MPI, FPIES and chemical sensitivity

[Loulou33]

Hi all -

I am sure this has been written on before but I am unable to search the past posts.  MY LO has MPI/MFPI as well as FPIES and is chemical sensitive and has severe GERD. He is 8 months old and has been on Elecare and Losec since he was 4 months (EBF before that).  Our only safe food so far is carrots and he has failed rice, millet, pumpkin, broccoli, pear, parsnip.  We are currently on day 5 of coconut.  The trial was going really well until last night.  About an hour after he had 1tsp of coconut he had really bright hot red cheeks.   They were back to normal about 3h later. 

Is this a sign that he has failed coconut?  I gave him another tsp today and so far (2h later) no reactions.  He had something similar with parsnips - we stopped that trial as he had bright red cheeks and also increased vomitting. 

Was wondering what I should do? Both my paed GI and my paed allergist are not available until next week.  Any help would be great!!
Thanks

[ENMS]

hi there, welcome!

my 8 month old DS also has severe GERD and FPIES.

we haven't had this kind of reaction, but I think it could be related to the food. any chance that LO is teething? hot red cheeks happen here while teething usually.  are your reactions usually delayed? for us our fails usually happen on day 5 or 6.

Can I ask you what chemical sensitivity is?

[Buntybear]

I have heard of that reaction to chemicals - so you mean sals etc?

[Buntybear]

http://babywhispererforums.com/index.php?board=62.175

http://babywhispererforums.com/index.php?topic=175107.0

A while ago there were a few ladies with LOs who had reactions to food chemiclas. Long posts but loads of info from very knowledgeable ladies in there.

[Loulou33]

The specialist told me he is chemical sensitive as he cannot  take any syrup medication orally - panadaol, dymadon, zantac, pentavite, gripe water etc etc.  They think he is very sensitive to the preservatives and flavourings used in the suspensions and solutions.  We assume that he is sal sensitive and that he will also react to all sulphites, preservatives etc.  We use Losec tablets and panadol suppositories.

We usually fail on day 1 or 2 with lots of vomitting even if we trial only 1/8 tsp.  This is the first time we have gone to Day 5.  I have emailed the specialist and sent him photos.  When he replies next week I will update thed post

[ENMS]

Interesting I hadn't heard of that.

I really hope it will be a pass for you. Are you keeping on with it now or have you stopped it?

[Loulou33]

I heard back from the specialist who advised stopping as red cheeks can be sign of allergic reactions (but also heat or other illness).  But he gave the green light to try again in a month.  Over foods which he failed badly like rice we have to wait 18 months!
Trialling prune juice now - 2 ml of 1:20 dilutiion and doubling every day.

[ENMS]

Yes the allergist told us at least 12 months before re-trying a failed food.

Good luck with pruce juice!