Author Topic: calling mspi mummy's. Need some eyes please  (Read 4445 times)

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Offline lilisuze

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calling mspi mummy's. Need some eyes please
« on: November 12, 2011, 20:16:05 pm »
i think dd is following the mspi route. Basic story- things were ok, baby quite small but grew a bit, not enough to go through the night without a feed. We introduced a milk formula feed at 8 weeks and things went downhill from there. The nights got worse, and we started getting a lot of squirming after feeds and mucus in poo. So we switched to soy formula, and have stopped bf'ing. After an initial improvement, after 10 days things are looking dodgy. Night wakings not for hunger- sometimes 7 times a night. Constipation too (unusual i know, but same happened with ds) and quite a bit of mini spit ups maybe 30 times a day only a couple of ml's at a time, sometimes more. These are all very similar things that happened with ds, but once we switched to soy it was like a different baby within one day. This is not happening with dd. Do you think we need to go to nutramigen?
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Offline rach321

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Re: calling mspi mummy's. Need some eyes please
« Reply #1 on: November 12, 2011, 20:52:07 pm »
I would definitely request a trial on an elemental formula - only way to be sure.

Offline clairebear79

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Re: calling mspi mummy's. Need some eyes please
« Reply #2 on: November 12, 2011, 22:11:24 pm »
Agree.  Some babies with milk protein intolerance can also be intolerant to soy, so best to exclude from diet & see if it makes a difference.

Offline ~*~Louisa~*~

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Re: calling mspi mummy's. Need some eyes please
« Reply #3 on: November 12, 2011, 22:58:34 pm »
I agree with the two previous posts at 4 months though you might struggle with nutramigen its foul and can often be rejected if your in the uk you can request Aptimil pepti which is still a perscription only milk but is better accepted by older babys

My Sophina Soya made a huge difference, Alyssa soya doesnt agree with her either




DD1 Angel/Spirited - Glue ear
DD2 Angel - MPI, Excema, Late talker
DD3 Angel - Milk,Soy, nut,egg intollerence, Saliciyte sensitivity, Reflux

Offline Hedgehog17

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Re: calling mspi mummy's. Need some eyes please
« Reply #4 on: November 13, 2011, 10:05:34 am »
See if you can try Aptamil Pepti 1 first - it's quite palatable and my MPI DS has been fine on it. You will have to get it on prescription though!

I agree that soya isn't working for your LO. I have never given it to DS because I have soya intolerance.

Hope things improve soon  :-*

Offline ~*~Louisa~*~

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Re: calling mspi mummy's. Need some eyes please
« Reply #5 on: November 13, 2011, 10:49:28 am »
Soya actually isnt reccomended in the UK anymore for a couple of reasons...

1. soya often sits hand in hand with dairy intollerence
2. Soya contains oestrogen which they do not know the effect it can have on a growing baby, although for female babies it is unlikly to make anything too adverse it is thought to possibly hamper development in male babies if given over a period of time
but all in all they don't risk it for either sex

that was an intresting tidbit my pead shared lol




DD1 Angel/Spirited - Glue ear
DD2 Angel - MPI, Excema, Late talker
DD3 Angel - Milk,Soy, nut,egg intollerence, Saliciyte sensitivity, Reflux

Offline lilisuze

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Re: calling mspi mummy's. Need some eyes please
« Reply #6 on: November 13, 2011, 14:22:55 pm »
we are already on soy prescription. So thats no problem. I just worry so much that they will say its my bad routine thats causing all the nw's. Tbh she sleeps well in the day, has good a times, and is feeding approx 3.5h through the day. Could it just be me or do you think its likely to be the milk?
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Offline ~*Nicole*~

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Re: calling mspi mummy's. Need some eyes please
« Reply #7 on: November 13, 2011, 15:08:35 pm »
Why don't you post your routine and also the times of the NWs and how you deal with them and maybe we can see if it sounds more milk related or more routine related.







Offline lilisuze

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Re: calling mspi mummy's. Need some eyes please
« Reply #8 on: November 13, 2011, 16:26:41 pm »
we are on just about 3.5hr easy. With e after naps. So e at 7.30, 11.00, 2.30 and then half feed at 530 with the rest at 7. Sometimes she takes a long nap independantly other times its 40 mins, but i'm not too concerned because its the right age for short naps. Bedtime routine is bath bottle story and bed by about 730. At 4 weeks old she was sleeping til about midnight from this feed. Now she is wakin at 4 hours after bedtime. She cannot be settled by  shh pat or cuddles. She squirms around and pulls up her knees. And cries hard. If i feed her she sometimes takes about 4oz which is a full feed for her. After that she'll settle, and then wakes after another 2 hours. I always try to settle in the cot with the paci. If she wakes after 2 hours again, she's obviously not hungry. If i offer a bottle she takes a few ml's and then starts crying again. After a long time of cuddles and me getting more upset, she'll eventually knock herself out again. If i try and put her down before her breathing is completely silent she will wake again within 5 mins. Sometimes there is spit.up on the sheet.
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Offline lilisuze

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Re: calling mspi mummy's. Need some eyes please
« Reply #9 on: November 13, 2011, 19:31:30 pm »
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Offline ~*Nicole*~

