Author Topic: Dr thinks LO is allergic to something in my milk. WHAT???  (Read 3994 times)

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Offline fireflymama

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Dr thinks LO is allergic to something in my milk. WHAT???
« on: April 02, 2009, 14:17:12 pm »
Hi,

My LO is 15 weeks old and has been waking up every hour at night since birth.  He recently started having a hard time breastfeeding (arching, crying etc.)  We took him to the dr yesterday and the dr confirmed that he has silent reflux.  He also noticed that LO had a rash on his thigh.  The dr thinks that LO is allergic to something in my diet, which has been causing the multiple NW's, the reflux, and now the rash.  He suggested that I cut out wheat from my diet.  I've been looking at labels so closely now.  If something is wheat-free but it says that it was made in a factory that processes wheat foods, is that ok to eat?  Also, how long should it take before I see an improvement in LO?  When do I know that it's not wheat he's allergic to and therefore I need to eliminate another food item?

I'm hoping so much that we can get to the bottom of this soon.  We are going on 15 weeks of sleepless nights and I'm pretty desperate at this point  :'(

I would be so grateful for any advice.  Thank you!

Offline Spectra

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #1 on: April 03, 2009, 14:06:32 pm »
I think you'd want to make sure it isn't even made anywhere near wheat, due to possible cross contamination.  I know that risk is low, but just to try for a few weeks so you know that 100 percent you had no wheat in your diet if your lo is still reacting.

It can take a few weeks to see improvement.  One it has to get out of your system, and then their system.  How long have you been going wheat free now?  For us I notice a difference in the first week, and he was totally clear by week 3, but he was formula fed and it was the cow's dairy in the formula that was the problem, so it was easier to pin-point.  If your lo has no difference after a few weeks I'd try eliminating dairy and soy.  Usually the babies react to the dairy and soy in the mother's diet, not always, but as you can probably tell from these threads it's usually the number 1 item the mother learns to live without.

Usually I'd suggest dairy then soy, but I'd hate to see you go 3 weeks dairy free while still drinking soy and your lo still suffering.  Sometimes it works to eliminate them both and once your lo is better you can try adding soy back in.  This is if eliminating wheat doesn't work out for you.  Definitely go by what your doctor says.

I hope this helps.  I know how stressful it can be and all you want is some relief.  HUGS.  I hope it is the wheat just to help you get to the bottom of this sooner.  Hopefully it will get better for you soon!

Perhaps another mother on here with food elimination experience in their own diet can help.
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Offline deb

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #2 on: April 03, 2009, 14:52:59 pm »
I would cut out dairy and soy first, as it's a more common problem for babies, but knowing me I'd probably cut out all three and then add back in slowly. It's HARD, but I also feel better when I cut out a lot of that stuff. (Plus I also get really really good at making food from scratch when I did that! :))

Some other common allergens are nightshade vegetables: tomatoes, potatoes, peppers, eggplant/aubergine.

Offline Spectra

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #3 on: April 03, 2009, 14:55:33 pm »
I totally agree.  Cutting a bunch out at once may resolve his suffering quicker then you can slowly add things back in.  That's probably what I'd do too just to cut to the problem easier.
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Offline fireflymama

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #4 on: April 03, 2009, 17:24:52 pm »
Thank you everyone so much for your kinds words and advice.  I cut out dairy and soy a while ago when LO was fussy and gassy.  He didn't improve at all at that time.  It turned out I had milk oversupply and once that was under control, he was better.  That's why I figured I'd try wheat this time.  It's so annoying that all the wheat-free food I bought is made in a factory that also makes food with wheat.  Why would they do that????  So frustrating!  I agree though, that i shouldn't eat any of this, just to be safe.

Thank you again for your help.  I really appreciate it  :)

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #5 on: April 03, 2009, 23:58:41 pm »
Just wanted to hop on and offer you lots of ((((hugs)))).  I know how frustrating it can be and it's awful seeing your LO in pain and not knowing exactly what is going on. 

I echo cutting out soy and dairy right away (even the hidden soy and dairy - there are lots of tricky names for dairy, like casein, whey, etc - there should be a sticky on this board that tells you all the names if you aren't familiar w/them).  And as others said - no, I wouldn't eat anything that was made in a factory that also processes the food you are eliminating.

