Hey Laura,
Our little man, Dyllan is 15 months old....and yes I think we are going through the 2 to 1 transition too, so things are a bit wonky. Some days he will have a good long nap (almost 2 hours) and other days it's a little over an hour. I have found keeping him up a little longer than the 4 hours he was doing helps, but it's a fine line between tired enough and OT....Also our LO isn't great with an early bed time, so if the day naps are short we struggle a bit!
Since he has gone onto the Elecare elemental formula he has been vomiting again, so horrible when he is half asleep and chucks, poor little darling...did that tonight and it made it difficult as I had put him down early, then he chucked and then couldn't get back to sleep...But then if it stops the "silent" reflux I still think it's worth it. Will have to talk to the paed again.
So what does your LOs condition entail? I assume it's to do with over active white blood cells causing an autoimmune problem? If he is on antibiotics a lot can you team that with a good pro-biotic to keep his tummy happy (I would imagine the antibiotics would make the reflux flare up??)...or is that a no-no with his condition? I feel for you, so much. It must be dreadful having your precious little one in and out of hospital...HUGE HUGS xx
I feel bad dosing our LO up too, but the way I figure it is if I had massive pain from teeth (I did when I had braces as a kid) I would take paracetamol....I don't tend to give it for every nap or night waking, I kind of test the water first and see if I can do other things to help, but if I'm sure he is struggling (all the pulling at ears and face etc) then I give it and if nothing else seems to work I will also give him some. As I said I tended to under dose in the earlier days and that didn't work very well....
If we have been struggling and giving pain meds for a couple of nights in a row, I tend to stop....reassess....try without and try for a few nights without again. If it doesn't work and he seems to be in pain, I go back to dosing him. Same during the day (although I use it MUCH less during the day), if he really seems "off" I give it a go.
It is such a guessing game even without extra medical issues.
xx Huge Hugs to you all
Lizzie