glucose, sucrose etc).
DS is 8 months and on a corn-free, milk-free formula and I have to be VERY careful about solids he eats.
Here's hoping they're grow out of it!
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Thanks :)
I've just spent the last week trialling wheat and restricting EVERYTHING E gets. No diarrhea ??? So I'm back to wondering if she can tolderate small amounts, it takes time to build up, or it's not really an issue and may have been the eggs. She did have a mandarin and diarrhea right away and it seemed to burn her. It healed right away and didn't come back with the continued wheat so now a bit confused and hopeful. I'm going to continue the wheat another week to see if there's any reactions, but her poo is rather normal.
I did take a look again through some of the items she'd been having lately and wondering if it may actually be a build up of milk in her system. Things like chicken fingers have both wheat and milk. Crackers have wheat and milk. The pancake mix that I thought was ok actually contained quite a bit of buttermilk in it :-[ I thought I had checked them all but we must have switched mixes and I didn't check. Again it could be egg. Or anything really especially with the processed foods. But I'm thinking this should be a great argument for getting some tests done. If I can prove that wheat isn't the culprit after 2 weeks then fabulous. Same with any other food like eggs. But if certain processed foods are giving her such a reaction I'd like to know what they are so we can help her out, kwim?
Things I know for absolute certain:
milk
soy
bananas
peaches
tropical fruit
And the maybe's:
eggs
wheat
oranges
Can I just add that food trials are a PITA? It's so hard to make sure that she's getting nothing else. It wouldn't otherwise be an issue if we weren't worried about knowing exactly what might be causing an issue but the big girls do sneak away with food from time to time (we're pretty strict about the eating at the table bit) and we do go to a morning program often and kids just drop food by nature so I feel like I've become a hovering mama and it's driving me nuts.
But with something as big as wheat I'm going to take it for a full two weeks just in case this is one of those slow build up things like milk was while I bf'd. Then I'll try eggs for two weeks.
Any thoughts? I'm cautiously optimistic now that this hasn't been wheat at all. Since she doesn't get a whole lot of processed food as a rule due to the milk and soy, it's not been overly hard, just a little more challenging to cook things that everyone will eat. The rice flour did work well and I was able to make passable cookies. But coming on Christmas, it would be really nice to give her a 'real' cookie that everyone has.
The really great news is that we now have a family Dr here ;D I made a call today and the Dr was willing to take us on due to the needs of the family, primarily E. We go to meet him early January and I'm going to be pushing for earlier testing for allergies if possible.
Will update if we have any new reactions.
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The great news now is that E can tolerate all kinds of wheat. :D :D :D I'm so incredibly relieved that it's not wheat. She doesn't eat much, maybe a piece of bread or a couple of cookies but enought to know she can do it and it's not what was causing the diarrhea.
The bad news is that on Christmas Eve, we had a new reaction to an old food :( She wouldn't sit still for a good pic so this is the best that I've got. We had McDonald's which she's had before. Only fries with her usual sweet n sour sauce. At first because she's got a cold I thought the pink cheeks were just from a temp. But the cheeks kept getting redder and redder. Then I clued in (because she wasn't wearing a shirt) that every place that the sauce touched her, left her with a red welt. It was like it burned the skin.
She's had this sauce for over 6 months and from what I can tell, nothing in it has changed. ??? It absolutely didn't touch anything else because we've been so careful with what she's been having due to trialling the wheat.
The first is blurry because she wouldn't sit still. She was understandably a bit irritable even after it was washed off.
The second is about 45 mins later and still really blotchy and red
The third is about an hour and a half later and still pretty pink.
There wasn't any wheezing, thankfully. Just a bit of irritability throughout the day and she was up a lot but also had a bad cold so hard to say what caused what. But she's been practically bathed in this particular sauce on numerous occasions and this is new and sudden. I've been on the website before and the allergens listed in this particular sauce are soy, gluten and celery. But it's all been tolerated in the past and in large amounts.
