{{HUGS}} I hope you can get some joy from the Dr. A little tip for you, once you know the Dr has sent the referral ring the hospital to find out where he is on the list and see if you can get a cancellation and keep ringing. I made a right pain of myself with DS, by the time I needed an appointment for DD, the ladies in the paed department knew who I was and got us in sooner

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In the meantime just do what you can to keep him comfortable and don't stress about routine, that will come when the reflux gets controlled.
Laura