Milk/Soy Protein Intolerance - MSPI - READ HERE!!!

[motherof3]

Oh yes, it is not invasive at all!  I would do the stool test first before putting your lo through anything more invasive.  I ordered the test myself through Enterolabs, the dr does not have to order it.  Here is there website https://www.enterolab.com/Home.htm

 You have to pay for the tests out of pocket and then you can submit it to your insurance.  The milk and soy protein intolerance testing was about $200 but well worth the money to me so that I knew for sure.  They send you the container and all the stuff to overnight it back.  Then after you send it back it took about 2wks from when they received it to get the results. 

Andrea

[marcimommy]

Well we went to the GI yesterday and he prescribed a lot of tests. We will see the results soon 

Question: Does anybody have experience with swithing LO from bf to hypoallergenic formula? Could that help with his diarrhea and gassyness? 

[motherof3]

Not sure about the hypo formulas b/c they still have milk proteins in them, some kiddos do okay on them.  Abby was so so on Nutramigen but still crying during most feedings but did LOADS better on Neocate.  Fussyness went away and so did the spitting up!

Andrea

[shanjakson]

hey how does your bub get diagnosed with having this problem??  i suspect my 5month old son has it.  He has brought up some of his feed every feed since birth.  spews 5-6times a feed, during, before ,after whenever you pick him up basically.  he doesn't have reflux.  i have been to so many doctors and they all say it is normal.  he will grow out of it.  is there any tests that can be done to prove this?

[lovedtodeath]

There is a sub for cheese. It is made with brewer's yeast. I got it from the gluten-free pantry. I made burritos and nachos with it....... soooooo good. There is a white "cheese" and a yellow "cheese". I did not care for the white.

[Jimbob]

Some lo's do ok with hypoallergenic formulas but others need to go to an amino acid based formula like neocate or elecare. When we switched from regular formula to neoacte we had to wean James. We started with 1oz of neocate to 6oz of regular formula then gradually increased the amount of neocate and reduced the regular formula. We had our ds drinking just neocate by the end off day 3. It might be a little more difficult to wean from breastmilk as theyhave to get used to the bottle aswell but worth giving it a chance. You could always pump and freeze or pump and dump your breastmilk to keep your supply going just incase switching to formula does not work out.

[motherof3]

I had Abby's stool tested for MSPI since her symptoms were GI related.  It was done through Enterolabs in Dallas, TX.  You don't have to have dr's orders to get it done and you pay out of pocket and then submit it to your insurance.

Andrea

[GraceKellysmom]

I have to pop in and say I don't think formula is the answer unless breastfeeding options have been exhausted. Breastfeeding is the best way to heal the damage to their gut and will have the highest possibility of not having allergies later in life. In the long run, I'd rather not be able to eat something for 6-18 months than have my child not be able to eat milk for the rest of their life.

And I also wanted to say (brag) that I am pumping for a MSPI baby right now. I get about 12oz extra per day. He is local to me and we drop off milk to him weekly. I have donated over 1000oz so far. There are milk share websites out there, if anyone is interested in trying to get breastmilk. There are other moms who abstain from certain allergens for their own babies, so milk/soy-free milk can be found.

[lovedtodeath]

I had to abstain from dairy, wheat, oats, tomatoes, apples, citrus, peanuts and seafood with DD and she is now allergy free. 

I had ds tested very thoroughly and he is not allergic to formula but the doctor said that her testing showed that formula would prolong his illness but breast milk would help heal it. I tried therapies to cut down on my allergies b4 having ds, he is allergic to tomatoes, onions, milk, but not most other dairy, yeast, tea, garlic, coffee, mushrooms, oats, but not wheat.....I think it depends what you ate when pg.

And for the donating....I have to jump in here and say GOOD FOR YOU! That is really great.

[GG]

And I also wanted to say (brag) that I am pumping for a MSPI baby right now. I get about 12oz extra per day. He is local to me and we drop off milk to him weekly. I have donated over 1000oz so far.

That is so wonderful!!  Not to mention a great way to increase your milk supply! If I do have a third I'm going to look into doing that.

[Jimbob]

Well done I am really glad you can do that. It is not an option for everybody though. I know there are some people that go on a ted diet and their children still have problems. If a limited diet works whilst breast feeding though that is great as I do think it is best to breast feed if you can.

[lovedtodeath]

thanks jimbob. I am going crazy remembering all the ingredients to avoid and they still sneak in every once in a while. I would agree tthat being on a restrictive diet while taking care of a family would not be possible for some.

I was so tired Saturday that I stared at the salad bar and could not for the life of me remember to avoid onions. Had a vomiting baby who could not sleep later. If allergens continues to be in my breastmilk too often, formula could be better for him....allergin ridden breast milk is NOT superior to formula.

[Jimbob]

Sevenbites, good luck with the eliminationdiet whilst breast feeding because it sounds like you are doing really well. Don't let one incident bother you too much. On the other hand don't upset yourself if you do end up changing to formula.

[lovedtodeath]

Thank you Jimbob. I had to do this with my first, but of course, I had nothing to do but take care of her. Making everything from scratch and remembering it all was a little easier.

[lovedtodeath]

I forgot to mention... my first could not have any formula, so I had NO choice!