Thoughts?
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Well, first off she is just so adorable Vicky! Secondly, even though she has eaten the sauce for months she could still react to something in it...many people go all their lives eating a particular food only to develop an allergy to it. I consider myself a ticking time bomb because alot of family members have developed allergies later in life. Tough call though as it really could be anything in the sauce, not just to most allergenic ingredients!
Just out of curiousity, did fries also touch her every place the sauce did? Just pondering x-contam in the frying with something else or something on the person's hands who dished up the fries.
Awesome news about the wheat though ;D
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Thanks for the quick response! :-*
Just out of curiousity, did fries also touch her every place the sauce did? Just pondering x-contam in the frying with something else or something on the person's hands who dished up the fries.
I'd say not, she tends to paint with the sauce and the fries were all over her belly with no reactions if I recall.
And you're probably right that it could very well be something new. At age 26 I started getting pretty sick with d&v after eating shellfish, and it graduated from just scallops to also include lobster. I'm too scared to try anything else. Just so frustrating when new things are cropping up when I've still not figured out the old things :(
And thanks, I think she's adorable too. When she's a teen, I'm going to be wishing for these silly allergy days back ;)
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I'm pretty sure McDonald's fries contain milk - could that be it?
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They don't in Canada anymore, can't remember how long ago they changed it. I know in the US they still do.
When she's a teen, I'm going to be wishing for these silly allergy days back
Lol, I know what you mean!
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Good to know about the fries if we ever go south of the border. She's also had milk touch her skin since then and no reaction. Maybe different because the skin on the hands is thicker or tougher but she did react to the sauce on her belly also.
This is also a new way for her to react. Before we've had hives, eczema, wheezing, blood in stool, stomach cramps and irritability from ingesting stuff. But she's never once reacted from something touching her skin. Even milk when she was so sensitive that me having a glass and breastfeeding her caused blood in her stool or when she ingested it and had various reactions. All of the foods she's reacted to before have touched her skin (she tends to bathe as she eats lol) and nothing. So I'm a bit stumped. Both a new issue and a new way to react.
Boy this kid keeps me on my toes. Can't wait to call the dr next week!
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I did a quick Google search for you on the McD's fries - I was also going to say that they have milk in the States at least - and got a hit from a food allergy website with this:
http://nutrition.mcdonalds.com/nutritionexchange/ingredientslist.pdf
French Fries:
Potatoes, vegetable oil (canola oil, hydrogenated soybean oil, natural beef flavor [wheat and milk derivatives]*, citric acid [preservative]), dextrose, sodium acid
pyrophosphate (maintain color), salt. Prepared in vegetable oil ((may contain one of the following: Canola oil, corn oil, soybean oil, hydrogenated soybean oil with
TBHQ and citric acid added to preserve freshness), dimethylpolysiloxane added as an antifoaming agent).
CONTAINS: WHEAT AND MILK *(Natural beef flavor contains hydrolyzed wheat and hydrolyzed milk as starting ingredients).
So could be a number of things.....
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OK, tried to go to the URL on the previous post but it's been updated. For my own info I downloaded the 31-page pdf of ingredients. The fries look about the same ingredient-wise, but I also found the Sweet'n'Sour sauce. Ingredients are:
HFCS, water, apricot puree concentrate and/or peach puree concentrate, distilled vinegar, soy sauce (water, wheat, soybeans, salt), food starch - modifed, dextrose, soybean oil, xantham gum, spices, sodium benzoate (preservative), natural flavors (fruit, vegetable, and plant source), garlic powder, cellulose gum, dried chili peppers, malic acid, onion powder, caramel color, extractives of paprika, succinic acid.
So soy in the sauce may be the culprit as well..... :(
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Thanks Deb :-*
I'm inclined to think the soy in the sauce or something sauce related for 2 reasons. 1 - she had fries all over her belly (she often eats with just a diaper on) and no reaction where the fries touched her. And 2 - a friend of mine is a PhD Chemist and one of the parts of her thesis talked about what happens to food when deep fried and how soy breaks down in the deep frying process to be molecularly different. But I think she was talking more about the frying oil and not the actual product.
