Author Topic: Grown out of dairy intolerance?  (Read 2674 times)

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Offline Miamamma

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Grown out of dairy intolerance?
« on: April 02, 2014, 19:55:58 pm »
My DS has had mild reflux since two weeks old. At 4 weeks old I eliminated dairy from my diet and this seemed to help the spitting up significantly. Now at 7 months, the spitting up is minimal and I want to supplement BF with formula as going back to work soon. I wanted to check his diary intolerance has gone so that I could use regular formula. Yesterday I have him a bit of yoghurt and have been eating dairy myself (chocolate, with wild abandon!  :D). I have been waiting for a reaction but not sure exactly what I'm looking for.
Last night he was pretty unsettled but he's been happy during the day and spitting up hasn't increased at all. His BM have always been pretty loose and 'up the backers' are fairly common, so no changes there. No mucous or anything. So...are we in the clear? The bad night could well be down to teething as we have been waiting a while for the front top teeth and he's taken to batting himself across the head /ear when trying to settle to sleep. Any thoughts would be greatly appreciated, thanks  :)


Offline Buntybear

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Re: Grown out of dairy intolerance?
« Reply #1 on: April 02, 2014, 20:25:03 pm »
Hi, I think it is worth giving a good week to see if any reactions build up. I guess you would be looking for unsettledness esp if it came with wind or gripy pains, changes in BM, mucous, rashes etc.

I totally understand why you want to add dairy back in and I hope he is OK with it. If not then at least you can go to the GP and say you have tried it and get some hypo-allergenic milk.

Offline Skadiver13

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Re: Grown out of dairy intolerance?
« Reply #2 on: April 02, 2014, 22:16:24 pm »
When we have trialed milk each time (ds is 22 months now) it's taken at least 10 days to get full on bad diapers etc. The first week everything has always looked good then it started to go down hill. I would give it a good week to 2 weeks.
My dreamed for Angel Baby DD (other than dreaded 40min naps) Born 4/30/16
Reflux, MSPI, Love my Spirited,textbook little munchkin DS Born 5/17/2012



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Offline Miamamma

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Re: Grown out of dairy intolerance?
« Reply #3 on: April 03, 2014, 05:33:26 am »
Oh, so too early to celebrate just yet then. We've had two unsettled nights now where he has woken frequently. I've been able to settle him very quickly though so he couldn't be too uncomfortable? Day times are fine. He actually had the longest nap ever yesterday (1.75 hrs...he's always been a short napper).
Should I continue to eat dairy during the next week or so, or just leave it as one day? He had a bit of veggie mash with butter in yesterday....
His BM have always been loose but usually only 1-2 a day. Would it only be diarrhea if it was more frequent?


Offline Skadiver13

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Re: Grown out of dairy intolerance?
« Reply #4 on: April 03, 2014, 10:31:38 am »
hi hun you may be introducing things too quickly. Even now my DS cant do butter at 22 months as it gives him an upset stomache. I would stick to letting him get milk through you for a week and then see what happens.
My dreamed for Angel Baby DD (other than dreaded 40min naps) Born 4/30/16
Reflux, MSPI, Love my Spirited,textbook little munchkin DS Born 5/17/2012



**Siobhan**

Offline Miamamma

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Re: Grown out of dairy intolerance?
« Reply #5 on: April 03, 2014, 19:39:47 pm »
Right, ok. I will stick to milk in my diet for the moment. I'm wondering if his night wakings are due to tummy pain, but I just don't know. On waking, he slams his feet down and starts to cry. When I go in and place my hand on him, he stops crying straight away and nuzzles into my hand to go back to sleep. Does this sound like it could be pain or something else?