I went on a very hard core elimination diet (am still on it actually, have added back a few foods since getting DD's allergy results) BUT I did it because I myself had tons of allergies until I was about 2 years old.  So i cut out everything, and I mean everything except 5 baseline foods to get immediate results.  It's difficult to do - but I found that nothing was giving her relief.  Come to find out that she has multiple allergies.  Very extreme, but some mama's finally go that path.  Also - some BF'ing mothers I know cut out the top 8 allergens - wheat, soy, dairy, eggs, tree nuts, peanuts, shellfish, fish and I'm blanking on the last one.  I would suggest the wheat, soy and dairy right away if you can - and the first week is the hardest, then it gets easier.  I had some headaches as I was "detoxing".  As Deb said - it actually becomes pretty great because you cook from scratch.  Just be careful and take a calcium suppliment (there are hypoallergenic ones) and make sure that's introduced as a "food" challenge.

More ((hugs)) and good luck.  If you have any questions or just want to vent, let me know - I have been doing this for almost 8 months (with GREAT success, but it was a long road) and I know how hard it can be when all you want is your baby to feel good and for everyone to get some sleep!!

Good luck!  :-*

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #6 on: April 04, 2009, 00:23:22 am »
Oh, and ps - make sure you continue eating enough calories or your supply could suffer.  I was VERY scared of that at first as I lost so much weight pretty rapidly.  However, I literally made myself snack every hour or so, on high fat things like avocado (I still have about 3 or 4 of them a day!) and oatmeal (which is good for your supply, but turned out DD is VERY allergic to it - go figure!), and DH always made me a huge steak every night to remind me to eat (as you know, mommies can easily forget to feed themselves!).  So just make sure you look after yourself as well as you can! 

Offline Canadian Evan

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #7 on: April 04, 2009, 00:55:38 am »
My son was colicky the first three months of his life.
It started from the day we took him home from the hospital...he had the world's stinkiest gas.
It cleared up and came back two weeks later, along with the colic.

The doctor said it was either colic or something I was eating but said not to worry as he would outgrow it.
I lasted another week of chronic screaming that turned into loose, foamy green stools.  I couldn't believe that this was normal.  I took him to a holistic nutritionist and had him tested.  It turned out BOTH of us had a wheat and dairy sensitivity.  I cut it out, put us both on probiotics and noticed a huge difference the first week and by week three the colic was completely gone. 

If I were you I would cut out all wheat, dairy, soy and nuts (and avoid any product that says may contain...) and also cut out carrots and peanuts. (They aggreviate most babies bellies).  Then get yourself to a holistic nutritionist or naturopath who can test both of you.   

Of interest, dairy & wheat are the number one food allergies in Canada.  Your doctor is on the right course but I would recommend broadening your professional support by seeking counsel of a nutritionist and naturopath.

If you need any help with recipes and meal ideas let me know.  I've been wheat and dairy free for 9 months!! Don't really miss it!

Offline Spectra

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #8 on: April 04, 2009, 01:56:00 am »
Yes, I believe naturopaths will test for sensitivities and/or intolerances.  I'm not sure why regular doctors don't usually test for that, well the ones I met never did, or I found out later that my Ped didn't believe in Intolerances.....  Had I known this from the get go I would have gone to seen one.
« Last Edit: April 04, 2009, 01:57:51 am by Spectra »
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Offline fireflymama

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #9 on: April 04, 2009, 18:48:03 pm »
Thank you everyone so, so much.  I am so exhausted and now i'm not eating well either!  I have to get to Whole Foods today and find some food that i can eat and that is quick and easy to make.  It all feels very overwhelming right now!  I"m hoping so much that he is not allergic to soy and dairy.  I'm a vegetarian and that's basically all I eat!!!!  I guess we'll see soon enough!