So which of the myriad of ingredients is it??? This is my huge frustration :(
E has been happily eating Mr Christie's Brand choc chip cookies with no reaction for about a month. Any other brands and my homemade ones cause hives and diarrhea. Does she overload on a certain ingredient? Is there something specific and small that I'm missing? Can they test for these smaller things like packaging chemicals, hfcs etc? I mean there was always a mystery ingredient when I was bf'ing. This has been going on now for almost 16 months even with minimal processed foods. Though I must add that in the past 3 weeks I have a different kid. I've not tried the eggs again as I'm waiting until this cold is gone.
Are there any of those 'seldom asked for tests' that a Dr may not think of? Iykwim.
Thanks all for having another look for me. Hopefully next week, I'll have an appointment scheduled and we can start asking the right questions to our Dr.
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http://www.mcdonalds.ca/ca/en/menu/full_menu/snacks/fries.html
Deb, if you follow this link it takes you to the Canadian McDonald's site and the nutrition calculator shows the ingredients (it won't let me copy & paste them ::)). Canadian McD's do not have milk or wheat in the fries and they haven't for at least a year as that is how long Spencer has been gluten free. The ingredients in the sweet & sour sauce look slightly different too.
Vicky, I'm really not sure how far they can take the testing or if it would even show anything. So frustrating!
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Ooh, thanks for the Canada link I specifically asked Google for Canada but it probably sent me to the US stite since that's where I am physically located.
Dang, there are a LOT fewer additives in the Canadian McD's than in the US! You get liquid sugar in your ketchup, but not HCFS or glucose-fructose syrup. Not fair! >:(
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Dang, there are a LOT fewer additives in the Canadian McD's than in the US! You get liquid sugar in your ketchup, but not HCFS or glucose-fructose syrup. Not fair!
I know, strange isn't it...wonder who the Canadian supplier is vs. the American one - would that be where the difference lies I wonder.
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My basic knowledge is that Canada has much stricter guidelines in regards to food than what the US does. Not nearly as great as Europe, but one of the reasons I'm happy we didn't travel through the States when we did our big drive. As much as I had a blast the last time we drove through the prairie states when I was a kid, E would have been a nightmare as far as feeding went. We had limited options as it was.
Well today was 3 days from the latest reaction, and similar to a lot of her poo issues and the 3 day delay she got diarrhea today and it burned her :'( Thankfully the rawness has gone down considerably since treating and there's been no reoccurance. Fingers crossed that she heals quick and it's the only bout she gets.
Funny how this stuff crops up over the holidays, late Friday afternoons or right when your Dr has left for a vacation ::). And one of those things if I took her to a walk in clinic, they'd just refer me back to her Dr now that we have one. But on the bright side, she's happy and we just keep taking pics and writing it all down......
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Does the antihistamine rule apply to testing for Celiac disease??
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I have no idea. All I know is it interferes with the test results as the blood doesn't show a proper reaction to the allergen.
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Oh no, I didnt know that. I was giving my son Benadryl for a stuffy nose for about a week or so when they tested for celiac and wheat intolerance......I guess I should ask my doctor.
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We were not asked to stop my ds's daily antihistamine we they were doing the coeliac blood test. We also did not have to stop antihistamines for RAST tests but did have to stop them for skin prick tests. The one thing I do know for coeliac testing is that you should still be eating foods that contain gluten.
Kelly
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Thanks Kelly....we have been having really bad constipation issues and trying to figure out the cause!
He almost had to be hospitalized he was so backed up. This has been going on since he was 4 months old but its getting worse and I finally decided to see a specialist 6 weeks ago. MY DS just turned one 2 weeks ago.