Offline Skadiver13

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Re: Grown out of dairy intolerance?
« Reply #6 on: April 03, 2014, 19:41:12 pm »
It could be especially if he didn't do it before. My son kicked his legs a lot when he had stomach pain especially at that age. Just give it some time.
My dreamed for Angel Baby DD (other than dreaded 40min naps) Born 4/30/16
Reflux, MSPI, Love my Spirited,textbook little munchkin DS Born 5/17/2012



**Siobhan**

Offline Miamamma

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Re: Grown out of dairy intolerance?
« Reply #7 on: April 03, 2014, 19:55:02 pm »
You're right. I need to be patient. I just desperately want him to have grown out of it. I go back to work in less than two months now and I'm stressing about him having the right formula in place in time.


Offline Miamamma

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Re: Grown out of dairy intolerance?
« Reply #8 on: April 04, 2014, 07:35:00 am »
So now I'm convinced dairy is still a problem. He was up a lot last night with tummy pains and I could hear his tummy rumbling. Bit gutted but at least I know where we are at now. I'll go to the doctors to get suitable formula and cut all dairy in my diet again. My next question then is, how long till I can expect things to settle down again? Thanks for all your help by the way. I don't know what id do without this forum. Far more knowledge here than at either the GPs or HV...worryingly.


Offline Buntybear

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Re: Grown out of dairy intolerance?
« Reply #9 on: April 04, 2014, 16:50:22 pm »
Sorry it hasn't worked out but he is still so little. His tummy is still getting used to solids! Maybe wait till he is a year old but if he has reacted like this then it may be a little longer till he grows out if it.

Offline Miamamma

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Re: Grown out of dairy intolerance?
« Reply #10 on: April 10, 2014, 19:48:36 pm »
Hi, back again. The doctors have said that they can't prescribe the special formula without a letter confirming his allergy from the allergist clinic. Therefore they have referred him to the allergists for tests etc. I have no idea how long this will take and I am going back to work in less than two months. I think it's possible to buy the formula online but not sure whether this is a good idea or not? The two I have read about are Nutramigen and Neocate. It appears both can make things worse if the baby doesn't get on with them, so I'm nervous to start using them without expert advise. Should I just wait for the referral and if necessary express when I go back to work? I hate expressing and would really like to wean him by 12 months but things aren't exactly going as I had planned when he was born...
Thanks in advance for your advice.


Offline Skadiver13

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Re: Grown out of dairy intolerance?
« Reply #11 on: April 10, 2014, 20:07:19 pm »
Hopefully someone from the UK can help here as I'm in the US and it's different here. What you are looking for is an elemental formula form (also known as amino acid based) what I understand here there are 2. Elecare, neocate. Take a look at this link

http://www.kidswithfoodallergies.org/resourcespre.php?id=140&

I had heard nutramagin came out with one but not sure what it is called.  If you can afford to buy the formula while waiting I would.  Unfortunately my son turned out negative for the allergy because it's an intolerance not an allergy so he still needed the elemental formula. Theonly indication of intolerance was skin and blood in his stool. Can you get a different doctor, one who specializes in gastroenterology?

My son started out on necoate and ended up doing better on elecare because the neocate was corn based I think? I don't remember why and we never looked back. Most babies do just fine on ether. I've never heard of a baby doing worse on an amino acid formula.
My dreamed for Angel Baby DD (other than dreaded 40min naps) Born 4/30/16
Reflux, MSPI, Love my Spirited,textbook little munchkin DS Born 5/17/2012



**Siobhan**

Offline Lolly

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Re: Grown out of dairy intolerance?
« Reply #12 on: April 10, 2014, 20:22:21 pm »
Check with a pharmacy about the neocate, they will be able to order it for you too. Have you tried your health visitor, some will try and help if they can. You could trial it for a few weeks and record what's happening, you should see improvement in couple of weeks which is evidence you can present to the Dr.

I will say though that in my experience what will and will not be prescribes by the Dr varies hugely. I know mums here who have had PPIs prescribed by the GP, I had to see the paediatrician to get a reflux formula prescribed. The Paed wasn't impressed with the GP as a change in formula is a standard step in reflux treatment.

