pumpkin reaction, are you serious! :( anyone else have this?

[EloysH]

hey Kirry, the fac tthat he was negative to all scratch tests - does that mean you can eat anything new?

[hrk]

Hi gals!  I wish something would have shown up for you Kirry; that would have been nice to at least have a direction to trial (and possibly make it easier).  The allergist did say that requiring such a high dose of meds to control symptoms indicated a food sensitivity (but two blood tests for IgE did not show anything).  And I think it just means no "allergy" but does not rule out intollerances, right?

I will post a quick update, as I did leave a message with the phone nurse for our gi regarding next steps.  I mentioned that the allergist was suggesting that we should scope for EE as a next step.  I also mentioned that the allergist knew nothing about salicylates.  I asked about a second opinion with the other dr he suggested (and if he knows about salicylates); his respnse was to do the second opinion with the other allergist (but he didn't mention the salicylate part).  So, I will ask about it when I make the apt.

The new book's list is more limited than the one I use online.  I do think since going even more preservative free, that he is even better.  He had a bunch of corn, a few grapes, melon all in the same sitting.  NO red bottom and no nwings.  Every time I think I figure it out (like it has to be corn), then no reaction on the bottom.  Can nearly drive you crazy!

[huntersmummyinoz]

sorry wasnt clear, yes no allergies but intolerances instead. paed and dietician (they work together) have said stay clear of dairy and soy til 12mths and have to challenge both again around then anyway to keep getting prescription formula. continue to keep wheat, gluten, egg, peanuts, tree nuts and seafood out of my diet but will try him on wheat/gluten/egg in small amounts later on to see if and how much he can tolerate.

jean, no i'm actually glad there's no allergies as he's more likely to outgrow intolerances than an allergy. just darn frustrating working out the specifics as you know! i was also wondering if you'd be able to work with my dietician thru email consults?? she is SOOOO knowledgeable on all this stuff and it's very much about the level of tolerance for particular food chemicals rather than specific foods. apparently particular foods always get the blame as they just happen to be what was eaten when the reaction occurred and tolerance level was reached, so you really need to look at the chemical involved and work out how much of that he can tolerate (eg. corn is on the higher end of salicylates but small amounts of corn may actually be okay, he could be coasting along near his threshold for salicylates, then eats corn and gets a reaction. other times he may be below his threshold for sals, eats corn, so no problem shows as it doesnt tip him over his threshold. hope that makes sense???) is this anything new or do you know this stuff already?

elo, it's crazy trying to catch each other isnt it!! i've been trying to call you back all week. i didnt store your home phone so have  been trying your mobile. can you pm me your home number

[EloysH]

Jean I was going to mention the same re the corn   

so you really need to look at the chemical involved and work out how much of that he can tolerate (eg. corn is on the higher end of salicylates but small amounts of corn may actually be okay, he could be coasting along near his threshold for salicylates, then eats corn and gets a reaction. other times he may be below his threshold for sals, eats corn, so no problem shows as it doesnt tip him over his threshold.

I kept blaming pork for Kais reactions now looking back I was eating alot of amines - bannanas every day, lamb shanks slow cooked in a pot two nights in a row, BBQ'd and charred meats every second day, then pork - bam! green mucus poos and bad reflux for 5 days.

I am usig the same dietician as Kirry and booked for scratch tests with the same paed in a few weeks.  I am quite quite Pis**ed  that after talking to the dietician she suggested that I go more strict on my diet as Kai is quite sensitive and NO to any food challenges - I was hoping for the opposite   

Kiry off to bed will try to call tomorrow

[hrk]

Yes, over the past year I have blamed food pairings and meds for the different/inconsistent reactions (pairing with lower foods it was fine, and with tomatoes that is why it showed up with the popcorn eating).  We have been doing low sal for a year now; and successfully off meds, so a huge improvement from last year.  But not only is corn high, but so are grapes, melon I think moderate from the list. And he had a burger from McDonalds (high sals probably with the processed meat) and preservatives in the bun.  No reaction.  I was thinking something would show up, and it was a week ago.  Personally, I would LOVE to have something show up on a scratch test and KNOW what to avoid.  I am sooooo tired of this cat and mouse game regarding the food sensitivity.  :-(

Glad you are doing the scratch tests, Eloys.  You never know, although it sounds like we are 0 for 2 between Kingston (scratch test) and Heath (two blood tests).

[sherry lynn]

Jean - do you dare to hope that maybe his sensitivity is getting a little better?

I am going to start a new thread I think about a low chemical diet

[Gypsymom]

I've been out of town for more than a week for work. No BW. 
I have been eating a very small number of foods the whole time in order to try to keep the base line while on the road. It was going pretty well (although shopping and cooking on the go is brutal). Poor little guy now is having a bit of a reaction as I ate 3! servings of rice that had unknowingly been cooked with a pat of butter.

quote author=huntersmummyinoz link=topic=176024.msg1988125#msg1988125 date=1280965089]shannon, are you able to scan that chart and pm it to me or is it too big?? i would love to compare it to the food charts for low, moderate, high natural chemicals (amines and salicylates) from the RPAH elimination diet as that's what i've been following to introduce his solids.[/quote]

I just emailed this to Elo, but now I realize I've got such a low-res copy that it will probably work to post it here and then anyone else can have a look too. Note that watermelon is the very top of the page (ie, a top offender!).

[EloysH]

Jean the dieticians do give a method to determine your tolerance threshold in terms of serves/cups of sals per day. I will ask at next appointment! 

[hrk]

Thanks Eloys!  I am trying to remember what the book suggests, but my memory is failing.  Plus your specialist has some good ideas based on experience.

Sher, perhaps his sensitivity is lessening.  :-)  (It did cross my mind, but you know what will happen when I say it, lol.)  I have wondered about amines and glutamates in addition to preservatives.  I need to get a better handle on those categories.   

On the list I used previously, there were five categories for foods, and yes, mellon is in the high category just below the very high.  There was plenty of no-no foods there to cause a reaction and build up over a couple of days (based on previous experience).  My cousin wanted to stop at McD's after being out last weekend.  Back in May we ate at BK (but that is "flame broiled"), and his but was bright red for three days.  :-(  I wonder if that could be a hint towards the amines.

[sherry lynn]

Jean - I was wondering if you were worried about the amines. There is so much to wrap your head around. Man, it's so hard to even think about it all, let alone try to follow it all.

[hrk]

And of course, as I mentioned it...last night his bottom started to get red.  Sigh, eye roll...

[sherry lynn]

Oh man!!!

[hrk]

BUT the little red bumps that were there last night (probably about 4-5) starting have faded today by nap time when I checked  Maybe a minor reaction...

[sherry lynn]

How does the chart above match what you have ladies?

[hrk]

Hmmm, to me it looks a bit different than low salicylate.