Author Topic: Milk/Soy Protein Intolerance (MSPI) Part 2  (Read 54002 times)

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scarlettsmom

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #45 on: September 30, 2008, 23:32:05 pm »
Yes, we have to pay for the Alimentum...it's pricey! 

We got the Alimentum rtf the other day, gave her an ounce last night and probably another ounce or so tonight - keeping our fingers crossed!


Offline Spectra

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #46 on: September 30, 2008, 23:43:33 pm »
Let us know how it goes!

I'm curious, how much does that stuff cost in the US?  Here, Canada, I see it is about $55 for a case of ready to feed, 8 oz cans, 24 cans.
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Offline Mydreamcametrue

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #47 on: October 01, 2008, 02:41:08 am »
Hi Tari:

Sorry I did not respond earlier.  How is is going?  I really am hoping that this will work.

Black specks in the poop is not a good sign.  Black poop means that it is more internal, then just an anal fissure or something.  It also indicates old blood.

Can you get into the Ped. to have a stool test done.  They will do an anal exam and get some of the poop and put it on a card to see if it is actually blood.

If you don't see improvment, I would try Neocate.  That is what I did. 

Melanie:  Alimentum RTF comes in a 32 oz. bottle and it is right at $10.00. The can is $26.00 a can. 

When Tyler was on Alimentum, he went through one bottle (and a little more) in one day.  It was costing us $80.00 a week for his formula.

Please let me know what happens.

P.S:  Just another thought.  I have found out that I am allergic to potato's and my son has an intolerance to them.  I never ever thought it was a common allergy or intolerance.  I noticed the lunch meat had potato in it.  If things don't improve, you could try removing potato's.

HUGE HUGE HUGS!!  Wendy
Wendy -

Zach - 3 1/2 yrs old. My sweet, loving, gentle boy that loves playing in the dirt!

Tyler - 17 months.  My very very spirited little boy.  Can't turn your back for a minute.  He is doing the cutest things now!  Loves to eat and climb!

Offline Spectra

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #48 on: October 03, 2008, 18:53:04 pm »
Tari, so how is everything going with the Alimentum?  I hope it is going well.
Melanie
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scarlettsmom

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #49 on: October 03, 2008, 20:23:45 pm »
Hi Melanie - well, we only gave the one ounce a couple of nights ago because she ended up not taking any and  then our rtf had to be thrown out, etc etc, but plan to try some tonight.  No huge side effects at this time, thank goodness, thank you for asking! :-*  We may be switching to Nutramigen though as our ped said that he likes it better and has seen great success with it (he also gave us 2 big cans of powder to use, so we have to think about it).  Is your LO on hypoallengenic formula?  Did you have success?  It's all so nervewracking. 

Wendy - thanks so much for the reply.  DD was doing great, eating, sleeping, etc wonderfully and then had a fussy night last night and this morning had what looked like black blood in her diaper.  I was SO upset - rushed her to the ped, he said it looked normal, but did a test to check and....it wasn't blood!  YAY!  I was SOOOO relieved.  He said she is doing great and could just be the last of it getting out of her system, or the ALimentum since she usually has BM, or a host of little other 7 week old things that are completely normal and to remember aside from any intolerances/allergies her digestive system is just started to mature.  She hadn't pooped in a while and after that one she seemed so happy - so who knows.  Funny you mention the potatos - I saw your thread on that and immediately took them out of my diet.....along w/the lunchmeat.  Ped said that to introduce wheat in the next couple of weeks, about 2 weeks after I start (if I do) the Nutramagin. 

This is all so confusing still but thank goodness for this board you experienced mama's.  I read a very distressging article about how it's almost cruel to keep breastfeeding allergic infants as the trial and error impacts them the hardest,  :'(, I was devastated - but my awesome ped said that's cra* and we're doing great.   

Thanks again ladies for your responses and interest, makes me feel not quite so overwhelmed. 




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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #50 on: October 03, 2008, 23:23:51 pm »
Tari, I'm glad you guys are doing better!  And yes it took me almost a year before a doctor would listen to me, but once I put him on Rice milk and all his symptoms cleared up my NEW doctor praised me.  I finally got a prescription.  I tried Alimentum, but my son's symptoms came back and so I had to try Neocate, and it's working like a dream.  I'm thankful the government pays for it here in Canada, I looked online out of curiousity and one case of that stuff would cost $90 Canadian, and that would probably only last me 1.5 weeks.  I think in the US there is a way to get your insurance to pay for all or most of it. 
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scarlettsmom

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #51 on: October 04, 2008, 21:37:27 pm »
Wow - almost a year before a dr would listen to you?!  That's terrible - poor you and poor DS.  That must have been very tough.  Excellent job advocating for yourself though - mommy's gut instict is rarely wrong....That's awesome the gov't pays for the Neocate, I've heard it is really good.  Here it costs $150 for a small little tin (I called the pharmacy to ask because I was going to trial it (we don't need a prescription here) on my own even though my ped said he wouldn't recommend it just yet) - yikes!  I've heard some insurance companies will cover it, but it's hit or miss here w/our insurance companies  >:( .  How is your LO now?  Was it hard introducing solids?  That scares me...

So, I am going to have grapes on Monday.   ;D  It's on the low allergen spectrum and honestly I'm about to lose my mind on my steak/chicken/avocado/oatmeal diet, lol.  I'm really nervous, but will just have a few and go from there. 

Anybody ever hear that table salt may have soy somewhere in the processing?  Crazy.....sea salt is recommended instead.  Learning so much!