Have a look at this link, these are the NHS NICE guidelines http://cks.nice.org.uk/gord-in-children#!scenariorecommendation:2

Laura


Offline Miamamma

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Re: Grown out of dairy intolerance?
« Reply #13 on: April 10, 2014, 20:34:26 pm »
Thank you ladies. I will try the health visitor to see if they can help and chat to the pharmacist about getting hold if the Neocate, which does appear to be the best bet. I think the sooner I can start offering him a safe alternative to breast milk, the better, as I don't know how he will take to a bottle etc.


Offline <Catherine>

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Re: Grown out of dairy intolerance?
« Reply #14 on: April 10, 2014, 20:45:05 pm »
Wow, we were prescribed a months trial of nutramigen lipil 2 by the gp without too much asking at all.

I don't know why I'm surprised you've had problems as I was never taken seriously by the gp with DS1 who's reflux and milk intolerance went undiagnosed.
Catherine x








Offline Buntybear

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Re: Grown out of dairy intolerance?
« Reply #15 on: April 10, 2014, 21:34:48 pm »
I know a lot of ladies have had success going through their HV to get the milk. Well via the GP for the prescription obv. He might not have an allergy but MPI and that can't be tested for.

Offline Aishi

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Re: Grown out of dairy intolerance?
« Reply #16 on: April 10, 2014, 21:35:57 pm »
Hi MM

I have a couple of tins of neocate if you're interested?? I need to check expiry on them but they're yours if u want...I'm in UK too...

Re gp. Could you go back and see another gp? Be very confident and insist that you want to trial neocate cos you're certain ds is mspi and if they can't then prescribe it then insist on getting a referral to a paed. I don't see why your gp would say to see an allergist from what I rem they don't test los reliably? I'm not sure ??? The gp was useless with lo1 and it was only when my ds ended up I. Hospital dehydrated that we were taken seriously >:( you dont want that. With dd I just insisted and went straight to neocate.

Posted with bb
aishi :)

Offline Miamamma

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Re: Grown out of dairy intolerance?
« Reply #17 on: April 11, 2014, 05:14:26 am »
You too huh? I know GPs aren't supposed to be experts in any particular area but my one is about as useful as a chocolate teapot. I'm sure he just thinks I'm a neurotic mother ("He looks like he's doing fine", pointing to smiling, chunky DS) and kept talking about buying soy formula from boots. It's so frustrating as he doesn't see the awful night screaming, the spitting up etc. thank goodness for this forum!


Offline Miamamma

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Re: Grown out of dairy intolerance?
« Reply #18 on: April 11, 2014, 05:24:14 am »
Thanks Aisha, that's a really kind offer. I would cover postage etc. of course. If they're still good to use, shall I PM you my details?


Offline Aishi

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Re: Grown out of dairy intolerance?
« Reply #19 on: April 11, 2014, 07:17:57 am »
Expire Aug 2013 :-/ I know some meds are OK past exp date I wonder if milk is same? Maybe someone else knows? Its up to you hon...
aishi :)

Offline Miamamma

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Re: Grown out of dairy intolerance?
« Reply #20 on: April 11, 2014, 07:55:26 am »
Not to worry hun, thanks anyway though. I will badger the HV!


Offline <Catherine>

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Re: Grown out of dairy intolerance?
« Reply #21 on: April 11, 2014, 09:19:17 am »
I could probably let you have a tin of Nutramigen to try?
Catherine x








Offline Miamamma

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Re: Grown out of dairy intolerance?
« Reply #22 on: April 11, 2014, 20:30:08 pm »
I'm a bit worried about trying the nutramigen as I've read some babies react badly to it. I think I will try the Neocate first, to be on the safe side. Thank you for the offer though. Poor little guy has woken screaming his head off twice already this evening. His nights still haven't settled down since I tried dairy again. I just wish I could fix him.


Offline *Liz*

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Re: Grown out of dairy intolerance?
« Reply #23 on: April 11, 2014, 20:39:34 pm »
You can buy tins of these milks over the counter to try. Expensive obviously, but if you are keen to try before sorting the funding issue, it is an option. Nutramigen is about 15, neocate or nutramigen AA more like 25!!

Another option is trying to see a dietician. They can prescribe special milks usually.