Author Topic: 2 year old with multiple food allergies refusing to eat  (Read 11272 times)

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Offline jennyh

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Re: 2 year old with multiple food allergies refusing to eat
« Reply #90 on: July 27, 2007, 17:20:37 pm »
hi Kelly.i would push for the tests too.hope James is feeling a bit better :-*.
we have some more stuff of the doc for India's face.its dipro base for through the day and then epaderm for baths etc.her reflux is really bad at the moment and tomatoes are a nightmare  ::).never mind.
keep well ;).......jenny
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Offline Jimbob

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Re: 2 year old with multiple food allergies refusing to eat
« Reply #91 on: July 27, 2007, 19:24:13 pm »
Hi Jenny, is India ok with soy? If not the diprobase may make thinks worse as it is soy based. This was the first emollient James was given and it used to make him more inflamed and itchy when first applied. I asked GP about this and he said that is completely normal. We stopped using this and insisted on something else. When we mentioned it to his paed consultant that he has now he said that it was a clear sign that James was allergic to it and he had also reacted to soy milk. GP's often prescribe this as it is one of the cheaper emollients in the UK. Aqueous cream is another bad one and even cheaper.

Kelly



James has atopic eczema, multiple food allergies, asthma and late talker

Offline jennyh

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Re: 2 year old with multiple food allergies refusing to eat
« Reply #92 on: July 27, 2007, 19:37:12 pm »
thanks kelly,didnt know that.she cannot have soya but do not know if she is touch sensetive :-\ .will keep an eye out.i think gp is sick of me,will not back down though ;)
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Offline Jimbob

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Re: 2 year old with multiple food allergies refusing to eat
« Reply #93 on: August 03, 2007, 08:20:28 am »
Ok, here we go. James went to the hospital on 30th July and it was not his normal consultant. They explained that this wasdue to his appointment being changed even though I had said that we were to see the same person. The person we saw was a senior registrar(sp?). He asked lots of questions so that he had the full picture. He would not refer himfor an endoscopy as he had read on the notes that the consultant did not think it was needed at this point. He is looking into getting James refered to the feeding clinic though asthe dietician has not followed up on this. He also wants James to see a psycologist(sp?) as he thinks it would be of help. We have to ring back if we have not heard anything in 6 weeks time. So whilst they will still not refer for an endoscopy with biopsies at least they are getting things moving. At the moment I am unsure what to do. We don't really have the money to go private for a consultation to get a second opinion at the moment which makes things more difficult. We could possibly ask my in laws to pay for it though, but though don't seem to think the situation is as bad as it is. They have always dug their heads in the sand when it has come to James's eczema, allergies and feeding issues.



James has atopic eczema, multiple food allergies, asthma and late talker

Offline Mom to M&M

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Re: 2 year old with multiple food allergies refusing to eat
« Reply #94 on: August 03, 2007, 11:07:09 am »
I'm glad they are doing somethimg but IMHO a phsycologist is kind of a waste for this. An aquaintance of mine had to take her DD to one some time ago for similar reasons and it basically was a nightmare - with the person basically interoogating and blaming the parents. Hopefully that doesn't happen to you. I feel so badly that they won't allow the endoscopy, which I do continue to think is necessary. Will be thinking of you.
Karen: Proud Mama to Marisa (8-11-05) and Matthew (6-5-09) and happily married to my best friend and love of my life since 10-13-01

Offline Jimbob

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Re: 2 year old with multiple food allergies refusing to eat
« Reply #95 on: August 08, 2007, 06:59:53 am »
We are going on holiday on Friday for 3 weeks, staying with family so it is low cost. We are hoping to relax and recharge out batteries. Whenwe get back I am making an appointment for James with the GP and I am going to insist on a second opinion. In the UK I have heard that you need to go through the GP as they act as a gatekeeper to the rest of the medical professionals. We will have to see what happens but I am hoping to get further than we are at the moment.



James has atopic eczema, multiple food allergies, asthma and late talker

Offline Mom to M&M

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Re: 2 year old with multiple food allergies refusing to eat
« Reply #96 on: August 08, 2007, 16:34:27 pm »
Good luck and have a great hoiday.
Karen: Proud Mama to Marisa (8-11-05) and Matthew (6-5-09) and happily married to my best friend and love of my life since 10-13-01

Offline jennyh

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Re: 2 year old with multiple food allergies refusing to eat
« Reply #97 on: August 08, 2007, 16:41:52 pm »
have a nice time :)
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Offline lovedtodeath

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Re: 2 year old with multiple food allergies refusing to eat
« Reply #98 on: August 11, 2007, 02:58:52 am »
Three things I just have to mention. One is specialfoods.com. If EVERYTHING makes your kid sick, you are needing this.

Also, NAET allergy treatments. And... I got my kids tested for allergies and intolerances using electrodermal testing. It is based on accupuncture points. Very accurate and then you know what to avoid!

Hope you get it all worked out soon.


Offline Jimbob

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Re: 2 year old with multiple food allergies refusing to eat
« Reply #99 on: September 03, 2007, 07:21:19 am »
Thank you for the information. At the moment I am not looking into alternative treatments though. I think James's situation needs to be takenseriously by the medical profession and then we would be able to start sorting the problem out.



James has atopic eczema, multiple food allergies, asthma and late talker

Offline Jimbob

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Re: 2 year old with multiple food allergies refusing to eat
« Reply #100 on: September 04, 2007, 08:10:46 am »
We had a great time on holiday but we are now back and its time to face reality again. At the moment I am looking on the internet to see if I can work out the best person tohave James refered to. I think if I can prove I have but some research into this myself I may be taken more seriously and that way they hopefully will not refer James to just any old allergist or GI specialist but will be one that has experience in dealing with cases like James.



James has atopic eczema, multiple food allergies, asthma and late talker

Offline lovedtodeath

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Re: 2 year old with multiple food allergies refusing to eat
« Reply #101 on: September 04, 2007, 13:44:45 pm »
Kelly, I just have to mention specialfoods.com again. They sell foods that nearly no one will react to. You don't have to go on the full program. I ordered some stuff because we were bored with the usual. Most are rare and they are all full of nutrients, and easy to digest. The website has suggestions for you too. I realize money is an issue. I hope you can get some nutrients in him. :-*

Offline Jimbob

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Re: 2 year old with multiple food allergies refusing to eat
« Reply #102 on: September 04, 2007, 16:14:04 pm »
Hi sevenbites, we are from the UK so ordering from specialfoods.com would not be possible. To be honest we don't really have problems sourcing food that is safe for James its just that he will not try it. He looks frightened when you even suggest that he tries something and bursts into tears. We now put food in front of him and just let him play with it or remove it straight away if he does not even want it there. He will quite often sit and play with food though. He practices with his fork and pretends to feed his sisters dolls and that is fine by me as it at leasts keeps him in practice with cutlery. Does not like it if food goes on his hands though unless its a potato or something like that as long as it still has peel on. So textures and sensations are definately an issue.

I have booked an appointment with the paediatric GP for Friday with the hope that I can get James a referal.



James has atopic eczema, multiple food allergies, asthma and late talker

Offline lovedtodeath

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Re: 2 year old with multiple food allergies refusing to eat
« Reply #103 on: September 05, 2007, 03:01:10 am »
Maybe a psychologist could do him some good. Hoping things get better for you. :-*

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Re: 2 year old with multiple food allergies refusing to eat
« Reply #104 on: September 05, 2007, 06:22:30 am »
Thank you



James has atopic eczema, multiple food allergies, asthma and late talker