So far he has been blood tested for Anemia, Lead, Celiac, Hypothyroidism, and a bunch of other tests to look for any inflammatory diseases or markers.....
He is currently on a ton of stool softeners and a laxative and a very fiberous diet lacking wheat and gluten b/c I know that makes things worse.....
Any idea on where to go from here??? I feel like its some type of intollerance that he may have.....
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Also, I have seen the pictures on here of the red cheeks...my DS has been getting that too!!!! Guess I should pay closer attention to when he gets them?? Its been quite frequent lately....
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It would be a good idea to start a food diary to see if you can spot any patterns regarding a certain foods and your lo's symptoms getting worse.
I know dairy can cause constipation so that might be something to look at.
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Ok, I will do that. :) Thanks
I hardly feed him any dairy but his formula has dairy in it and the GI dr advised against starting on cow's milk when he turned one for that reason, that it can make him worse.
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I'd be suspecting a dairy allergy/intolerance as well... Can you try a hypoallergenic formula?
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he hates hypoallergenic formula. I tried it at about 9 months old and could barely get him to drink it. I only tried it for 7 days and I thought the intollerance was causing restless nights and reflux more than constipation but it didnt help the nights or the reflux. He was still on a ton of softeners for the constipation so it didnt really change anything there. Are there any other substitutions?? could I just try soy milk in the dairy section at the grocery store? I have to make sure I can get him to drink enough liquid during the day as that has some effect on his poops as well so I cant really play around with him not liking formula.
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Soy can be naturally constipating so I would check with your lo's GI first. When we trialed soy formula with my ds it turned his poo turned to a chalk like consistency that was v dry and crumbly, his paediatrician did think this pointed to my lo having a soy allergy though.
Kelly
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I wouldn't try soy - if he has a dairy intolerance he might have a soy one too and like Kelly said, soy can be quite constipating. What about coconut milk?
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Ok, I will talk to her about it. Thank you!!!
Mom to M&M, I could try coconut milk!!
The GI said that his xray has really improved and he is starting to clear out so I will go see her in 2 weeks and then we can discuss what is causing it. But if its the milk (formula) maybe I should try something else in the mean time??
I am going to talk to my pedi tomorrow when I go for his 1 year checkup about all this and see if he thinks the way she is treating him is the right way.....
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I'd def avoid soy also. Milk and soy are similar in make-up and E has reacted badly with both. Coconut milk perhaps. I can't tell on my phone how old your lo is? We still use Nutramigen and it took a bit but now she loves it and started it at 13 months.
I bought some eggs. Cross your fingers because it's not wheat or applesauce for sure. We go see our new Dr on Wed and I'm going to push for some testing. Hopefully by then we'll have had 5 days at least with the eggs.
My twins still constipate horribly with dairy. But a lot better than they were as infants.
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I really hope egg goes ok. Keeping my fingers crossed.
Kelly x
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I can't tell on my phone how old your lo is?
He is 1 year, just turned on 12/27. Does coconut milk have the same nutrition as cow's milk??
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Coconut milk doesn't have the same nutrition but it does have some good fats in it. But if you want to attempt the HAF (which I would highly recommend) you can pm me and I'll tell you how I got E to take it. I'd recommend HAF over anything due to the fact that if there are allergies present and you have to trial foods you don't have to worry about the nutrition they're getting otherwise. Kwim? We had to take a lot of foods away from E and she was on a fairly limited diet over Christmas due to a food reaction and I at least knew that her nutritional needs were being met with the formula. And this is in no way to pressure you, it just took a lot of pressure off of us by having her on it if that makes any sense.
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Ok, thank you!!!
ONe more question...how do they test for food allergies??
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ONe more question...how do they test for food allergies??
Either by a scratch test on the skin or by a blood test (in our case they did both, as scratch test showed nothing, blood test was kind of on the bubble, but they consider she is allergic due to reactions)
Hope the eggs go okay Vicki!
