Author Topic: Is this reflux? DS can't eat! :(  (Read 2739 times)

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Offline MommyCam

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Is this reflux? DS can't eat! :(
« on: April 21, 2007, 14:26:31 pm »
My DS has been having reflux problems (we think) and it is getting worse. We have perscriptions from the ped: zantac and bethanechol, but they don't seem to help. The bethanechol is supposed to help his food go down and stay down - which might be working, he doesn't spit up as much.

And actually I'm not sure it is reflux. He is in pain when the food hits his belly, not really when he swallows. It is really hard to burp him but when he does he is better. Then of course cries for his food because he is so hungry. So this is how feeding goes:
cry/eat.5oz/scream/cry/cry/cry/scream/burp/rest/cry/eat.5oz/scream/cry...etc.
It takes AGES to give him 5oz! Last night at his second cluster feed he had only eaten 2oz after an hour and I finally just held him and he zonked! We decided to skip the dream feed (first time we skipped it ever) and LO ended up sleeping till 5am! Then of course the whole issue started again, but it only took 45 minutes to feed him 5oz.

Does that sound like reflux? I started him on his meds Wed. How long is it supposed to take to work? I have switched bottles...should I switch formulas? Any recomendations?  :'(
~Colby, mom to dear son Cameron

Offline macsmum

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Re: Is this reflux? DS can't eat! :(
« Reply #1 on: April 21, 2007, 15:10:31 pm »


It can take 10 days for the meds to start working, depending on what they are.
all the crying sound familiar, what about hiccups, my ds had these alot and his breath smwlt acidic? iykim

Emma
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Offline MommyCam

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Re: Is this reflux? DS can't eat! :(
« Reply #2 on: April 21, 2007, 15:21:39 pm »
He does get hiccups a lot - we are going to try some different formula. This all started about 2 weeks ago, when we started to give him more formula that EBM (he is 7 1/2 weeks).
~Colby, mom to dear son Cameron

Offline macsmum

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Re: Is this reflux? DS can't eat! :(
« Reply #3 on: April 21, 2007, 15:49:09 pm »


does sound like reflux, what formula are you currently using?

have you put his crib on a slight incline?

Emma
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Offline MommyCam

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Re: Is this reflux? DS can't eat! :(
« Reply #4 on: April 21, 2007, 15:53:11 pm »
We are starting on Enfimil AR today, we'll see if that helps. Last night part of the issue could be overtired, but not at every feeding. He is getting good naps in-I have to wake him to feed him. But his A time is almost all Eating!

I have tried laying him down on his tummy, as he is comforted when pressure is applied to his tummy or he lays tummy down over my lap when I burp. But he won't sleep on his tummy. After about 10 minutes or so he starts fussing. We don't have his mattress inclined, but he sleeps on one of those inclined pillow brace things.

I do use Mylicon drops, I have tried in the bottle and straight in his mouth after he finishes eating. They certainly can't hurt, but I haven't noticed that they help much.

He wasn't having constipation problems-actually, I thought his meds were causing diarehha but now he hasn't pooped in 24 hours.

I don't know. We are just trying to get as much in him as he will take. It is so hard seeing him hungry and wanting to eat but being in too much pain to do so. I am documenting everything and hopefully can get back to the doctor before Monday.
~Colby, mom to dear son Cameron

Offline macsmum

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Re: Is this reflux? DS can't eat! :(
« Reply #5 on: April 21, 2007, 17:08:59 pm »


good idea re, documenting, i am sure the doc will sort you out, until then hope things go ok :-*
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Offline donna_issabella

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Re: Is this reflux? DS can't eat! :(
« Reply #6 on: April 21, 2007, 18:48:14 pm »
Hi there,

Emma and I are following each other, must be the reflux mommy brigade  ;D

My ds also has reflux.  :'( Unfortunately it is destined to be, as boys do have a higer incidence rate.
Our background: reflux reared its head the first time we used formula when he was 4 weeks, as i had a bad R breast - not enough milk- and he mauled the left to an extent that it was too sore to nurse. Only had 2 feeds, but in retrospect he was EXTREMELY fussy and we attributed it to my eating garlic and him not sleeping that day - not realising the lack of sleep was actually due wo his discomfort. Then at 7 weeks things took a turn for the worse. ++ reflux and coughing and spluttering, esp at night. he has always sneezed and hiccuped alot, but even that got much worse. Also i noticed that he was always a fuss pot over weekends when my parents visited. Later i realised it was those weekends/days that my milk and dairy consumption had sky rocketed. So i started to cut it out as much as possible (Not easy) and we went from occasionally using gaviscon, to regular use. Helped some, but he would still arch away from the breast when feeding, latch and turn away, latch and turn away... you get the picture. Also he would arch in bed, sleep fitfully, milk would shoot from his nose etc. So I went to see a paediatrician with special interest in GI matters. Obviously diagnosed reflux immediately - GP told me ds had colic!!!  ::)  ::)  ::) and we started on Zantac and domperidone (anti emetic which helps with LES control and peristalsis). Things improved somewhat, but ds was still unsettled, so we changed to omeprazole. What a different child. he got better over the next few days to 2 weeks, the time it took for the inflammation to settle down, but the screeching when feeding and burping disappeared almost immediately and he stopped moaning all the time.

As the paed said to me, sometimes it is first the reflux that causes the problems, but sometimes it is MSPI - milk and soya protein intolerance- that is the main culprit and causes secondary reflux with oesophagitis/ gastritis.

