Author Topic: Milk/Soy Protein Intolerance (MSPI) Part 2  (Read 54063 times)

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Offline Ennypen

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Milk/Soy Protein Intolerance (MSPI) Part 2
« on: March 27, 2008, 09:47:50 am »
continued from babywhispererforums.com/index.php?topic=66236.435

http://babywhispererforums.com/index.php?topic=139773.0

http://babywhispererforums.com/index.php?topic=74496.0

http://babywhispererforums.com/index.php?topic=127677.0

****Check out the links above for some GREAT information, they are no longer stickied, but the link will take you right there!****** Tari  :-*

Milk and/or soy protein intolerance (MSPI) describes a reaction to the PROTEINS (not lactose sugar) in milk and soy which damage the inside lining of the intestinal tract. The cause of this problem is not fully understood. Your child may be born with this intolerance or may aquire it later. It is also not the same thing as lactose intolerance in adults which is simply the inability to digest milk sugar (lactose) due to an enzyme deficiency. Babies with MSPI may also have a secondary intolerance to milk sugar as a result of intestinal damage already present. This intolerance to milk and soy PROTEIN is inhibited by a change in the cells or the gastrointestinal tract. Your child will probably outgrow this problem by late infancy or during the second year of life.

MSPI is diagnosed by a detailed history. Your child will be exhibiting one or more of the following symptoms: bloody stools, diarrhea with water loss, constipation, irritability (putting it mildly), weight loss or failure to gain, vomiting, appearing to be hungry all the time or refusal to eat at all. Eczema may also be the only symptom that a lot of kids with MSPI have. The doctor will question you as to the types of formula, if any, your infant has been on and how they reacted to each one. A description of the child's bowel movements is necessary. The doctor may elect to do an endoscopic examination. During this procedure, the doctor uses a lighted instrument to look into the small bowel and/or rectum. Damage (called colitis) is present if the lining is red, inflamed, or bleeding. Inflammatory changes may be noted on tissue samples obtained during this test. Less invasive testing can be done by obtaining a stool sample card to check for blood. It is the combination of the colitis with some of the symptoms listed previously which confirm the diagnosis of MSPI.

The treatment for MSPI is the removal of the offending milk and soy proteins when diagnosed. When diagnosed, most infants need to be on a strict milk and soy free diet until they are 9 to 24 months old. The best treatment is for mother to breastfeed and eliminate the proteins from her diet. Formulas which contain predigested proteins, such as Nutramigen, Alimentum, Pregestimil, Neocate, Tolerex, Vivonex Pediatric, or 3232A are utilized. (Approx 50% of these infants can tolerate one of these formulas. http://www.nutramed.com/digestion/ )

It is recommended that solid foods be delayed until the infant is 6 months old.
« Last Edit: May 07, 2010, 20:33:59 pm by scarlett'smom »

Offline Jimbob

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #1 on: March 28, 2008, 09:10:30 am »
Helen. thank you for locking the old thread and starting this new one. It was on my to do list today.

Kelly



James has atopic eczema, multiple food allergies, asthma and late talker

Offline vickymeek

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #2 on: March 29, 2008, 18:37:45 pm »
Hello,

Well, it seems he does have silent reflux as well as milk intolerance. I haven't had it diagnosed yet, but thanks to a chat with a health visitor the other day, who said it in passing (I hadn't read your posts at that stage), I started observing much more closely when he was distressed, etc.

I had suspected when he was first born that he had reflux because he was doing some spectacular vomits and squirmed loads when I was feeding him, in addition to finding it hard to sleep soundly (or at all sometimes), but was told on two separate occasions by health visitors that it wasn't that, either because it was "very rare" or that he was "just eating too much". Because of that, I just dismissed it as a possibility.

He shows all the classic signs - constant crying, really bad sleeping during the day (often as short as 5 mins), back arching, neck craning to the side, coming off the breast and crying, yet obviously wanting more, screaming blue murder when I put him in his cot or lay him down for nappy change... Now that I'm listening out, I can even hear the acid coming up his throat.

It just seems so obvious now and I just wish I'd stuck to my guns earlier on and saved him (and us) an awful lot of pain. I might not have twigged about the milk intolerance early on, but we could at least have made his life a bit easier. At least now I know what's going on i can try and do something about it - I'm so relieved.

