Author Topic: Fussy Feeders - Dysphagia - a possibilty other than reflux  (Read 94360 times)

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Offline GKirk

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Re: Fussy Feeders - Dysphagia - a possibilty other than reflux
« Reply #90 on: June 07, 2006, 00:50:28 am »
Hi my lo is 8wo and has im not sure if he may have this, he def. feeds better/faster when he is sleepy.. during the day he fusses toward the middle/end of his feed.. he doesnt generally spit up only a tiny bit and it is mucousy looking..
when i burp him he seems to choke/gag on it but nothing comes up he hasnt lost weight or anything, but i am wondering if this may be the beggining of it?
Generally during the day it doesnt take more than 30 minutes to feed him though as he eats about 2- 21/2 oz and then starts fussing and i try to get at least 3 into him i dont want to push him...
He has been congested since he was born he is constantly snorting!

Offline Luke-n-Me

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Re: Fussy Feeders - Dysphagia - a possibilty other than reflux
« Reply #91 on: June 07, 2006, 02:59:14 am »
In my opinion, since you are seeing early signs, I would take action now before he becomes more aware of the problem and things become more difficult.  It does sound like the beginning.  Let me know if you have more questions.
Nancy

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Offline GKirk

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Re: Fussy Feeders - Dysphagia - a possibilty other than reflux
« Reply #92 on: June 09, 2006, 00:14:08 am »
Thank you i will certainly keep updating if i need help!

Offline Mama Page

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Re: Fussy Feeders - Dysphagia - a possibilty other than reflux
« Reply #93 on: June 09, 2006, 23:13:25 pm »
If it makes you feel any better I am also an SLP- I work with adult dysphagic pts and I never really thought about it being an issue with your little one... I was surprised as I was reading through your post.  I have a 4 month old who also has reflux... we had major issues breastfeeding and I was able to do it until this past weekend but I finally decided it wasn't best for us as my son had only gained 5 ounces in 6 weeks... I had to use a nipple shield as well so my supply had decreased.  Anyway, he is on formula now and is still spitting up a storm (all day long, not just after a feed) and constantly is arching his back as if in pain... I am not sure what to do as we do not have access to MBS for peds here and the waiting list I am sure is horrendous in the city where they do do them.  I was thinking I should start trying a thickened formula to see if it would help... what do you think?  He was on losec from 2weeks -3months but we stopped as it didn't make a difference, he has also been on gaviscon and motilium... nothing seems to reduce the amount of reflux.  Daytime is not bad for us (besides the mess for laundry... I didn't realize how much formula would stain), but nights are horrible... he is constantly up.
Any suggestions from the more experienced mothers?

Offline Luke-n-Me

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Re: Fussy Feeders - Dysphagia - a possibilty other than reflux
« Reply #94 on: June 10, 2006, 03:37:43 am »
You may want to try the thickened formula or if you have access to simply thick, give that a try.  It clearly helps with dysphagia, but also mostly clears up the reflux too.  Once my son was on thickener both problems dissolved! :)
Nancy

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Offline damuir

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Re: Fussy Feeders - Dysphagia - a possibilty other than reflux
« Reply #95 on: June 12, 2006, 03:33:48 am »
Question:

Is is neccesary to have the Barium test to find out how much Simply Thick is the appropriate amount for your LO - considering it seems to be the only solution. I am sure he has dysphagia along with the reflux but am not too excited about my baby swallowing barium...

Thanks for any input!
The little pumpkin!

Offline Luke-n-Me

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Re: Fussy Feeders - Dysphagia - a possibilty other than reflux
« Reply #96 on: June 12, 2006, 03:57:20 am »
Ideally, you should have an MBS to be certain that the thickener is appropriate, however, you can attempt to thicken to first nectar and see if you notice change and then to honey thick if it's not working.  If you're still having issues, then, undoubtedly, you should get a modified barium swallow.  HTH!  Good luck!
Nancy

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Offline Isaacs mum

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Re: Fussy Feeders - Dysphagia - a possibilty other than reflux
« Reply #97 on: June 15, 2006, 17:52:50 pm »
Hi, just to update you. Isaac went to hospital 2 weeks ago and stayed in for 3 days to sort out his feeding problem and it turns out that he has reflux. We have to put 2 sachets of infant gaviscon in every bottle and he is now taking his feed's a lot better and putting more weight on thank god. Thanks for your help Luke-n-me xx

Offline Luke-n-Me

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Re: Fussy Feeders - Dysphagia - a possibilty other than reflux
« Reply #98 on: June 16, 2006, 01:54:22 am »
I'm so happy to hear that you're getting along better!!! :)Thanks for the update!
Nancy

