Author Topic: UK mums - please help. How did you get a referral for testing??  (Read 3763 times)

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Offline *Becky*

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Re: UK mums - please help. How did you get a referral for testing??
« Reply #15 on: February 06, 2012, 13:07:21 pm »
I guess now I am wondering whether to do an elimination diet of my own while we are waiting for the appt as it could take a while. I am not going to give egg anyway but what do you think?





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Offline katyusha

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Re: UK mums - please help. How did you get a referral for testing??
« Reply #16 on: February 06, 2012, 15:26:10 pm »
I did not get any luck with a GP as tests are expensive, BUT i did get it via my Health Visitor, who is lovely. So I guess need to have someone on your side.  Go there, describe your symptoms and look at the weight gain. In my case DS had eczema, losing weight and definitely not taking dairy well. Originally I had asthma diagnisis for DS and they did allergy tets then and the test confirmed it at the asthma clinic. However they refused to do more tests. But with Eczema coming on strong after soy, they decided it was cheaper to give me Nutramigen than to test DS. However in Dec (3 months on) the HV said the wight was not going up and with eczema, etc. I needed a dietician. At the next esthma hospital clinic they referred us to more food tests. Apparently milk, soy and egg allergy are often together. So he has those plus peanuts and something else they have not told us the results properly yet. The saga did not stop there. Because even though the tests are out the hospital specialist has not called us to interpete the results or even to tell us the results. I got them via my stay in A&e asking a doctor to look it up. Still, I called my HV and she has got me a dietician appointment. Why am I telling this?
A. It can be frustrating
B. persevere because you know best
C. Either HV or GP can help
D. Egg can mean soy and dairy as well
E. elimination diet can work but you need the dietician to make sure you still get the main nutrients. Also if breastfeeding, need to eliminate from own diet as well. It takes 2 weeks for dairy.
F. I did elimiantion diet and now he is ok, with us both no dairy, soy, egg or peanut. But until I eliminated it 100% we still had eczema. Now week 2 and fingers crossed.
Best of luck, it can be frustrating, main thing is to persevere.
I agree with Mashi that if not for asthma and low weight ( DS is on the 9th cetile to begin with) they probably would not have bothered if it was just eczema, but there severity matters as well as the kind of GP you have, (or HV).
« Last Edit: February 06, 2012, 15:29:43 pm by katyusha »