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Good Luck Vicki :-*
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Thanks everyone. I chickened out this morning because we were going to a program and she fell asleep on me so when she gets up we're going to have one for lunch.
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How did it go?
Kelly
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Eggs seem to be ok. 4 days now and she's fine :D
So wheat is fine, eggs seem to be fine. Was it just some milk that slipped in somewhere? Or does she need it to build up more? Still stumped on that one but she's doing great for the moment and fingers are crossed that it continues.
We go on Wednesday to our new Dr and I'm getting my lists and pictures ready. Poor guy won't know what hit him :P I think we're going to ask for a repeat on the RAST and I'll explain about her not having had any antihiastimines for the past few months. We have something new causing a reaction so surely that will be enough to convince him to go with it. We're also going to push for testing for the girls but we don't know what really to ask for with them. In NB where we used to live, they could only check for dairy and egg at E's age. Not sure what they have here but hopefully something more.
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Yay for eggs ;D Makes life so much easier the less you have to avoid!
In NB where we used to live, they could only check for dairy and egg at E's age. Not sure what they have here but hopefully something more.
Could or would? Our allergist could check for darn near anything, but he would only tests for foods she had actually ingested and had a rxn to. The only exception to that was he offered next visit to scratch test for penicillin to prove one way or another if she is allergic (he's a bit of a pompous @ss, but I knew that going in, and overall he was pretty good, but he just put her rxn to penicillin down to a random viral rash, where I would like to be sure before giving it again)
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Brilliant news on the eggs!
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I am so glad the egg trial has gone well! ;D
Kelly x
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The egg continues to go well as well as the wheat. So I'd say at this point that they're safe. She's having lots and acting and sleeping fine. Poo is fine also.
We just got back from our first Dr's appt. He was good but unfortuately not much help with it. It would appear that dh and I know more than he does and he was quick to admit that this isn't his area. He wants to refer to a paed and an allergist but we've already got that in the works from an earlier appt from a walk-in clinic so we just have to wait until the beginning of March ::) He wasn't even sure if he COULD order a RAST for allergy testing or if it' on the responisbility of a paed. So I'm fine with that. He wants a paed to follow the girls for their various concerns with food and I'm more than happy to continue with that. It was pretty chaotic in the office with the girls who are OT so we left it at that and I'm more than happy to also get the big girls referred.
He took note of their milestones and weights and has no concerns which was a bit frustrating to have to explain the past few years to him. I'm glad I had our charts as we really think he didn't believe us at first how small E was. He's thinking perhaps MSG so we can trial that, but I'm not a big fan of MSG and don't usually let the girls have it. So purposely giving it for a food trial seems a bit odd. He wasn't familiar with Nutramigen as a formula so my guess is that children are not his area of expertise. But he's more than willing to refer to the apropriate specialists so I'm happy with that. Just not happy with the wait times.
Hopefully we can work with what we have as we don't have a choice ::) until March. I'll keep trialling foods, though the milk won't be touched until after we see the paed.
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good luck with the MSG trial!! Sorry that he doesnt seem to be the right dr for you but at least he would refer! it is frustrating and you just want to get to the bottom of this asap. vibes that you wont have to wait too long!! xx
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Vicki, GP's are generalists, here in Australia their real purpose is to know what is 'normal' & 'abnormal' & to point people in the right direction, be that helping with high bloodpressure or referal to the appropriate specialist. Even with specialist they specialise within their fields so I can completely get that he didn't have a good understanding of children or allergy.
TBH I would prefer to have a GP who said "I think this is something I should refer you on" than a lets try all these things & then if we don't get to an answer I can refer you... which is whay my FIL's GP does & he ended up in & out of hospital for 4 weeks over something that could have been sorted far more easily with a referal to the specialist in the first place.
Also My former GP (when I lived the other side of the city) & I once had a laugh as my boss at the time was one of his Lecturers when he did Medicine... he told me that in his 5 years of training they did 4 weeks on 'Allergy', at the time I was working in Allergy (at a grass roots cellular level) & I definitely knew more than he did & I can say I don't know much about food allergies.
