Milk/Soy Protein Intolerance - MSPI - READ HERE!!!

[GraceKellysmom]

Hey Kim, try the label on "low sodium" starkist tuna, I think that is the soy free one. I also found another, Chicken of the Sea chunk white albacore, that is soy free, but I don't like the taste unless it's cooked in something.  :roll:

You shouldn't have told me about the cookies....  :lol:

[matt&chris mom]

Stacy (GraceKelly's mom)

What ingredient is in the Mc Donald's bun that makes it not milk free? Their website says the hamburgers are milk free. I had McDonalds on Friday and my son spit up a tiny bit once. Saturday, I tried Chickfila again because I wasn't completely sure if there grilled chicken was dairy free or not, but hubby wanted that for lunch. My son spit up twice in the evening and the 2nd time it was almost a vomit and he was congested. The ingredients don't appear to be milk derived but I did notice after I looked at the ingredients again and noticed something that I didn't notice before. One ingredient is butter flavored vegetable oil. I'm assuming this is probably the problem. I think I have come to the conclusion none of my fast food choices are good choices for me which makes it very hard since we are out and about a lot.

Trying to figure out what to eat for dinner is just as hard because just about everything we ate before had at least one processed item that contains milk. Where do you find most of your recipes? I haven't completely convinced my hubby that cooking with rice milk will be okay. I don't want to have to make 2 meals since making one is a challenge.

Thanks for your help.

Minerva

[GraceKellysmom]

The McD's buns were milk-free, and then they weren't, and then now they are supposedly milk-free again.  :lol:  :roll:  If you're only dealing with an intolerance, you could do a test and make sure everything else in your diet is "clean" for four days and only eat the McD's. Then you will know if it is the McD's or not. Even if the website says milk-free, you always run the chance that your store ran out of buns and are using something else. So if lo seems to be bothered, skip it for a few months and then try again.

PS a little spit up is normal for all babies!

Buttered flavored vegetable oil is a milk-protein product. The hard thing with chicken sandwiches from anywhere is what they are cooked in. Most fast food restaurants use a butter-based "whirl" liquid to grill in. Or they butter and toast the bun.

My fav out-to-eat is Burger King Whopper no cheese. And Taco Bell 7 layer burritos no cheese/no sour cream. We are trying so hard to only eat out once/week right now and I've been trying new recipes, I should post a few! Here are some ideas to get you started:

Barbeque chicken/baked potato/steamed veggies or corn-on-the-cob
Meatloaf/mashed potatoes (with rice milk and dairy-free marg)/frozen veggies
Hamburgers/fries/baked beans
Chili soup or Meatball Minestrone (this is dh's favorite!)
Any meat/veggie combo in a crock pot!
Fried eggs and toast/bacon
Pancake (made with Bisquick) and sausage night
Spaghetti with meat or without (dh can add his own cheese)

Hardest part is finding substitutes for your faves! I still make chicken enchiladas and just let dh top his with cheese and sour cream, I use guac. Or I make a shepard's pie with golden mushroom condensed soup instead of cream of mushroom and let dh put cheese on his.

[matt&chris mom]

Thank you for responding.

I keep forgetting kids do spit up. It just seems every time I manage to avoid milk products he doesn't spit up, isn't congested and his cradle cap disappears. Its the not so apparent  products that I keep eating and causing problems. I bought Smart Balance regular instead of light one day and it toook about 5 days before I figured it out. I'm still trying to figure out if soy products bother him. Every time I have soy products it turns out I also had milk products. 

We've been eating lots of spaghetti and tacos lately because they are fast, easy and safe. I just need to start my meal planning earlier. We used to decide what to eat for dinner a few hours before dinner.  I don't really like Burger King or Taco Bell, but I may learn to like them. 

We had chipolte chicken fajitas tonight and I managed to make my own Mexican rice since all the box mixes I have seen were not milk free.


Thanks again,
Minerva

[matt&chris mom]

I just discovered that Hyland's teething tablets are milk based.
Now I know why DS kept spitting up this week. I kept thinking, but I didn't have any milk. I should have known to look at the ingredients.

Minerva

[Nicola K]

I've read through all the postings in this forum and found them extremely helpful - thanks to everyone.  I've included a brief history before my questions.

I think my ds is more sensitive to milk proteins than I thought before. Max is 15-months and still spits up on a daily basis (I can't imagine this is normal at his age).  He always has dark circles under his eyes and suffers from quite severe gas at times (usually after eating something with milk proteins in it that I missed).

