Hey hon,
I've BTDT... my son was diagnosed with FPIES at 6 months old. He has just recently been diagnosed with an enzymatic deficiency now at 10.5 months old so we know if was not FPIES, but we had many, many issues with solids. He has outright refused anything but pears from 7 months old until just 2 weeks ago. I have received fantastic advice and support from the wonderful ladies here. If you want you can have a look at my thread for some more ideas:
refusing new foodsI will tell you what worked for us. I have kept offering and offering at pretty much every meal. It broke my heart because he just flat out refused everything, and I ended up throwing so much food away. Then after his latest reaction to pears, I stopped offering because we were going to the hospital for a scope for him 2 weeks later and I wanted to keep him on his formula only until then. So for those 2 weeks, I sat him in his high chair, and didn't offer any food. Gave him toys to play with, little forks and little spoons, but didn't pay extra attention to him - we ate our meal as a family and discussed, involved him but that was it. Then when we came back home from his 3-day hospital stay, I offered him some green beans on his tray... and he just started eating them! I added some chicken that I was eating and ever since he has not looked back. He is eating!
So this may not work for everyone, but for us I think that watching us eat in a happy setting, healing properly from his last reaction, and also the fact that I just put food on his tray and did not pay attention to him made him want to try it, without feeling the pressure, yk?
So I agree with pp - as much as it's better to introduce foods earlier than later to allow LO's to develop their skills and tastes and textures, you just cannot force him - it will make it worse. You can just offer, offer and offer, making the setting relaxed and happy (and trust me, I know how hard this is!) and hopefully he will catch on eventually.
It is also key I think to carefully choose which food you are offering from an FPIES perspective. Once he accepts a food that doesn't hurt his tummy, he'll be much more confident to try new stuff afterwards.
I'm not sure if you've seen this document, it's basically a survey of FPIES moms as to which foods were well tolerated by their LO's. It can give you a head start to try to pick foods that are not likely to cause a reaction (but remember though that FPIES is totally individual - all LO's do not react to the same foods, so this is only a guide).
Feel free to PM me about this and FPIES.
Hang in there - it seems like it'll never happen but I promise you it will - 3 weeks ago I was desperate and now my DS happily eats at every meal
https://docs.google.com/spreadsheet/viewanalytics?hl=en_US&formkey=dFJKLUhPUWtYRW5RZk1ESGVMOHlVMkE6MA