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Thanks Kate. I'm thinking that I'll be happier this way than the wait and see bit that we've been doing for the past four years with my other Dr. Yes, she was knowledgeable but I'd rather have the specialists. I 'know' that something's up and something not overly common for what we've experienced. But I must admit it did feel a bit odd to have a MD tell me that I knew something more in an area than he did. It certainly sets up for a good working relationship if he plans to be that honest :)
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So I think we've made some progress. We unfortunately had two days of diarrhea again :'( and what appeared to be stomach cramping. We had been giving E some of those fruit bars (not quite like a fruit roll up but kind of like that idea), and she was really miserable not long after eating them. She had always had them and then I realized that she was getting a different flavour. Strawberry. So we were like, ok the bars in that flavour aren't that great. Today she had some mixed frozen berries and this time there were some strawberries in them. Diarrhea.
And that got me to thinking about the applesauces she was having a while back. We get another brand now and they don't have the strawberry in the unsweetened form so I don't buy it anymore. Perhaps this is the mystery ingredient? I KNOW that dairy was slipping in with the pancakes but she was only having them once per week before but diarrhea every day.
So I know for a fact that strawberries are causing diarrhea. I don't know if they were the mystery ingredient but we do know that they don't agree with her. So something else I'm going to ask for.
We're getting somewhere, if not adding new issues lol ::) ::) ::)
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If strawberries bother her, what about kiwi? They are supposed to be related allergy wise! Would be nice to pin down the mystery rxn though.
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Interesting... Strawberries are part of the Rose family. My niece has a strawberry allergy and her allergist had told her that other members of the Rose family are youngberry, quince, loganberry, dewberry, boysenberry, blackberry, raspberry and apple. But he stressed that none of these fruits are in the Fragaria genus like the strawberry is. She can actually tolerate the other fruits fine but each LO is individual of course.
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So we're heading to the Paediatrician on Thursday. I've come to find out that the appointment was only booked for eczema ??? but I've had my GP also update the referral to include allergies and breathing troubles. I'm pretty sure once I pull out pictures of reactions with eczema and hives we'll start getting somewhere in the allergy testing way of things. I'm really getting ready to push. And push hard. This has gone on long enough. E has enough Nutramigen to do her for another three or so months but we need to get to the bottom of things now. She's developing some more breathing issues which we're not sure if it follows sleep apnea (the girls didn't have breathing problems with their apnea), asthma, or it's yet another type of reaction to something she's exposed to.
These showed up today. Hives for an hour on her face and then they disappeared. No idea. I did wipe her face after lunch so the cloth was on the counter beforehand and could have come into contact with anything. I'm super careful with peanut butter and dairy so I really don't know what could have caused it.
Getting my pics and a write-up ready. Hopefully this guy is serious because I'm ready to be the mother he doesn't want in his office. FX on that one.
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fx! hugs xx
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{{{hugs}}} and good luck at the appt! Gotta love those mystery hives!
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Well the appt is tomorrow morning and not soon enough. E was up all night with four separate bouts of mucousy diarrhea between 2am and 8am. She was inconsolable most of they day and really seemed to have some gastric cramps as well :( It's not a bug, it's the same reaction and the fact that it's followed after hives and the amount of bread and wheat products she's had lately has me guessing all over again.
I have compiled a 14 page file including pictures of reactions, notes from various Dr's who have seen her and the dermatologist who classified her eczema, a chronological history of her sensitivities and two videos of her breathing. Surely that's enough. Surely that's enough for a Paediatrician to step up and get us referred for allergy testing and deal with what we think is asthma. If not, I hope he's got someone he can refer me to because I'm not leaving this time without being taken seriously. This has gone on long enough and she really is starting to suffer.
