Milk/Soy Protein Intolerance - MSPI - READ HERE!!!

[GraceKellysmom]

Nope, cocoa butter is the "meat" from inside the cocoa bean. It is not really a "butter" and is fine. Juniormints are made on machines that also process candies made with milk, so caution if your lo is truly "allergic" and not just "intolerant."

My bisquick (the real stuff) is milk/soy protein free. So I bet it is just your off-brand stuff. Which is funny because most off-brands are less likely to use milk! Yes, buttermilk is a big no-no.

[Jennifer2e]

luv2savelives-My ds is allergic to eggs, soy, dairy, wheat and peanuts.  And that is just what we know about.  We have eliminated all these things from his diet because I couldn't stand watching him be sick.  His worst symptoms are cough that I CANNOT stop and runny nose and diarreha. Anyway though a MD I go to who leans toward alernative medicine suggested a woman that sounds much like the place you went to.  We were/are very leary about it but decided to give it a try.  It is cheap where we take Aidan and in NO way hurts him so I decided what the heck.  We have been going for a few weeks.  She found many other things that he was allergic to as well as the things we already knew.  BTW I DID NOT tell her what we knew he was allergic to before she started nor did she ask.  She has "de-sensitized" him to many things.  So far we have added back sugar and eggs with NO problems.  I'm so hopeful that we can add back wheat and soy also.  We go back next week so we shall see.  He hasn't had a cough or runny nose since we started his diet change and started with this woman.  Well two days he did after staying with my mom and she fed him what she thought was a dairy free cheese but I read the label and found a milk protien :roll: .  I was freaking out because he was sick and I didn't know why and a week later found this out :evil: .  She told us he may not be able to have dairy even after she is done because she can't help with digestive issues only allergies.  Sorry this is so long I just wanted to say we are doing the same thing

[Diego's Mama]

I was at a GI specialist for Emilio the other day and he told me that 50-60% of babies who have milk protein intolerance (Emilio does) also have soy protein intolerance.

Just an FYI.

[Mommy_Christine]

Thanks for your help Stacy.  I am finding it very hard to determine whether or not something is safe!  I have two more questions that hopefully you or someone can help me with.

-I heard caramel flavoring has milk in it, what about caramel color?  (pretty sure this is ok, but wanted to make sure)

-I have heard that sausage is bad, but I can't find anything in the ingredients list that could possibly be bad.... is all sausage unsafe (eg has milk)?  what ingredient should I be looking out for?

-Do all chicken broths have milk?  What is the culprit ingredient there?  The only thing that looked suspicious was "soy and corn protein"....

Thanks again for any information!

Christine
(dd is 6 months old and is allergic to milk and egg)

[GraceKellysmom]

Caramel color is ok.

Most sausages have milk or soy protein in them. Since you're just milk free, you should have an easier time finding an ok one. I think it is stuff like flavorings, maple flavoring, butter flavoring, and caseins that I find in them.

With chicken broth, butter or butter flavor. Most of these will just have soy protein for those avoiding soy protein. My favorite chicken and beef broth is Swanson's Low Sodium. They also have a vegetarian vegetable broth that I use all the time, now in convenient carton to refrigerate what you don't use!  :lol:  :roll:  :wink:

[LukasMom]

I have a 7-month-old daughter with a family history of allergies on both sides.  I don't know if it's important what kind of allergies have been seen in the family, but we have had all kinds, from hay fever to eczema to food allergies to asthma. 
She has not exhibited any symptoms to any food I have given her so far, except that she did get a minor diaper rash when she was fed non-soy non-dairy hypoallergenic formula.  Ah, the irony. 
She is breastfed.  The formula was only fed to her once, and we have no plans to use it again.
What I would like to do is introduce yoghurt at 9 months and see if she does all right. If so, I would go on to introducing ricotta cheese, then cottage cheese, and cream cheese.  I would hold off introducing whole milk until one year.
I would like to do the same thing with wheat products--introduce bagels at 8 months or 9 months and see if she does all right, then introduce the more hardcore wheat products at one year.
I would really hate for her to miss out on the nutrition provided by things like yoghurt and bagels.  And of course if she had symptoms of any kind, I would take her off the food immediately.
Since all of you on this thread have had experience with allergies and intolerances, what do you think of this plan? What would YOU do?
I will talk to my pediatrician before I do anything, of course, but I'd like some input from those who have been there, so if you can give me your insight, I thank you.

[elliott's mom]

This has been such a helpful bunch of reading.  My first son was MSPI, or so we concluded after returning to the US for a visit.  My sister identified it and put us on Nutramigen.  Returning to the UK, the GP agreed that it was likely and Aidan was on a similar (hydrolysed whey protein) formula.  No problems after that.

THIS time round, it's more problematic.  I had no idea my breastmilk was adding to the problem.  Elliott is BFing much better than his brother ever did, and ironically, it's made him suffer more.  I will switch to the MSPI diet immediately.