He has been on Alimentum formula since he was three months old and the plan is for him to remain on it until 18-months.  Until he was about 10-months I had to treat each bottle with Ovol (anti-gas) drops in order to make him more comfortable. 

He used to also be soy intolerant but seems to have outgrown that (I can feed him tofu without a severe negative reaction).

I'm going to get my Dr to send us to a specialist of some sort to try and sort things out - do I need an allergist or a nutrionist?

The brand of bread I have been feeding him contains the following ingredients - I thought it was safe but now I'm not sure: Whole wheat flour, water, yeast, glucose-fructose/sugar, vegetable oil (soy or canola), wheat gluten, salt, calcium propionate, monoglycerides, sodium stearoyl-2-lactylate.

I also wanted to confirm that I need to avoid Malt extract, and lecithin - correct?

Sorry for all the questions but I hate the fact that I'm causing him all this discomfort.

[GraceKellysmom]

The malt extract thing is a case by case basis. And so is the soy lecithin, some can tolerate it and some can't. The bread looks ok to me. It is hard to tell with the preservatives, which could contain milk and which don't.

You might try posting those questions on the mspi forum at

http://www.mspiguide.com   and click on forums. Those ladies are always so nice and helpful.

I personally would go with an allergist, just because my past experiences with a nutritionists are that they aren't very knowledgeable about what to eat in allergy situations. (No offense to nutritionists, they just aren't trained to be allergists)

[Nicola K]

My Dr. just left a message saying that he is too young for an allergist and if I want to take him to a nutrionist to go ahead but she can't give me a referal as it is not covered under our government health care.  In other words - get lost!!

I'm really frustrated now.

How old were your kids when they saw allergists?

[Livvismum]

I would try and find some way to see an allergist. I can't see why lo would be too young. Too young for allergy tests maybe, but not for allergy advice from an allergy specialist. Even if they don't test they could probably give better advice than a nutritionist.

Just my opinion from our experience.

Sara

[GraceKellysmom]

Mine have never seen allergist, our intolerance is more of a digestive problem than an actual ALLERGIC REACTION (!). If my dc was having severe allergic reactions, like a swelling up or breathing difficulty.

Our intolerances were diagnosed, like I said before, by our normal children's doctor. She did a stool culture and found it positive for blood. We eliminated certain foods until the stool culture came back clean, no blood.

It is merely an upset tummy and loose nasty bowel movements that we deal with, so I know I can control the input to get better output.

[Livvismum]

What Stacy is saying is good advice. I jumped to the conclusion that there were allergy symptoms but this may not be the case. You may want to try and see someone indpendently or try and find a doc who is more in tune with allergies and intolerances. Not sure how the system works over there and how is easy that would be.

Sara

[Nicola K]

Thanks for all the advice.

I found a pediatric allergist and spoke with them about seeing my son.  They will see him if they have a Dr's referal so we went and insisted that we get a referal today.

The Dr. was quite agreeable (seems she wasn't aware that a pediatric allergist existed in the area) so hopefully we will get into see him soon.

Thanks again for all the advice. 

Nicola

[Nicola K]

Hi There

Thought I'd close the loop with you all on my dairy challenges with Max.

Allergist did skin tests and confirmed that he is allergic to milk (as well as nuts which was a bit of a shock  ).

Now that I know what I'm dealing with my next step is to see a pediatric nutrionist to learn what I can and can't feed him.

Thanks to everyone for their help and support.

[Nicola K]

Me again!

The pediatric dietician recomended we take Max off the Alimentum and put him on Neocate.  She thinks the fact that Alimentum is milk based is the cause of the spit-up and a lot of the gas issues.

I've done some research on Neocate and it is available in both an infant junior formula here in Canada.  I have to special order it by the case which is extrememly expensive.  The money is not the issue if he'll drink it but my HUGE concern is that he won't take it and I'll have landed up spending over $150 for nothing.

Does anyone have any experience with anything like this?

Livismum (Sara) I know that you were using this formula and that Livi is the same age as Max.  Are you still using it?

[GraceKellysmom]

Do you have any other options besides the Neocate? I mean, he is 16 months old ... could he just drink enriched rice milk? Is he not soy intolerant? So he could drink enriched soy milk? Those both have the same calcium/Vit D as cows milk. Why formula? And why expensive yucky formula at that?  :roll:

I am SO glad you were able to figure out the nut thing. And of course, the milk allergy. Knowing for sure would be such peace of mind. And now you can see a nutritionist, hopefully one that specializes in allergic diets.