I really appreciate all of the advice and support.  It means so much to me.
Thank you. Thank you.   :)

Offline fireflymama

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #10 on: April 07, 2009, 23:56:41 pm »
So...here's the update.  I have been off of wheat for 6 days now and LO's rash is spreading, the NW's are even more frequent.  The feedings though seem to be a bit better (no arching at most feeds now).  Do you think I should stick with the wheat only or should i add more food items to eliminate.  I just want to be sure of exactly what he is reacting to, so I thought i should do it one at a time.  This approach though, could take months!  But at this point, since I started wih wheat only, should I stick it out for another week?  Also, do you think it's something other than wheat because the rash is spreading or is it too soon to tell.  I am feeling very overwhelmed by this diet thing.  I am a vegetarian and never really got into cooking.  It's something that I always knew i needed to be familiar with, especially now that I have a child, but cooking in general sort of freaks me out.  My mother didn't really cook, so I had no role model.  I don't even know what I'd eat if I couldn't eat dairy and soy!   I did cut out dairy and soy a few months ago but I'm pretty sure I didn't do it long enough. 
I took LO to a chiropractor who is known to be amazing at doing muscle testing for babies to determine allergies.  She found that LO is extremely sensitive to wheat and caffeine.  That's why i chose to eliminate those two items first.  I'm just not sure where to go from here.  Do a full elimination diet?  stay with wheat only for another week?  add dairy and soy to the list? 
I"m tired, overwhelmed and desperately want to make my baby feel better already!!!!! 
I would really appreciate any advice.  Thank you so much. 

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #11 on: April 08, 2009, 00:31:56 am »
big (((Hugs))  so sorry that your LO is still reacting.  I say cut out the dairy and soy as well (and talk to a nutrionist or research on line for substitutes).  I went to a total elimination diet at the point you're at, however, I do eat meat so had more options.  Unfortunately babies can be allergic to anything.  DDs highest allergies turned out to be corn, milk, oats, green beans and tomatoes.  I would have NEVER thought oats/green beans/tomatoes.  Ever.  But it can be anything.  If you want to talk more about a TED (total elimination diet), I'll be happy to chat with you more.  Good luck.  There are pros and cons to each approach.  Getting to baseline (definite safe foods) makes such a difference.

I really feel for you and your bub, I know how hard it is.  Hang in there. 

Offline fireflymama

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #12 on: April 08, 2009, 01:07:17 am »
Thank you Scarlett's Mom.  I'm thinking that I might do the TED but I can't start it until the weekend since we're going out of town and staying with family for the holidays.  It sounds awful but I'll do whatever I need to in order to figure out what LO is reacting to.

Thank you for your support : )  This is really hard  :'(

scarlettsmom

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #13 on: April 08, 2009, 13:02:42 pm »
Oh hon, I know, it can be SO overwhelming and upsetting.  You're a wonderful mama for trying to figure this out, it really is hard.  I promise you it will get better.  While out of town I would suggest being very cautious.  Don't worry about hurting people's feelings either.  I come from a big Italian family where food is a huge part of showing love, and to not eat can be insulting.  But I straight out told my family that if it was the difference between them feeling insulted for a little bit, or my baby being in pain there was no discussion.  They've come around...although they STILL ask me "Really, you can't have just a little bit of (insert big Italian cheesy dinner/dessert/etcetc, )".  lol  I now tell them "Well, I could, but then Gwynnie's intestines would bleed and she would be in terrible pain...hmmmm....." and that is that.

We'll help you get there and I'm happy to be a part of your support team.  It's REALLY important that your DH is on board, and also that you have some type of dr monitoring things depending on how long you do it for. 

More (((hugs))) and lots and lots of healing and calming vibes to that beautiful little baby of yours.

xoxo  :-*

 
« Last Edit: April 08, 2009, 13:04:21 pm by scarlett'smom »

Offline Canadian Evan

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #14 on: April 12, 2009, 04:27:59 am »
It can take weeks to get the food out of your system and babes.
AJ's rash got worse before it got better...it's the body cleaning out.
Stay the course and cut out the dairy & soy.  It's hard, I know but it's worth it.
Again, peanuts and carrots can also aggrevate sensitive tummies. 

Hugs to you!

