Author Topic: when did you know it was mpi? More help needed please  (Read 11239 times)

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Offline ZacsMumme

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Re: when did you know it was mpi? More help needed please
« Reply #90 on: November 04, 2013, 17:56:10 pm »
Sorry weight gain is becoming a problem. Got to. Say though, it was only when T started to loose weight that I was listened too ::)

Fx the omeprazole starts to help in the next few days :)

Lots of hugs
***Sara***
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DS1 - Our sensitive soul. Silent reflux.

DS2 Our cheeky chipmunk. Reflux, MSPI.

Offline babybarr

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Re: when did you know it was mpi? More help needed please
« Reply #91 on: November 04, 2013, 18:24:36 pm »
I'm pretty sure the weight isn't a prob it's just cos she put the scales on the couch which is soft and absorbs sum of the weight. I've tried weighing them myself at home and no way have they not put anything on however I'm just glad it's meant they've got the omeprazole over ranitidine. It's the suspension but can't have it till tomorrow as our chemist didn't have it in. We'll see. I've got to have them weighed wed and Fri!
LAURA xx




Offline ZacsMumme

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Re: when did you know it was mpi? More help needed please
« Reply #92 on: November 04, 2013, 18:40:29 pm »
Ahh I see. Sorry missed that.
The suspension I s pretty nasty, to get it into Z I had to give a chaser of gripe water and squirt it fast into the side of his cheek!

Were they given 5mg to start with a day?
« Last Edit: November 04, 2013, 18:42:03 pm by ZacsMumme »
***Sara***
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DS1 - Our sensitive soul. Silent reflux.

DS2 Our cheeky chipmunk. Reflux, MSPI.

Offline babybarr

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Re: when did you know it was mpi? More help needed please
« Reply #93 on: November 05, 2013, 16:46:54 pm »
They have the 5mg liquid but are on 2.5mls a day.  They don't weigh very much still though - according to the dr H is 7lb 9oz and J 7lbs 2oz.  I would say H is nearer 9lb and J probably just over 8lbs.

How long does it take to work and how should I be giving it - before milk? empty stomach?  We had no proper leaflet with it... ::)
LAURA xx




Offline ZacsMumme

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Re: when did you know it was mpi? More help needed please
« Reply #94 on: November 05, 2013, 18:18:44 pm »
Posted on youro other thread Hun
***Sara***
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DS2 Our cheeky chipmunk. Reflux, MSPI.

Offline babybarr

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Re: when did you know it was mpi? More help needed please
« Reply #95 on: November 07, 2013, 17:13:04 pm »
I'm lost again :(  these boys been on omeprazole now which I do believe is the right thing - however I'm just not convinced things are "ok"  I feel like I wish I'd trusted my gut to change to neocate if they'd offer it.  I do think the nutramigen is making them sick - afterall they weren't sick on the other milk :-\  I'm just confused - am I just overreacting, some babies are fussy and can't sleep right regardless??

ETA that I noticed they are congested (well you can hear a wet sound when they breathe) and the other thing is they seem to have swollen eyelids - could these be symptoms of allergy?
« Last Edit: November 07, 2013, 17:21:14 pm by babybarr »
LAURA xx




Offline pinkladyangel

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Re: when did you know it was mpi? More help needed please
« Reply #96 on: November 07, 2013, 19:20:21 pm »
Our lo sounded asthmatic when he slept. Also you could here him constantly swallowing too.  :'(

Offline ZacsMumme

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Re: when did you know it was mpi? More help needed please
« Reply #97 on: November 07, 2013, 19:23:12 pm »
Give the meds a bit longer to work love. But yes...t had those symptoms and they were food related. :-\
If your gut says to neocate give the dr a call and ask. Maybe they will do what my surgery did and give you a can or two to trial..

The losec dose is still low... :-\ I wonder if it's too low...

Hugs Hun. Thigs got worse for both my boys between 6-16 weeks
***Sara***
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DS1 - Our sensitive soul. Silent reflux.

DS2 Our cheeky chipmunk. Reflux, MSPI.