But can someone help with this?  I'm in the UK and I've mentioned these problems to my health visitor and GP (who have both looked at me as if I'm talking about a mythical illness!).  I've had to top up, as my milk hasn't really been sufficient in volume for Elliott.  And I mentioned I wanted a hydrolysed formula, given my other son's history.  Again, I was met with complete ignorance.  I asked the GP to suggest something and he gave me a script for a soy formula (I've read the same medical studies, which say that babies with a milk protein intolerance will have a 50:50 chance of reacting to soy, as the soy protein is also a long chain). 

I finally found Cow and Gate Omneo Comfort (hydrolysed whey).  Are there any other formulas available in the UK, in case this isn't working out?

Just out of curiosity, would you say this is why Elliott feeds every 1.5 hours, day and night (and then throws a fair bit of it up again)??  I only ask, as the lack of sleep is damaging both Elliott and his parents.

Thanks for any advice, Ginny

[GraceKellysmom]

Hi Ginny and welcome. I don't know too much about the hydrolyzed formulas, I've been able to bf both my children now without supplementation. I'm going to post a link to a neat website, that has a forum that you may be able to find your answer in or post the question to meet other UK moms of MSPI-ers.

http://www.mspiguide.com/

I DO know that many MSPI babies have problems with hydro formula, the proteins are still there just "predigested." (One mom recently "joked" predigested by whom?  :shock:  :x ) So you could try asking for a different formula, say a goat's formula, to see if that made a difference.

The best thing for these babies is of course, breastmilk. And kudos to you for finding the MSPI diet, it gets easier every day to stick to it! If you have access to a lactation consultant, who could give tips on increasing supply, you may find that you have plenty of milk for your ds and not even need a formula.

Pop on over to see us at on the breastfeeding forum, let me know how old your ds is and we'll see if we can help.  :wink:

[Livvismum]

Hi

Sorry so late getting back to you, been a manic day.

Lukasmum - this is just my personal opinion but I would try and get calcium and other vitamins/fibre into your lo in other ways for as long as you can. We did not even think about food allergies even though I get very bad hayfever and animal allergies and DH also gets hay fever and very mild eczema - we now have a milk allergy to deal with - Livvis is now 10 months her doc reckons it won't be gone before 1 year. As you have the whole caboodle of allergies by the sounds of it I would say leave it as long as you possibly can to introduce ANY of the typical allergens and reap the benefits later on when you don't have hay fever or asthma to contend with.


Ginny - We're in a similar boat to you. We've never tried Nutramigen as I requested Neocate when diagnosed. Neocate is an elemental forumla, meaning it is made up to simulate a milk rather than being broken down from milk products (not sure that's the most accurate description but it gives you the gist).

We are trying Neocate here and there as I am returning to work in 3 weeks and as I have a low supply not sure how long my milk will last, however I am taking it cautiously as it is possible Livvi is reacting to it(very bad nappy rash and a bit snuffly - could be teeth though).

What I am trying to say in a waffly way is if you can try and get your milk supply up especially if your lo is less than 6 months. As far as your doctor is concerned, they don't like the word allergy (as real as it is) and may respond better to the word sensitivity. IMO, get yourself clued up on as much research as you can (print out info too - especially from other medical sites) and then go in, discuss but tell them what treatment you would like for your child, I would also ask to be referred to a pediatrician. If you want to chat/discuss in more detail then pm me.

Sara

[LukasMom]

I appreciate your frank reply.  I will definately take it to heart.
I am still waiting for my pediatrician to get back to me, but I imagine she will probably tell me something similar.  Basically, wait until one year, because if you introduce it earlier and there is an allergy, the allergy will be worse that it would have been otherwise.
Thanks again. 

[Livvismum]

Hi Lukas mum, I hope I didn't offend you  :oops: . It's such an emotive subject, particularly as we got very bad advise. If we were given a second chance and had the experience of other mums to go on before we started weaning and dabbling with formulas then we may not be dealing with difficult diets and trying to educate or family and friends (I sometimes think some of them  think we're mad and that I'm just neurotic!)

Once again, no offence was intended, I just find it's easier to come straight to the point. 

Sara

[huffy75]

We have recently been told that the youngest has acid reflux disease.  My older kids all have been lactose intolerant, but this little one can not even use the special formula we used. (Lactofree).  No matter what we try he is up most of the time throwing up or having gas problems.  So, I am wondering if you are talking about this acide reflux?

Any help would be appreciated,

Cara

[GraceKellysmom]

Acid reflux is something different, however some doctors have been studying a possible link between reflux and milk or soy intolerance.

There are medications that you can give your baby to help with the reflux, if you haven't found our reflux forum, scroll down on the main index. Our med was prevacid.

[huffy75]

I appreciate you getting back to me so fast.  I was not sure of the difference until you pointed me in the right direction.   :lol:

Thanks again,


Cara

[kim&savannah]

maybe this should be added to the list of ok foods/foods to watch for, but I just realized that canned tuna has soy in it!  :shock:  :?  I'm so bugged that they add vegetable broth to the tuna--I never even thought to look, so I've been eating it off and on for the last 4 months--no wonder why Savannah seems to have random flare-ups!

Also, Walmart's shortbread cookies are ok!!!!!!    So exciting to find a  cheap premade cookie I can have.  (of course, probably better when I didn't know about this--at least I had to put the effort in to make cookies then).

Just wanted to let people know about what i've found

~Kim