But, then during his meal, a friend showed up and she fed him while I cleaned up (no one else has ever fed him but me or DH) and he lapped it all up!!! Ate every single, bit, no gagging, no pulling it out......nothing!
Leo lost quite a bit of weight and was becoming skin and bones, we end up getting some urine and stool samples and found out he had giardia. I think he would have had it for at least 4-6 weeks, during that time he was so temperamental - he would have a tantrum if I moved his sippy cup and that would be the end of the meal, slowly his food range became smaller and smaller. I never knew if he would eat this or that, even his favourites. He kept getting sick too, which made me wonder if there was something underlying.
During that stage, Leo would be put off his food so easily I could feel my heart racing each time I fed him. I tried dang hard to not be outwardly upset or watch him too much. I felt he needed to eat because he was losing weight. But other people could (on and off) actually feed him (even spoon feed him!!) when I couldn't, I'm sure he could pick up my mood and anxiety despite my best efforts.
How is the removal of soy going? You are on the right track I'd say that something to do with food or the gut.
Have you started him on things that contains gluten or is anyone giving it to him? I remember you saying (forgive me if I'm wrong, that celiac was in your family and you were delaying the intro of gluten).
Have you had any stool, or urine or blood tests done, maybe you are fighting something else. Keep demanding things until you get answers. Some doctors I came across were complete IDIOTS who merely prodded Leo and said well he's still got a belly he's not wasting away. I knew different. I have learnt more to follow my own feelings that something unknown is wrong and keep going. I had one person telling me to bf more, one to bf less, and one to give softdrinks to fatten him up
Trying different approaches worked a little for Leo, including having a little picnic on the floor, and also putting a range of snack foods on the coffee table for him to discover without my intervention. That worked wonderfully, esp as he got better and he was quite excited to come and go as he pleased. Basically DS needed a break from the high chair (and so did I!).
I completely know that feeling that you HAVE to feed your child and you can see they are losing weight. Keep going mashi, you are on the right track questioning it all.