Author Topic: Almost 7 Months and Regressing! HELP!  (Read 10711 times)

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Offline *Kara*

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Re: Almost 7 Months and Regressing! HELP!
« Reply #60 on: February 08, 2012, 17:44:31 pm »
Tylenol is fine with Zantac...

Does he have horribly rosy cheeks?  Tell tale sign of true teething!  Also, feel his gums... they will be hugely swollen for a while before a tooth cuts.



Offline skatty

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Re: Almost 7 Months and Regressing! HELP!
« Reply #61 on: February 08, 2012, 17:50:27 pm »
Poor baby, it does sound like teething, poor mama too! It is great that your doc was open and helpful though  :) I hope you see the specialist soon  :-*
Katt






Offline ceilidhf

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Re: Almost 7 Months and Regressing! HELP!
« Reply #62 on: February 10, 2012, 16:36:05 pm »
We are now on day 5 of Zantac and have our paed appt on the 15th...can't come quick enough! Our days have stabilised again, so maybe the crankiness was teething or getting used to the meds - no sign of any teeth still! Nights are still unpredictable - the night before last he woke once at 11pm and I fed him since he has been off solids all week. He drank the full 6oz and then slept until 6am...fabulous! Last night he woke at 11:30pm so I fed him again, he drank the full 6oz and resettled but from that point on he was up every hour and a half until 7am - each time taking longer and longer to resettle. He no longer screams in pain but is still pulling his knees to his chest, writhing around, and burping/passing gas each time he wakes. I have tried the nutramigen but he flat out refuses to drink more than 2 oz at each feed - any tips on how to get him to drink it? I know it's still early days for the meds but I guess I'm still not 100% convinced that reflux is the issue and now I am beating myself up over the fact that we have reintroduced the prop that we had successfully weaned (holding/rocking to get him to sleep). Sigh...when does it end???

Offline ZacsMumme

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Re: Almost 7 Months and Regressing! HELP!
« Reply #63 on: February 11, 2012, 08:28:15 am »
Hugs, sounds like he is still not 110% but it's great that the Zantac seems to be helping.
I'll ask around about the nutramigen, I have no experience on that.

Don't feel bad about the rocking, I've hard to AP my boy on and off his whole first year, he sleeps on his own when well, and now wil notsleep on me unless really sick. ;)
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DS1 - Our sensitive soul. Silent reflux.

DS2 Our cheeky chipmunk. Reflux, MSPI.

Offline ZacsMumme

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Re: Almost 7 Months and Regressing! HELP!
« Reply #64 on: February 11, 2012, 18:19:39 pm »
Hun what is the Zantac dose your LO is on?
Have you tried mixing the nutramigen with other milk and gradually ncreasing the % over time?
***Sara***
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DS2 Our cheeky chipmunk. Reflux, MSPI.

Offline ceilidhf

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Re: Almost 7 Months and Regressing! HELP!
« Reply #65 on: February 11, 2012, 21:51:42 pm »
We are on 2.7ml twice a day - which I believe is the maximum dosage for his weight (just over 9kg). I didn't try mixing the formula as I got it to rule out the milk protein issue and, obviously, the other formula we have has the protein in it...I don't believe that is his issue but it would be nice to rule out for definite!! We had another ok night - seems like we have an ok/good night followed by an awful night!! So, let's see if that pattern follows. Now it seems that he is waking with gas still, but he is no longer screaming in pain and resettles quickly once the gas is taken care of (usually as soon as he is picked up he does a few burps and is good to go..) Once we have a few nights of consistency I think we will have a better idea of what is going on...plus, hopefully the specialist will have some ideas. How is that appointment likely to go - just questions or will there be any sort of testing?

Offline ceilidhf

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Re: Almost 7 Months and Regressing! HELP!
« Reply #66 on: February 15, 2012, 04:29:01 am »
Paediatrician appointment tomorrow - it is seriously my last hope before I totally lose my mind. I feel like we are constantly taking one step forward, two steps back with these night wakings. The Zantac seemed to help at first, but now at day 8 and we are back to waking every 2 hours and refusing to settle. In addition, we have had a couple of bouts of diarrhea (not every bowel movement and not every day - very sporadic) and sore, red bum.  I have also found that this week the daytime has been more challenging (daytimes were a breeze...) as he has been really cranky, not wanting to be put down, crying at everything, and only taking short naps...no idea if this is all down to pain, teething, separation anxiety, or side effects of the meds. Sigh....these babies need to come with a manual. Praying for some sleep tonight and a good appointment tomorrow!

Offline ZacsMumme

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Re: Almost 7 Months and Regressing! HELP!
« Reply #67 on: February 15, 2012, 06:30:43 am »
Your LO may need a PPI some stop responding to H2blockers around this age. Mine did at 4 months so maybe the ped will offer an alternative med.

So many hugs, do you think teething could be causing the reflux flaring even more and the rash/loose BM?

