Author Topic: Milk/Soy Protein Intolerance (MSPI) Part 2  (Read 54054 times)

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Offline Micky01

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #15 on: July 02, 2008, 19:16:09 pm »
Hi all, I'm glad I found this thread.  DS is having so many of the same problems.  He's 7 wks now,  at 3 weeks, I took him in because I suspected silent reflux.  Dr. put him on zantac.  It didn't work so then we tried prevacid.  Seemed to work OK for a while, but he was becoming more and more uncomfortable and had developed a nasty rash on his face along with green stools.  Dr. suspected mspi and put me on the diet.  I have been milk and soy free for about a week and have already noticed a difference.  His rash is clearing, stools are more yellow and his skin isn't as oily. However, he is still having a terrible time sleeping, especially during the day.  It is now 1pm here and he has only slept 1/2 hour all day.  :( He is so tired, has bags under his eyes.  I'm suspecting the reflux is still the culprit because I can still hear him swallowing after he burps and then he fusses.  His Dr. told me I could keep giving the prevacid if I wanted to,if I thought it was helping. I really don't think its doing much for him and am thinking of trying to get him on something else.  Does anyone know  if the reflux eventually clears with the diet changes? Or will it continue to get worse as he approaches the 3/4mo age?  Thanks for any help.

Offline jellybabe

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #16 on: August 12, 2008, 19:33:13 pm »
Just also came on this thread. I am mixed between if dd has silent reflux or mpi. She does the arching her back, goes rigid and straightens her legs. She screams ear deafning screams. Then she'd calm and all of a sudden arch again and scream. She does have a lot of gass too. When touch her belly or try to lift her legs a bit she'll scream even louder! Tried LF formula but so far no good. Screamed twice today after 2 feeds. We got gaviscon and had it in her formula but she still screamed. ds had projectile reflux and it worked with him.Now thinking if she's got some protien sensitivity too, causing all the gass.

Offline Spectra

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #17 on: August 12, 2008, 19:37:15 pm »
Could be possible, how old is your lo now?
Melanie
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Offline jellybabe

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #18 on: August 13, 2008, 09:16:45 am »
she is 3 mths old. After every feed she'll be cranky. She has a burp (or two). Sometimes its just a sllepy cranky but most times she screams and goes rigid and arches her back. cant get her to sit (any pressure on her tummy) or shell scream.

Offline Spectra

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #19 on: August 13, 2008, 12:28:38 pm »
I would bring this up to the doctor as a possibility.  I'm not sure if you can get the special formula without a prescription where you are.  But if I were you I'd try everything to solve this problem, especially where it seems she is suffering, poor thing.  I was in your situation and I kept pushing the doctors, finally I had to get a new one, but it's all worked out now.  I would definitely look into that with your doctor or if you can try the special formula too.
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Offline jellybabe

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #20 on: August 13, 2008, 15:07:24 pm »
I am going to buy her a tin of nutramigen and see how she does. If she improves and has less gass and fussiness then I am going to go to doctor and get it on prescription. It cant hurt to try it can it?Its just as good as normal formula, just might do her better.

Offline Spectra

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #21 on: August 13, 2008, 15:19:14 pm »
Exactly.  And give it some time.  For me it took about 3 days and I started to notice changes, but that had to do with his skin, I'm guessing that the gassiness would clear up a lot sooner, though I'm not 100% sure on that.  Good luck to you, and I hope it works.  I know how frustrating it can be not knowing how to fix things.
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Offline Peek-a-boo

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #22 on: August 13, 2008, 17:24:17 pm »
I think with any MSPI stuff you need to give it 2 full weeks before you really assess the results as it can take that long for the proteins to leave your system.  :D

Offline momtoandrewandthomas

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #23 on: August 13, 2008, 19:09:54 pm »
I would agree about at least 2 weeks.  Thomas really had changes within a week; by 6 weeks, he was a new kid.
Jen - pediatric physical therapist and wife to Brian
Mom to Andrew - 5 1/2 sensitive preemie
           Thomas - 2 1/2 MSPI textbook baby

Kindergarten is stressing me out!!!!

