Author Topic: when did you know it was mpi? More help needed please  (Read 20126 times)

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Offline babybarr

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when did you know it was mpi? More help needed please
« on: October 13, 2013, 19:14:37 pm »
I'm thinking the little boys are milk intolerant. Ds1 was well still can't drink much pure milk and I think these two maybe going the same way. What were your los symptoms and when did you make the switch and were you right?
« Last Edit: November 01, 2013, 18:13:13 pm by babybarr »
LAURA xx




Offline Buntybear

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Re: when did you know it was mpi?
« Reply #1 on: October 13, 2013, 20:52:18 pm »
Hi Laura,

Sorry to hear you think your LOs might be MPI  :-[

Sure you have seen these links before but here they are again

MSPI - lots of info here - please read!

Does my LO have food intolerances?

Have a look esp at the 2nd link to see if any of those symptoms are present

x

Offline MasynSpencerElliotte

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Re: when did you know it was mpi?
« Reply #2 on: October 13, 2013, 21:35:16 pm »
Hmmm with M & S it was ezcema, mucous in poo, some foul spit up, and general fussy/windy stuff.  With E I got smart and was down to almost no dairy before she was born. For her it was wind/foul smelling spit up/fussy. No ezcema or mucous poos so far.
 
Just tried some super processed dairy last night and she is paying for it today. I really miss cheese, but I am fairly certain dairy and soy are a no go (had been using soy milk in my coffee and while symptoms were better dairy free they werent gone entirely until I took that out,  but not gone so far as hidden soy and things were great).
Heidi




Offline ZacsMumme

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Re: when did you know it was mpi?
« Reply #3 on: October 13, 2013, 23:11:37 pm »
Big red flag for me was the mucus...but also maxed out on reflux meds but still fluxing, colic behaviour - but all the time or all night long (more like tummy cramping, gas, wind, squirming, grunting) touch of eczema between the eyes. Refusing to feed

Hugs lovely. Have you noticed a few things? X
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Offline rach321

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Re: when did you know it was mpi?
« Reply #4 on: October 14, 2013, 06:25:32 am »
Excema, loads of spit up, stomach cramping, general fussiness and constipation. After we switched he was much better.

Offline pinkladyangel

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Re: when did you know it was mpi?
« Reply #5 on: October 14, 2013, 06:31:58 am »
Silent reflux, very gassy, loose nappies and over eating as he was sucking to get rid of pain. we hardly slept for the first 5 months. paed put him on neocate and never looked back. Bit harder now as he's nearly 13 months and still has allergy.

Offline Hedgehog17

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Re: when did you know it was mpi?
« Reply #6 on: October 14, 2013, 06:51:10 am »
Horrible exploding up the back poos, reflux, feeding difficulties, crying with pain, eczema, hives & projectile vomiting when given regular formula milk, and FTT  :'(

Wasn't fully sorted out until 6mo when he switched to Pepti 1 formula as I had no milk left even though I'd gone dairy free.

We should have sorted it out sooner but I had no idea what it was and the pead was useless  :(

Get a trial of hydrolysed formula asap, you've already had a child with mpi so that is good enough reason for it ti be very likely in subsequent children!

Good luck  :-*

Offline babybarr

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Re: when did you know it was mpi?
« Reply #7 on: October 14, 2013, 08:27:40 am »
Have you noticed a few things? X
well we've already changed formula from a "heavy" one to something lighter which helped for a while.  Then H was still really uncomfortable, squirming and periodically screaming so put him on an "anti colic" one which helped but he's still not right.  He's also really constipated.  Then J is just also squriming and screaming.  Now I know they cry but they're not content.  They grunt and groan and squeal yk? Plus both of them are now more frequently being sick and J reluctant to finih his feed...
LAURA xx




Offline ZacsMumme

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Re: when did you know it was mpi?
« Reply #8 on: October 14, 2013, 19:38:51 pm »
Hugs Hun, not what you need is it :-*
I think HH idea is a good one. Can you get some hydrolysed formula to trial?
***Sara***
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DS1 - Our sensitive soul. Silent reflux.

DS2 Our cheeky chipmunk. Reflux, MSPI.

Offline MasynSpencerElliotte

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Re: when did you know it was mpi?
« Reply #9 on: October 14, 2013, 20:09:36 pm »

I think HH idea is a good one. Can you get some hydrolysed formula to trial?

I agree. So far we are 3 for 3 with mpi so must be a genetic component.
Heidi




Offline babybarr

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Re: when did you know it was mpi?
« Reply #10 on: October 14, 2013, 20:35:56 pm »
Can you get some hydrolysed formula to trial?
Saw a gp today (about my blood pressure) and said I thought they were mpi like O (O still cannot have too much dairy and can't drink "neat" cows milk on a regular basis) and she said well they're still so little and stick with the anti colic formula and see how you go ::)  I'm thinking about getting an appt with my usual GP who also knows everything to do with O...  Feel really fed up about it tonight which is my gut nagging me I think :-\
LAURA xx




Offline clazzat

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Re: when did you know it was mpi?
« Reply #11 on: October 14, 2013, 20:59:20 pm »
I think you should push for a second opinion - I know that people have been fairly sceptical about my diagnosis of mpi for ds, but he screamed all the time if I had dairy and didn't if I didn't so it seemed to be a bit of a no-brainer. We tried giving him a dairy dessert over the summer and he woke up every hour overnight, so I am still convinced that he is mpi even though I haven't ever really noticed the textbook symptoms.

Offline babybarr

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Re: when did you know it was mpi?
« Reply #12 on: October 14, 2013, 21:01:11 pm »
Thanks Clare, you'd think I'd listen to my mummy gut a bit more by now what with everything wouldn't you ::)
LAURA xx




Offline ZacsMumme

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Re: when did you know it was mpi?
« Reply #13 on: October 14, 2013, 22:09:04 pm »
Hugs Laura! You are listening to your mama instinct :-* it's always so much harder to work out what's going on when your in the thick of it.

I agree wth Clare - go for another opinion xx
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DS2 Our cheeky chipmunk. Reflux, MSPI.

Offline my3girlsjde

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Re: when did you know it was mpi?
« Reply #14 on: October 14, 2013, 22:25:20 pm »
You've got some great advice here hun but wanted to drop off some support and hugs.

I agree about getting the second opinion. And your own gut. If you think 'something' is up then you're probably right. The behaviour seems to indicate discomfort. Hydrolized formula may make a big difference.
Vicki - nursing student and proud mother to three refluxers in two years





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