I would take some notes of your LOs behavior etc to take with you to the dr. Let us know how it goeshun :-*
***Sara***
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DS1 - Our sensitive soul. Silent reflux.

DS2 Our cheeky chipmunk. Reflux, MSPI.

Offline ceilidhf

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Re: Almost 7 Months and Regressing! HELP!
« Reply #68 on: February 16, 2012, 05:34:34 am »
Well, appointment is over and done with - a little traumatic but overall a success!! I went armed with months worth of notes (since we started on EASY I have tracked every nap, feeding, waking, and included his beahviour both day and night). I also wrote a list of everything he has exhibited and everything we have done to try to make things better - the paed said that based on all that he was displaying he could say without a doubt that it was reflux (and this was even before examining him). I explained my doubts around whether he does/doesn't have reflux (mainly as I truly believed he would show signs during the day). The paed explained the acid would be worse at night, particularly when laying down. He also showed me, in my notes, that my LO was displaying many of the characteristics during the day (though not crying or distressed) such as back arching, constant drooling, coughing, gagging on fists....Anyways, he did do an examiniation and took blood (the traumatic part) - this was tough as after several attempts at a heel prick he had to resort to a venal draw and this was quite distressing. My LO has a beautiful blue bruise on his inner arm to show for it, too...He then persrcibed a PPI - not sure which as I dropped the perscription off at the pharmacy already - they don't have it in stock so will order it in for tomorrow. He said that we should see an improvement pretty quickly with the PPI and we are scheduled to go back in a week. I guess I am just relieved that I finally have an answer - and MUST thank you all for encouraging me to get him checked out and making me think that maybe there was a reason for these constant wakings!!! I will keep you all posted on how things go...

Offline ZacsMumme

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Re: Almost 7 Months and Regressing! HELP!
« Reply #69 on: February 16, 2012, 18:27:03 pm »
Good one you and what a good outcome. :-*

I also wrote a list of everything he has exhibited and everything we have done to try to make things better - the paed said that based on all that he was displaying he could say without a doubt that it was reflux
This is what I did with Z and we had the Dr say the same thing. The power of preparing aye ;) (its like studying for a test ::) )

Dare I ask what was the blood taking for? hugs - that would have been tough.

We noticed improvement on a PPI within a week, but only just...for some LOs it can take up to 2 weeks. I hope this helps :-*
***Sara***
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DS1 - Our sensitive soul. Silent reflux.

DS2 Our cheeky chipmunk. Reflux, MSPI.

Offline ceilidhf

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Re: Almost 7 Months and Regressing! HELP!
« Reply #70 on: February 16, 2012, 23:55:07 pm »
The blood work was to check for anaemia - apparently it's common among babies with reflux! Just got the meds - he is on Nexium...a little freaked out as the literature all mentions ages 1 and up. Guess I have to trust that my paed knows what he is doing since he has written TONS of papers on the subject!!! Gave him his first dose about half an hour ago so will see what happens from here on...

Offline amayzie

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Re: Almost 7 Months and Regressing! HELP!
« Reply #71 on: February 16, 2012, 23:58:10 pm »
Often meds will say a restriction like that- but the drs know how they can be used. Good luck with the new med!
Katy, Mummy to Hamish!


Offline ZacsMumme

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Re: Almost 7 Months and Regressing! HELP!
« Reply #72 on: February 17, 2012, 00:32:15 am »
Hugs, it is hard not to worry but your ped will know what he is talking about. FWIW Z has been on a PPI since 4 months. Without it he was a mess! With it, he is a different child. Yes it has been hard now in weaning it, and yes I have also started giving probiotics to help get his gut well balanced with good bacteria etc, but he is okay, and the alternative would have left me with a baby/toddler that wouldnt sleep, feed or play because he was in pain all the time :( In Nz the same drug (essentially omaprezole) is commonly prescribed for moderate to severe reflux cases in infants and is considered safe if under guidance from your Dr/Ped.

Give it the 2 weeks, and if you are still feeling uncomfortable with it, and you don't see the progress you want you can go back to your Ped to discuss alternatives :-*
 
***Sara***
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DS1 - Our sensitive soul. Silent reflux.

DS2 Our cheeky chipmunk. Reflux, MSPI.

Offline Erin M

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Re: Almost 7 Months and Regressing! HELP!
« Reply #73 on: February 17, 2012, 03:04:28 am »
Thank goodness you got some answers!  ((hugs))

Offline ceilidhf

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Re: Almost 7 Months and Regressing! HELP!
« Reply #74 on: February 17, 2012, 15:48:28 pm »
Thanks for the support ladies...
My next big question is when should I restart sleep training? Do I wait until the reflux is 100% controlled or start now that we have the new meds? I definitely noticed by about a week into the Zantac that, although he was still waking, it wasn't down to pain some of the time. I suspect that he has become used to us being there and rocking him for the past month or so and now can't go back to sleep without that - so back to square 1 with the prop elimination...I'm thinking that I can probably start the elimination of rocking now, at least when first putting him down when i KNOW he isn't in pain. What do you think?