Author Topic: Milk/Soy Protein Intolerance (MSPI) Part 2  (Read 54041 times)

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Offline imaayafa

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #60 on: November 13, 2008, 18:08:43 pm »
there is a dr mercola and some people who he does research with (including sally fallon, who someone started a post about) who advocate adding raw, organic butter and cream into the diet, so apparantly not everyone believes it is bad for you. ever since i read that, i am all over butter!

Offline Peek-a-boo

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #61 on: November 13, 2008, 20:25:07 pm »
But you're not saying butter is ok for those intolerant of dairy, are you?

Offline stephcrouse

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #62 on: January 13, 2009, 20:20:31 pm »
I think that I heard someone say that about butter...they were reading the pH diet book, I think.

Hi, I'm new here!  I think my 6 week old baby has some intolerances.  His symptoms are/were green stools, diarrhea, fussy, red cheeks, gas, spitty... He is on breastmilk and Alimentum rtf at night.  I started avoiding dairy several days ago and soy for a couple of days now.  Do things usually get worse before they get better?  I think I will take out eggs too...
I would love a small list of convenience foods that are safe (not necessarily fast food, but just things I can get at the grocery store that are good for snax and quick meals).  I feel like I am starving all of the time, and that there is nothing I can eat!

Offline meltown

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #63 on: January 14, 2009, 04:21:58 am »
Welcome steph!!!!!  I'm glad posted on here!

I would wait 2 weeks before making any judgments.  you will still have milk protein in your BM so things being worse or the same doesn't surprise me. 

I love peanut butter, the only kind that I found without soybean oil was adams naturals.  I would toast a piece f bread and put that or jelly on it.  if you have a trader joes by you they have some great treats.  chips, pretzles and things like that which have no dairy or soy.  I'll keep thinking of others for you.
Melissa
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Reagan 03/27/2008
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Madison 08/07/2021

Offline stephcrouse

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #64 on: January 18, 2009, 17:49:54 pm »
I think I am going to have to go total elimination diet.  I was trying not to go there, but Bennett is feeling really bad.

Offline meltown

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #65 on: January 20, 2009, 07:32:53 am »
poor bennett, what are you eating as of now?
Melissa
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Offline stephcrouse

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #66 on: January 22, 2009, 15:40:56 pm »
I am just eating chicken, turkey, albacore tuna, steak
                      green beans, peas, spinach, carrots, white and sweet potatoes, squash (all varieties), corn
                      apples, pears, bananas, avacodos
                      safe flour tortillas, corn chips, pretzels, crackers
                      hummus
                      rice dream and safe cereals (kix, cheerios, rice chex)
                      chamolmile tea and decaf coffee w/sugar
and I am sure there are a few other things, but they are all soy and dairy free and are not "fuss foods"

He is doing a bit better now.

Offline anielasmommy

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #67 on: February 21, 2010, 21:24:02 pm »
i read soybean oil was ok am i wrong?
Kami


scarlettsmom

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #68 on: February 22, 2010, 02:02:03 am »
Soy oil (and lecithin) contain very little protein so are usually safe for most people w/a soy allergy. 

But both of these ingredients have been known to cause allergic reactions in rare instances.

If you have an allergist you can speak to him/her and see what he recommends based on the severity of the allergy, or avoid them completely.

Honestly, in regards to a BF'ing mom who is eliminating foods for their LOs allergy, the oil and lecithin should be no issue.

hth!

Offline anielasmommy

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #69 on: February 22, 2010, 12:37:40 pm »
thank god its in everything! lol we just found out DD is MSPI...i knew something was wrong and her doc wasnt listening to me so i demanded a stool sample and they found blood...go figure...ive only been on this diet for one day...
she was diagnosed reflux but now im wondering if she ever had it or if it was this. ???
shes spitting up sooooooo badly its scary and the past few days shes been hysterical most of the time...

when i lie her down she screams...does that happen to any of your babies? she also spit up pedialyte...im wondering if it is the reflux buggin her too...her doc insists its not but im skeptical...

she seems to be in ALOT of pain is there anything i can do for her? yesterday she was sound asleep at 5am was hysterically screaming with no warning just silence to shreiking...im really worried.

whats all this about organic butter? it has cream in it...i have some but figured i cant eat it...
a great alternative for butter that tastes better and is more natural than the stuff at the supermarket for mspi is olive oil...just put it in a glass container with a little sea salt and freeze it covered. it tastes like butter and spreads like it. its really good

im wondering about terriyaki sauce too... love it i know its made with soybeans that they brew but do you think it has the protein in it?
Kami