Offline fireflymama

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #15 on: April 12, 2009, 21:54:00 pm »
Thank you everyone.  I've decided to do the TED.  I read the info on the Dr. Sear's website but I still feel like I have no clue what I'm supposed to eat.  (I'm a vegetarian.)  I would be so appreciative if I could get some advice about what I can eat, what a typical day of eating looks like, etc.

Thank you so, so much  :)

Offline deb

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #16 on: April 12, 2009, 23:10:17 pm »
I'll have to think on that one, but while I"m thinking, and in order to give me a direction, *how vegetarian* are you?

That sounds like a ridiculous question now that I'm looking at it, but bear with me. :) I know from your earlier posts not vegan, but some folks will eat the odd helping of fish now and again, some will be OK with poultry now and again, others will only touch meat if it's properly free-range, some won't touch it ever ever. Some are OK with meat broth, others not. (I have friends who are or who have been in all categories.)

Offline fireflymama

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #17 on: April 13, 2009, 00:08:08 am »
Hi Deb,
Thanks for responding to my post.  I don't eat any meat, though I do eat some fish.  I won't eat meat broth.

thank you!

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #18 on: April 14, 2009, 21:54:38 pm »
For a true TED you want to only start with 4 low allergen foods.  Dr Sears recommends the lowest on the spectrum.  So I would take those (I think it's rice, squash, pears (?) and lamb) and take out the lamb and look for another low allergen substitution that's high protein.  I'm kind of pressed for time, but wanted to throw that out there.  So maybe a bean that you really like?  I'm not vegetarian so I don't know what's a good substitute...maybe lentils?  You could google low allergen beans/legumes.

Water for drinking (and  pear juice if it passes!).  Give it at least 2 weeks then if you have a true baseline (i.e. baby's symptoms have gone away or drastically reduced) you can start adding foods.  Everything has to be added as a new food - supplements, spices, etc. There is also a wonderful website kidswithfoodallergies.com I think (Spectra is that it?)  and the BF'ing forum is awesome. 

xo
Good luck!!!  I'll check in later...

oh - and sea salt (non iodine).  make sure it's not table salt, it has a soy and/or corn by-product (I learned the hard way.. ::))...
« Last Edit: April 14, 2009, 22:01:30 pm by scarlett'smom »

Offline fireflymama

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #19 on: April 15, 2009, 00:57:30 am »
Thank you so much.  I would never have thought that i couldn't eat table salt! 

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #20 on: April 15, 2009, 10:53:31 am »
Table salt?!?!?  :o :o :o

One thing I do here for protein (although I'm pretty much carnivorous ::)) is to cook brown rice with sunflower seeds and/or pumpkin seeds in it. I soak the grain overnight and cook in the morning for breakfast (very filling! :)) or soak thru the day and cook for evening meal. Millet and quinoa are other grains that work well with this technique (and I think they're both gluten-free?), although millet doesn't make good leftovers, gets sort of congealed after it's been sitting an hour or so, so eating that fresh is your best bet.

My DH makes an awesome bean salad that goes by the name of Mississippi Caviar; there are are several versions out there, but the basic recipe is three cans of black beans/black-eyed peas (choose your own ratio :)), diced onions and peppers and garlic, and Italian dressing. You'd have to tweak it and make your own version to make sure it's allergen-free, but it's delicious by itself (and makes a fun finger food for kiddoes :)) or over lettuce as part of a larger salad. I've also seen recipes that add corn to that mix, which I think would combine with your beans for a more complete protein profile.

The odd helping of fish, of course, would add some protein; I'd make sure to avoid shellfish, though, since that can also be an allergen.

I know you're avoiding soy anyway, but a note of caution: soy cheese has casein (dairy/milk protein) in it.

I want to say that mushrooms have a decent amount of protein, although it's still pre-dawn here and I'm not fully awake and might be off-base on that. The plain white mushrooms are nice hot or cold (like in salad, even cooked and cold), and portabellas, well, YUM! Cook them and season them like you would meat, just make sure the seasonings fit the TED.

Offline fireflymama

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #21 on: April 15, 2009, 12:59:05 pm »
Thank you so much Deb for all the info.  so appreciated  :)

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #22 on: April 27, 2009, 23:01:58 pm »
Table salt?!?!?  :o :o :o

I know crazy isn't it!

