Author Topic: Why is she doing this? I'm on the edge!!  (Read 11415 times)

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Offline Lolly

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Re: Why is she doing this? I'm on the edge!!
« Reply #30 on: March 15, 2014, 21:15:48 pm »
You go girl! Good luck, make sure you let us know how you get on.

Laura


Offline Shiv52

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Re: Why is she doing this? I'm on the edge!!
« Reply #31 on: March 20, 2014, 23:01:35 pm »
How'd the appointment go Hun?





Offline Hollie-Mae

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Re: Why is she doing this? I'm on the edge!!
« Reply #32 on: March 26, 2014, 10:42:08 am »
Hi ladies!!
Well, last Thursday was a full on day to say the least!! The appointment was absolutely horrendous. Despite how clued up I was, regardless of the list of symptoms sat on the desk in front of him and the use if medical terms I used to explain what has been going on for Rosie, the paediatrician STILL refused to accept that she has reflux, in fact he then went on to argue that since her weight is now over the centile she was at when he last saw her, she no longer needs to be on cows milk free formula as that has made no difference, wants me to reintroduce dairy and soya, and spent most of the appointment questioning why I wasn't 'appreciative' of my daughter's weight gain, and why I wasn't getting any help at home!! He wants to see us back in four weeks, with his last words being 'by then I want to hear that you've had at least four nights to yourself'!!!!!

As you can imagine I cried so much I gave myself a headache. I was absolutely flabbergasted. He said not sleeping is not a symptom of reflux, 'babies don't sleep', and she is gaining weight despite refusing milk so 'just feed on demand from now on, why are you sticking to a regime, she is a baby not a robot'!!!

I then left a went to our local hospital where I wish I'd seen a paediatrician for her in the first place, though we were turned away from a&e within 10 minutes as only drinking 0.5oz every 4 hours is not 'urgent' enough. I must admit by this point I had fully lost the plot and was at breaking point, and had no idea where to go next to get the help I knew Rosie needed.

Said useless husband was also not with me, so I was left to lose my marbles!!

The day ended on a high however, as I managed to get her an appointment with a private paediatrician and allergist, and for the first time in nearly 7 months, a medical professional finally listened to me!! It was exactly how it should be, he was telling me what Rosie's symptoms were, he was filling in the blanks, predicting what I would say next, and we went as far back as constant hiccups in utero- big sign of reflux!! I left feeling like the elephant had been lifted from my shoulders for the first time in 6 months!! He diagnosed her with gastritis, colitis and eosophagitis, all side affects of long term burning from gastroeosophageal reflux disease. He also suspects dairy, soya, wheat and gluten allergies!!

So she is now on four different meds, and it's now a slow process to reverse the affects of acid damage. Poor poppet. I have to say a huge huge thank you ladies, for your advice, knowledge and experience, as without this I wouldn't have had a clue that she was still suffering with this, and wouldn't have known to fight so hard for her!! Xxx

Offline Lolly

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Re: Why is she doing this? I'm on the edge!!
« Reply #33 on: March 26, 2014, 12:57:51 pm »
{{HUGS}}

What a rollercoaster! I'm glad at least one Dr has listened to you but you really shouldn't have had to pay for that >:(. Maybe the difference is that the private Dr was a specialist in the field rather than a general paediatrician. The paed my DS saw knew the basics but we have had more sense out of the paediatric GI Dr really.

What meds have they put her on just out of interest!

Laura


Offline michaeljacknnugg

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Re: Why is she doing this? I'm on the edge!!
« Reply #34 on: March 26, 2014, 13:55:38 pm »
True, you shouldn't really have to pay, or to fight so hard either. But I'm glad you're on the road to progress, and feel that you finally have someone in your corner.

Counting on my fingers, my child is 6 and I've barely had 6 nights away from him (most of those with work) - so the paed can go figure!!
My 'little man' - kind-hearted Spirited whirlwind, 2008
My love, my everything - BabyTwo, Nov 2015

Offline Hollie-Mae

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Re: Why is she doing this? I'm on the edge!!
« Reply #35 on: March 27, 2014, 12:26:23 pm »
Laura I'd love to tell you that he's a general paed, but he's a GI specialist!! And he told me he sees children like Rosie all the time!! Once his letter arrives I'm making a formal complaint, I still can't believe how patronising, ignorant and utterly useless he was!! We're a week tomorrow since she's been on the meds and the difference in her is remarkable! She's now taking so much more milk, and yesterday had two hour and half naps! I'm still having to go in and help her through at the 45 min mark as this wu has become a habit, but whereas before she would wu at 45 and cry if I tried to resettle, she now just needs her dummy in and pressure on her back and she stays asleep through it! Also last night I cut the dream feed as it has actually been waking her, and she slept through, with only one cry out (which was possibly teeth), for TWELVE HOURS!! She has never done this!!! I had my first early night in nearly 7 months!!

The meds are-
2ml ranitidine
10mg omeprazole
2ml cetirizine
300mg nalcrom

Xx

Offline Shiv52

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Re: Why is she doing this? I'm on the edge!!
« Reply #36 on: March 28, 2014, 11:14:45 am »
I am so pleased for you both. Well done hun for fighting so hard for your baby girl and I'd definately follow up with your own doctor and hopefully think twice next time a mummy asks for help xx