Author Topic: We went back to the allergist today - MSPI question  (Read 4397 times)

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Offline Mydreamcametrue

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We went back to the allergist today - MSPI question
« on: October 28, 2008, 18:32:01 pm »
Well Tyler is still so fussy, it is not even funny. Since no potato's he has no gas at all!!!  His skin still has all those little bumps all over it, which I have been told is just KP, BUT the allergist said today it looked more like excema.  So he prescribed a cream.

They did more food testing (skin prick) and all were negative again.  So he thinks it is all a matter of trail and error to see what is the problem.

So now he is on all rice milk mixed with cocunut milk. 

Maybe he is just a fussy kid, really really fussy? 

SO:  HAS ANYONE THAT HAS HAD MSPI, WAS THE ONLY SYMPTOM EXTREME FUSSINESS?  His poops are normal on soy milk and rice milk, but whole milk causes all runny poo's.

Better go, he is screaming........  once again......  I am going crazy. 
Wendy -

Zach - 3 1/2 yrs old. My sweet, loving, gentle boy that loves playing in the dirt!

Tyler - 17 months.  My very very spirited little boy.  Can't turn your back for a minute.  He is doing the cutest things now!  Loves to eat and climb!

Offline Jocasta

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Re: We went back to the allergist today - MSPI question
« Reply #1 on: October 28, 2008, 18:36:59 pm »
Hugs Wendy - that's no fun.  I don't have any personal experience with MSPI but would suggest you try cutting out all dairy protein and all soya protein and see if that makes a difference - I think it takes a fortnight to completely come out of the system - fingers crossed you'll finally get your answer :-*

Offline Mydreamcametrue

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Re: We went back to the allergist today - MSPI question
« Reply #2 on: October 28, 2008, 18:59:42 pm »
That is what we are doing now.  He has been on rice milk for 3 or 4 days now, but still was doing hidden dairy, so we are now cutting out that compeletly.

It is just hard because with DS1, he showed all the symptoms, fussy, gassy, diaherra, but DS2 only shows extreme fussiness and well very loose poop when he did drink lactaid.


Wendy -

Zach - 3 1/2 yrs old. My sweet, loving, gentle boy that loves playing in the dirt!

Tyler - 17 months.  My very very spirited little boy.  Can't turn your back for a minute.  He is doing the cutest things now!  Loves to eat and climb!

Offline Spectra

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Re: We went back to the allergist today - MSPI question
« Reply #3 on: October 28, 2008, 19:16:00 pm »
I would think it is possible as the symptoms can range greatly.  I mean my son NEVER had diarrhea on milk/soy, nor did he have any gas.  However he did have eczema real real bad, and congestion.  But with other foods he has different reactions.  So I definitely think he can just have one or two of the symptoms and in varying degrees. 

When did you cut out the hidden dairy?
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Re: We went back to the allergist today - MSPI question
« Reply #4 on: October 28, 2008, 19:31:05 pm »
DD has eczema and is still MSPI to a degree. Her main symptoms were constant screaming and fussing and very loose mucousy stools. Big hugs to you xxxxxxxxxxxxxxxx

Offline Mydreamcametrue

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Re: We went back to the allergist today - MSPI question
« Reply #5 on: October 28, 2008, 19:32:54 pm »
Oh we have just started that today.  I am sure that is what is going on, well I atleast hope.  I just want him to be happy.

Really it is so stressful in this house, it is not funny.  

I have to get out all my notes and info on when Zach was MSPI.  I had it down so good as to what he could eat, etc.  I have forgotten all that now, well to a point.

Hey Emma: Yeah that is the thing that throws me off is his poop is pretty much normal, but his mood is unbearable most of the time.




Wendy -

Zach - 3 1/2 yrs old. My sweet, loving, gentle boy that loves playing in the dirt!

Tyler - 17 months.  My very very spirited little boy.  Can't turn your back for a minute.  He is doing the cutest things now!  Loves to eat and climb!

Offline yaya

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Re: We went back to the allergist today - MSPI question
« Reply #6 on: October 28, 2008, 19:41:18 pm »
sounds as though you have the skin rash as well as the foul mood. two of which are symptoms of MSPI, have you cut out trace dairy too? Like biscuits are made with butter?