Any spare vibes you may have for this child to get a break and the Paed to take us very seriously would be greatly appreciated. We can't do this on our own any more. We need help with her and we need someone to see that.
But just in case, I'm digging out my boxing gloves and lacing up my boots. I'm going to fight every inch of the way on this one.
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remember not to take the gloves out until they are really needed! Perhaps you will get the best paed who is great! vibes for that!!!!
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Vibes on the way from us! Go get 'em Momma Bear!
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Sending vibes on the double. Thinking of you and hoping for answers. Hugs!
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{{{hugs}}} and tons of vibes Vicki!
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{{{{{{{{{{Lots of hugs}}}}}}}}}} and ~~~~~~~~~~~vibes~~~~~~~~~
Kelly x
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Thanks everyone :)
Long day (aren't they always when you have a big appointment?) and just getting settled in to sort my head out about it all. First off, the Paed is AMAZING!!!!! We're not crazy, he confirmed that and he's got us on the path to get some things sorted out with E. Unfortunately he's taking a year off starting in July to specialize but he's passing his patients on to the other Paed he shares an office with and he said they are like minded and have the same views on allergies. He said she is aweseome and smarter than him so we're happy with his confidence in her. He said in cases like E, both of them would likely choose the same route of testing and treatments if possible to treat. So we're happy with that.
Within seconds of describing the weight loss E endured while bf'ing and the symptoms she exhibited then, he said right off Milk Allergy. We went through her history and she's got some big red flags that this needs to be investigated further. What's more is he confirmed that I did the right thing by going on an ED. I can't even describe how good it felt to hear that after having another Paed imply that I wasn't bf'ing properly. We went through all of her triggers and symptoms and looked at our family histories. We went over what we know for sure and there is a definite concern about wheat. :( He advised against cutting ALL wheat as it hasn't been confirmed and it's such a huge thing and we're already incredibly frustrated trying to feed her. We discussed testing for Celiac and the amount of false negatives the blood test gives and the only way he said to confirm it is through a biopsy of her intestines while under GA. Where this is so invasive, and she's thriving he's leaving that up to the allergist. Dh and I aren't prepared to do anything that invasive until all other avenues to figure her out have been exhausted.
We've got a referral in to a Paediatric Allergist and should get in within a couple of months ::) ::) ::) But he's recommended us to a guy that doesn't like doing RAST blood tests because of the false negatives it gives. So it'll be a scratch test and that's what we wanted so yay :D I mentioned that E was on a daily dose of antihistamines and he said right there it would discredit the results of the previous RAST we had done. He seems so knowledgable and so proactive on getting E some help. We did discuss the differing opinions that allergists have but his position is to try to get all of the info before deciding what's affecting what. He agreed that E right now has a build-up in her body and that would likely explain why she's so sensitive ATM.
She likely has asthma :'( He explained how to use her inhalers properly and gave us a regimen to follow as soon as she gets a sniffle to help her out when she gets a cold. He did say that her coughing could also be due to her sleep apnea but more likely an asthmatic thing.
She is also exhibiting breathing reactions to something she's exposed to and it's likely food. We're thinking wheat right now and possibly dairy though she did it tonight after having a chicken nugget that was breaded and I didn't get all of the breaded stuff off. But sometimes the breaded stuff contains milk so not 100% sure. But we did have to discuss anaphylaxis after that due to our concerns with breathing problems as a reaction to food. TBH, that part does scare me a lot. I know she doesn't have anaphylactic responses to anything she's been exposed to so far, but there are a lot of other high risk foods she's not tried yet so my imagination does wander :( Thankfully the testing will shed some light on that.
We're going to do some stool samples to check for blood and one of the more common parasitic infections he's seen just to rule it out. He doesn't believe she has a parasite as this has gone on for almost two years and nobody else in the house has it, but just to be safe and it's not an invasive test he wants it run.
