Author Topic: An update on us! Went back to paed today  (Read 1305 times)

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Offline Mashi

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An update on us! Went back to paed today
« on: January 08, 2009, 20:42:01 pm »
Just thought I would update where we are at, only because lots of you have helped and advised!

We finally moved to full bottles of Nutramigen about 3 weeks ago.  It only took about 10 days of mixing, bit by bit, with soy to get DS to enjoy the Nutramigen and take it without fuss.

The first week was great. The poop wasn't nice, but I expected that. 

Second week it started getting worse.  Foamy frothy poops.  Waterey poops that had us, many many times, deciding to just CUT the vest that DS was wearing down the middle to get it off of him because the poop had EXPLODED all through his clothes.  :-X  It got worse and worse.

About a week ago he started fighting the bottles.  Straightening out like a board, gruntey-screaming, arching and flailing all around at bottle time.  Poops were even worse.  Mucousy quite often (sorry....but you gotta know that word will come into one of my poop threads!) Then on Monday this week he was COVERED in rash. Which spread and spread. HV said it looked allergenic.

My follow-up with the paed wasn't until March.  I knew my GP would not be confident in diagnosing, so I just took a chance and called the paed's receptionist directly. Said I had an appt in March but could I possibly come earlier?  She sounded VERY apologetic when she said the earliest she could do was Thursday!  (Three days later, which was today!) I did a little dance.

Went in today.  Paed was, once again, AMAZING with us.  Anyone out there in St Helen's PCT who needs a paed referral I would suggest you ask for him - Dr. Elbadri.  Lovely lovely man.   He said he does think that DS needs to go onto elemental formula, suggested Neocate LCP. But, as we have not started DS on solids (next week!) he really felt it was too much for his digestive system to handle at once - the switch to Neocate will involve lots of mixing with Nutramigen to get him used to it. Plus solids.  He thought that if there was any change in his actions, his poop, his system, etc, we wouldn't know what it was from, so he's advised that we get him onto solids - said to go very slow, only a few things, wait a full week before adding new foods, etc, all the usual things - and then after about 4 or 5 weeks once we have a few good things in his diet, we can start on Neocate and only give him the proven foods that are okay. After a couple weeks of Neocate, add one more veggie, etc.  A lot of that is no-brainer to us BWs who read lots about solids, but I get sooooooo many conflicting non-sensical information from other health professionals that it was nice to have that validation.

He also left it that if we have any difficulties with solids or any further reactions or concerns, to only go to the GP if it is urgent. Otherwise to call his office and leave a message and he will arrange a time that day to phone and discuss on the phone and that he will always make sure to get his infant patients in that same week if the parents are concerned.  I thought that was really really good.  And we still have out paed dietician in early Feb and another follow up with this paed in early March.

And he told us again how beautiful and intelligent my DS is.   ;D

So, that's where we are at now.

I wish those of you with crap paeds could see him, he really sits and listens and has a talk WITH you about things and never makes you feel like a crazy mother!

Offline 15milner

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Re: An update on us! Went back to paed today
« Reply #1 on: January 08, 2009, 20:45:00 pm »
That's GREAT!!!!


glad things went so well today and you were seen quickly.

Alex

Offline clh

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Re: An update on us! Went back to paed today
« Reply #2 on: January 08, 2009, 20:50:03 pm »
Wow!  Dr. sounds lovely!  Glad things went well for you & that things with ds straighten out soon.
Candice



Offline Diana1981

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Re: An update on us! Went back to paed today
« Reply #3 on: January 08, 2009, 20:53:50 pm »
thats great!




As you become more clear about who you really are, you'll be better able to decide what is best for you - the first time around

Offline Spectra

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Re: An update on us! Went back to paed today
« Reply #4 on: January 09, 2009, 13:29:15 pm »
Yay!  That's awesome when you have such a great doc!  Let us know how the food and the Neocate goes!
Melanie
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tuta

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Re: An update on us! Went back to paed today
« Reply #5 on: January 09, 2009, 13:47:37 pm »
Mashimaro - great to hear you had a good appt ;D. I agree keep us posted on how the solids and Neocate goes.

Offline Mydreamcametrue

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Re: An update on us! Went back to paed today
« Reply #6 on: January 14, 2009, 04:19:29 am »
So he wants him to stay on the Nutramigen for another week, introduce solids and then start Neocate?

If he stays on Nutramigen, how will you know if he has a reaction to the solids since he is reactting to the Nutramigen?

Am I confused?

At any rate, This is great news!!!  It is always great to have such a wonderful doctor.


Wendy -

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Offline TDR'smom

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Re: An update on us! Went back to paed today
« Reply #7 on: January 14, 2009, 04:22:11 am »
Yeh!!  So glad you guys had a great appointment and you hopefully got some answers!
Judy







Offline Mashi

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Re: An update on us! Went back to paed today
« Reply #8 on: January 14, 2009, 07:22:39 am »
So he wants him to stay on the Nutramigen for another week, introduce solids and then start Neocate?

If he stays on Nutramigen, how will you know if he has a reaction to the solids since he is reactting to the Nutramigen?


Another few weeks Wendy, until he's got a good variety of foods in his diet.  We already know what his poop looks like on the Nutramigen and how he acts so any new reactions would be from the solids.  Also, that it's too much of a change to his system to go on solids and new formula.

He's a really good doc, we were happy with that solution, so going to stick with that plan for a while!

scarlettsmom

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Re: An update on us! Went back to paed today
« Reply #9 on: January 14, 2009, 14:21:15 pm »
How great to have an attentive dr, that makes things so much nicer!

Good luck w/the solids and Neocate, I'm interested in hearing how that goes.  Has you LOs rash cleared up?  I hope so, if not hope it clears soon!


Offline Mama2boys

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Re: An update on us! Went back to paed today
« Reply #10 on: January 14, 2009, 14:39:46 pm »
yipee doooooo Mash.
9 and 6, oh boy!

tuta

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Re: An update on us! Went back to paed today
« Reply #11 on: January 14, 2009, 17:01:54 pm »
I agree it is great to have a plan to work towards  ;D

Offline Jimbob

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Re: An update on us! Went back to paed today
« Reply #12 on: January 14, 2009, 20:09:14 pm »
I hope things go well. I have to say I find it a little odd as I thought newborns could be put straight onto neocate if neccessary. I could be wrong though.

Kelly



James has atopic eczema, multiple food allergies, asthma and late talker

Offline Mashi

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Re: An update on us! Went back to paed today
« Reply #13 on: January 14, 2009, 20:38:12 pm »
He's not a newborn, he's 6 months old. I am not sure what you mean by that though - I don't know of any formula (aside from follow-ons, etc) that newborns can't be put straight on to if necessary. 

I do think that the BW collective knowledge on subjects like this are second-to-none as far as "mothers who've been there" are concerned, but I do also stand by my paed's opinion and recommendation as being the end of the line for us at the moment. If he feels that introducing solids AND a formula change at the same time is going to be too much for my son to handle (keep in mind how awful the Neocate tastes, even when mixing it slowly with Nutramigen) then I am going to go on his advice and keep him on Nutramigen for another while until his body gets used to processing solids. 

Offline Jimbob

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Re: An update on us! Went back to paed today
« Reply #14 on: January 14, 2009, 21:06:20 pm »
I completely agree that you should go with the paediatrics advice. I think I was a little confused. I thought you had meant that the neocate would be too harsh for your ds until he was on solids. I had not realised that you meant that too change to neocate and add solids would be too much for your little mans system. I am sorry for the misunderstanding.

Kelly



James has atopic eczema, multiple food allergies, asthma and late talker