THE TEST RESULTS ARE IN - Am I doing the righ thing?

[Mydreamcametrue]

Hey Michelle:  I have learned that the feeding therapy and the dietcian is HAPPY as long as he is meeting his daily requirements.  I don't think they really care how they meet it.  You would be really suprised on what they recommend for calorie boosters. 

You kow I was going to say that you would not have to worry about Riley because he is drinking soy milk, but that is right he is on Rice milk also.

Will he eat  hotdogs? 

I still wonder about the rice protein though and here is why:  This is from a different site.

The thing with the protein is you need complete proteins, whether they're from animal sources (meat or egg) or combinations (grain + legume or seed). They do not have to be at the same meal, just within 24 hours of each other. The following are just examples, look for Mel's protein combining primer for specifics, but my understanding is that if you have something like rice protein at 8 am, as long as you have sunflower seeds by 8 the next morning, you body will find all the amino acids it needs (freed by digesting the foods) and put it to good use. If you DON'T have a complement by the next am, then it's not "used" and doesn't "count." So it's important to create that "whole" protein.



I buy the MLO Rice Protein and the company claims that it does have all the essential amino acids in it.  Don't know how after reading that... 

[binxyboo]

Wendy, is there protein in coconut milk?

[Mydreamcametrue]

I don't think so, let me go check:

OH YES there is.  2 grams of protein for 2 oz. 

So then that means with 8 oz. of rice milk and 2 oz. of cocunut milk, they would get 3 grams of protein, 9 oz. of fat.  So almost the same as whole milk (4 grams less of protein).

At first I tried putting like 4 oz. of cocunut milk to 4 oz. of rice milk      Zach would not drink it at all, or he drank a lot less.  The dietcian told me to only do 2 oz. of it and now he drinks about 4 cups a day!!!

[Mydreamcametrue]

I sware I think Zach has gained about 4 pounds.  His little legs are getting big and he is actually getting a 2nd chin now  

DH and I were joking tonight and said that next time we go to the doctors they are going to say "good grief, what have you been feeding this boy".   LOL 

No joke, he has gained lots of weight.  I am so happy. 

[Mom to M&M]

 

[deb]

YAAAAY!!!!! 

How's THAT for a Christmas present?

[Mydreamcametrue]

  Bad news everyone.  We are now back to square one    

Zach was put in the hospital Friday night.  He woke up Thursday night covered in vomit.  He threw up proably 20/30 more times and had diaherra so so bad. 

We went to the E.R. Friday and they admitted him in the hospital for dehydration.  I thought we were going to have to spend Christmas there, but he started to do a little better.  we came home late Saturday night.  Sunday he was still really bad and we thought we were going to have to take him back, but today he has done great.

He actually managed to eat something and not throw it up.  It was the first thing it ate in 4 days, so you can imagine all the weight he gained is now lost plus some.

He had a bad intestional virus. 

So now we are taking things slow again.  He had his first cup of his rice milk today and held that down.

I am NEVER ever leaving the house.  We were part of a weekly play group and I am not doing that anymore either.  I am going to have to settle him until he can get better.

We just got over pnemonia

I was just online and wanted to let you know that.  I am going to bed now, I am so exhausted.

Hope you all had a good Christmas!

wendy

[deb]

Oh, you poor dears - ALL of you!!!!

Many many {{{{{{HUGS}}}}}} - and I hope you're not reading this because you're all SLEEPING!

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Lucysmom]

Hi -

I am so sorry you guys had to go through this!    Back in April Lucy ended up in the hospital for 2 days because of dehydration from a gastro-intestinal virus (rotavirus).  It was nooooo fun and so very exhausting.  So like Deb said, I do hope that you sleeping now!  It took her a while to start eating again, I just followed her lead.  As you already know, fluids are the most important thing and then you can move onto the BRAT diet when he is up to it. BRAT is bananas, rice, applesauce, and toast (I am sure they told you that - sorry!) and he can tolerate all of them except I think apples, right?  Anyway, I am just rambling on here but you are over the worst of it and he will be back to eating when he feels up to it and will gain back all of the weight he lost.

Much love and hugs to both of you! 

[Mom to M&M]

 Wendy, I'm so sorry to hear that Zach was so sick. Marisa also just got over rotavirus (DH and I had it too), as well as an ear infection. She has just started eating again after losing about a pound. I know it's so disheartening and you just want to lock them away, but if he enjoys the play group I'd restart it again when he's back to himself - I think once he's more established on the probiotics and dairy free diet he'll get better at fighting stuff off. Big hugs - hope you all feel good soon.

[Mydreamcametrue]

Thank you all for your prayers, thoughts and support.

Zach actually was doing better, but threw up today while he was napping  

He had an egg at breakfast and I think he just over did it.  So for the rest of the day he just got fruit, crackers, and bread.  He seemed fine after that.

He also had a normal (well almost normal) poop Makes me happy because he has had about 30 diaherra diapers.

He was tested for rotavirus while in the hospital and it was (-).  What ever virus it was, has the same exact symptoms as rotavirus though.

Thanks again everyone and I am glad that Marisa is better Karen.  It is tough when you already have a picky eater and then this happens.

[Mydreamcametrue]

Just wanted to update you all because you have been so helpful through this all.

We had out appoitment with the Immunologist today.  They did a complete history on Zach.  They also did another allergy skin prick test for Milk, Soy, Eggs, Shellfish and tons of enviromental allergies.  All were (-)    BUT... of course that does not mean intolerant.

They also repeated his blood work to check his antibody level and to make sure he is benefeting from his immunizations.  We should have those results back soon.  She said we may have to give him his shots again (another round of all those shots at 2 mos, 4 mos, 6 mos, 12 mos. etc.)  YIKES.. Well she said another Booster shot.  She did say shot, not shots.. So maybe it is just one shot to help with his immune system.

Anyhow I asked about the cystic fibrios and she said she would be really shocked if he had it.  (This is a doctor who specialises in the immune system and auto-immune diseases).

So now for the best part (or I think).  She said that from all his symptoms it really sounds like he is deft. MSPI.  I say that is the best part because FINALLY a doctor aggres with what I have been saying along. 

She did say that if we wanted a true diagonse that we could do an endoscopy with biospies and go from there, but she did not see the need to put him through that.  She said that if he did not improve with the milk/soy free diet, then it could possibly be EE (Eosinophilic esophagitis). 

If we wanted to do the bisposy to see if it is EE, then we would have to introduce milk/soy back into the diet for a few weeks and then do it.  I asked my husband if he really wanted to do that and he was like "NO I do not want to give him Milk".

Anyhow, the reason why she was convinced that it is MSPI is because we had started to give him cheese and products with cheese in it again and he is back to being his fussy uncomfortable self.  She said she was actually glad that we had tried milk in his diet again before coming to the appointment, so I don't feel to bad about that.

So we are officially MSPI now and she said we could do a challenge test once a year if we wanted to.  But not again for 1 more year (since we just did one).

Just wanted to let you all know and I feel very confindent that this has been his problem all along and finally my husband has heard a doctor say so also!!!!!!!!

Wendy
 

[binxyboo]

That is great that you finally have your answers,and that your DH was there with you to hear it.I am relieved that it is not something more serious.