Author Topic: Feeling Crushed  (Read 7685 times)

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Offline kim&savannah

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Re: Feeling Crushed
« Reply #30 on: November 14, 2011, 02:51:46 am »
I think its ok to loose bits steadily but not rapidly KWIM?

My weight loss has slowed down now as I'm getting closer to my healthy weight.  It's still going down a few pounds a month, but I'm not losing 2 or 3 pounds a week anymore, so hopefully that's an okay place to be at. 

I'll have to see what the dr. says tomorrow.  I haven't traveled out of the US for several years, but have spent time in Mexico in the past--I don't know how long stuff can last with no symptoms. 

I hope you get some answers, Eloise!  It's so tough to be doing everything you can and just not KNOW.
~Kim

Savannah,  6/04
Abraham,   11/06
Henry, 5/8/11

Offline EloysH

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Re: Feeling Crushed
« Reply #31 on: November 14, 2011, 22:00:38 pm »
Its great that you haven't gone below your normal weight.  :)

Thanks love,  I feel that I have gotten some answers but not all.  Another reason we are going for parasite tests is that his immune system is compromised to any exposure and he would be likely to get infected.  Also, there have been plenty of cases where parasite infections have been found in reflux kids (according to a microbiologist that is helping us).

The main thing we uncovered for Kai was mineral imblances - low zinc / high copper. This leads to gut dysbiosis because zinc is required for over 200 enzyme processes and also protection of the gut walls, production of musin and many other things.   So my Kai basically is lacking alot of the necessary enzymes for digestion at the moment - on top of that no stomach acid due to the meds.  It will take a few months for his zinc levels to start correcting.

 He also has too much histamine in his blood - which means he is undermethylating - and it means his detoxifcation processes are compromised, another reason why he has food intolerances.

Offline kim&savannah

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Re: Feeling Crushed
« Reply #32 on: November 15, 2011, 15:06:36 pm »
You had to go to non-medical specialists to find out all of that, right?  I know that whatever they tested for with the GI was neg. or normal, but I'm not even exactly sure what all they tested.

Well, Dr. yesterday was more supportive, or at least accepting of my stance, than I'd hoped.  She doesn't agree with me (about his gut health or that it means we shouldn't be vaxing right now), but she didn't push formula at all and agrees that getting good quality food into him at this point is probably fine instead of formula.  He doesn't really seem to have absorption issues based on the results of the tests they've done, so its hard to imagine that the formula would be easier for him to absorb.

He weighed 13 lbs .5 oz., so we JUSt made it to 13 pounds which is what I was really hoping for.  Only 1/2 pound gain in the last month, though, so not great.  They are sending us for one last test (which I thoguht they'd already done) for cystic fibrosis.  I'm nervous that they even think that is a possibility, but its highly unlikely and he really doesn't have many of the symptoms other than slow weight gain (but he's still tall for his age, so he is growing) and the excess mucus, but he doesn't have lung mucus build up, even after being sick all last week.  We go in Wed. and should know within a day or two.
~Kim

Savannah,  6/04
Abraham,   11/06
Henry, 5/8/11

Offline *jazzberry*

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Re: Feeling Crushed
« Reply #33 on: November 15, 2011, 15:15:08 pm »
Good luck and ###vibes### for wednesday :-*