Sarah: I PM'd you back, now I know why you were asking me about that.
I know you feel like you are poisoning him by giving him gluten, if he does have Celiac, but if it is removed then the biopsy may show he does not have it.
I really think you have found the reason for his eczema, not sleeping, you name it.
Just because his levels were borderline, does not matter. He may not eat that much gluten, but just enough to raise the level slightly. When is his biopsy? I would push for that as soon as you can.
Gosh poor baby. He is the cutest little boy I have ever seen (well other than Zach and Tyler of course, LOL).
Okay so I am looking through my book: I would PM you, but will post it here so in case anyone else is having a similar problem.
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The biopsy is the gold seal standard for diagnosing Celiac. A duodenal biopsy will be taken. The esophagus and stomach is also biopsied if it looks abnormal.
If you have Celiac, the biopsy will show flattened villi. There can be other causes of the biopsy showing flattened villi though. They are HIV, tropical sprue, giardiasis, chorn's disease, gastroenteritis. They must be ruled out by your doctor.
Also they can MISS the celiac disease. They may biopsy sections of the mucosa that is normal and will not show flattened villi. They must take several samples to increase the chances of finding the celiac.
The book also stresses to parents that psychologically, if you don't have that piece of paper, that evidence from the biopsy that your child has celiac, you will always wonder. Even if you go off the blood test alone and he improves on a gluten free diet and thrives for years on it and is better. Then one day he slips and has gluten, but seems fine with it, and it is added back to his diet because maybe he really does not have it. Then years later he starts to have problems again.
Also on the flip side, you don't want to under-go a LIFE time diet, that can be tough, if you are not 100%.
I know you said Logan has always had dry, itchy skin, breakouts, etc. Right?
One other the other ways to test is: People with dermatitis herpetiformis, the skin manifestation of celiac disease. They can be dignosed by a biopsy of the skin immediately adjacent to the erupted blister. If it is positive, then celiac disease is confirmed.
Celiac Disease is one of the most undiagnosed autoimmune disease's. Doctors normally just say it is something else: IBS, eczema or unexplained dermatitis, chronic fatigue syndrome, lactose intolerance, etc.
Gosh there is just so much info. in this book I could go on and on. He has a lot of the symptoms, no doubt.
Also some people may have only minor symptoms.
I really think you should order this book Sarah.
I hope this helped some. If you have any particular questions, please let me know and I will see what it says.
Hugs!! Wendy
