Author Topic: when did you know it was mpi? More help needed please  (Read 12009 times)

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Offline ZacsMumme

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Re: when did you know it was mpi? More help needed please
« Reply #105 on: November 12, 2013, 07:20:20 am »
Fwiw colic calm worked well for tommy during the Colicy period....
If you have have no luck with the slow teat the var flow worked well here. BUT I think that was because T was used to my fast flow bf first YK.

Hugs, I remember countless mornings BEGGING DH to stay home from work and crying after he left :'( it's so hard. Holding your hand Hun
***Sara***
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DS1 - Our sensitive soul. Silent reflux.

DS2 Our cheeky chipmunk. Reflux, MSPI.

Offline babybarr

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Re: when did you know it was mpi? More help needed please
« Reply #106 on: November 12, 2013, 08:11:03 am »
We tried a variflow teat before but it was way too fast. I guess cos they only btl fed they started with slow teats. Only changed up cos of changing formula which was thicker and Gaviscon kept blocking the teat. Sara how long before you noticed a difference on neocate?
LAURA xx




Offline ZacsMumme

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Re: when did you know it was mpi? More help needed please
« Reply #107 on: November 12, 2013, 17:42:29 pm »
I noticed a difference in 36 hrs. But, I think t was hungry to on my breast milk because he was refusing to fed properly. So at least he wasn't hungry YK?
I think most people see improvement in 3-5 days and by 2 weeks you should see def improvement. Things weren't perfect, but t would eat, he would sleep longer than 30 mins (day and night), he had good periods of the day and stopped refluxing for the most part
***Sara***
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DS1 - Our sensitive soul. Silent reflux.

DS2 Our cheeky chipmunk. Reflux, MSPI.

Offline babybarr

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Re: when did you know it was mpi? More help needed please
« Reply #108 on: November 12, 2013, 17:56:55 pm »
Well this morning I thought things were great. Pride comes before a fall! Both boys slept 4 a great nap j ova 2hrs and h 1hr 45 but they've pretty much spent the rest of the day crying. Plus we started early after that morning feed again. Plus the early start. It's hard enough with 1 with reflux etc let alone 2. Slowly losing the plot...
LAURA xx




Offline pinkladyangel

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Re: when did you know it was mpi? More help needed please
« Reply #109 on: November 12, 2013, 19:32:16 pm »
Sending hugs hun. Hang in there. Take each day at a time.

Offline babybarr

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Re: when did you know it was mpi? More help needed please
« Reply #110 on: November 15, 2013, 16:50:05 pm »
Thought I'd better post progress. Less vomiting - significantly so. That early morning feed has been better. Not perfect but not alternate vomiting which is good. We've had some good naps but today naps have been awful. And they just scream when tired but I guess that mayb reflux related as the bad naps? I def think that neocate has made a difference I just wish sleep would follow.

I'm wondering if the omeprazole is a high enough dose as we've had refluxing then screaming today. Also j has been refluxing then stopping breathing it's been scary.  I have appt for our 6wk check on wed so these are things I'm going to bring up.
LAURA xx




Offline MasynSpencerElliotte

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Re: when did you know it was mpi? More help needed please
« Reply #111 on: November 15, 2013, 17:02:14 pm »
(((Hugs))) Laura that is scary! Hopefully a dosage increase will be the final piece in the puzzle and you and those wee boys will get some good rest.
Heidi




Offline ZacsMumme

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Re: when did you know it was mpi? More help needed please
« Reply #112 on: November 15, 2013, 23:55:09 pm »
Scary to hear about J. Do you think he is aspirating?

Glad the neocate is helping :-*
The PPI dose is low of hopefully an increase will make the world of difference.

Hugs hun
« Last Edit: November 15, 2013, 23:57:24 pm by ZacsMumme »
***Sara***
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DS1 - Our sensitive soul. Silent reflux.

DS2 Our cheeky chipmunk. Reflux, MSPI.

Offline babybarr

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Re: when did you know it was mpi? More help needed please
« Reply #113 on: November 17, 2013, 21:27:45 pm »
Scary to hear about J. Do you think he is aspirating?
I think he must be, H did it today too :(  It's bad, it's not just a bit of reflux which "gets caught" like when something goes the wrong way they really really struggle to breathe.  Keep your fingers crossed that the GP is "allowed" to increase the dose and we don't have to wait for a referral to a paed.

LAURA xx




Offline MasynSpencerElliotte

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Re: when did you know it was mpi? More help needed please
« Reply #114 on: November 17, 2013, 21:45:53 pm »
Fx Laura!
Heidi




Offline ZacsMumme

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Re: when did you know it was mpi? More help needed please
« Reply #115 on: November 17, 2013, 23:08:36 pm »
Scary to hear about J. Do you think he is aspirating?
I think he must be, H did it today too :(  It's bad, it's not just a bit of reflux which "gets caught" like when something goes the wrong way they really really struggle to breathe.  Keep your fingers crossed that the GP is "allowed" to increase the dose and we don't have to wait for a referral to a paed.

I thought t was aspirating and so did our dr (who is quite up to play with reflux etc) but he wasn't, it was just rattling around the voice box and sounded like it. Fx this is the same for your boys :( keep an eye on symptoms of pneumonia just in case though x
***Sara***
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DS1 - Our sensitive soul. Silent reflux.

DS2 Our cheeky chipmunk. Reflux, MSPI.

Offline babybarr

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Re: when did you know it was mpi? More help needed please
« Reply #116 on: November 20, 2013, 21:32:54 pm »
So the gp has doubled their dose to 5mls of omeprazole - does that sound about right Sara? They both weigh around 4.6kg. She initially seemed reluctant but after they'd been weighed and she looked it up she said that dose was well within the limits so was happy too. They've been referred to a paed and are likely to see oliver's consultant as he does allergy too. J has been really unsettledsso I'm so hoping the increase will help.
LAURA xx




Offline ZacsMumme

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Re: when did you know it was mpi? More help needed please
« Reply #117 on: November 20, 2013, 22:35:21 pm »
It's very low :-\ but if it does the trick it may be all they need. All LOs are differential n how they respond.
http://www.cryingoverspiltmilk.co.nz/medicaltreatment/dosageschedule/
It may be to go higher you need a pead to monitor there.

Hugs sweetie. If J is struggling he may need a higher dose than H
***Sara***
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DS1 - Our sensitive soul. Silent reflux.

DS2 Our cheeky chipmunk. Reflux, MSPI.