Author Topic: Celiac Disease discussion  (Read 40559 times)

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Offline Spectra

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Re: Celiac Disease discussion
« Reply #45 on: August 15, 2008, 16:11:12 pm »
I'm curious if those of you who have kids with Celiac's disease stopped immunization or still do immunize?  My friend stopped immunizing her son as she thought there was a link between that disease and getting autism.  I have no idea.
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Offline Mydreamcametrue

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Re: Celiac Disease discussion
« Reply #46 on: August 15, 2008, 18:01:18 pm »
Interesting.  Personally the whole immunization stuff is a personal choice and I something that is not dicussed easily on these threads. 

I would go off the advice of your doctor. 

But, I have never heard of Celiac Disease and Autism related.

Wendy
Wendy -

Zach - 3 1/2 yrs old. My sweet, loving, gentle boy that loves playing in the dirt!

Tyler - 17 months.  My very very spirited little boy.  Can't turn your back for a minute.  He is doing the cutest things now!  Loves to eat and climb!

Offline Suzanna

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Re: Celiac Disease discussion
« Reply #47 on: November 24, 2008, 17:08:28 pm »
The only relation, they have, is that both do better on a gluten free diet.

Celiac disease is an autoimmune diesease & herediatary disease.
My DH is celiac, so my kids have a 15% chance of deveolping the disease.  so i monitor them closely. DD 21 monyhs & DS 2 months (he's more colic).

Austism I don't know.



Offline Mashi

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Re: Celiac Disease discussion
« Reply #48 on: November 24, 2008, 18:17:05 pm »
Interesting.  My mom was Celiac - diagnosed at birth but back then doctors thought it was something you naturally outgrew.  By her teens she was a wreck - docs had a million excuses for all of her symptoms - and it took until her early 30s, when celiac was more understood and starting to be studied and looked at for her to get a re-diagnosis.  By then, her bowel had been put through YEARS of gluten and it never really seemed to heal properly.

My mom did also have some 'emotional' problems.  She did some research on things and ended up with a book called The Brain Bowel Connection (or something along those lines, I'd have to look through Amazon to confirm title) and it did look at the connections between problems in the bowel - celiac, Crohn's IBS, etc - and how they affected the brain.  In the end (as you can guess by the title) the conclusion is that there is a strong link between things like depression (although that's not a surprise to me given the nature of the bowel problems), autism, schizophrenia, manic episodes, bi-polar disorders, etc.   

It is an interesting read, if this is something you are thinking of.  I'll try to find the exact title and let you know.

Offline Suzanna

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Re: Celiac Disease discussion
« Reply #49 on: November 24, 2008, 18:34:40 pm »
Yes, my DH, as a kid, had lots of stomach problems, then they mellowed, and in his 30is, he had an emotional/traumatic year and the problems resurfaced.  This disease is trigger in adult by stressers. My neighbour is a GI and diagnosed him with celiac, looking back thinks he must of been a celiac baby.  But as you said, back in the days they were unfamiliar with the disease.  Now there is a lots of info.  Gluten free products ...

Yes it was a change in our lifestyle, but for the best.  We are much healthier and there is still plenty to eat!

Offline Mydreamcametrue

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Re: Celiac Disease discussion
« Reply #50 on: November 28, 2008, 15:30:16 pm »
The book I have explains how babies/children back then were told they would just outgrown the disease.  Once they felt better, they added back in gluten and seemed okay until in their adulthood when stress/trauma/pregnancy or something triggered it.  Then they were dignosed with IBS, Chron's, Chronic fatique, anything until finally getting the proper diagnose.

I totally agree about the bowel thing and your brain.  I think that is why children with autism do better on a gluten free diet because autism is a disease of the brain.
Wendy -

Zach - 3 1/2 yrs old. My sweet, loving, gentle boy that loves playing in the dirt!

Tyler - 17 months.  My very very spirited little boy.  Can't turn your back for a minute.  He is doing the cutest things now!  Loves to eat and climb!

Offline SweetAsHoney

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Re: Celiac Disease discussion
« Reply #51 on: December 08, 2008, 11:00:48 am »
My DH, MIL, and 2 SILs all have celiac so I am concerned for my babies. My son was tested and was negative. I am waiting for my daughter to be tested, until then I am keeping her gluten free.

