Goat's Milk for MSPI? Update now on rice milk! UPDATE AGAIN!!

[Spectra]

Good idea thanks, I'll check out Sobeys, we don't have the other stores here where I am.  Thanks.

[enna77]

our goats milk formula was more expensive than normal but worth it 

Keep in mind it can take a good 2 weeks + to see any change.

Good luck - let us know how you get on.

[Spectra]

Well I found the goat's milk at the SuperStore.  I've started him on it since Saturday.  So for he is not having a bad reaction, which is always good.  We'll see how it goes.

[Spectra]

I was able to get a couple of pics, not a real close up, kind of hard with my camera, but here they are none the less.  The one where he is in blue you can kind of see it on his left thigh too.

[Mydreamcametrue]

Aww... Looks excatly like Tyler's rash to oats.

Have you tried anything new?

[motherof3]

My dd is MSPI and was on Nutramigen then Neocate from 4mos-15months.  Then we did a very gradual switch to goat's milk just after her 1st birthday.  She has done very well on it but she just has an intolerance not a true milk allergy.  She never had any skin reaction, diarrhea etc.  just major irritability.  We just tried a switch to 1% cow's milk and she started getting constipated so we are back on goat's milk.

I hope that the goat's milk helps!

Andrea

[Spectra]

Me too!  The only downside is only a couple of places sell it.  I asked them if they could bring more in, they only bring in a few cartons a week of the whole goat's milk.  As of right now my husband is down at the Superstore buying the 2% goat's milk as they are all sold out of the whole milk.

Saw the doctor today and he said to keep my son off of citrus fruits, strawberries, pork, egg whites, fish, and raspberries, and anything with preservatives as this may irritate the eczema and make it worse.  So I'm starting to do that too.  Hopefully all this will work out!

My Dr is also going to get us in to see a dermatologist in the next city over, hopefully something will come of this too.

[Mydreamcametrue]

Keep us posted on how the goats milk goes.  I really hope it helps.

Hugs, Wendy

[momtoandrewandthomas]

His face looks just like Thomas's used to when he was little and I kept thinking it was his teeth.  His whole backside was a huge red patch.  Here it was the milk and soy and even the Neutramigen did not help (like Alimentum).  Until we were on the TED after he was a year old, he did not see any improvement.  I still worry about what his nutrition is day to day, but currently he is thriving and eats a great variety.  He has never had whole milk.  Maybe for a few days, but not like regular kids.  He has never really had cheese or yogurt or ice cream.  He doesn't really even know what they are.  He takes almond milk (he will actually drink it over the rice milk), so that is where we are. 

Good luck and keep hanging in there.  Oh - it also took a while 6-8 weeks for his skin to clear and poop to normalize after the elimination as he is a slow onset.  Maybe time will help too?

Jen

[Spectra]

Good point, I'll keep that in mind to wait a few weeks before giving up on the goats milk and such.  Did you find him to be very congested as well?  My son seems to always be congested, runny nose, sneezing, every day, all day since he was pretty much born.

[momtoandrewandthomas]

YOu know, I never equated those symptoms to food intolerences when he was young, but I know that after keeping a very detailed food diary over the last month-6 weeks that his "allergy" symptoms that I was blaming on trees and grass actually coincide with hidden soy and dairy.  He is not so much congested, but sneezes alot and itches his face and skin like crazy.  his eyes are red-rimmed on really bad days too.  he poops sticky green for 3-4 days until he clears his system and then magically all the other symptoms vanish too.  I just never paid close attention until recently!

[Spectra]

Yeah, I notice that on really bad days my son also would have really red rimmed eyes and nose and he'd continuously rub his eyes and face.  Unfortunately I didn't pay much attention to what I was feeding him as I also blamed it on the springtime allergies.

[trin7756]

My son has a milk protein allergy and for the first 6 months of his life we tried feeding him neocate with no luck. He hated it.  Finally at 6 months our pediatrician suggested goats milk.  My son has been drinking 32 oz a day for the past month and is tolerating it well. I have never seem him thrive this much.  I think goats milk is wonderful.

[momtoandrewandthomas]

I wish that had been suggested for THomas at some point because we just suffered in silence. Our old pedi had no experince with MSPI and did not refer us on to GI.  I went on my own because I was losing my mind from fatigue and frustration.  I had had a preemie who was touchy and grouchy and I knew that was not it.  This was different.  Thank GOd our insurance does not require a referral and we were able to see a pedi GI and she helped us find answers over about 7 months time.  It was painful for all, but we are here.

[Spectra]

Well, it's been 2 weeks since he's been on the rice milk with coconut milk and rice protein.  His face cleared up within just a couple of days and has stayed smooth and clear since!!  It has never been clear for more than 2 days at a time so I am really thinking the cow/soy/goat dairy was the culprit after all.  I'd say about 80% of his eczema that was on his arms and hands are gone, and about 50% on his legs and feet.  I will continue to use the rice milk and hope that it will slowly get better.  He is still congested, though not nearly as much, I'd say that has decreased about 50% as well.  I am sure he has seasonal allergies which makes it hard to distinguish if this is totally working or not.

My husbanded is thrilled to see our son's face so smooth like baby's skin for once in his life!  His 1 year birthday is coming up and I want to make a yummy vanilla cake with vanilla frosting.  Anyone have a great recipe for mspi?

I am so thankful for this website, this forum, and for all the help from everyone here.  I knew from day one that something with the formula wasn't right.  Unfortunately no doctor would take me seriously enough and my son had to suffer for the last 11 months with extreme eczema on his face so bad it opened and was weeping every other day.  So frustrating to know something is wrong and not knowing what to do about it.  It's so nice to see a viable solution looming over us finally instead of the well repeated phrase, "He'll grow out of it."