After her breathing episode during supper she had a bout of diarrhea and it burned her and now has a bleeding bum :'(. So things are still quite built up after having her on bottles all day yesterday. I'm thinking of doing meat strips for her tomorrow, rice and oatmeal with blueberries as it seems to firm things up for her. At a loss really as there are so many things that are triggering her and she's tantruming because I'm denying her food. This is where it's hard.
So we're finally heard. We have a plan to help her. It's going to take some time and we're left for the next couple of months to figure this out still but we have someone who WILL finally help us. I just need a plan to help her little body balance out so she can get some relief from these tummy upsets and the diarrhea.
Any thoughts would be greatly appreciated :)
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Vicki, if you haven't already heard of the Kids With Food Allergies site I would highly recommend it. Can't post a link as I am on my phone and off to bed, but I will in the morning. So glad the Dr was so awesome, what a relief to be validated!
(((Hugs)))
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Will head over there now Heidi :-* thx
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you didnt need your boxing gloves!!!!! :) good paed! hope E feels better soon!!
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I have just read your whole thread. i'm so sorry you are going through this. We were at a similar stage last year but in a way it was much easier as K was only 1 year old at the time so she wasn't too fussed about what she was eating. I can imagine how hard it must be at this age!!! I'm really glad the aped was so awesome and I do hope the appointment comes sooner rather than later!!
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I'm so glad you have a new Paed that you love and a plan! He sounds wonderful. And I second the suggestion for the Kids with Allergies site. So many hugs!
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Will head over there now Heidi :-* thx
I don't get on there much anymore, but it is such a great resource! I'll just post the link in case anyone else is reading this:
http://www.kidswithfoodallergies.org/
I really hope the breathing issues don't turn into an anaphylactic allergy! That is my biggest fear, for me and my kids as alot of my adult relatives are developing later in life. Ugh, in a weird way it makes me glad Spencer is sometimes oblivious to the fact that she is missing out on some foods because that would be so hard...she is so literal in her thinking that all I have to do is tell her that a certain food gives her an "owie tummy" and she wouldn't touch it on her life.
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What a fantastic appointment Vicki! Just on my iPod so a pain to type but will come back later. So happy that the ball is finally rolling for you! xx
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Thanks everyone :-*
She had another reaction this morning (diarrhea from what we think was a bread she accidentally got) and at supper she had some ggie straws that she used to have and she started wheezing and had a couple of gasps :'(. She's fine and it passed quickly. it did give us a scare though and we're getting a little frustrated with what can we actually feed this child?
We're going to go back to two bottles per day to help her gut heal. I read a really interesting article about leaky gut and what celiac can do to the guts and it does explain a lit of what's going on. I've been pretty scared of researching celiac but this is the second time this has happened for a lengthy period of time and I think I should educate myself on it now. Dh found it really interesting so we may cut the oats for a while also.
Also going to spend more time on that allergy website because it's getting really overwhelming trying to figure out what to feed a child when you're trying to stay away from dairy, soy, gluten and many tropical fruits. My food processor ostensibly awesome and I've made rice flour and oat flour easily so I might attempt coconut flour next.
I'm sure I'll sound impatient but if I don't have an actually referral date by the end of next week I'm going to call the Paed 's office back.
Thanks for holding my hand. Been having some overwhelmed moments over this lately.
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I'm sure I'll sound impatient but if I don't have an actually referral date by the end of next week I'm going to call the Paed 's office back.
Nope! I've done this before, and actually it helped to get Spencer assessed within 4 months instead of the usual 1-2 year wait!
Coconut milk is yummy stuff! (I just buy my GF flours, don't have a big food processor). Doesn't work well on its own, but adds lots of flavour to other stuff (I even put it in our stuff, not just Spencer's). I can't imagine having to cut soy on top of what we already don't have.
Ugh, the wheezing is really scary Vicki! Do you guys have an epi pen just in case? I don't have one because we've never had a breathing rxn in combo with hives and gut rxns but I really want to push the allergist for one next time just in case.
{{{hugs}}}