OK, enough chit chat  ;) How old is your ds? Did he have episodes like this when BF? Did you have particularly bad days? Could you attribute it to anything specific? Have you eliminated at least all dairy from your diet? The fact that you say when you started the formula things got much worse, makes me think it might be MPI at least. I assume it is a cow' s milk based formula (CMBF). Bad news in that case, as Enfamil AR is also CMBF. We bought it for our son, but after he did so poorly on the Cow and Gate, i didn't even want to try that. If you are using the Enfamil and it works, great, just remember to ALWAYS give the meds at least 20-30 minutes before the milk, so that it has time to be absorbed. Also, Zantac/ranitidine is weight sensitive, and as ds grows and gains weight, the dosage will need adjusting. I am not familiar with bethanechol as an adjunct, so can't comment on that.

OK, think i have bored you enough now. Hope that answers more questions than it raises.

Good luck! It isn't easy, but worth it when they get better.
DI

BTW A great site to visit too is : http://www.cryingoverspiltmilk.co.nz/

Offline MommyCam

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Re: Is this reflux? DS can't eat! :(
« Reply #7 on: April 21, 2007, 22:23:02 pm »
When I was BF-- no, he didn't. I remember reading about this and being thankful that I didn't have that issue in addition to my breast pain. Now he's the one in pain! I would gladly take dealing with my mastitis than his reflux. But too late now.   :(

We will give the Enfamil a couple days to see if it works. If not I'll try something else. Maybe buying the next nipple size up, although something tells me his problem with eating slowly isn't the stage 1 nipple.

Do you give the Zantac 20min. before feeding? That is what we have to do with the bethanechol, but I thought we could put the zantac in his bottle or as needed during feeds.
Thanks so much.
~Colby, mom to dear son Cameron

Offline donna_issabella

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Re: Is this reflux? DS can't eat! :(
« Reply #8 on: April 22, 2007, 06:20:58 am »
No, the zantac is a regular once or twice a day (in divided doses) medication, not as needed. Especially at the start, as you want the inflammation to settle down ASAP. You don't necessarily have to give it 30 minutes before hand, but i have to with the omeprazole. I just find that putting it in the milk, baby doesn't always drink all the milk, so does not drink all the medication. So giving it separately before hand, i know H has all his meds. I just squirt it into a teat unconnected to a bottle, and he drinks it fine that way. MUCH easier than struggling with a syringe, as it tastes vile.

In my mind, if I give the meds 30 minutes prior to feed on an empty stomach in the mornings, I know there is good absorption, no side effects and then by the time he feeds, the acidity is lowered and the feed should not hurt.

My DS has been having reflux problems (we think) and it is getting worse.

And actually I'm not sure it is reflux. He is in pain when the food hits his belly, not really when he swallows. It is really hard to burp him but when he does he is better. Then of course cries for his food because he is so hungry.

It makes sense that when he feeds, the pain is worse, as when he drinks, the tummy makes acid to digest the milk and that acid refluxes into the oesophagus which then causes the pain.

Good luck and let me know how the Enfamil works out. I am really interested to know.

DI

Offline yaya

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Re: Is this reflux? DS can't eat! :(
« Reply #9 on: April 22, 2007, 08:40:55 am »
Hi there! Just wanted to offer my support, we went through similar issues when Ds was 4mos. It can take a while for every thing to settle even when you do figure it out. I would look into the MSPI, Ds was fine while I BF then I had to stop because of terrible mastitis too and he virtualyy stopped eating the next day. After a few mos and an endoscopy we learnt he had severe reflux and was MSPI (we are now weaning the reflux meds at 18mos and he can handle SOME  diary).
let me know if theres anything I can do to help!

Offline MommyCam

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Re: Is this reflux? DS can't eat! :(
« Reply #10 on: April 23, 2007, 02:25:09 am »
What is MSPI?
We are now dealing with painful constipation (screaming/crying when pushing out stools). Remember my LO is only 8 weeks, this whole thing started when I began formula 2 weeks ago.

The constipation is a side effect of the reflux medication...I am tempted to just stop the meds and try a thicker formula for a bit. If we could knock this without meds that would be great.

DS is finally asleep now - we had a warm bath to relax him/help with constipation, and were able to get him to eat face down and kind of sideways (tummy down is most comfortable for him).

Any other suggestions? Calling the ped again tomorrow...
~Colby, mom to dear son Cameron

Offline macsmum

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Re: Is this reflux? DS can't eat! :(
« Reply #11 on: April 23, 2007, 06:04:47 am »
mspi= milk,soy proein intolerance..

Emma
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Offline yaya

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Re: Is this reflux? DS can't eat! :(
« Reply #12 on: April 23, 2007, 11:14:48 am »
those can be symptoms of MSPI too. Yep the reflux meds give some side effects but should settle after a few weeks. As for the constipation, u can 'stimulate' by gently inserting the tip of a cotton bud with vaseline in his bottom, often they 'release' very quickly with this method. I wouldn't stop the meds until u've given it all time to settle. reflux is pretty painful for the LOs.

Offline MommyCam

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Re: Is this reflux? DS can't eat! :(
« Reply #13 on: April 23, 2007, 17:36:19 pm »
Yikes, we had a scary BM this morning. The consistency of play-dough and about as long as his entire intestine, seems like. And that was after much help from mommy.

I might be wrong, but I am going to lay off the meds and try Enfimil AR alone for a couple days and see what happens. This is so hard-not ever really knowing what the right thing is! Everyone has different opinions! I have to trust my mommy instinct for my particular child. I will post how it goes, tho.
~Colby, mom to dear son Cameron

Offline yaya

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Re: Is this reflux? DS can't eat! :(
« Reply #14 on: April 24, 2007, 11:29:35 am »
let us know how u get on!