Offline babybarr

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Re: when did you know it was mpi? More help needed please
« Reply #98 on: November 07, 2013, 21:24:35 pm »
Sara what is the standard sort of dose? That dose I'm guessing is based on weight which uIe Dr weighed them in at 7lbs 9 and 7lbs 2 and obviously they're only a bit over 6wks old.  Not reassuring to know about your boys!!!  I'm seeing the health visitor in the morning so I'm going to say how I feel and what I want and take it from there. She may have more influence. Otherwise I have an appt bkd with the gp on Tuesday for a review.
LAURA xx




Offline ZacsMumme

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Re: when did you know it was mpi? More help needed please
« Reply #99 on: November 07, 2013, 22:33:05 pm »
Tom was 6 weeks when put on losec 5mg a day, this is a low dose. He was approx 4 kg maybe. Ppis are not weight sensitive like h2 blockers so the range is great. There is a low, med, high and v.high for all weights but the difference between them minimal. Once both my boys were on their that dose of losec I never had to increase again. So by 9 weeks maybe T was on 20 mg the max dose for his weight which by then was maybe 6 kg. The average dose is 10mg I think. Some babies respond really well to a low dose, which is why they start low often here.

This  is from the cryingoverspiltmilk.co.nz site
" Dosage and administration: Information shows that babies/children may respond to as little as 0.7mg per kilogram per day, or need as much as 3.3mg per kilogram per day. One dose does not fit all of the same weight with the same severity of reflux, and it appears to be very individual as to what dose suits each person. The important fact here is to use the best dose to suit the child. High and very high doses should be managed with the oversight of a paediatrician.
Low dose range is 0.7 1.5mg per kilogram per day.
High dose range is 1.5 3.0mg per kilogram per day.
Very high dose range is up to 3.0 3.3mg per kilogram per day.
The complete dosage may be taken as a single morning dose, or divided into two separate doses to be administered morning and night. It is most effective if given half an hour before a meal (1). "

So if your boys are say 3 kg (sorry not good with lbs.) then 2.5mg is still very low.
***Sara***
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DS1 - Our sensitive soul. Silent reflux.

DS2 Our cheeky chipmunk. Reflux, MSPI.

Offline ZacsMumme

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Re: when did you know it was mpi? More help needed please
« Reply #100 on: November 07, 2013, 22:34:20 pm »
And sorry I didn't mean to freak you out re 6-16 weeks, but I don't want you to feel disappointed if things don't get better right away - I found disappointment almost killed me :-*
***Sara***
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DS2 Our cheeky chipmunk. Reflux, MSPI.

Offline babybarr

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Re: when did you know it was mpi? More help needed please
« Reply #101 on: November 11, 2013, 21:36:46 pm »
So I bkd a gp appt on Fri. The hv came Fri morn and said she couldn't believe how unsettled they were and that they seemed worse than the previous time 2wks prior. She agreed they should try neocate and called the gp ahead of my appt. So we started neocate on sat morn. Some improvement with things like both boys actually settled and slept for a couple of naps and j actually slept after the 2nd night feed although h was still sick and unsettled. However they screamed for ages after their 4pm feed today and I'm not sure why.
LAURA xx




Offline MasynSpencerElliotte

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Re: when did you know it was mpi? More help needed please
« Reply #102 on: November 11, 2013, 21:43:56 pm »
Was thinkng of you yesterday..but E distracted me before I could remember to post! (Must give you a high five for managing to post with two babes!).

Hmmmm confusing how it started well and then went to pot at 4 pm! Hoping it works out and things settle down for you.
Heidi




Offline ZacsMumme

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Re: when did you know it was mpi? More help needed please
« Reply #103 on: November 11, 2013, 22:31:34 pm »
I'm really glad your HV agreed with you that they need something more. I'm hopeful the neocate will help them Hun, it really is amazing stuff. (Though it's not perfect - huge improvement compared to beforehand here)

I found the only thing with the neocate was that it is thin so it does come back up. Though it didn't hurt t as much. Also because it stopped hurting T had more which took a while do r his body to just, hence more spilling and lots of wind ::)

Even on neocate t was Colicy. Ie 4-8 pm was just rubbish ::) xx
***Sara***
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DS1 - Our sensitive soul. Silent reflux.

DS2 Our cheeky chipmunk. Reflux, MSPI.

Offline babybarr

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Re: when did you know it was mpi? More help needed please
« Reply #104 on: November 12, 2013, 06:29:44 am »
Yes they've been takin more and wind seems to be a prob which I think was the issue at 4pm. Changed back to a slower teat hoping that'll help. Just can't get over this unsettledness after early morning feed both up this morning unhappy. I don't get it. Dh grumpy cos I'm now needing his help at this time too now and he has to work. Tearing my hair out. If they settled after this feed it'd make such a difference.
LAURA xx