I now need to try him on infant Gaviscon and, if needed, Renitidine and try and stabilise his condition, then I might even find that he can tolerate the formulas. Any other suggestions/hints about making him more comfortable, except obvious ones of tipping up the cot and keeping him upright after feeds that you might have would be really appreciated.
« Last Edit: March 29, 2008, 18:41:55 pm by vickymeek »

Offline fitfamily

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #3 on: April 08, 2008, 04:59:19 am »
I saw your post under reflux.  How old is your baby?  You may have posted, but I can't find it.  Also, mine had silent reflux and you described it perfectly with the gurgle acid that you can hear.  The arching and the pulling off is right on.  I'm sure the meds will kick in if they haven't already.  One thing you should make sure of is that your diet is clean of all dairy and you may try soy just for good measure.  I found out that my ds was intolerant to both.  I lived happily on rice, beans avocado and chix for 10 mo.  The sleeping was never great until he really hit 1yr so don't look for predictability.  Just try to manage what works for you both.  I had a text book dd #1 and she was on EASY and sleeping thru at 3 m.  My #2 child had these issues and I just had to hold him for naps sometimes.  At the time I was frustrated because I thought it would really move him far from being an independent sleeper.  That was wrong on my part.  He's a champ for sleep now.  He was just miserable for so long.  You will be amazed at his transformation.  Just take each day as it comes. Love, Ashley

Offline vickymeek

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #4 on: April 14, 2008, 22:17:06 pm »
Thanks again Ashley. He's nearly 8 months.

Medication not really working - ranitidine and domperidone seem to be making him worse if anything. Am going to try to push for a PPI drug. Now that things have got so bad, I kinda realise that him not being on a routine is the least of my worries, but I'm also with you now on the idea that once we get things sorted out (please let it be soon - I'm not sure how much longer I can handle seeing him in so much pain), he'll sleep pretty well. The few times we've had when he's not been suffering as much, he's pretty good at getting himself off to sleep and staying that way, although I have sneaking suspicion he's an early riser by nature. Boo!

Offline Mom2Pearce

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #5 on: April 27, 2008, 21:56:30 pm »
Hi there everyone! i've just found this thread and wanted to know if anyone has an experience of their lo growing out of mspi? My dd(6mos) has had trouble with my drinking milk, eating cheese, etc... since she was small. A girl on another board i'm on said her dd had similar prob and that now she's fine...I don't know how profound the problem is, but i do know that i don't have to read every label--she handles most things with milk in them but really gets grumpy if i have cheese or if i drink cow's milk
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Offline meltown

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #6 on: May 04, 2008, 01:33:40 am »
does anyone know what brands int he US of butter or margarine don't have milk or soy?  I thought smart choice or whatever it is called didn't but I looked and it had soybean oil.  also bread without those.  I am thinking I will have to make my own, but if I could buy some that woudl be great too. 
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Offline Jimbob

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #7 on: May 06, 2008, 19:24:44 pm »
I am from the UK so have no personal experience of products in the US. I do believe from memory though that spectrum organics is dairy and soy free aswell as Fleishmann's light soft spread (tub variety only). I hope this is of some help, please do check ingredients first.

Kelly



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Offline GraceKellysmom

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #8 on: May 21, 2008, 03:36:34 am »
Melissa, I don't know of any margarines that don't contain soybean oil or dairy... what are you trying to cook, maybe we can find a different substitute? For example, for sauteeing you can use olive oil, for baking many times you can use canola oil. For frostings I have had success with coconut oil. Do you know if Crisco is canola or soy? that might be an option in a pinch. I do not use margarine at all anymore.
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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #9 on: June 28, 2008, 05:16:26 am »
Stacy--for a bar cookie sort of recipe that calls for butter, do you think that canola oil would work?

Offline GraceKellysmom

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #10 on: June 30, 2008, 02:38:34 am »
Nope, I have not been able to find a good sub for cookies. If you can do lecithin, try looking for Nucoa margarine. That is one that I have used. Fleishman's Light was an option I think, but it is getting harder to find.
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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #11 on: June 30, 2008, 03:17:00 am »
Thanks Stacy--that's what I've been using.  :)  I just hate that it has so much transfat in it and was hoping to switch to a healthier form of fat iykwim.  :)

Offline meltown

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #12 on: June 30, 2008, 05:02:06 am »
I made chocolate chip cookies last night with the canola oil.  DH wants me to make some with regular chocolate chips because he likes how soft they are.  thanks for the info on that bethany.  how is everything going for you?  has the soy free helped at all?
Melissa
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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #13 on: June 30, 2008, 06:06:50 am »
I think it's helping.  Friday morning I accidently ate some waffles with a tiny amount of milk in it and Saturday for the first time in a while DD had a huge spit up.  Her spit up still doesn't seem to upset her, but it seems like more than a coincidence that it happened within 24 hours of my ingesting milk.  I have been off soy now too and I'm not sure that I notice a difference.   

Mel--are you doing soy bean oil and lecithin now? 

Offline meltown

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #14 on: June 30, 2008, 16:12:13 pm »
not yet.  she has been seeming to be a little bit worse.  crying more when laying down and things like that.  the GI specialist said that reflux peaks at 3 months so I figure that is what is happening.  so I decided to wait until she seems a little happier to try it a again.  It is hard but I'm more used to it now.  I think it will be so nice to add those things back in though. 
Melissa
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Madison 08/07/2021