Offline anielasmommy

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #70 on: February 22, 2010, 13:01:20 pm »
also all dietz and watson deli meats are milk and soy free. if i ask them to slice it on a clean slicer you think thats alright? oh and btw all the flieschmann's margarines and butters arent milk and soy free where i am so make sure you read the label
Kami


Offline anielasmommy

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #71 on: February 22, 2010, 14:31:44 pm »
sorry for posting again but also my LO isnt eating well and crying at the breast is that mspi related? its been 4 hours since she ate last and i tried to feed her and only got her to eat for 10 mins (broken up) on one breast...idk if this is just from the mspi or if something else may be going on. i keep callin her doc and no one is calling me back so im really worried. any advice would b appreciated thank you!
Kami


scarlettsmom

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #72 on: February 22, 2010, 15:16:58 pm »
big ((hugs)).

As far as crying at the breast - my DD2 did that...they start to associate feeding w/pain.  So we had to take it very slow.  Once they start feeling better it gets easier.  For now try to feed her at incline, I would even almost have DD2 sitting up, and also feed for a little, try to burp, speak calmly, etc.  It actually helped us quite a bit. 

As far as laying them down and crying - yes, my DD2 did this as well, and especially if they have reflux it will be painful for them to lie flat.  You can elevate the mattress so that she is at an incline, that should help - I actually started DD2 tummy sleeping - but that is a very controversial decison...I got the OK from our ped GI dr. 

I would not do deli meats, even if they are soy free they may/probably have caseins (milk derivative) in them, and also you can never be sure the slicer is completely clean unless it's in your own home.  I would just make a beef roast, or turkey or chicken roast and slice myself.  Yes - good catch on the margarines, many (most have soy or milk in it). 

For now I would leave the terriaki sauce alone. 

I'm sorry she woke up screaming this morning  :(  DD2 would do that too - the abdominal cramping and passing stools can be very very painful.  Honestly, I threw EASY out the window during this time and did whatever she needed.  Alot of comfort nursing and snoozing together in our rocker, and lots of times the only way she would go to sleep, or back to sleep was in bed with me.  I went with it because I needed to get sleep, our whole family did.  We eventually got back to EASY once she was feeling better it just took a few days of being consistent again. 

Big big (((hugs)))).  It is so worrisome when they are hurting.   :'(  I'm so sorry you are not hearing back from your dr - I hope you hear back very soon.  Keep coming here, and we'll help as much as we can.

 :-* :-*

scarlettsmom

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #73 on: February 22, 2010, 15:20:59 pm »
oh, about the butter - butter doesn't contain milk solids, so many milk allergic/intolerant people can tolerate it, especially cooked in recipes,

However, I would not use it for awhile.  Not until her gut has healed and the elimination diet is under control.  It might be one of the first things your reintroduce, but personally I'd wait.

hth
 :-*

Offline anielasmommy

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Re: Milk/Soy Protein Intolerance (MSPI) Part 2
« Reply #74 on: February 23, 2010, 00:35:59 am »
oh ok cool about the butter lol
yeah i think we are throwing easy out the window too...seems to be going that way her mattress is inclined btw. i try and try and try to burp her and never seem to get a burp...
we ended up going to the docs today b/c she wasnt eating hardly and shes been spitting up 1-7times after a feed. the doctor said it seems like her symptoms are severe and getting worse but her weight loss wasnt bad only 3 oz. to me im freaking out shes loosing weight?! but ive been feeding her every 2-3 hours! but w/e
the doc said she doesnt know whats wrong but a possible organ problem may be causing all the spit up...i forget the word she used...so she will be having an upper GI tract x-ray. she has to drink some stuff and do it but that wont be for at least a few days and her appt with the GI specialist isnt for 10 days! so apparently my baby will just be in pain until then...i feel like they dont even care! they took blood and urine too...i got mad b/c she uses the potty at home (we EC pt) so i asked if i could jut have her pee in a cup and she said no. i didnt think to put up a fight about it b/c i figured there must be medical reasons behind it but then i thought if she were older they wouldnt cath her so wtfudge? is there a medical reason to have cathed her and make her go through the pain and screaming that came with it or was she just being a jerk? my baby will potty on cue as long as she has to potty..all i did was ask if we could try it first and she looked at me like i was nuts and flat out said no. im wondering if i just need a new doctor all together....
and EVERYONE keeps telling me oh just give her formula ya know you did your best with the breastfeeding and blah blah blah. you all get that alot? i say tell them ive sacrificed everything for her so far why should i stop now? lol besides i plan to breastfeed until shes 3 or she weans herself 
Kami