Offline Zoey

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Re: We went back to the allergist today - MSPI question
« Reply #7 on: October 28, 2008, 19:48:30 pm »
Aww poor baby.

Was just going to add what Michelle did about the two symptoms, rash and fussy - oh and some hugs.
      

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Offline deb

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Re: We went back to the allergist today - MSPI question
« Reply #8 on: October 28, 2008, 19:55:51 pm »
Weird thought, but with Josie it's sugars, ESPECIALLY High Fructose Corn Syrup (which is in like EVERYTHING  >:(), that sets her off and makes her act like that. It's like she needs Midol, seriously, at 7 years old! ::) :P

With many kids it's artificial colors and flavors - the FD&C Red #5 (I think that's the number it has over here) is made from cochineal, which is the shell of an insect and often is at the root of behavior problems due to allergy/intolerance/reaction in general. Again, though, it's in so much stuff here in the States! (I think it's been outlawed in Europe?)

Gotta run, but wanted to suggest other possible causes.

Offline Mydreamcametrue

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Re: We went back to the allergist today - MSPI question
« Reply #9 on: October 29, 2008, 02:01:56 am »
I need to do some more reading on that, because it deft. could be that.  It is so hard to cut out that though just because, like you said it is in everything...

I am suspecting sugar or possibly artifical colors being a problem with Zach also and heck maybe myself too.

So what foods do you give Josie? What does she eat each day.

That would be very helpful.

Thanks, Wendy

Wendy -

Zach - 3 1/2 yrs old. My sweet, loving, gentle boy that loves playing in the dirt!

Tyler - 17 months.  My very very spirited little boy.  Can't turn your back for a minute.  He is doing the cutest things now!  Loves to eat and climb!

Offline meltown

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Re: We went back to the allergist today - MSPI question
« Reply #10 on: October 29, 2008, 02:16:46 am »
B has just fussiness when he has milk.  he has very slight eczema when he was little, but now he only shows signs of fussiness ater having it.  he will wake in the middle of the night which he never does normally.  He has never been tested, but we ust notice a difference.
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Offline deb

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Re: We went back to the allergist today - MSPI question
« Reply #11 on: October 29, 2008, 02:21:52 am »
Heh, heh.

We do have yogurt here, actually, with orange-flavored fish oil in it (and some vanilla and stevia, tastes kinda like creamsicle). I'd say probably daily or every other day/every 3 days, depending on if she's sick of it or not. :P

We also get some cereal bars from Trader Joe's that have some sugar but zero HFCS (high fructose corn syrup) and pretty much avoid the artificial cr@p. We've got breakfast cereal from TJ's as well - same deal with the ingredients.

I've got some almonds that have been soaked and then dried again in the oven, with some salt and garlic and oregano; tasty! Ditto on pumpkin and sunflower seeds, which are great with salt!

Meat, veggies, grains soaked and cooked from scratch. Pasta maybe 2x/week. Tonight we broke down and had pizza, but that's maybe 2x/month. Whole grain porridge for breakfast when I can remember to soak the grains overnight.

I'll try to get back to this tomorrow, since I'm now sneezing right and left, but the more we cook from scratch, including frozen veggies (she even like OKRA! and she'll tolerate a BIT of broccoli with butter and salt and garlic), the better things are. And the more Grammy (aka MIL, aka names I won't repeat) sneaks her candy,the worse it gets.

Offline Jimbob

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Re: We went back to the allergist today - MSPI question
« Reply #12 on: October 29, 2008, 09:13:27 am »
It will be hard to follow that diet but worth it if it works. I make most of our meals from scratch as I like to know exactly what is in it. I have to say though we do occasionally cheat but not very often and I do always feel bad about it afterwards.

It could just be MSPI as he does have 2 of the symptoms. I really hope you get to the bottom of this soon.