FFMama - just checking in to see how you're doing!  Hope all is going well....


Offline fireflymama

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #23 on: April 28, 2009, 00:07:39 am »
Hi,  Thanks for checking up on me.  I'm a bit baffled at this point.  I've been on my diet for 15 days now (no dairy, soy, wheat, corn, peanuts, chocolate, caffeine) and there has been NO change in LO's wakings or spitting up.  I spoke to a friend of mine who is a pediatric GI dr and based on the symptoms, he doesn't seem to think that it's reflux.  I don't know???  I'm going back to the pediatrician on wednesday and I think we'll go to see a GI in the area as well.  I just want to get to the bottom of this and figure out if it's a sleep issue or a GI issue.  Then I'll at least know how to proceed.

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #24 on: April 28, 2009, 01:03:17 am »
(((hugs))) Sorry to hear not a lot of progress.  Very glad to hear you've got a GI appointment.  Please let us know how it goes.  Hang in there - it'll work itself out.....unfortunately it can be a slow process since so much of it is dependent on your LO's reactions which is no fun.  Any other issues besides the spitting up (and sleep issues). 

Offline Spectra

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #25 on: April 28, 2009, 11:58:20 am »
:(  That's too bad that the diet didn't help you.  I hope you get some more answers when you see the GI specialist.   
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Offline fireflymama

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #26 on: April 30, 2009, 00:27:32 am »
Hi,  Thanks again for the support.  LO is still very gassy but incredibly difficult to burp.  He spits up fairly often and continues to wake up at night about every 1-2 hours.  He now also has eczema all over his body, which comes and goes.  The dr still thinks that it is a dietary issue.  I'm on a much more restricted diet now and hopefully we'll soon figure out what he is reacting to. 
I'm exhausted but my new plan of action is to just go to bed as soon as I put him down.  My DH can feed him with the bottle before he goes to bed and so I can try to get some stretch of sleep.  Sad, because I really want to hang out with DH but I guess i need to make sleep my priority now.

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #27 on: April 30, 2009, 13:59:53 pm »
Oh poor you and poor bub!  :(  It does sound food allergy related, the frustrating thing is that it can be anything. 

Great plan about going to sleep when LO does and having DH give a bottle so you can get some rest. 

Quick thought - have you tried elevating the crib mattress?  If LO is spitting up it can be painful to lie down and that will def. wake him during the night - even putting him in a bouncy chair or carrier for a few nights to see if you can get some longer stretches?  My DDs symptoms included spitting/vomitting as well and we had the crib mattress very elevated, seem to help a bit.

(((((hugs)))))) hang in there, I know it is so hard.

Offline fireflymama

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #28 on: April 30, 2009, 14:01:52 pm »
Hi,

We did have the crib mattress elevated for a while but it didn't seem to help.  Now it's back down and there's been no difference in the amount of times he wakes up. 

thanks for the suggestion : )

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #29 on: April 30, 2009, 22:03:43 pm »
If this is still going on AND your doc still thinks it's dietary, might be time to break down and do the blood tests to see what he reacts to. (I forget the name of this, but a friend's DD has to get these regularly as she is HIGHLY allergic to a number of things but IS outgrowing some of the food problems.) There's only so much you're going to realistically be able to avoid, especially as a vegetarian, and still be healthy yourself, plus the sooner you find out what his allergies/intolerances might be, the fewer worries you'll have when it comes to starting solids.

Just a thought.....  :-\

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #30 on: April 30, 2009, 23:45:29 pm »
RAST tests?


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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #31 on: May 01, 2009, 01:59:32 am »
That's it, RAST tests. Thank you! :)

Offline fireflymama

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Re: Dr thinks LO is allergic to something in my milk. WHAT???
« Reply #32 on: May 01, 2009, 14:09:11 pm »
I actually took LO to get the RAST test drawn 3 weeks ago.  We waited and waited for results only to find out last week that the lab screwed up the blood sample!  So, poor guy had to get stuck again last week and we are now waiting for the results.  I'll keep you posted. Thank you so much for hanging in there with me.  It means so much to me  :)