Offline kiarataine

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #24 on: August 17, 2008, 09:21:44 am »
http://www.cryingoverspiltmilk.co.nz/
I found this website brilliant, my little boy had bad reflux and my doctor recommended this website

Offline leycourt

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #25 on: August 17, 2008, 10:16:17 am »
Can you tell me how you get your LOs diagnosed with MPSI? I suspect my lO may be dairy intolerant.
She has reflux which is sort of under control with meds but not completely. She is on gavisocn, omperazole & dom peridone. She also has sandifers. She vomits a lot. She is breastfed and has one bottle of C&G comfort a day which does not seem in itself to make the vomiting any worse
We think that as she was prem part of the top of her tummy is not sealing right - well that's what our peadiatrician says.
However DS (now 2yrs) had reflux too - just the same. He improved a lot on Neocate (elemental milk) at 3 months but was able to tolerate some dairy at 6 months. We gradually introdueced it post 6 months and it;s fine now. He was on normal formula by 9 months.
What's odd is that my OH has just remembered something his mum told him 15 years ago - that she tried him on formula as a baby and he was violently ill. She always ate a low dairy diet anyway and he was ok breastfed. By the time he was a year old he could tolerate some dairy.
Having discussed elimination with my doctor - it has been suggested that I should not do a full elimination diet due to the fact I was very ill when pregnant and 8 weeks on have still not recovered. However I could reduce dairy and see if an improvement is made. The only other option is give up breatsfeeding and moving onto Neocate which I don't want to do.
Is there any other way of knowing if LO is dairy intolerant? We are seeing the doctor again in 2.5 weeks.


Offline jellybabe

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #26 on: August 17, 2008, 13:28:36 pm »
Sounds to me she is more reflux. I was told its hard to diagnose babies with mspi and its a hit and miss thing. If she was LI, more symptoms include excess gass, bloatedness, foamy pooh's/diahrrea, some have eczema. She might not be allergic to dairy, but she might be hypersensitive to it. Babies digestive systems are weak and some struggle to break down lactose in dairy. My dd is not diagnosed with it, but she too has silent reflux and does the arching of her back, screaming and fussiness. During nites she moves around constantly and thruses her head left and right and has lots of gas. She is using lf formula now, and I put colief in the b.milk that i express. It seems to have lessened her gas quite a bit, which makes me wonder if the comfort she was on wasnt causing the gas (as its said to give excess gas, but should be able to release easily)She is less fussy now too and doesnt cry after every feed anymore. I am still on the fence if I am going to try nutramigen and see if it settles her once and for all! But dont want to spend money for nothing.

My ds had projectile vomiting and reflux, and gass too, but as a first time mom I had no idea what is causing it. If I had known, I wouldve definitely tried different formula on him! I am actually quite dissapointed in our medical system as no one even suggested this or seemed to know what could've caused it!
« Last Edit: August 17, 2008, 13:33:12 pm by jellybabe »

Offline Peek-a-boo

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #27 on: August 17, 2008, 21:16:00 pm »
leycourt--I've read that liquid milk is hardest on LOs with dairy issues, so if you could at least eliminate that it might help.  I guess I'm confused why your doctor doesn't want you to try to eliminate dairy--it's really not all that fabulous for us in general. ???

My DD hasn't been properly diagnosed.  My doctor did a bit of an ::) when I brought it up, so I went off dairy and soy entirely and have seen a difference.  Have also accidently had dairy a couple of times and it has caused problems. 

However, from what I've read reflux in breastfed babies often significantly improves or resolves entirely with the elimination of dairy.  This has been the case for my LO.  She was refluxing milk up into her nose so was constantly congested with milk snot and then she started doing big projectile vomits.  Once the milk was out of my system, both of these things quit. 

Offline jellybabe

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #28 on: August 18, 2008, 20:46:47 pm »
So, she's been on lf milk and has been doing well for a week or so, last nite ran out of it so decided to use comfort to see how she reacts, and offcourse, had a terrible nite. She wouldnt settle, kept fussing and moving and was crying for about 30 min, settled a bit and whining again. Today in the am gave her another bottle of comfort, she took 2 gulps, cried, i burped her, then tried to give it again, but she refused to take it. So I went to buy lf again, but today it didnt work ??? ???She had accute bouts of gas after her bottles and farted while crying. Naps were very irritable. She'd wake up after 1 hour. Quite fussy and cranky today. So....now definitely going to buy Nutramigen and see if it settles her once and for all. She was doing quite ok during the week she was on lf, not too much fussing and had less gas. Dunno what this gas is all about!!!!She's been ok on expressed b/milk during the week so cant think what this is.
« Last Edit: August 18, 2008, 20:48:32 pm by jellybabe »

Offline Peek-a-boo

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #29 on: September 05, 2008, 00:14:54 am »
Just wanted to share, my 2.5 year old can't have dairy and won't drink rice milk, so I've worried about his calcium intake.  I've had trouble finding an appropriate supplement for him.  Then, at Costco, I spotted a calcium supplement in the form of gummy bears!  It's the same company that makes the gummy bear mulitvitamin that he takes.  He loves them and they contain no milk or soy and no artificial colors, flavors or perservatives.

They are called L'il Critters Calcium Gummy Bears with vitamin D.  Two bears has 200mg of calcium and 200 IU of vitamin D.