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Offline addysmommy

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Re: Fussy Feeders - Dysphagia - a possibilty other than reflux
« Reply #99 on: June 28, 2006, 14:37:40 pm »
My 5 1/2 month old daughter has slowed down her eating (15-24 oz per day) over the past month and a half.  Doctors are telling me it is no big deal because she is gaining weight...I do not agree with that!  She has a milk and soy protein allergy and acid reflux.  She is on Nutramigen formula and takes prilosec 3 times per day.  I am amazed to find that there is something out there that might be the answer for us...I have been trying to get answers since this problem started.  When she stopped eating as much, it was very abrupt so the doctors originally thought it was a tummy bug but now that it has gone on this long, they just say its normal for her.  All of the questions that you listed fit her symptoms except she does not scream or fuss when she sees a bottle.  She eats 2 oz pretty good and then pulls away and if I try to force the bottle back in her mouth, she fusses big time.  So now I wait and let her play for 20-30 minutes and she will eat some more of bottle if I offer it to her again. (This started within the last day or so.  Before, she would not eat anymore of  it but I was also trying to force feed her and I have stopped doing that). 
I was wondering if a MBS is necessary or if I should try the simply thick without going to a speech pathologist?  I am worrying about putting her through that test...are they painful and how do they get infants to drink the barium?
Thank you for your help!  I am so thankful I found this site...it makes me feel better knowing that my daughter's problem is just that "a problem" and not something to take lightly and hope it will resolve itself.  I am going to the pedi on Friday and am taking in copies of those case studies you mentioned...hopefully my doctor will listen.
Tracy

Offline addysmommy

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Re: Fussy Feeders - Dysphagia - a possibilty other than reflux
« Reply #100 on: June 28, 2006, 14:40:23 pm »
Sorry I just read another post and you answered my question on the MBS!
Tracy

Offline addysmommy

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Re: Fussy Feeders - Dysphagia - a possibilty other than reflux
« Reply #101 on: June 30, 2006, 19:37:59 pm »
I was wondering if a baby who isn't eating well can have good days and bad days with Dysphagia?  My daughter eats ok for 2-4 days and then has 2-4 very bad days...could this happen with this condiiton?  And my daughter has chronic nasal congestion and spits up mucous...could the latter be a sign of dyspagia too?
Thank you!
Tracy

Offline Luke-n-Me

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Re: Fussy Feeders - Dysphagia - a possibilty other than reflux
« Reply #102 on: June 30, 2006, 20:06:41 pm »
Tracy,

The latter could definitely be a sign of dysphagia, but the inconsistency in her trouble eating seems odd.  I honestly can't really help you there.  It shouldn't be quite that inconsistent though unless she was really sleep during feeds on those days. 

From your previous post, you can try the simply thick first if you can't get an MBS, but the MBS gives a really accurate picture of what is going on.  Try nectar first and then honey, if that doesn't work, then definitely look into an MBS (which I highly recommend anyway).  You said that you already read that there is no pain involved and I've never seen a lo reject the barium yet.  Hard to believe, but true! 

If you have more questions, let me know!
Nancy

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Offline erikak

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Re: Fussy Feeders - Dysphagia - a possibilty other than reflux
« Reply #103 on: July 30, 2006, 03:59:39 am »
This post blows my mind.  I struggled with my first son with these exact issues for 15 months. I had no sleep with him for almost a year and a half.  My doctor always told me it was teething and just a bad teether, senisitve to pain.  Now my second son has the EXACT same symptoms.  He is currently 7 months old and your intial post describes him to a t. I have been to see the doctor repeatedly about his chronic congestion.  We have tried three different reflux medicines, none worked.  I am still up with him throughout the night.  I have racked my brain (as I did with my first son) on why he would eat so well at night and not day if it were his teeth.  For both sons, I have actually resorted to putting him down for a nap or bedtime then waking him after 15 min to feed him.  I feel like calling my pediactrican at home right now and waking her up.  I have been up all night for almost 3 years now.  I hope this is the answer.  I have always felt in my gut that something just wasn't right that it just didn't add up.  I requested seeing a pediatric GI specialist but the wait list was 6 months long.  I am just venting....sorry.  I could be completely wrong but I feel like this is the answer I have been looking for all this time.  I am going to push my ped to get the MBS.  In the meantime, where to you get the formula thickener?  Do you have to have a prescription?  Thank you for posting this.  I really believe that this is the answer to my prayers.

Offline LŠuren

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Re: Fussy Feeders - Dysphagia - a possibilty other than reflux
« Reply #104 on: July 30, 2006, 07:09:47 am »
Erika

I really hope this is the answer for you! Can you let us know where you stay so someone can try and recommend a formula thickner for you.

Good luck and let us know how you get on with your doctor.

Lauren
Lauren x