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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #52 on: October 05, 2008, 01:45:02 am »
Wow, I had no idea about soy in salt, that is crazy.  I find most of the foods in the organic section have sea salt and no additives.  Thank goodness for the organic section of my grocery store, I never shopped there EVER before, but it's a life saver. 

Introducing solids was a nightmare.  I started him on oatmeal, I figured he'd like it over rice cereal as my daughter did.  2 hours later he was vomiting like crazy, over and over, he was cold, pale, sweaty, lethargic, and then the nasty diarrhea hit.  He had the same reaction with barley cereal.  He wouldn't even open his mouth for the rice cereal, so I had to put it in his bottle, Ped told me this.  I accidentally gave him oat bran in some baby food mixture about 2 months later, and we had a repeat of the terribleness.   With wheat, egg whites, and beef he does NOT vomit, but he gets hot, sweaty, nasttyyy diarrhea, and then his eczema starts to come back.  This is why I believe the Alimentum did not work for him, as it 'appears' he may have Multiple Food Protein Intolerances, and for this Neocate works best.  I say "appears" because my appt to FINALLY see an allergist at the huge children's hospital in Canada is not for another few weeks.  My son is one of two babies on Neocate in my province, very rare.  I'm still learning and trying new foods, I know there is more out there that can cause problems. 

You are amazing for being able to stick so far to this diet, it would drive me mad!  I hope your little one gets better, and gets proper treatment right away.  I know how horrible of a feeling it is to watch them suffer so much.
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Offline Mom Kara

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #53 on: October 31, 2008, 00:36:07 am »
We bought Alimentum on e-bay.  It was much cheaper (even with shipping) and safe as long as it hasn't been opened and isn't expired.

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #54 on: October 31, 2008, 01:45:33 am »
Tari:  Checking in on you to see how things are going.

Wendy
Wendy -

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Tyler - 17 months.  My very very spirited little boy.  Can't turn your back for a minute.  He is doing the cutest things now!  Loves to eat and climb!

scarlettsmom

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #55 on: November 04, 2008, 16:01:03 pm »
Hi Wendy - thanks for checking in w/me!  :-*  Well, I hesitate to say it as I'm afraid the allergy gods will punish me for it  ;) but things are going really well.  I introduced rice, but there seemed to be a reaction - however it could have been the start of a cold, either way I cut it out.  I also introduced apple a few days ago and so far so good.  She is a totally different baby - such an angel.  For the first time since she was a few weeks old she is waking up happy again, it's so wonderful.  Her eating has improved as has her sleep. 

I still have anxiety dreams several times a week though - they are so freaky.  Where I dream I have eaten some ice cream, or cake or something and then realize what I've done and am soooo upset.  Otherwise, she is just so happy and fun and cooing and giggling and "talking" - it's a joy to have my baby back.  I'm nervous about introducing more food, and plan to do it just once a week, or every other week.  We'll see. 

Oh - this is interesting - we took Scarlett to the pumpkin patch a couple of weeks ago and she went and played in all the hay.  Well, I had to brush the hay off of her tights and then touched Gwynnie and she immediately broke out in a terrible rash - it was pretty scary.  So looks like we have environmental allergies as well  :(  We'll get through it though.  I'm crazy about everyone washing hands, takin shoes off, etc etc and it's slowly becoming habit.  When she's older I will take her to an allergist, but in the meantime will try not to get too overwhelmed.

Gotta run and feed little bub.  Thanks again for checking in.  Hope you are doing well!  Spectra - how are you?

xoxo
Tari

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #56 on: November 06, 2008, 12:40:53 pm »
I'm glad you guys are doing better!

I'm doing better now that I have more answers.  It's a bit long to write out again, so here is the link to my other post about the results of the allergy tests and such.  http://babywhispererforums.com/index.php?topic=136226.0
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Offline imaayafa

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #57 on: November 12, 2008, 17:03:35 pm »
hi ladies, i'm responding to some older posts that had questions about fats. i wanted to mention that if you buy butter in a bar it's almost always 100 percent pure. but almost every butter or spread product in a round container or anything labeled a spread, is most likely mixed with oils of various kinds as well as water and chemicals and should be avoided. every health guru i have ever read says that margarine is one of the most unhealthy fats on the market. i bake bread and cookies all the time and i don't use shortening or margarine and sometimes use butter. most of the time i use canola oil, xv olive oil, or grapeseed oil. it's true that olive oil has a stronger taste but you don't taste it in the cookies, but olive oil is not supposed to be heated over certain temperatures to retain its health benefits. grapeseed (very healthy but also expensive) and canola can tolerate heat. i must say, i've had fantastic experience with using oils in baking, but i think the secret is not to put in such large quantities. i often use only one tablespoon or a little more per every cup of flour. this makes a nice chewy cookie. but it's harder to make crisp cookies like this. an extra egg white can also make products moister and replace extra fats.

Offline Mydreamcametrue

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #58 on: November 12, 2008, 20:05:52 pm »
Thanks for the great info.

I have been told that margarine is also really bad for you, but that Smart Balance in the tub is 0 trans fat and is a great alternative.


Wendy -

Zach - 3 1/2 yrs old. My sweet, loving, gentle boy that loves playing in the dirt!

Tyler - 17 months.  My very very spirited little boy.  Can't turn your back for a minute.  He is doing the cutest things now!  Loves to eat and climb!

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #59 on: November 12, 2008, 20:07:21 pm »
I love the taste of real butter!
Melanie
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