Kelly
« Last Edit: October 29, 2008, 09:17:03 am by Jimbob »



James has atopic eczema, multiple food allergies, asthma and late talker

Offline Mydreamcametrue

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Re: We went back to the allergist today - MSPI question
« Reply #13 on: October 29, 2008, 14:40:37 pm »
Thanks everyone!  Thanks Deb for the ideas, and LOL about the MIL comment (Ha)

We do know for sure that his combination food intolerance is sugar and fruit.  He can have both, but not together within 4 hours of each other.  Also of course no form of potatos at all.

Avoiding sugar is just so hard, I mean it is in everything thing you look at, bread (even MSPI safe bread). 

On top of all this, he is also cutting his molars.  He has 2 of them in and 2 more cutting the skin now. So I know that has some to do with it, but I know for sure, it is not the main reason.

So we are now milk/soy free and I am going to be very careful about the sugar/fruit combo.  I think I am just going to cut out all fruit and even 100% fruit juices for a while to see if that makes a difference also.  Then slowly add things back in. 

He will get used to water and he loves his rice milk with cocunut milk.


Wendy -

Zach - 3 1/2 yrs old. My sweet, loving, gentle boy that loves playing in the dirt!

Tyler - 17 months.  My very very spirited little boy.  Can't turn your back for a minute.  He is doing the cutest things now!  Loves to eat and climb!

Offline JennŠ

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Re: We went back to the allergist today - MSPI question
« Reply #14 on: October 29, 2008, 14:48:05 pm »
Honey?  I have a couple of bread recipes that use that instead of sugar. 
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Offline Mydreamcametrue

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Re: We went back to the allergist today - MSPI question
« Reply #15 on: October 29, 2008, 17:02:45 pm »
Are they milk free too?  Well does not really matter because I could just subsitute for rice milk.

Please PM me them if you don't mind :)
Wendy -

Zach - 3 1/2 yrs old. My sweet, loving, gentle boy that loves playing in the dirt!

Tyler - 17 months.  My very very spirited little boy.  Can't turn your back for a minute.  He is doing the cutest things now!  Loves to eat and climb!

Offline deb

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Re: We went back to the allergist today - MSPI question
« Reply #16 on: October 29, 2008, 20:48:09 pm »
I also have a recipe someplace for "Wacky Cake," also known as "Puddle Cake" and "Depression Cake." It is COMPLETELY vegan - NO eggs or milk, and no nuts or soy either.

There are several variations; the one we make most often has cocoa. (YUM!) And for chocolate allergies, you can substitute carob powder.

Here's a link to one a lot like ours: http://southernfood.about.com/od/chocolatecakes/r/bl40212q.htm

One that's sort of spiced, like gingerbread: http://allrecipes.com/Recipe/Depression-Cake-I/Detail.aspx

This one looks more lightly spiced than the last one: http://www.evitamins.com/healthnotes.asp?ContentID=2576002

The nice thing with these is you can substitute oil for butter, so no dairy at all if so desired, AND since there are no eggs, kids can lick the beaters! WOOHOO!!!!

One note: because the reaction of baking soda and vinegar not only makes bubbles but salt as well, the batter CAN taste salty. If sugar is a problem, you may want to use some xylitol or other alternative sweetener to hide the taste a bit, or tone it down. Doesn't bother ME, but bothers my kids, licking the batter. Once the icing is on, though, no complaints from either of them!

Offline Mydreamcametrue

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Re: We went back to the allergist today - MSPI question
« Reply #17 on: October 29, 2008, 23:37:07 pm »
Thank you Deb, they sound really yummy. 

Today things have gone great with no dairy/soy and well no sugar, BUT then after his nap, I gave him pudding made with cocunut milk and of course, the pudding mixture had sugar in it.  It had been 4 hours since he had fruit (so was not because of that).  But he turned into the DEVIL...  That is saying it kind. 

It was like a switch went off and his head was turning around backwards.

Gosh avoiding all sugar is going to be hard, but I am sure I can do it. 


Wendy -

Zach - 3 1/2 yrs old. My sweet, loving, gentle boy that loves playing in the dirt!

Tyler - 17 months.  My very very spirited little boy.  Can't turn your back for a minute.  He is doing the cutest things now!  Loves to eat and climb!