Yes I've seen the FAQ. Great idea:)
And I agree about getting treatment and diagnosis. My GP knows nothing about TT, and the paed was not knowledgeable either. I asked many times whether the TT could be causing issues and they all said no. Granted, DS is an extreme case and not all TT are as bad as his, but still.
Thankfully I could get info and support here
, IRL nobody knew anything about TT.