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Re: calling mspi mummy's. Need some eyes please
« Reply #10 on: November 13, 2011, 20:28:37 pm »
My DS is both MSPI and reflux and her behavior definitely sounds suspect. The knees up and squirming sound like pain for sure and it isn't unusual for nights to be worse..especially as it is the one time they lay down for sleep right after eating. The knees up seem like she has tummy trouble whether gas or digestion issues or both...which can cause reflux/spit up issues. I'd look into trying something other than soy as an alternative and or try keeping her upright after she eats before bed for 20 our so minutes,elevate crib mattress and other reflux aides and see if that helps. Then you can talk to your ped. My son need reflux meds in addition to the different formula before  he improved







Offline babybarr

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Re: calling mspi mummy's. Need some eyes please
« Reply #11 on: November 13, 2011, 21:01:08 pm »
Lili I would def try another formula and see.  My DS was like yours and a completely different babe within a day so I'm sure you'd see a difference quite quickly with her if that was the case.  Nutramigen is pretty foul though....  Are you just seeing a GP or do you have a paed?
LAURA xx




Offline lilisuze

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Re: calling mspi mummy's. Need some eyes please
« Reply #12 on: November 14, 2011, 09:00:30 am »
a gp. but he has special interest in kids, and has 2 lactose intolerant children!
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Offline babybarr

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Re: calling mspi mummy's. Need some eyes please
« Reply #13 on: November 14, 2011, 09:36:18 am »
Perhaps ask him if you could trial something else then? 
LAURA xx




Offline lilisuze

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Re: calling mspi mummy's. Need some eyes please
« Reply #14 on: November 16, 2011, 10:45:06 am »
We have some nutramigen "AA lipil". I hope this is the right one. The pharmacist seemed a bit confused. She likes it, so thats a bonus. After an initial fussiness at the taste, within 5 mins she was drinking it down. Please indulge me in the answers to a couple of questions I have when you have time.

1. Should I see a difference in her behaviour immediately? I ask this because on the first night, after 2 feeds of it, she slept til 3am....which has been unheard of. Last night (the 2nd day) she slept til 12.30, and then til 4.30. There was a little sqirming last night but I think it was wind after the eating

2. Is she likely to be more hungry? There are a number of factors here that make me ask this... She's seeming able to take 6oz from a bottle. She woke 2x last night hungry...obviously hungry, and guzzled the bottles quickly, and went back to sleep. She's put herself on a 4hr EASY.

3. The formula is amino acid based, does this mean she will digest it more quickly? Do i now expect to be up in the night feeding more often

4. With regard to weaning....if this works (please god i do hope so) then can I still start to wean to solid foods at 6 months, just avoiding milk/soy products?

5. The label says to expect strange (and loose) poos. She hasnt yet had one since the switch. I guess she's just digesting. After the constipation issues last week, I'm a bit concerned that she's not been yet. Last poo was monday afternoon.

Thanks
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Offline babybarr

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Re: calling mspi mummy's. Need some eyes please
« Reply #15 on: November 16, 2011, 13:51:48 pm »
Should I see a difference in her behaviour immediately? I ask this because on the first night, after 2 feeds of it, she slept til 3am....which has been unheard of.
I would say fairly quickly

Is she likely to be more hungry?
It's easier to digest so potentially yes.... but you may find your nights even out given she isn't in pain

With regard to weaning....if this works (please god i do hope so) then can I still start to wean to solid foods at 6 months, just avoiding milk/soy products?
Yes!!

DS had very bad diarrhoea with nutramigen
LAURA xx




Offline lilisuze

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Re: calling mspi mummy's. Need some eyes please
« Reply #16 on: November 16, 2011, 14:50:34 pm »
thanks laura, did you have to move on to a different formula, or stick with it?

Anyone else reading, my questions are all at the bottom of page one.
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Offline babybarr

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Re: calling mspi mummy's. Need some eyes please
« Reply #17 on: November 17, 2011, 17:44:25 pm »
We moved back to soya milk - which sounds like it'll be no good to you :-\

I think you need to stick with it for a bit :-\
LAURA xx




Offline ~*~Louisa~*~

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Re: calling mspi mummy's. Need some eyes please
« Reply #18 on: November 17, 2011, 19:01:17 pm »
The change might be hit and miss for a couple of weeks while her body gets rid of the bad stuff

She might drink more because it settles better not because she is hungrier iykwim

We are on neocate (same kinda thing as nutramigen AA) and alyssa doesnt get hungrier infact they can be used as sole nutrition so it should fill them up




DD1 Angel/Spirited - Glue ear
DD2 Angel - MPI, Excema, Late talker
DD3 Angel - Milk,Soy, nut,egg intollerence, Saliciyte sensitivity, Reflux

Offline Buntybear

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Re: calling mspi mummy's. Need some eyes please
« Reply #19 on: November 17, 2011, 22:14:54 pm »
I agree with Laura's answers although being hungrier on a HAF isn't something I have heard of before.

If it is MSPI then it can take a few weeks for things to totally improve but it is a good start that you have already noticed an improvement.

Offline Jimbob

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Re: calling mspi mummy's. Need some eyes please
« Reply #20 on: November 17, 2011, 22:24:47 pm »
My ds took more formula when we changed to neocate.

Kelly



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Offline ~*Nicole*~

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Re: calling mspi mummy's. Need some eyes please
« Reply #21 on: November 18, 2011, 23:10:34 pm »
My DS started to take a bit more when on neocate...not a ton more...just enough that I noticed.