Author Topic: eosinophilic eosophagitis  (Read 1263 times)

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Offline krollason

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eosinophilic eosophagitis
« on: May 01, 2009, 10:52:40 am »
hi this is my first post so i hope i get it right!
my 14 mth old has just been diagnosed with eosinophilic oesophagitis, it seems he is allergic to amines and intolerent to wheat.
i was hoping someone else out there had a similar diagnosis and maybe had more info then i do. eg do they grow out of it or is this the rest of his life without amines, i am used to diet challenges my 4 yr old was diagnosed coeliac in jan but this one takes the cake, it's really quite difficult to find food a toddler is happy to eat when bananas, avocado, tomato, ham and cheese are off the menu! (to name a few)
any comments would be appreciated. thanks kate

Offline LizzieN

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Re: eosinophilic eosophagitis
« Reply #1 on: May 01, 2009, 12:20:10 pm »
I'm sorry I can't be helpful, but I have got to send you HUGE HUGS...I hope you get some good advice here, everyone is just wonderful!!  I also hope that your LO gets heaps better now you have some answers :)

Many hugs again
Lizzie


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Offline Spectra

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Re: eosinophilic eosophagitis
« Reply #2 on: May 03, 2009, 02:37:48 am »
I never heard of this either, but I found a few links for you.  I hope they are helpful and I'll send some hugs your ways too!
**HUGS**

The first site I love.  They have such great message boards, you have to pay $25 for a year membership to their boards and the majority of their recipe's, but it's totally worth it!!  They even have a message board called "Parents of Children with Eosinophilic Diseases", but again $25 for a year access.  I have membership as I wanted access to their huge recipe bank. 
This first link is free to access as it describes this disorder::
http://www.kidswithfoodallergies.org/resourcespre.php?id=24
http://www.medicinenet.com/eosinophilic_esophagitis/article.htm
http://allergies.about.com/od/foodallergies/a/ee.htm
http://www.mayoclinic.org/eosinophilic-esophagitis/
Melanie
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Offline krollason

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Re: eosinophilic eosophagitis
« Reply #3 on: May 03, 2009, 10:41:37 am »
THANK YOU,I really appreciate the links I will check them out immediately.
Kate

Offline LizzieN

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Re: eosinophilic eosophagitis
« Reply #4 on: May 04, 2009, 10:15:11 am »
Hang in there Kate,
I'm thinking of you and sending hugs!  It would be very scary to have your LO sick and not have enough info...keep hasseling those doctors if they aren't explaining things enough to you, don't let them fob you off, it's their job to help :)

Take care, let us know how you're all going
Lizzie


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