I spoke to the doctor today and she said that a new study says it is best to nurse the baby until 4 months and then at 4 months keep nursing and slowly introduce gluten. Adding higher and higher amounts of gluten as time goes on.

Has anyone else heard of this or tried it?

Anna


Offline Suzanna

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Re: Celiac Disease discussion
« Reply #52 on: December 10, 2008, 21:04:06 pm »
I nursed my DD until 1 years, I started her on cereal at 5 1/2 months, 1st rice cereal, then barley, oats,...  She has no gluten intolerance.  I've never gotten her tested, cause she has no syptoms. She is 22 months now.  Kids only have 15% chance of being celiac. My DS is only 3 months, still solely breastfeed, I'll introduce cereal/gluten by 5-6 months.

Offline Mydreamcametrue

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Re: Celiac Disease discussion
« Reply #53 on: December 14, 2008, 04:08:10 am »
What test did your son get?  You can get a blood test to see if you have the marker, but the only true test is a biopsy.

If Celiac Disease runs in the family that much, I would stay away as long as possible.

People who have CD, have it their entire life, but may never know it until adulthood.


Wendy -

Zach - 3 1/2 yrs old. My sweet, loving, gentle boy that loves playing in the dirt!

Tyler - 17 months.  My very very spirited little boy.  Can't turn your back for a minute.  He is doing the cutest things now!  Loves to eat and climb!

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Re: Celiac Disease discussion
« Reply #54 on: March 29, 2009, 16:23:27 pm »
Hi all, interesting thread. Ive had a quick scoot through the pages and had some of my questions answered but I was wondering if any of you have heard about CD skipping a generation iykwim?

DS paternal grandmother has CD and she has always said that it skips generations so the chances of DS being affected are higher??? dont know if this is true can anyone help?

TIA

Offline Mashi

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Re: Celiac Disease discussion
« Reply #55 on: March 29, 2009, 16:56:02 pm »
Hmmm, not sure about the skipping generations thing, but if there is a family history, often you will find that other auto-immune or digestive disorders such as Crohns, IBS, etc also run in the family.  My mother was celiac, and so I am aiming to keep DS off of all gluten until 12 months, which apparently gives plenty of time for the small intestine to form and for the villa to get stronger and the seive-like walls to be strong enough to be able to process the gluten.  (That said, I have trialed oats this week, as some celiacs can eat oats, and we've had terrible results :(  )

Offline Spectra

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Re: Celiac Disease discussion
« Reply #56 on: April 07, 2009, 13:55:33 pm »
I just found out in Canada you can claim Gluten Free Food as medical expenses and this will help at tax time.  Does anyone know if this is available in other parts of the world?  Here is the information for Canadians: http://www.cra-arc.gc.ca/tx/ndvdls/tpcs/clc-eng.html
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Offline Mashi

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Re: Celiac Disease discussion
« Reply #57 on: April 07, 2009, 15:46:33 pm »
I just found out in Canada you can claim Gluten Free Food as medical expenses and this will help at tax time.  Does anyone know if this is available in other parts of the world?  Here is the information for Canadians: http://www.cra-arc.gc.ca/tx/ndvdls/tpcs/clc-eng.html

Oh Melanie thanks so much for posting this. It almost made me cry!  It doesn't affect me, but as I've posted before this was one of my mother's big campaigns, she worked and fought so hard to push the gov't for this, as when she was really ill with her celiac the gov't still hadn't recognised it as a medical expense. She worked for years campaigning, raising awareness and rallying her other celiac friends together to write letters, work with MPs, etc to fight for this.  It must have come into place since she died, and I am so happy that it went through, even though she wasn't around to see it.


Offline Spectra

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Re: Celiac Disease discussion
« Reply #58 on: April 07, 2009, 16:08:46 pm »
Oh wow.  Sounds like quite a woman.  I think it's great.  I always wondered what people do in those situations where money is tight and Gluten Free food, along with other Top 8 Allergy Free food, is more expensive.  I'm glad there is something now for people. :)
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Offline Jimbob

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Re: Celiac Disease discussion
« Reply #59 on: April 08, 2009, 21:02:46 pm »
In the UK you can get gluten free foods on prescription without a problem if you have coeliac disease. You do have to pay a charge for the prescriptions if you do not qualify for free nhs prescription. However you can order in bulk on prescription so I think it probably works out cheaper for most items.

Kelly



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