2 year old with multiple food allergies refusing to eat

[jennyh]

hope you get to speak to the docs....hugs....jenny

[jennyh]

how is james at the mo?

[Jimbob]

James is still the same really. We are about to trial neocate active as this contains more calcium and iron. It is becoming really hard to watch my son get excited about food one minute and then when you offer it he looks scared and gets upset. The odd thing he has wanted to try has give him stomach pain and mucousy poo. This happened with some special biscuits we got him as he was showing a lot of interest in Olivia's. The worst thing is he seemed to enjoy the 1/4 of biscuit he had.

Thank you for asking how he is going Jenny it means a lot. How is India at the moment?

Kelly

[jennyh]

terrible .she has exzema all over her face,reflux terrible,can hardly breathe.i think everything has hit together.

[Jimbob]

So sorry to hear that. What have you tried for the eczema so far? It took us a long time to find out what worked well for James's eczema. Obviously as you know some of it is under control due to his restricted diet but we did have it under good control before that. If you want to ask anything please don't hesitate. I know what its like to have a child suffering with severe eczema and when you have other issues aswell it will only make matters worse. I wonder if the reflux is flaring the eczema up I know when James is poorly or gets stressed about anything it flares his eczema up.

Hope things start improving soon, will keep my fingers crossed.

Kelly

[jennyh]

kelly i think it maybe the acid coming up and she is smearing it around her face .thats my theory anyway.

[Jimbob]

hat certainly can't help. Vaseline or epaderm might help as it is a good barrier emollient.

[jennyh]

i am using epiderm and it does soothe her a bit,just a bit down about the whole lot of it tbh

[Jimbob]

Thats not surprising. I wish I could help you more. Its ashame we can't just wave a magic wand to make things right.

[jennyh]

 

[Jimbob]

James was weighed today and is now 12.66kg (27.15lb). This is good news and means that the duocal is obviously helping him put weight on. The only thing that bothers me is that his poos have been mucousy on and off and smell terrible. I guess we will see how it goes for a while longer as we see the consultant on 3oth July and see what he thinks then. We are also getting some samples of neocate active and flavour sachets to try from the dietician, but may wait until we have seen consultant for those.

[jennyh]

thats great about the weight.the poo situation is not though.at least you see the consultant soon.

[Jimbob]

I am just hoping the consultant takes us seriously now as the thing he seems most interested in is his weight. The dietician seems a little more concerned now though as James's eating has not progressed at all. In fact it is worse really as he now looks scared if you offer him food . He is not too bothered about fruit chopped up as finger food but he just plays with it and does not even put it to his mouth.

[Jimbob]

We have not had James weighed for 2 weeks as it has clashed with other things unfortunately. We only need to have him weighed once a month at the moment anyway its just me that likes to keep a closer eye on things. James is seeing his consultant on Monday and hopefully the dietician will be there aswell. We are hoping to get things moving. My husband and I are going to push for an endoscopy with biopsies to rule out anything more serious as we feel this has been going on for far too long. After reading lots of information recently we really do feel that this is neccessary. Will update you after our appointment.

Jenny, how is India now? I know she was not doing well last time I asked.

Kelly

[Mom to M&M]

Kelly - I'm glad you're going to push for the endoscopy - I really do think that's crucial. Best of luck and hope James feels well. Keep us posted.